nicola whitehill @cosmicfairy444
BSc Hons, Barrister in Law non practising. MRSB. ResearchChampion NIHR https://t.co/Pnm79cyMeI #SclerodermaFreeWorld blog.raynaudsscleroderma.co.uk/?m=1 Southport, UK Joined September 2012-
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'Ah Great, Another Day To Spend In Bed' : blog.raynaudsscleroderma.co.uk/2017/05/ah-gre… royalfreecharity.org/news/fundraisi… #SclerodermaFreeWorld #RaynaudsFreeWorld #Research #Scleroderma #SystemicSclerosis #Raynauds #Autoimmune #RareDisease #NoCure #UnknownCause #LifeChanging #ConnectiveTissue #DreamSnatcher
Skin Tests blog.raynaudsscleroderma.co.uk/2017/04/skin-t… Read more: royalfreecharity.org/news/fundraisi… #SclerodermaFreeWorld #RaynaudsFreeWorld #Research #Scleroderma #SystemicSclerosis #Raynauds #Autoimmune #RareDisease #NoCure #UnknownCause #LifeChanging #ConnectiveTissue #DreamSnatcher #Disability #ThickSkin
The countdown is on, 1 month until #SclerodermaAwarenessMonth 🌻 Flashback 2017: blog.raynaudsscleroderma.co.uk/2017/07/flashb… Donate: royalfreecharity.org/donate #SclerodermaFreeWorld #RaynaudsFreeWorld #Research #Scleroderma #SystemicSclerosis #Raynauds #Autoimmune #RareDisease #NoCure #UnknownCause
Delighted to see #SclerodermaFreeWorld tshirt has arrived to fellow scleroderma patient, Alvin Cardinez, in The Phillipines 😍 read more about Alvin here, and please donate to his medical expenses, if you can:🙏 gogetfunding.com/help-alvin-pro… #SclerodermaFreeWorld #RaynaudsFreeWorld
The Skin in Systemic Sclerosis: blog.raynaudsscleroderma.co.uk/2017/04/skin-i… #SclerodermaFreeWorld #RaynaudsFreeWorld #Research #Scleroderma #SystemicSclerosis #Raynauds #Autoimmune #RareDisease #NoCure #UnknownCause #LifeChanging #ConnectiveTissue #DreamSnatcher #Disability #ThickSkin
Travelling with an Invisible Disability: blog.raynaudsscleroderma.co.uk/2018/04/travel… This year, 2024, I travelled using a scooter friendly taxi. Huge thanks to @A2BAccessible #BSR24 #SclerodermaFreeWorld #RaynaudsFreeWorld #Research #Scleroderma #SystemicSclerosis #Raynauds #Autoimmune #NoCure
3 weeks to go 😊 @SclerodermaRF Family Day Saturday 18th May 2024, The Atrium, @RoyalFreeNHS FREE to attend accessible to all #SclerodermaFreeWorld #RaynaudsFreeWorld #Research #Scleroderma #SystemicSclerosis #Raynauds #Autoimmune #RareDisease #NoCure #UnknownCause #LifeChanging
Eternal gratitude to the amazing Professor Denton @RoyalFreeNHS 😇 I was a patient speaker/ demonstrator for the nailfold capillaroscopy session with Prof Herrick, @DinsdaleGraham @SclerodermaM team 😇 @RheumatologyUK great to see @PhysioWillGreg 😇 #BSR24 #SclerodermaFreeWorld
#BSR24 starts today in Liverpool. Here is my presentation from #BSR15: blog.raynaudsscleroderma.co.uk/2017/03/patien… #SclerodermaFreeWorld #RaynaudsFreeWorld #Research #Scleroderma #SystemicSclerosis #Raynauds #Autoimmune #RareDisease #NoCure #UnknownCause #LifeChanging #ConnectiveTissue
Acupressure Is Not Effective For Raynaud's Phenomenon: blog.raynaudsscleroderma.co.uk/2017/04/acupre… #SclerodermaFreeWorld #RaynaudsFreeWorld #Research #Scleroderma #SystemicSclerosis #Raynauds #Autoimmune #RareDisease #NoCure #UnknownCause #LifeChanging #ConnectiveTissue #DreamSnatcher
Collating the Voice of people living with autoimmune diseases survey Can you spare a few minutes to answer this survey - anyone 18 yrs or older is welcome to take part, and people with or without autoimmune disease. Thank you! surveymonkey.com/r/TV6JF75
My Initial Diagnosis - Autumn 1997 blog.raynaudsscleroderma.co.uk/2017/04/sclero… #SclerodermaFreeWorld #RaynaudsFreeWorld #Research #Scleroderma #SystemicSclerosis #Raynauds #Autoimmune #RareDisease #NoCure #UnknownCause #LifeChanging #ConnectiveTissue #DreamSnatcher
Good Luck to all the #LondonMarathon runners tomorrow. Sadly, scleroderma has put an end to my running and walking days 😭 blog.raynaudsscleroderma.co.uk/2017/05/mobili… #SclerodermaFreeWorld #RaynaudsFreeWorld #Research #Scleroderma #SystemicSclerosis #Raynauds #Autoimmune #RareDisease #NoCure
Delighted to chat with Peter @RFLchiefexec today, highlighting the importance of #research to the #raredisease patient and the global leading @SclerodermaRF center headed up by the superhuman Prof Chris Denton @RoyalFreeNHS 😇 royalfreecharity.org/focus/sclerode… #SclerodermaFreeWorld
Delighted to be included here 😊 #SclerodermaFreeWorld #RaynaudsFreeWorld #Research #Scleroderma #SystemicSclerosis #Raynauds #Autoimmune #RareDisease #NoCure #UnknownCause #LifeChanging #ConnectiveTissue
Delighted to be included here 😊 #SclerodermaFreeWorld #RaynaudsFreeWorld #Research #Scleroderma #SystemicSclerosis #Raynauds #Autoimmune #RareDisease #NoCure #UnknownCause #LifeChanging #ConnectiveTissue
My Skin is Cured From Scleroderma: blog.raynaudsscleroderma.co.uk/2017/04/my-ski… #SclerodermaFreeWorld #RaynaudsFreeWorld #Research #Scleroderma #SystemicSclerosis #Raynauds #Autoimmune #RareDisease #NoCure #UnknownCause #LifeChanging #ConnectiveTissue #TightSkin
The Importance of an Expert Specialist Centre @RoyalFreeNHS blog.raynaudsscleroderma.co.uk/2017/04/expert… #RaynaudsFreeWorld #Research #Scleroderma #SystemicSclerosis #Raynauds #Autoimmune #RareDisease #NoCure #UnknownCause #LifeChanging #ConnectiveTissue
Diet and Nutrition: blog.raynaudsscleroderma.co.uk/2017/04/diet-a… In 2012 I changed my diet. This was a game changer for me. #SclerodermaFreeWorld #RaynaudsFreeWorld #Research #Scleroderma #SystemicSclerosis #Raynauds #Autoimmune #RareDisease #NoCure #UnknownCause #LifeChanging #ConnectiveTissue
SRUK | Scleroderma & .. @WeAreSRUK
5K Followers 1K Following Scleroderma & Raynaud’s UK is the only charity dedicated to improving the lives of people affected by scleroderma and Raynaud’s.
Scleroderma Canada @SclerodermaCAN
3K Followers 2K Following Scleroderma Canada is committed to promoting public awareness, supporting those affected by Scleroderma and funding research to find a cure.
BSR @RheumatologyUK
17K Followers 2K Following The UK's leading specialist medical society for adult and paediatric #rheumatology and #msk health professionals. Note: we're unable to answer patient queries.
Royal Free Charity @RoyalFreeChty
3K Followers 1K Following Funding medical research, facilities and services at Royal Free, Barnet & Chase Farm hospitals. All made possible thanks to the generosity of our supporters.
NIHR CRN North Thames @NIHRCRN_nthames
2K Followers 1K Following NIHR Clinical Research Network North Thames - supporting research delivery. Latest NIHR information: @NIHRresearch. To get involved in research: @NIHRtakepart
SPIN - Scleroderma @spinsclero
749 Followers 115 Following The Scleroderma Patient-centered Intervention Network (SPIN): patients, researchers, & healthcare providers, working to develop support programs for scleroderma
Scleroderma Society o.. @scleroderma_sso
2K Followers 2K Following We are committed to promoting increased public awareness, advancing patient wellness and supporting research in scleroderma. #scleroderma #autoimmunedisease
Royal Free Radio @royalfreeradio
2K Followers 514 Following Broadcasting 24/7 at the Royal Free, Chase Farm and North Middlesex Hospitals, and online at https://t.co/W1mZ0AKGez
Autoimmune List @AutoimmuneList
9K Followers 4K Following #Autoimmune diseases: information and worldwide medical news updates. https://t.co/zp6PHneZxj
Scleroderma Framed @Scleroframed
750 Followers 327 Following Gives more awareness for scleroderma in a positive and artisitic manner
Vasculitis UK - In me.. @vascuk
4K Followers 4K Following Vasculitis UK is run entirely on a voluntary basis, by people with Vasculitis for people with Vasculitis. There are no offices and all trustees are volunteers.
Scleroderma India @ScleroIndia
486 Followers 293 Following A Charitable Trust and Patient Support Group
SRFCure @srfcure
3K Followers 2K Following America’s leading nonprofit investor in medical research aimed at finding better treatments and, ultimately, a cure for #scleroderma.
World Scleroderma Fou.. @Worldsclerofnd
2K Followers 344 Following The World Scleroderma Foundation is a non-profit, non-governmental foundation based in Switzerland, promoting scleroderma research and supporting patients.
Raynaud's Assn. @raynaudsorg
4K Followers 594 Following The Raynaud's Association is a national non-profit organization providing support and education to the millions of sufferers of Raynaud's Phenomenon.
Hector Chinoy @drhectorchinoy
4K Followers 2K Following Professor of Rheumatology & Neuromuscular disease, University of Manchester/Salford Royal, UK. Interests in myositis, running, Newcastle United , views my own!
Judy Dewinter @JudyDewinter
1K Followers 1K Following Proud to be Chair @RoyalFreeChty, President @MyelomaUK, patient advocate and mum of two. Views are my own.
Sanjay Bhagani @sanjaybhagani
2K Followers 949 Following Professor, Infectious Disease/HIV Medicine, Royal Free London/UCL; Past-President European AIDS Society, doting Dad. Views my own.
RARE Revolution Magaz.. @RareRevolutionM
12K Followers 8K Following Digital magazine giving a voice to those affected by rare conditions and the charities that support them. Contact us: [email protected]
Jon Spiers @YesWeJon
3K Followers 1K Following CEO of @RoyalFreeChty. Previously CEO at @Autistica. He/him. My own views obv. RTs don't mean I agree.
Serprena Grant @serprena
183 Followers 590 Following
Sodex Olaplenty @Olaplentysales
312 Followers 5K Following I am an expert in achieving success l Success catalyst l Fundraising marketer l Crowfunding expert l Website designer l Result orientor
Paula Young @paulayoung57
8 Followers 47 Following
Sara Peters @sclerodermasara
220 Followers 339 Following Scleroderma warrior ❤️, 🇬🇧🏴🏴🏴🇯🇪🇬🇬🇵🇹🇫🇷🇪🇸🇮🇹🇲🇹🇨🇭🇳🇱🇺🇸🇮🇨🇭🇺🧳🍁🍂📖🚶🏼♀️🎶🐈
Gesare Chife @gechife
69K Followers 12K Following Mother, Wife, Nurse, In service of Community, construction enthusiast, farmer, baker, lover of books, passionate about natural healing.
Rhys Holmes @RhysHolmes
479 Followers 962 Following Brain Tumour survivor, hydrocephalus, previous CSF Leak and now battling the rare neurological disease, superficial siderosis.
Lavender Fields @deepblue532
128 Followers 1K Following « It is impossible to begin to learn that which one thinks one already knows. »
myTomorrows @myTomorrows
2K Followers 3K Following myTomorrows is a platform that links physicians and their patients facing unmet medical needs to treatments in development worldwide
Jadon Solomon @JadonSolom79721
96 Followers 3K Following
Dana Thayer @ThayerDana41668
26 Followers 253 Following
Peter Bernstein 🇮�.. @PeterBernstei15
61 Followers 146 Following “The inherent vice of capitalism is the unequal sharing of the blessings. The inherent blessing of socialism is the equal sharing of miseries.” –W. Churchill
Michele Sulka @msulka
1K Followers 4K Following Book lover and Random House sales rep. If it's live music, rugby or a long road trip, I'll be there. All opinions are, of course, my own.
SnugToes @SnugToes
922 Followers 346 Following SnugToes give comfort to cold feet! Heatable slippers with re-heatable pads... Luxuriously built slippers you can walk around in.
Johnny P @JG08039430
150 Followers 2K Following
East End Twit 💙 �.. @eastendtwit
626 Followers 2K Following Beachcomber, lawyer, theatre person, sourdough queen, travel plans reinstated.
Helena Eynon @Helena_Eynon
17 Followers 111 Following
Barry Slotnick @BSlotnick38670
118 Followers 635 Following Inspired ♌️Service to others is the rent you pay for your room here on earth✈️🇺🇸 proudly Physician. Surgeon. Humanitarian 🥼|Dog lover| 🐶
Toasty Touch @toastytouch
35 Followers 135 Following Ultra-thin heated gloves for cold hands. Texting & typing friendly. Our gloves were created by a #raynauds patient turned founder. Don't worry, stay toasty!
Kacey @Kacey76623856
39 Followers 44 Following
Beki's Beads @Bekis_Beads
19K Followers 19K Following My name's Beki I love beads. I've got so many I need to make things with them. Custom jewellery orders via Facebook and Top rated Ebay craft supplies seller.
Emma Louise Barry @EmBee1208
88 Followers 119 Following Registered Nurse at Royal Liverpool University Hospital • Former Research Support Worker at Clatterbridge Cancer Centre 💚
Prof. Toshi Yokota Ph.. @ToshifumiYokota
5K Followers 5K Following Garrett Cumming @MD_Canada Chair&Prof #Antisense #RNA #CRISPR #RareDiseases #Muscle #Bone #Neurology Trained @UTokyo_News @NCNP_pr @ImperialMed @ChildrensNatl
Bayram Farisogullari,.. @md_bayram_faris
125 Followers 229 Following Rheumatologist I @Hacettepe1967 I @UCL Research Fellow I @EMEUNET SoMe member I @Official_ASAS Fellow I @VersusArthritis Researcher
Rareminds @RaremindsUK
983 Followers 2K Following Specialised mental health and wellbeing services for the rare disease community. https://t.co/eVmeTw0aah…
Peter Hughes @upperlimbcentre
425 Followers 314 Following NW Shoulder & Elbow and Open Championship Orthopaedic Surgeon. GB Fencing Medical Committee. Past President North West Upper Limb Group. Golfer when I get time.
The Cruisin' Cripples @cruisincripples
2K Followers 3K Following Advocating #DisabilityAwareness & #Inclusion.
alegra vero @Monicamonai2
407 Followers 1K Following Personal Loans offer fast processing of your loan. Personal Loans can be used for plenty of purposes! They can be availed when you are Contact What +33766014048
Louise Colley @LouiseMColley
222 Followers 485 Following Introvert comms type and herder of academics | dog-obsessed | observer | irreverence as standard | ISTP | ex-Mensan | opinions own (occasionally)
PCDresearch @PCDresearch
188 Followers 209 Following Funding life saving research for Primary Ciliary Dyskinesia - donate today and help us find a cure!
Daniel Snape @DanielSnape7
20K Followers 17K Following Passionate about supporting #Charities, #Healthcare and #PublicSector through free to attend conferences and training, @convenzis_group @ConvenzisEdu (He/Him)
Convenzis @Convenzis_Group
9K Followers 8K Following Supporting the NHS and Public Sector to engage and learn from their peers and private sector through free certified webinars and conferences
Ashley S. Evans @SYNGAP1mom
5K Followers 4K Following Investor Francisco Partners Board @payscale @thisisgslate @litmos @SourceScrub @ZoomInfo Alum @OneCarlyle & @MorganStanley Founder @cureSYNGAP1 #SYNGAP1 🧬
ST4 Cardiology interv.. @ST4_Cardiology
1K Followers 5K Following The ultimate online preparation resource for applicants to ST4 Cardiology training, with over 450 questions questions covering all aspects of the interview.
PCD Support UK @PCD_UK
1K Followers 752 Following We talk about Primary Ciliary Dyskinesia (PCD) as widely as possible, and champion research to improve its diagnosis, management and treatment.
NIRDP @NI_RDP
2K Followers 1K Following Northern Ireland Rare Disease Partnership. Advocating, educating, connecting & innovating for those living or working with #rarediseaseni #in17
Lucy Dixon @LucyD28
368 Followers 865 Following Chair of @PCD_UK. Day job = NHS researcher. Unhealthy attachment to Gilmore Girls, Wales & coffee. Love mountains, lungs permitting. Views my own.🏴
wonderfullyshiva @wonderfullyarty
625 Followers 749 Following Woman artist & maker, former teacher, play worker, youth worker. Now support worker #MHFA. Inclusion Advocate.
Flick Williams @flickhwilliams
3K Followers 2K Following Disability Rights Activist / Electoral Reform Campaigner/Access & Inclusion Warrior (she/her) Impairment is personal, Disability is Political 💜
Founder NMO France @souad_mazari
52 Followers 160 Following transformer le vécu patient, en expérience, et en expertise patient. Patiente ressources, patiente experte, fondatrice association NMO France.
Association NMO Franc.. @FranceNmo
363 Followers 690 Following Mettre en lumière NMO/MOGAD + maladies du spectre de la Neuromyelite Optique. Shining🕯on #NMOSD/#MOGAD https://t.co/mnmI9XVYrC IG: @asso_nmo_france
CURE MY PSORIASIS @curemypsoriasis
24 Followers 403 Following Learn how to heal your psoriasis with Dr. Eric Bakker. Save $303 on his proven program for long term solutions for your skin: https://t.co/wxR7X4BE1X
Marwan Bukhari @drdj
2K Followers 2K Following director of medical education, rheumatologist and epidemiologist , liking sci fi and tolerating marvel
Catherine Stratton, M.. @cathsmstratton
2K Followers 2K Following Epidemiology PhD(s) @UofT; @CIHR_IRSC CGS-D & @fdnPETF Scholar; MPH @Yale; VP & Research Chair @moyamoyafdn #KnowledgeTranslation #RareDisease #Pain #Disability
Aedan James #TRSB @aedan_j_
3K Followers 5K Following “Hysterical”, “hyperbolic” & chronically horizontal social worker Frequent rants #ME/CFS #Health #Equality #Trans stuff - opinions sadly my own ✊🏿✊🏽✊🏼he/they
Scottish Glow-worms @ScottishGlow
325 Followers 368 Following The work, research and crusade of a Glow-worm obsessive in Scotland. Assistant ecologist. #beetles #glowworms #fireflies #scotland #invertebrates #wildlife
Tom Bourlet Spaghetti.. @tom_bourlet
59K Followers 42K Following Brighton Blogger on SpaghettiTraveller and CBDsloth, EU Search Awards judge, run TakeItOffline, LFC, SEO, PR, CBD, marketing, now living in Burgess Hill
Royal Free London @RoyalFreeNHS
33K Followers 721 Following Delivering world class expertise at Barnet, Chase Farm and the Royal Free 🏥. Follow @RFLjobs and @RoyalFreeChty. Account monitored Mon-Fri, 9am-5pm.🌈💙
SRUK | Scleroderma & .. @WeAreSRUK
5K Followers 1K Following Scleroderma & Raynaud’s UK is the only charity dedicated to improving the lives of people affected by scleroderma and Raynaud’s.
Dr Rachel Clarke @doctor_oxford
284K Followers 4K Following Palliative care doctor 👩🏻⚕️ Writer DEAR LIFE, BREATHTAKING 📚 Rep: @AitkenAlexander 📝 Founder: @hospiceukraine 🇺🇦 THE STORY OF A HEART out 5.9.24 🫀
Chris Wincup @chriswincup
5K Followers 1K Following Rheumatologist specialising in #lupus @ King’s College Hospital 🏥 @VersusArthritis Research Fellow @UCL 🧪 OMERACT & EULAR SLE Working Group 🧬
Dr. Dinesh Khanna @sclerodermaUM
3K Followers 92 Following 👉University of Michigan Scleroderma Program leading the way through excellence in clinical care, teaching, & research #scleroderma tweets≠advice Follow≠endorse
Scleroderma Canada @SclerodermaCAN
3K Followers 2K Following Scleroderma Canada is committed to promoting public awareness, supporting those affected by Scleroderma and funding research to find a cure.
BSR @RheumatologyUK
17K Followers 2K Following The UK's leading specialist medical society for adult and paediatric #rheumatology and #msk health professionals. Note: we're unable to answer patient queries.
Royal Free Charity @RoyalFreeChty
3K Followers 1K Following Funding medical research, facilities and services at Royal Free, Barnet & Chase Farm hospitals. All made possible thanks to the generosity of our supporters.
Dr. John Cush @RheumNow
22K Followers 481 Following Know-it-Now. Info on RA, Stills disease, Lupus, Gout, Pregnancy, Spondylitis, Psoriasis, Drug Safety, Rheumatology Research, Medical Education & Drug Evaluation
NIHR CRN North Thames @NIHRCRN_nthames
2K Followers 1K Following NIHR Clinical Research Network North Thames - supporting research delivery. Latest NIHR information: @NIHRresearch. To get involved in research: @NIHRtakepart
SPIN - Scleroderma @spinsclero
749 Followers 115 Following The Scleroderma Patient-centered Intervention Network (SPIN): patients, researchers, & healthcare providers, working to develop support programs for scleroderma
Scleroderma Society o.. @scleroderma_sso
2K Followers 2K Following We are committed to promoting increased public awareness, advancing patient wellness and supporting research in scleroderma. #scleroderma #autoimmunedisease
Royal Free Radio @royalfreeradio
2K Followers 514 Following Broadcasting 24/7 at the Royal Free, Chase Farm and North Middlesex Hospitals, and online at https://t.co/W1mZ0AKGez
EURORDIS-Rare Disease.. @eurordis
32K Followers 2K Following An alliance of over 1,000 patient organisations working across borders and diseases to improve the lives of all people living with rare diseases.
ERN ReCONNET 🇪🇺 @ern_reconnet
3K Followers 890 Following 🔬🩺 European Reference Network on Rare and Complex Connective Tissue and Musculoskeletal Diseases #ERNReCONNET
Rare Disease Day @rarediseaseday
44K Followers 3K Following 29 February 2024 is Rare Disease Day. Raising awareness for patients, families and carers around the world that are affected by rare diseases. #RareDiseaseDay
Autoimmune List @AutoimmuneList
9K Followers 4K Following #Autoimmune diseases: information and worldwide medical news updates. https://t.co/zp6PHneZxj
Scleroderma Framed @Scleroframed
750 Followers 327 Following Gives more awareness for scleroderma in a positive and artisitic manner
Prof. Devi Sridhar @devisridhar
310K Followers 531 Following Professor & Chair of Global Public Health, Edinburgh Uni. Director of @GlobalHealthGP. Certified Level 3 Personal Trainer. Author of 'Preventable'. Views own.
The Journal of Rheuma.. @jrheum
10K Followers 258 Following The Journal of Rheumatology features peer-reviewed research articles on clinical subjects from scientists working in #rheumatology and related fields.
A schofield 🇪🇺 .. @a_schofie
100 Followers 940 Following Mum. Physicist. Proud to work with my amazing NHS colleagues. Passionate about creativity, science, EDI; #WomenInStem. #RatherBeARebelThanASlave Views my own.
PlantforwardMD @PlantforwardMD
10 Followers 21 Following Rheumatologist. interested in all things rheum. Nutrition matters. The journey is more important then the finale. 👊 https://t.co/6MZUr0IuqM
Graham Dinsdale 🇪�.. @DinsdaleGraham
103 Followers 227 Following Physicist working in medical research. All views my own.
Mersey & West Lancs T.. @MWLNHS
7K Followers 660 Following The Trust delivers healthcare services across Merseyside and West Lancashire. View our social media house rules here: https://t.co/qlXjN9gY8D
Linde Meyaard @LindeMeyaard
483 Followers 233 Following In search of (immune) balance @ the Center for Translational Immunology at UMC Utrecht. Professor of Immune Regulation. @CTI_UMCUtrecht @oncodeinstitute
Gisela Orozco @G_Orozco_C
273 Followers 513 Following Professor of Functional Genomics at the Centre for Genetics and Genomics Versus Arthitis. University of Manchester 🇬🇧🇪🇸🇪🇺
UW Biological And For.. @UoWBioSci
339 Followers 942 Following The home of Biological and Forensic Sciences at The University of Worcester!
Elana J. Bernstein, M.. @DrBernstein
35 Followers 0 Following Rheumatologist @ColumbiaMed (via @HSpecialSurgery, @MGHMedicine, @IcahnMountSinai, @AmherstCollege) Director of Columbia University Scleroderma Program
Nature Rev Immunol @NatRevImmunol
68K Followers 1K Following We publish immunology reviews and highlight exciting new research papers. Tweets from the editors: Alex, Kirsty, Lucy & Yvonne.
Rhys Holmes @RhysHolmes
479 Followers 962 Following Brain Tumour survivor, hydrocephalus, previous CSF Leak and now battling the rare neurological disease, superficial siderosis.
Bowel Cancer UK @bowelcanceruk
53K Followers 2K Following We're the UK's leading bowel cancer charity. Our future is a vision where nobody dies of the disease. #BowelCancerUK
Norman van Rhijn @NormanRhijn
2K Followers 636 Following @Wellcometrust Research Fellow | climate change and infectious diseases | fungus enthusiast | #OneHealth | (he/him)
Doug Paulley @Doug_Paulley
5K Followers 544 Following Disabled person and transport rights campaigner. 'He has a good track record' - @GBNEWS 'I think you’re German too' - @Christiane
SnugToes @SnugToes
922 Followers 346 Following SnugToes give comfort to cold feet! Heatable slippers with re-heatable pads... Luxuriously built slippers you can walk around in.
Mwidimi Ndosi @ndosie
2K Followers 1K Following Associate Prof | Health Outcomes | Health Education | Rheumatology | Knowledge Translation | @UWEBristol | FNF Scholar | Chair #eularHPR | Co-Editor @RheumJnl
Dr Caroline Flurey @C_Flurey
2K Followers 2K Following Assoc Prof Men’s health & long term conditions, psychologist, trustee @MBCoalition, bookworm, gamer, she/her Papers: https://t.co/RnkniH2rGD
Keith Siau @drkeithsiau
170K Followers 4K Following GI doctor with interests in endoscopy, gut health, liver & medicine. 💜 #GITwitter #LiverTwitter #MedEd. Occasional silliness. Siau rhymes with meow 😺
SI van Leuven @SIvanLeuven
92 Followers 86 Following Consultant Rheumatologist @Radboudumc with a special interest in cardio-rheumatology, Systemic Lupus Erythematosus and Systemic Sclerosis.
Amir Bahadori | Autoi.. @AutoImmuneZen
2K Followers 2K Following I help people with autoimmune disorders get their energy back by reducing unpredictable flare ups so they can start enjoying their life again
SclerodermaAustralia @ScleroAus
63 Followers 99 Following Scleroderma Australia has been incorporated since 2005 to facilitate a national representative voice in supporting our scleroderma community across Australia.
Zak Williams @zakwilliams
153K Followers 2K Following Mental Health Advocate. Co-Founder & CEO @youcanpym. Chairman @BC2M. Trustee @UnitedGMH.
Prof Derek Connolly @DrDerekConnolly
3K Followers 2K Following Consultant Cardiologist Birmingham City and Priory Hospitals
Dawn Bowdish @MsMacrophage
6K Followers 4K Following Executive Director, Firestone Institute for Respiratory Health Canada Research Chair in Aging and Immunity
Tamsin Callaghan @CallaghanTamsin
148 Followers 232 Following Involvement and Inclusion Manager for Research at Royal Free London Hospital R&D and NIHR Clinical Research Facility. Researcher and optometrist. She/her.
Thierry MARTIN @PrTmartin_RESO
304 Followers 97 Following MD, PhD. professor in clinical #immunology| #lupus #scleroderma #APS #vasculitis | coordinator of national reference center for auto-immune diseases| #IMID
Beki's Beads @Bekis_Beads
19K Followers 19K Following My name's Beki I love beads. I've got so many I need to make things with them. Custom jewellery orders via Facebook and Top rated Ebay craft supplies seller.
Emma Louise Barry @EmBee1208
88 Followers 119 Following Registered Nurse at Royal Liverpool University Hospital • Former Research Support Worker at Clatterbridge Cancer Centre 💚
Najia X. @najaxth
114 Followers 793 Following Rheumatologist in Uni-HD🇩🇪, Pulmonologist in PH-Center HD, Passion for PH in SSc, I love my country🇬🇷
Dr Gurdeep S Dulay @gurdeep_dulay
3K Followers 2K Following Rheumatologist | Physician | Portsmouth Hospitals University NHS Trust UK | Views my own | Like/Re-tweets do not mean endorsement |
Bayram Farisogullari,.. @md_bayram_faris
125 Followers 229 Following Rheumatologist I @Hacettepe1967 I @UCL Research Fellow I @EMEUNET SoMe member I @Official_ASAS Fellow I @VersusArthritis Researcher
Rareminds @RaremindsUK
983 Followers 2K Following Specialised mental health and wellbeing services for the rare disease community. https://t.co/eVmeTw0aah…
Peter Hughes @upperlimbcentre
425 Followers 314 Following NW Shoulder & Elbow and Open Championship Orthopaedic Surgeon. GB Fencing Medical Committee. Past President North West Upper Limb Group. Golfer when I get time.
Chloe Smith @NorwichChloe
24K Followers 432 Following The official account for Chloe Smith, MP for Norwich North. Get in touch [email protected]
Law&Crime Network @LawCrimeNetwork
137K Followers 1K Following Bringing you the day's biggest trials and legal controversies. #LIVE on Law&Crime.
PCDresearch @PCDresearch
188 Followers 209 Following Funding life saving research for Primary Ciliary Dyskinesia - donate today and help us find a cure!
bo bruce // equador @bo_bruce
44K Followers 2K Following My new album @equadormusic OUT NOW BOOKINGS/ MANAGEMENT: [email protected] ALBUM OUT NOW https://t.co/Q6n3DiWYAC
Daniel Snape @DanielSnape7
20K Followers 17K Following Passionate about supporting #Charities, #Healthcare and #PublicSector through free to attend conferences and training, @convenzis_group @ConvenzisEdu (He/Him)
Convenzis @Convenzis_Group
9K Followers 8K Following Supporting the NHS and Public Sector to engage and learn from their peers and private sector through free certified webinars and conferences
Ashley S. Evans @SYNGAP1mom
5K Followers 4K Following Investor Francisco Partners Board @payscale @thisisgslate @litmos @SourceScrub @ZoomInfo Alum @OneCarlyle & @MorganStanley Founder @cureSYNGAP1 #SYNGAP1 🧬
Sesame Workshop @SesameWorkshop
101K Followers 54 Following The nonprofit educational organization behind Sesame Street and so much more.
NIRDP @NI_RDP
2K Followers 1K Following Northern Ireland Rare Disease Partnership. Advocating, educating, connecting & innovating for those living or working with #rarediseaseni #in17
heidi bjornson @heidibp
768 Followers 1K Following Rare Disease Advocate, #PCD, #RareAsOne Program Manager, @CZIScience, Attorney, Mom
Emma Cox @emmalouisecox
279 Followers 277 Following Doctor, Chief Product Officer https://t.co/4uGwKbuKPT, @NHSEngland Clinical Entrepreneur, Royal Free Governor & @tasme_uk Committee Member. QI, tech & med ed. Views own.
Lucy Dixon @LucyD28
368 Followers 865 Following Chair of @PCD_UK. Day job = NHS researcher. Unhealthy attachment to Gilmore Girls, Wales & coffee. Love mountains, lungs permitting. Views my own.🏴
PCD Support UK @PCD_UK
1K Followers 752 Following We talk about Primary Ciliary Dyskinesia (PCD) as widely as possible, and champion research to improve its diagnosis, management and treatment.
pat@wizzbut 💙 @patwizzbut1
777 Followers 1K Following Director of Operations Unplanned Care Royal Free Hospital, proud mother of two sons ; love books, theatre and making things- views my own.
IFOPA @ifopa
850 Followers 782 Following Fund research to find a cure for FOP while supporting individuals and families through education, public awareness and advocacy.EULAR Congress is an excellent platform for Health Professionals in Rheumatology to connect with colleagues across Europe, share best practices and advances in #rheumatology Invite to EULAR 2024 by Dr Erika Mosor, HPR Chair Elect Have you registered yet? See you in #Vienna!
📢 Explore captivating sessions promoting high-quality research, enhancing clinical practice, and support the professional development of healthcare practitioners. 📅 See you in Vienna from 12 - 15 June! 👉pulse.ly/omc4parykm #EULAR #Rheumatology #EULARHPR #EULAR2024
Did you know that we host hundreds of research studies across our services every year? Join us on 21 May as we celebrate the 10 year anniversary of our annual research and development open day. Learn more about the event on our website 👇 royalfree.nhs.uk/about-us/event…
May - Day 3 #vasculitis awareness month. Granulomatosis of Polyangiitis ( GPA ) a type of ANCA associated vasculitis. This is Emma's “spoken from the heart” story Please support #vasculitisUK ‘s campaign this month to support #patients and #research - justgiving.com/campaign/visua…
🎤In our episode meet Professor @OliverDistler from University Hospital Zurich will provide us with a unique perspectives on the lung involvement in Scleroderma. @claudiaiannone youtu.be/EiKcfsdutJE?si…
Meet our support hub team. “Gabrielle helped me at a time when I was close to death with a serious blood disease and has continued to help me ever since: invaluable help I didn't know I needed until I was in my darkest hour,” said a patient. #royalfree #nhs #healthcondition
[1/7] Recent announcements around potential changes to #disability benefits and fit notes may be worrying for people with #arthritis. We are disappointed by the language being used and understand how upsetting it is for people who rely on this kind of support.
Did you know that some #arthritis conditions can cause complications in other parts of your body, such as your heart? Dr Benjamin Ellis, Consultant Rheumatologist and Senior Clinical Policy Adviser at Versus Arthritis, shares what you need to know.👇 versusarthritis.org/news/2024/apri…
Congratulations to the recipients of the NHS chief nursing officer and chief midwifery officer support worker excellence awards. These were presented by Jane Clegg, Regional Chief Nurse, London, @NHSEngland to recognise and celebrate their hard work. 🏆 #ProudToBeRFL
🎤In our episode meet Professor Czirják László István, University of Pecs providing unique perspectives in the overall goals in the research in Systemic Sclerosis. @devismd @EUSTAR_org #Prague2024 #SclerodermaResearch #SScWorldCongress youtu.be/ImlqMaPt29M
👇Read our response to the UNCRPD report below
Congratulations to the healthcare assistants at the Royal Free Hospital’s 6 south ward who are all fully trained to administer feeding tubes to patients! This initiative was lead by nutrition nurse, Melissa to maximise efficiency and enhance patient experience. #ProudToBeRFL
Goodbye #Liverpool #BSR24 see you next year in #Manchester it’s been a blast 💥 #Vasculitis UK 👋
Thank you @RheumatologyUK for a great conference as always! Well done to the prize winners 🏆and contributors showcasing their research findings 👏🏼 #BSR24 See you again next year!
Evidence synthesis emphasizes the importance of patient education, clinician empathy and peer support for effective self-management of #fibromyalgia Great to listen to @jenniferprsn presenting this work at the #BSR24
We can't believe it's over already! It's been an absolute pleasure having you all and we can't wait to see you online or in Manchester for #BSR25. Register your interest for next year's conference here 👉 bit.ly/4ba5Syx
Delving into the latest disease management essentials, from primary sclerosing cholangitis to hand conditions and scleroderma, we're sure to gain valuable insights for optimising patient care at this session. Up now, Dr Amera, covering PSC and abnormal liver function tests #BSR24
“Start with the wrist first.” Rheumatoid wrist treatments include: - Splints, hand therapy, Injections, denervation - Limited fusions (RSL, 4CF, PRC) - Total wrist fusion - Mr Oliver Stone #BSR24
Ariane Herrick highlights subtypes of systemic sclerosis (SSc), including limited cutaneous and diffuse cutaneous forms. #BSR24
Interesting findings from Pedley et al 2021 suggesting benefits from CBT in patients with AxSpA (study focussed on telephone CBT) despite low expectation! Appeared but be better accepted if frames as ‘coaching’ #BSR24 - Gary Macfarlane
Privileged to co-author with @AilsaBosworth1 this abstract about #exercise in #RA Flagging the crucial role of early & consistent messaging about exercise/physical activity & the support online resources can give PO36 at #BSR24 Photo note: @Clare_NRAS standing in for Ailsa 1/2
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