Maggie Larché @CSRG2022
Foster collaborative studies in the disease of Systemic Sclerosis and to raise awareness. Canada Joined July 2022-
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Following39
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⏰ It’s National Be Late for Something Day — but don’t be late in spotting the early signs of systemic sclerosis (SSc). Early detection = better outcomes. 💙
👋 The CSRG team wants to hear from YOU—our colleagues in rheumatology, medicine, and pharma! We’re looking for your ideas on what you’d like to see featured on our social media channels.
At CSRG we are turning hard facts into groundbreaking insights — our biobank is where tough samples meet cutting-edge science.
📢 CSRG has Reached 100+ Publications on Scleroderma 📢 We’re proud to share that the Canadian Scleroderma Research Group (CSRG) has published over 100 peer-reviewed research papers focused on scleroderma.
📊 What is CSRG? Canadian Scleroderma Research Group (CSRG) is a national, multi-center research initiative dedicated to improving the lives of people living with SSc. Through cuttingedge research and collaboration, we’re helping to uncover new insights into this complex disease.
June 29 - World Scleroderma Day: CSRG is thankful for all the patients who share their time by participating in research studies.
See this Instagram video by @SclerodermaCAN instagram.com/reel/DLQV1QEPl…
CSRG is set to Make a Move across Canada! Find your local event this weekend and have some fun while raising funds :)
💊 Immunosuppression in early SSc—a growing trend? New data shows a rise in early treatment. Is the field shifting toward earlier intervention to change long-term outcomes?
CSRG is proudly funded partially by Scleroderma Canada! Come Make A Move with us as we raise essential funds for research. Find a walk near you!
Clinicians — how often do you ask about work when seeing your patients with systemic sclerosis? 🩺💼 This 2009 article by Hudson et al. found that nearly half of SSc patients were work-disabled early in their disease course. 👉 jrheum.org/content/36/11/…
🔬 Research Highlight from CSRG! Can simple blood tests help predict serious heart and lung complications in systemic sclerosis? Read more about how this could change early detection and care. 👇 pmc.ncbi.nlm.nih.gov/articles/PMC89…
Celebrating Volunteer Week at CSRG! This week, we're proud to celebrate Volunteer Week, a time to recognize and thank the incredible individuals who contribute their time and skills to help our community thrive.
📰 Article Highlight Check out this fascinating new research exploring patterns of disease progression in systemic sclerosis. Using a unique modeling approach, the study offers fresh insights into how damage unfolds over time.
🫁 CSRG Research Feature Interstitial Lung Disease (ILD) is a serious complication in systemic sclerosis. CSRG research is helping us better understand its impact and improve outcomes for people living with this condition.
Article Highlight: CSRG and Australian Scleroderma Interest Group explores how immunosuppressive drugs (ISs) impact damage accrual in early systemic sclerosis (SSc). 📷 Key Findings: Limited cutaneous SSc (lcSSc) – ISs were linked to lower organ damage.
Article highlight: A recent study from our registry explores the link between autoantibodies in systemic sclerosis (SSc) and an increased risk of cancer.
🚨 CSRG at CRA 2025! 🚨 We had an incredible time networking, learning, and collaborating with rheumatology professionals, researchers, and industry partners. Here are some key highlights from the conference! ⬇️
Our Patient Impact Survey Results are Live! View the report today, in honour of Rare Disease Day! scleroderma.ca/about-6-1
🦋 Rare, but never alone. On Rare Disease Day, CSRG stands with the scleroderma community—driving research, inspiring hope, and pushing for better care.

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