SclerodermaRF @SclerodermaRF
Scleroderma Unit @royalfreenhs Tweets by long term #dcSSc patient, Nicola Whitehill, volunteer https://t.co/b5D1YSUThT sclerodermarf.blogspot.com Royal Free Hospital, London Joined October 2017-
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SclerodermaRF retweeted
#GastroparesisAwareness Month #UnmetClinicalNeed #heartburn #acidreflux #bloating #malnutrition #watermelonstomach blog.raynaudsscleroderma.co.uk/2018/05/gastro… #SclerodermaFreeWorld #Research #Scleroderma #SystemicSclerosis #Raynauds #RareDisease #NoCure #UnknownCause #BePartOfResearch #GERD
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SclerodermaRF retweeted
Wowee 9 years ago! #SKIN Involvement blog.raynaudsscleroderma.co.uk/2017/04/skin-i… #SclerodermaFreeWorld #RaynaudsFreeWorld #Research #Scleroderma #SystemicSclerosis #Raynauds #Autoimmune #RareDisease #NoCure #UnknownCause #LifeChanging #ConnectiveTissue #TightSkin #BePartOfResearch #DermatologyCare
SclerodermaRF retweeted
FDA Approves 1st new Fibromyalgia drug in 15 yrs - Tonmya (cyclobenzaprine HCl sublingual) as treatment of fibromyalgia in adults. Based on 2 phase 3 trials and 1400+ pts. Dose 2.8 mg tabs 1-2 SL qhs (peak concentration 4.3 hours; t1/2 life = 36 hrs, longer w/ elderly, liver dz)…
SclerodermaRF retweeted
dailymail.co.uk/health/article… 12 years since I came out of the scleroderma awareness closet 😱 Grateful to still be here, still no cure 😭 royalfreecharity.org/stories/volunt… #sclerodermaFreeWorld #RaynaudsFreeWorld #BePartOfResearch #scleroderma #systemicsclerosis #LifeChanging #RareDisease
SclerodermaRF retweeted
Nailfold videocapillaroscopy (NVC) in Dx of systemic sclerosis - study of 258 NVCs found giant capillaries (specificity 98%) & capillary density to be best at defining a scleroderma pattern (39%). Density ≤8 capillaries/mm best defined dropout (AUC 0.911); having both = 91%…
SclerodermaRF retweeted
SclerodermaRF retweeted
SclerodermaRF retweeted
Happy 77th Birthday @NHSEngland 🥳 Thank You for keeping me alive 💖 #flashback blog.raynaudsscleroderma.co.uk/2018/09/happy-… #SclerodermaFreeWorld #RaynaudsFreeWorld #Research #Scleroderma #SystemicSclerosis #Raynauds #Autoimmune #RareDisease #NoCure #UnknownCause #LifeChanging #BePartOfResearch
SclerodermaRF retweeted
SclerodermaRF retweeted
Happy #WorldSclerodermaDay 🥳 #SclerodermaAwarenessMonth Research offers #HOPE rdn.nihr.ac.uk/news/rare-dise… #SclerodermaFreeWorld #RaynaudsFreeWorld #Research #Scleroderma #SystemicSclerosis #Raynauds #Autoimmune #RareDisease #NoCure #UnknownCause #LifeChanging #BePartOfResearch
SclerodermaRF retweeted
Happy #WorldSclerodermaDay 29th June 🌻Delighted to be included here @VersusArthritis 💖 versusarthritis.org/news/2021/june… #SclerodermaFreeWorld #RaynaudsFreeWorld #Research #Scleroderma #SystemicSclerosis #Raynauds #Autoimmune #RareDisease #NoCure #UnknownCause #BePartOfResearch
SclerodermaRF retweeted
Happy #WorldSclerodermaDay 🌻 #SclerodermaAwarenessMonth 'Living with a rare disease without a cure, is most character building that's for sure'. #Research offers #HOPE #SclerodermaFreeWorld #RaynaudsFreeWorld #Research #Scleroderma #SystemicSclerosis #BePartOfResearch #NoCure
SclerodermaRF retweeted
June #SclerodermaAwarenessMonth MEDICAL RESEARCH. Research offers HOPE. Hope that improved treatments, better understanding and ultimately a cure. #SclerodermaFreeWorld #RaynaudsFreeWorld #Scleroderma #SystemicSclerosis #Raynauds #Autoimmune #RareDisease #BePartOfResearch
SclerodermaRF retweeted
June #SclerodermaAwarenessMonth PERSONAL EXPERIENCE SURVIVAL GUIDE #SclerodermaFreeWorld #RaynaudsFreeWorld #Research #Scleroderma #SystemicSclerosis #Raynauds #Autoimmune #RareDisease #NoCure #UnknownCause #LifeChanging #ConnectiveTissue
SclerodermaRF retweeted
June #SclerodermaAwarenessMonth MEDICAL DREAM TEAM Infographic Expert specialist centres TY Prof Denton 🌟😇 @RoyalFreeNHS #SclerodermaFreeWorld #RaynaudsFreeWorld #Research #Scleroderma #SystemicSclerosis #Raynauds #Autoimmune #RareDisease #NoCure #UnknownCause #LifeChanging
SclerodermaRF retweeted
June #SclerodermaAwarenessMonth sclerodactyly hands and the subsequent #disability. Stiff, fragile fingers covered by tight skin blog.raynaudsscleroderma.co.uk/2018/05/sclero… #SclerodermaFreeWorld #RaynaudsFreeWorld #Research #Scleroderma #SystemicSclerosis #Raynauds #Autoimmune #RareDisease #NoCure
SclerodermaRF retweeted
June #SclerodermaAwarenessMonth ORAL / DENTAL Infographic blog.raynaudsscleroderma.co.uk/2018/11/the-sc… #SclerodermaFreeWorld #RaynaudsFreeWorld #Research #Scleroderma #SystemicSclerosis #Raynauds #Autoimmune #RareDisease #NoCure #UnknownCause #LifeChanging #ConnectiveTissue
SclerodermaRF retweeted
#SclerodermaAwarenessMonth TELANGIECTASIA Infographic Symptoms, Treatment Options. blog.raynaudsscleroderma.co.uk/2018/05/telang… #SclerodermaFreeWorld #RaynaudsFreeWorld #Research #Scleroderma #SystemicSclerosis #Raynauds #Autoimmune #RareDisease #NoCure #UnknownCause #LifeChanging #ConnectiveTissue
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644 Followers 1K Following إن لم تستطع قول الحق فلا تصفق للباطل🌸اللهم اجرنا من موت الغفلة ولاتأخذنا إلا وانت راضٍ عنا🌸وأهدنا الصراط المستقيم🌸 { ستجدنِي إِن شاء اللَّه من الصابرين}
PSG @PlasmaServices
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Camilo J. Llamoza-Tor... @CamiloJT
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mariana martinez @marianamar80866
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Chris Wincup @chriswincup
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