Scleroderma Awareness of Kansas City @SclerodermaKC
Scleroderma Awareness of Kansas City to educate and make people aware of scleroderma in their community. sclerodermakc.org Kansas City, MO Joined January 2017-
Tweets3K
-
Followers389
-
Following403
-
Likes49K
Do you remember when you joined X? I do! #MyXAnniversary
Do you remember when you joined X? I do! #MyXAnniversary
Hypoxemia, a condition characterized by low levels of oxygen in the blood, can occur in individuals with scleroderma, particularly when pulmonary complications are present. #SclerodermaIndia #systemicsclerosis #Scleroderma #Chronicillness
Brace yourselves! Raynaud's season is here. #SclerodermaIndia #Scleromeme #Meme #GOT #AutoImmuneDisease #chronicillness
Tips to get over winter blues! #SclerodermaWarriors #SclerodermaIndia #SclerodermaAwareness #emotionalhealth #mentalwellbeing
This year we are honoring our family who served in protecting our freedom! Also thanks to all the #charities that support our veterans! #veteransday
Pollution Safety Tips #sclerodermaindia #scleroderma #sclerodermaWarriors #AutoImmuneDisease #Pollution #chronicillness
What you see is not always true. Be Kind! @PatientsEngage @IndiaLupus @PulmonaryHIndia @IndianRheum #ScletodermaIndia #SystemicSclerosis #Meme #InvisibleDisability #Disability #Chronicillness #AutoImmuneDisease
Here are some common myths about invisible disabilities and the facts that debunk them: #sclerodermaindia #SclerodermaWarriors #systemicsclerosis #invisibledisability #mythsvsfacts #mythsdebunked
Here we dedicate a poem for our Scleroderma Warriors! #SclerodermaIndia #SystemicSclerosis #Scleroderma #Chronicillness #Autoimmunedisease #SclerodermaAwareness #Family #Strength
#WorldMentalHealthDay In India, mental health issues are often stigmatized, and seeking therapy is still not widely accepted. #SclerodermaIndia #SystemicSclerosis #Scleroderma #MentalHealth #MentalHealthmatters #brain #mind
Maintaining good mental health is essential for the well-being of both the caregiver and the scleroderma patient. It enhances the quality of care, reduces the risk of burnout, and ensures long-term sustainability in the caregiving role. #SystemicSclerosis #sclerodermaindia
Impact of Social Stigma in the daily life of Scleroderma Warriors! #SclerodermaIndia #SystenicSclerosis #socialstigma #autoimmune #chronicillness
Spinal cord compression occurs when the spinal cord is compressed or squeezed due to thickening or other structural changes in the spine. #SclerodermaIndia #SystemicSclerosis #Spinehealth #BoneHealth #Autoimmune #chronicillness
Autonomic Nervous System Dysfunction ( Autonomic Neuropathy Or Autonomic Dysfunction) is a common complication in Individuals with Scleroderma. #SclerodermaIndia #Scleroderma #SystemicSclerosis #Neuropathy #AutonomicNeuropathy
Peripheral Neuropathy in scleroderma is a common and potentially debilitating complication that affects the peripheral nervous system! #SclerodermaIndia #Scleroderma #SystemicSclerosis #NervousSystem #Neuropathy #chronicillness #AutoImmuneDisease
In some cases, scleroderma can also cause hearing loss! #SclerodermaIndia #SystemicSclerosis #HearingLoss #hearinghealth
Like Facebook better? Follow us there!
Hey Elona Xherahu(@ElonaXherahu), thank you for following me

Scleroderma Canada @SclerodermaCAN
3K Followers 2K Following Scleroderma Canada is committed to promoting public awareness, supporting those affected by Scleroderma and funding research to find a cure.
Scleroderma India @ScleroIndia
538 Followers 287 Following A Charitable Trust and Patient Support Group
Schmidt Enterprises G... @SchEntPrisesGrp
348 Followers 495 Following We are a management company operating products & services with a common business infrastructure while minimizing operating expenses.
Minsky's Pizza @MinskysPizza
5K Followers 3K Following Minsky's pizza is a mouthwatering masterpiece using only the finest ingredients. Also sandwiches, salads & pastas. Gourmet & going to stay that way!
Rosehill Gardens @RosehillKC
2K Followers 526 Following #KansasCity #Landscapearchitecture #Landscapedesign #GardenCenter #EventSpace 816-941-2332
Scleroderma Society o... @scleroderma_sso
2K Followers 2K Following We are committed to promoting increased public awareness, advancing patient wellness and supporting research in scleroderma. #scleroderma #autoimmunedisease
Cascade Handcrafted L... @BCLogHomes
2K Followers 3K Following Official feed for Cascade Handcrafted Log Homes. Since 1999 - Throughout Canada, USA, EU Asia & AU. 1 604-703-3452 #naturallypassive #loghomes #handcrafted
Scleroderma Framed @Scleroframed
732 Followers 315 Following Gives more awareness for scleroderma in a positive and artisitic manner
National Scleroderma ... @SclerodermaCO
870 Followers 128 Following The National Scleroderma Foundation was founded to advance medical research, promote disease awareness, and provide support to people with scleroderma.
Corey Baysden @CoreyBaysden
5K Followers 5K Following #RareDisease mom to Saylor w/ #Syngap1 🧬 Director of Community Activation @cureSYNGAP1 🧠Working 2 find a cure for #epilepsy #autism #hypotonia #nonverbal #ID
Scleroderma Manitoba @MBScleroderma
223 Followers 117 Following Helping the scleroderma community in Manitoba connect through awareness, education, patient support and fundraising to support research. #youarenotalone
Sindhu Johnson @SindhuJohnson5
1K Followers 972 Following Rheumatologist, Clinical Epidemiologist, Director: Clinical Epidemiology Program, @UofT_DoM @uoftmedicine @ihpmeuoft @SinaiHealth @SchroederInst #Scleroderma
Mike Graglia 🌻 @JMGraglia
7K Followers 2K Following CEO @cureSYNGAP1 🧬 Pod https://t.co/9jkDkMg5R8 🎧 Alum @GonzagaU @peacecorps @pdosoros @SAISHopkins @Columbia_Biz @IFC_org @bcg @gatesfoundation @newamerica
SK Lawn and Landscape @SKLawnCare
2K Followers 4K Following Lawn Care Services provided to Kansas City homes and businesses. We specialize in quality #lawn maintenance, #fertilizing, #mowing, #landscape, and #hardscape
Aferjee @Aferjee396462
16 Followers 1K Following
Izaiah Klein @xuess24168784
2K Followers 7K Following NYC I'm here to make friends, if you are interested please follow me
evpmruyh @cqafr61185459
88 Followers 2K Following
BessSamson @8MvJxIlZplWS59
107 Followers 2K Following
Seaddarch @Seaddarch4pmld
28 Followers 2K Following We all want to shine brightly in the parallel world that is invisible to each other
T Jakabosky @TJakabosky
0 Followers 1 Following
ScleroCare @ScleroCare
6 Followers 78 Following 🌿 Empowering Scleroderma Patients 🌟 📚 Education | 💡 Resources | 🩺 Support 🔗 Explore more: https://t.co/u7Mm1lZk0w
Teautor @TeautorZ9S
44 Followers 5K Following
Elijah Hopkins @Elislownow
17 Followers 91 Following height- 5,6 Weight-130 class 2028 Position,CB,WR Kansas City Missouri looking for every opportunity to better myself🧘🏾🙏🏾
Toasty Touch @toastytouch
42 Followers 171 Following Ultra-thin heated gloves for cold hands. Our gloves were invented by a #raynauds patient turned founder. Warm your hands and keep the world at your fingertips.
🇨🇦DANIEL 🇨�... @1956DANNYJ
666 Followers 5K Following Not Liberal I believe in free speech! Political Correctness is cancer liberalism is a mental disorder common sense & national pride is the cure 🇨🇦#MSM is fake
nicoleja @nicoleja12
1 Followers 10 Following
Julia @applemachappy
30 Followers 403 Following
Reuma Cln @javierloaizaf11
122 Followers 795 Following Reumatólogo en tierra de Dermas. Medicina interna, Reumatologia y Ultrasonido músculo esquelético
memory tukuta @Memohtkt1
16 Followers 215 Following
Rhonda Moyer Dearth @MoyerDearth
30 Followers 752 Following
Anna Wojteczek @AnnaWojteczek
2 Followers 28 Following
champs @kejr35778464
168 Followers 1K Following champs ist eine Aktion um Pädiater auf die seltene Erkrankung "Mukopolysaccharidose" (MPS) aufmerksam zu machen.
Kristina Sims @sims_krist23088
60 Followers 200 Following ☀️Southern🍍BoyMom 🎯Saved by His Grace ✝️ 🪴Health&Wellness🌱 🙏🏼 2024 🇺🇸MAGA🌎
Lar @LaurieRutland
64 Followers 2K Following
SnugToes @SnugToes
876 Followers 357 Following SnugToes give comfort to cold feet! Heatable slippers with re-heatable pads... Luxuriously built slippers you can walk around in.
Brynja Matthiasardott... @brynjmatt
50 Followers 279 Following PhD candidate (Bioinformatically inclined), NIH-NHGRI and UMD-CBBG, Interest in inflammatory disease
Yale Scleroderma Prog... @YaleScleroderma
120 Followers 110 Following Bringing together expertise, compassion, and innovation to empower individuals affected by scleroderma. Research: https://t.co/u0axsBXKyf
William Chagolla @WChagolla96714
675 Followers 4K Following
Amir Bahadori | The V... @VitiligoCoach
2K Followers 495 Following I help people with vitiligo recover up to 80% of their skin pigment while slowing the progression naturally without using any topical steroid ointments
No Truffe😷💉💉... @NoTruffe
482 Followers 2K Following 27 ans d'ind. pharma, 25 d'assoc (fin de vie, sos inceste) psy pour toujours, #scléroderm à l'occasion je suis née, je vis....et je mourrai...what else?
Capillary.io @CapillaryIo
1K Followers 4K Following Specialized software for improved nailfold capillaroscopy powered by artificial intelligence. #capillaroscopy
Dana Thayer @ThayerDana41668
360 Followers 1K Following
pakysdc @pakysdc1
20 Followers 917 Following
Elona Xherahu @ElonaXherahu
22 Followers 391 Following
Kristie R Roby @Sclerowar2013
41 Followers 75 Following
Unmuted @SheSpeaks_WV
33 Followers 134 Following Unmuted provides an inclusive space where women unite, learn, and support one another.
Laura Egan @our_rare_road
373 Followers 1K Following Co-Founder and Chairperson of @rareireland, proud koolen de Vries Syndrome mam and rare disease advocate, raising awareness of rare disease in Ireland
Luke Evnin @levnin
94 Followers 135 Following Venture capital investor; Chairman Scleroderma Research Foundation
Raynaud's Assn. @raynaudsorg
4K Followers 692 Following The Raynaud's Association is a national non-profit organization providing support and education to the millions of sufferers of Raynaud's Phenomenon.
Association for Advan... @GFID_immunediag
16 Followers 82 Following Gesellschaft zur Förderung der Immundiagnostik (GFID). We promote early diagnosis & treatment of immune-related illnesses through books, conferences & projects.
ChanRe Rheumatology &... @ChanRecricr2002
26 Followers 82 Following https://t.co/Ldb5RcbdSQ No. 414/65, 1st Block, 20th Main, West of Chord Road, Rajajinagar, Bangalore-560010
Malene Larsen @MaleneLars1979
137 Followers 1K Following
War Eagle Fanboy @WebbAnator
39 Followers 163 Following Calling cry for the War Eagle! Auburn Football lover and Alabama football hater! #WarEagle🦅🐅
#DFW Smoke and Vape S... @DFWSmokeandVape
334 Followers 1K Following With locations in Arlington, Flower Mound, Highland Village, and Grapevine, the #DFW Smoke and Vape Shops are always close!
Cosimo Bruni @CosimoBruni
199 Followers 232 Following
raising_rareness (Lyn... @raisingrareness
957 Followers 2K Following Mum of 3 Raising awareness of rare diseases & conditions #2q24.2 Advocating for my daughter & Rare Community 💗 #AAC MA Archaeology UCC Opinions my own
Maggie Larché @CSRG2022
28 Followers 39 Following Foster collaborative studies in the disease of Systemic Sclerosis and to raise awareness.
Scleroderma Canada @SclerodermaCAN
3K Followers 2K Following Scleroderma Canada is committed to promoting public awareness, supporting those affected by Scleroderma and funding research to find a cure.
KC Chamber @kcchamber
24K Followers 2K Following Sharing news and events for the Greater Kansas City Chamber of Commerce.
Union Station KC @UnionStationKC
77K Followers 2K Following Fully restored 1914 landmark and Kansas City's most prominent destination for civic, entertainment and cultural activities.
NKC Schools @NKCSchools
15K Followers 981 Following North Kansas City Schools is an award-winning district known for excellence and innovation. We are proud to serve as relentless champions for 21,800+ students.
NWS Kansas City @NWSKansasCity
115K Followers 392 Following This is the official twitter account for the National Weather Service in Kansas City/Pleasant Hill, MO. Details: https://t.co/4lS68fk4cU
Kansas City Royals @Royals
1.1M Followers 801 Following The baseball team, not the British family. Game day assistance: @RoyalsAssist
Scleroderma India @ScleroIndia
538 Followers 287 Following A Charitable Trust and Patient Support Group
Schmidt Enterprises G... @SchEntPrisesGrp
348 Followers 495 Following We are a management company operating products & services with a common business infrastructure while minimizing operating expenses.
Minsky's Pizza @MinskysPizza
5K Followers 3K Following Minsky's pizza is a mouthwatering masterpiece using only the finest ingredients. Also sandwiches, salads & pastas. Gourmet & going to stay that way!
Feed Northland Kids -... @feednrthlndkids
395 Followers 0 Following Inactive account - please consider following our Facebook or Instagram accounts. Maintained to prevent impersonation. No DMs.
Rosehill Gardens @RosehillKC
2K Followers 526 Following #KansasCity #Landscapearchitecture #Landscapedesign #GardenCenter #EventSpace 816-941-2332
Scleroderma Society o... @scleroderma_sso
2K Followers 2K Following We are committed to promoting increased public awareness, advancing patient wellness and supporting research in scleroderma. #scleroderma #autoimmunedisease
SRFCure @srfcure
3K Followers 2K Following America’s leading nonprofit investor in medical research aimed at finding better treatments and, ultimately, a cure for #scleroderma.
Cascade Handcrafted L... @BCLogHomes
2K Followers 3K Following Official feed for Cascade Handcrafted Log Homes. Since 1999 - Throughout Canada, USA, EU Asia & AU. 1 604-703-3452 #naturallypassive #loghomes #handcrafted
Scleroderma Framed @Scleroframed
732 Followers 315 Following Gives more awareness for scleroderma in a positive and artisitic manner
National Scleroderma ... @SclerodermaCO
870 Followers 128 Following The National Scleroderma Foundation was founded to advance medical research, promote disease awareness, and provide support to people with scleroderma.
EURORDIS-Rare Disease... @eurordis
32K Followers 1K Following An alliance of over 1,000 patient organisations working across borders and diseases to improve the lives of all people living with rare diseases.
Children's Mercy @ChildrensMercy
23K Followers 2K Following #BuiltForKids, leading the way in pediatric specialized care and research as one of America’s best children’s hospitals named by US News and World Report.
Corey Baysden @CoreyBaysden
5K Followers 5K Following #RareDisease mom to Saylor w/ #Syngap1 🧬 Director of Community Activation @cureSYNGAP1 🧠Working 2 find a cure for #epilepsy #autism #hypotonia #nonverbal #ID
Brynja Matthiasardott... @brynjmatt
50 Followers 279 Following PhD candidate (Bioinformatically inclined), NIH-NHGRI and UMD-CBBG, Interest in inflammatory disease
Amir Bahadori | The V... @VitiligoCoach
2K Followers 495 Following I help people with vitiligo recover up to 80% of their skin pigment while slowing the progression naturally without using any topical steroid ointments
Unmuted @SheSpeaks_WV
33 Followers 134 Following Unmuted provides an inclusive space where women unite, learn, and support one another.
TownTopic Hamburgers @towntopic
98 Followers 7 Following
Laura Egan @our_rare_road
373 Followers 1K Following Co-Founder and Chairperson of @rareireland, proud koolen de Vries Syndrome mam and rare disease advocate, raising awareness of rare disease in Ireland
Meat Mitch @MeatMitch
7K Followers 2K Following World Champ KC BBQ Team, MIM & Am Royal winning Meat Mitch Whomp & NAKED BBQ Sauce, Rubs & Meat, new book BBQ REVOLUTION, partner/owner @meatmitchbbq @charbarkc
Luke Evnin @levnin
94 Followers 135 Following Venture capital investor; Chairman Scleroderma Research Foundation
Mother Earth Coffee @MotherEarthCC
154 Followers 170 Following Coffee for Goodness Sake. At Mother Earth Coffee, we love sustainability, direct trade, and organic flavor.
Mike Graglia 🌻 @JMGraglia
7K Followers 2K Following CEO @cureSYNGAP1 🧬 Pod https://t.co/9jkDkMg5R8 🎧 Alum @GonzagaU @peacecorps @pdosoros @SAISHopkins @Columbia_Biz @IFC_org @bcg @gatesfoundation @newamerica
Devan Dignan @ddignan
491 Followers 1K Following CBO, disKCovery. KC Proud. Storyteller. Sports Fan. @UCentralMo & #DeVosProgram @UCF Alum. Notary Public. THE #FountainCityFoodie. OPINIONS ARE MY OWN.
War Eagle Fanboy @WebbAnator
39 Followers 163 Following Calling cry for the War Eagle! Auburn Football lover and Alabama football hater! #WarEagle🦅🐅
Burnt Finger BBQ @BurntFingerBBQ
8K Followers 508 Following Jason and Megan Day | Barbecue Champions |#BaconExplosion creators | Smoked meat extraordinaires
Cosimo Bruni @CosimoBruni
199 Followers 232 Following
Donutology @donutologykc
566 Followers 190 Following Donutology is Kansas City's own mini donut destination. Everyone has a donut gene. Express yours here. 1009 Westport Rd., KCMO.
raising_rareness (Lyn... @raisingrareness
957 Followers 2K Following Mum of 3 Raising awareness of rare diseases & conditions #2q24.2 Advocating for my daughter & Rare Community 💗 #AAC MA Archaeology UCC Opinions my own
Maggie Larché @CSRG2022
28 Followers 39 Following Foster collaborative studies in the disease of Systemic Sclerosis and to raise awareness.
KC Taco Company @kctacocompany
341 Followers 181 Following A non-traditional Taqueria using the tortilla to share a variety of regional flavors and textures. We have a casual atmosphere w/ full bar and friendly staff.
Debbie Beye @DebbieBeye1
6 Followers 28 Following
EUSTAR @EUSTAR_org
1K Followers 150 Following European Scleroderma Trials and Research group - aims to foster the awareness, understanding and research of scleroderma and its management throughout Europe
SYNGAP1 Global Networ... @SyngapNetwork
3K Followers 2K Following Global #SYNGAP1 @cureSYNGAP1 🇺🇸🇬🇧🇪🇺 @Syngap1A 🇦🇷 @SyngapAus 🇦🇺 @OSyngap1 🇨🇦🇫🇷 @syngap1Germany 🇩🇪🇦🇹@syngap1italia 🇮🇹 & 🇪🇸🇮🇳🇯🇵🇸🇪🇨🇭
The Golden Scoop KC @thegoldenscoop
183 Followers 3 Following We are a non-profit ice cream and coffee shop that employs individuals with developmental disabilities.
Kansas City Monarchs @kscitymonarchs
18K Followers 457 Following 4x League Champions 🏆 Official account for the Kansas City Monarchs | Proud members of @AA_Baseball | Partners with @nlbmuseumkc #LongLiveTheFun 👑
Dixon's Famous Chili ... @DixonsChili1919
224 Followers 108 Following Pull up a chair at Dixon’s Famous Chili Parlor. Located in Independence, MO, we’ve been serving scrumptious bowls of chili since 1919.
Rareminds @RaremindsUK
945 Followers 2K Following Specialised mental health and wellbeing services for the rare disease community. https://t.co/eVmeTw0aah…
Mr. Dell's @MrDellsTweets
7K Followers 1K Following At Mr. Dell's, we are The Hash Brown Professionals offering 3 styles of Hash Browns including Shredded, O'Brien (onions and peppers) & Southern style (diced).
Gulcin Gumus @gulcingumus1
570 Followers 589 Following Molecular biologist and geneticist & Research and Policy Senior Manager @eurordis Rare Diseases Europe #genomics #diagnosis #newbornscreening #patientadvocacy
Julie🟧 🟦 @Juliethewarrior
30K Followers 31K Following She/her Stem Cell Transplant for #Scleroderma. #HSCT Live every day like it's your last. #RN #NativeAmerican #Potawatomi #TrailOfDeath #Kickapoo #FuckTrump
Steph /Steffy @Stephany0000000
210 Followers 856 Following In the Autumn of life, smiling through a crumbling Society 💚 #scleroderma NEEDS Awareness, Education +Support 💙 Please no DM's unless I know you!
Ashley S. Evans @SYNGAP1mom
5K Followers 4K Following Investor Francisco Partners Board @payscale @thisisgslate @litmos @SourceScrub @ZoomInfo Alum @OneCarlyle & @MorganStanley Founder @cureSYNGAP1 #SYNGAP1 🧬
TheRareFair @therarefair
738 Followers 765 Following Powered by @tda4rare, The Rare Fair is the original virtual event designed for all members of the rare disease community. https://t.co/m4Ar9Fuzkl
Sisters' Hope Foundat... @SistersHopeALSP
363 Followers 1K Following The mission of Sisters’ Hope Foundation is to support and empower families impacted by HDLS/ALSP.
Royals Hive @Royals_hive
848 Followers 2K Following • Kansas City Royals news, rumors, highlights, insider news, and more! #WelcomeToTheCity
Dan Pecher @dan_pecher
211 Followers 2K Following Channel Sales Engineer at @PCIPAL @mizzou grad | CCNA | CCENT | CMNA | python 🐍 | FinTech
SM Builders Wrexham @SMWrexham
31K Followers 24K Following Local Wrexham Builders for all your home improvement needs. 35 years in building house extensions, in the Wrexham,Chester,North wales area.
Rare Disease Clinical... @rare_trial
916 Followers 1K Following HRB-funded clinical trial network aiming to increase the quantity and quality of rare disease clinical trials in Ireland, keeping the patient voice at our core.
Kenneth Egwu @KennethEgwu1
1K Followers 1K Following Pharmacist | Co-founder @amr_program | @ResResistance '23 Grantee | @BSACandJAC @TheUrgentNeed '24 Grantee | Training Program Facilitator @SuperbugsSquad| #AMR
The AMR Narrative @theAMRnarrative
2K Followers 914 Following A charity promoting patient & public advocacy, community, awareness & education to mobilise collective action against Antimicrobial Resistance #theAMRnarrative
Richard Shippy @RichShippy
19K Followers 7K Following Biotech exec advancing genomics and multiomics. Driving precision medicine through strategic marketing, real-world impact, and customer-focused execution.
Giuliana Grossi @GiulianaGrossi
198 Followers 767 Following Editor 💬 @AJMC_Journal Director of Center on Health Equity & Access my views active on bsky - not here
Molly Leyda @mleyda_science
19 Followers 84 Following 👩🏼🔬Cancer researcher at the Children’s Mercy Research Institute 🧬 Perry & Myers Labs 🥼 Interested in immunotherapy for hematological malignancy 🧫🔬
CaminamosPorEllasyEll... @caminamos_ee
1K Followers 2K Following Visibilizar, Educar y Concientizar sobre el Síndrome de Rett Condición Poco Frecuente👸💜👦 Somos parte de #FenpofChile #RettLatina
head-in-the-clouds.bs... @leysbiotutor
2K Followers 6K Following Science teaching; Climate action; Natural History; Photography; Videography; LEGO®; Board games; Daily STEM & Parenting. Occasional whimsy 🙃
Miner Lab @miner_lab
2K Followers 2K Following Mechanisms & therapies for rare rheumatic diseases. Chair, Gene Therapy and Vaccines (GTV) Graduate Program @CAMBUPenn @UPenn_I3H @pennmedicine @rvcl_research
mansur🕊️ @mansurshaheen
7K Followers 1K Following lions & lfc. kashmiri. i cover health payers, pbms and healthcare. email me tips at [email protected].
محمد الجابر... @MuhmmadAljabri
59 Followers 537 Following Pediatrician | Ped.Rheumatologist | Alhilal💙 | Reviva Clin. Owner 🩺
CADForg @CadForg
118 Followers 224 Following Cold Agglutinin Disease Foundation Inc, CAD Foundation was created in 2019 as a non-profit, (501)(c)(3) corporation. It is dedicated to the advancement of CAD