Scleroderma News @SclerodermaNews
We are dedicated to sharing the latest news, research, and SCL patient perspectives. sclerodermanews.com Pensacola, FL Joined October 2014-
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Sexual dysfunction is common among people with systemic scleroderma, but is rarely discussed between patients and their doctors. sclerodermanews.com/news/concerns-…
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Epstein-Barr virus (EBV) infections may increase the risk of developing systemic sclerosis (SSc), according to a new analysis. buff.ly/8IlnzjZ
Using clumps of modified mesenchymal stem cells helped ease skin and lung scarring, or fibrosis, in a mouse model of systemic sclerosis. buff.ly/ug8LYWU
Efzofitimod was found to be generally safe and well tolerated by patients with SSc-ILD in a proof-of-concept Phase 2 study. sclerodermanews.com/news/efzofitim…
Elevated levels of IL-40 correlated with worse disease activity, digestive problems, and markers of inflammation and fibrosis in SSc. buff.ly/zl2lgsN
The first patient with scleroderma has been dosed in a Phase 1 trial of ADI-001, Adicet Bio’s CAR T-cell therapy for autoimmune conditions. buff.ly/5K9Tp2W
With its 2025 awards, the National Scleroderma Foundation recognized several individuals and regional chapters for their service and support. buff.ly/c9Owddi
Scleroderma can be unpredictable, so columnist Tomisa Starr says she'd rather be informed and take action when dealing with uncertainty. buff.ly/wy96sJx
SRF has joined Vie Ventures to advance research and innovative drug development for scleroderma and other autoimmune diseases. buff.ly/AITRh9g
Scientists have identified four distinct subtypes of SSc-ILD, each characterized by different clinical characteristics, a new study has found. buff.ly/6du6Ehu
Recruitment for a Phase 2 clinical trial testing nemolizumab in systemic sclerosis is expected to begin in the second half of this year. sclerodermanews.com/news/phase-2-t…
Certain types of immune cells grow in excess in some people with SSc, and this may be linked to kidney and lung complications, per a study. buff.ly/y7r2qTO
Columnist Tomisa Starr says greater scleroderma awareness can pay off. For example, more people are aware of the disease today than before. buff.ly/DqCWfxm
Two patients with SSc showed improvement in measures of skin thickness after treatment with the investigational CAR T-cell therapy rese-cel. buff.ly/bTo42ou
By grouping patients on internal organ involvement, researchers saw that those who developed pulmonary hypertension had lower survival rates. sclerodermanews.com/news/pulmonary…
June is Scleroderma Awareness Month, and the scleroderma community is kicking into gear to spread awareness about the rare, chronic disorder. buff.ly/hlNnbw0
Most people with systemic sclerosis (SSc) have fibrosis, or scarring that affects the heart muscle, a nationwide study in Australia shows. buff.ly/QY2YtOS
Lung function decline in scleroderma patients with lung disease was significantly slowed over four years with Ofev as an SSc-ILD treatment. buff.ly/LAGy56k
Wasting of the skeletal muscle, older age, being male, and swollen joints are risk factors for primary heart involvement with scleroderma. buff.ly/vdGUB0O
People older than 65 and women are more likely to develop localized scleroderma, while the risk is reduced for people with lower incomes. buff.ly/M149WIJ
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