SSc-China @CScleroderma
Chinese Organization for Scleroderma Joined May 2019-
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SSc-China retweeted
I am my passion not my disease! Scleroderma patients are more than their disease. Join us in our #sclerodermaday campaign. #iammypassion #sclerosmile #scleroderma #systemicsclerosis #sclerodermaAwarenessMonth
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#rarediseaseday2020 Thank you for those who have helped us and thank you for all the volunteers who pay a great contribution to raise awareness of scleroderma.
#300millionthanks #rarediseaseday We are scleroderma patients and come from China. Thank you, to the doctors who have helped us Thank you, to the doctors fighting the COVID-19 outbreak 300 million rare disease patients from all over the world Invite you to support doctors
Join us to raise awareness on international rare disease day youtu.be/eqjRCivb2Wc
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887 Followers 937 Following Scleroderma Unit @royalfreenhs Tweets by long term #dcSSc patient, Nicola Whitehill, volunteer https://t.co/b5D1YSUThT
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887 Followers 937 Following Scleroderma Unit @royalfreenhs Tweets by long term #dcSSc patient, Nicola Whitehill, volunteer https://t.co/b5D1YSUThT
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RareConnect @RareConnect
18K Followers 5K Following 🌐Connecting #raredisease patients globally at https://t.co/v6rTTK0X6I. 💻Website help at @RareConnectSup.
RARE Revolution Magaz... @RareRevolutionM
12K Followers 7K Following Digital magazine giving a voice to those affected by rare conditions and the charities that support them. Contact us: [email protected]
Rare Diseases Clinica... @rarediseasesnet
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Rare Disease UK @rarediseaseuk
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Rare Diseases Ireland @RareDiseasesIE
4K Followers 1K Following Equitable access to healthcare and opportunity for all! RDI - advocating for equitable access for the 300,000 people in Ireland living with rare diseases.
EURORDIS-Rare Disease... @eurordis
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National Organization... @RareDiseases
40K Followers 3K Following #NORD has been the voice of the U.S. #RareDisease community for 40+ years strong. Official U.S. sponsor of #RareDiseaseDay. On Bluesky at @ https://t.co/D7PIT4k0Py
Rare Disease Day @rarediseaseday
42K Followers 3K Following 29 February 2024 is Rare Disease Day. Raising awareness for patients, families and carers around the world that are affected by rare diseases. #RareDiseaseDay
Rare Disease Report @RareDR
16K Followers 1K Following Breaking news, patient stories & FDA updates within the rare disease community. Listen to our podcast: https://t.co/xUkFDfCDUV, hosted by @GiulianaGrossiTrends for United States
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