SclerodermaSalfordManchester @SclerodermaM
Scleroderma research at the University of Manchester & Salford Royal Hospital. For nailfold capillaroscopy research from our group, check out @McrNCM Manchester, England Joined March 2019-
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So exciting all my fundraising merchandise has arrived, for my first London Marathon 💚 🇬🇧 for @WeAreSRUK Time to make a difference💙 #scleroderma #raynauds donate below or share if you can 🙏🏻 💪🏻 2026tcslondonmarathon.enthuse.com/pf/scarlett-pr…
Excellent work from our group with help from colleagues in Leeds and Santiago, Chile
Excellent work from our group with help from colleagues in Leeds and Santiago, Chile
🚨Patients with systemic sclerosis survey alert 🚨 Questionnaire on ORAL HEALTH 👄 needs of people with systemic sclerosis (on behalf of the SCTC Orofacial in SSc Working Group) docs.google.com/forms/d/e/1FAI… @WeAreSRUK @Worldsclerofnd @EUSTAR_org @delgaldoFrances @alessia_alunno
Our Head of Research, Ula is at @eular_org in Barcelona, kicking off with powerful insights on ILD, digital ischemia, GI involvement & more in systemic sclerosis. A vital reminder of how far we’ve come and what’s still to come. #EULAR2025 #SystemicSclerosis #Scleroderma
Great to lead hybrid digital ulcer consensus meeting yesterday @OfficialUoM. Expert panel (including remote colleagues in Italy and Australia) discussing and assessing photographs to provide training data for machine learning/AI. @NCAresearchNHS
SURVEY! Seeking clinicians perspectives on oral drug treatment for SSc Raynaud's. Important Discrete Choice Experiment on how clinicians choose treatment (Dr Michael Hughes and @sclerodermaUM). survey.1000minds.com/23338/wb9vpmp2… @WeAreSRUK @Worldsclerofnd @EUSTAR_org @alessia_alunno
Just published in Microvascular Research: "Imaging the microvasculature using nailfold capillaroscopy in patients with Corona virus disease-2019; a cross-sectional study". Free access to our paper until April 17th 2025: authors.elsevier.com/c/1kgO85~Wz6eRV @NCAresearchNHS
JOB ALERT! Our group is recruiting for a part-time (0.5FTE) research assistant to work on an exciting international study of digital ulcers in systemic sclerosis. jobs.manchester.ac.uk/Job/JobDetail?… @WeAreSRUK @VersusArthritis @Worldsclerofnd @EUSTAR_org @NCAresearchNHS
NEW SURVEY for patients with systemic sclerosis (scleroderma) on the role of environmental and occupational factors in SSc. soscisurvey.de/OccupationalSS… @WeAreSRUK @Worldsclerofnd @VersusArthritis @alessia_alunno @delgaldoFrances @eular_org @FarrSue01 @NCAresearchNHS @RheumatologyUK
National survey explores rheumatologists’ awareness, approaches to diagnosis & management, & training needs within systemic sclerosis Dr Michael Hughes from @SalfordCO_NHS is the senior author on this @WeAreSRUK survey academic.oup.com/rheumap/articl… @SclerodermaM
This study particularly needs females aged 52-59 currently - the research appointment @SalfordCO_NHS only takes an hour and could help to improve care for people with systemic sclerosis (we're looking for people without the condition)
This study particularly needs females aged 52-59 currently - the research appointment @SalfordCO_NHS only takes an hour and could help to improve care for people with systemic sclerosis (we're looking for people without the condition)
🚨 We are delighted to share the newly updated Systemic Sclerosis guideline, published today! Key updates include interstitial lung disease, pulmonary hypertension, and more. Read more: bit.ly/3XnMSHO @WeAreSRUK
Great to see this work published - contributors include Drs Nuala O'Donoghue, Michael Hughes & Muditha Samaranayaka from @SalfordCO_NHS @SclerodermaM. Salford Royal is a referral centre for patients with #SystemicSclerosis & many of our patients have taken part in research.
Great to see this work published - contributors include Drs Nuala O'Donoghue, Michael Hughes & Muditha Samaranayaka from @SalfordCO_NHS @SclerodermaM. Salford Royal is a referral centre for patients with #SystemicSclerosis & many of our patients have taken part in research.
Learn more about the role Physiotherapy can play in scleroderma in our brand new webinar. On September the 27th at 12:00, we will be joined by guest speaker Will Gregory, a physiotherapist who will talk about pain management and exercises. Sign up now! bit.ly/3TtaHg3
NEW SURVEY: We are looking for current patients of #Rheumatology outpatient departments in the UK NHS/HSC. We want to know what you think about clinic letters and who they are written to. To complete our survey, or for more information, please visit: bit.ly/W2Pptsurvey
Today is #WorldSclerodermaDay! ✨ As we celebrate resilience and patient empowerment, and transforming #scleroderma care: Let's work together to advocate for innovative models that prioritise patient ownership, foster collaboration and drive positive change! 🤝
We have really enjoyed hosting Dr Masrurul Haque, a Scleroderma Clinical Trials Consortium-funded visiting fellow from Bangladesh at Salford Royal over the last month. We send him home with our best wishes. @NCAresearchNHS @NCAlliance_NHS
🔵 𝗥𝗲𝗰𝗿𝘂𝗶𝘁𝗶𝗻𝗴 𝗻𝗼𝘄 – MISDOSS Healthy participants aged 40+ years to help develop an imaging system to measure oxygenation in the skin of the hands and better manage people with scleroderma. Message us or visit: researchforthefuture.org/studies/misdoss
Great to hear the latest in nailfold capillaroscopy from @a_schofie , Dr Clare Pain, and @DinsdaleGraham at the SIG this morning. Special thanks to our patient volunteers for giving up their time for a live capillaroscopy demonstration! @cosmicfairy444 @NCAresearchNHS #bsr24
Spreading the WORD that children and young people get rheumatic diseases too @WORDDay_org @RMCHosp

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