Julius Coeruleus, MD @Champagne_TAPI
champagne taps on pause due to post-viral dysautonomia #POTS #Dysautonomia #MECFS #LongCovid Joined August 2020-
Tweets436
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New study out of New York showed 30.8% got #LongCovid after multiple infections, compared to 16.7% after one infection: thelancet.com/journals/lanam…
This is a must watch. Huge damage has been done by unscientific psychological theories of causation of #MECFS (& now #LongCovid). Patients have been physically harmed by wrong treatments, & abandoned by those closest to them. youtu.be/RiwX9Y0NbiQ?si… youtu.be/RiwX9Y0NbiQ?si…
If any therapist tells you that you have “Covid Anxiety” or “Covid Agoraphobia,” no you don’t. First, those aren’t real diagnoses. Second, it’s reasonable to be concerned about a nascent, unmitigated virus that has a myriad of negative affects. Stop pathologizing legitimate worry
Our new study shows that SARS-CoV-2 spike protein accumulates & persists in the body for years after infection, especially in the skull-meninges-brain axis, potentially driving long COVID. mRNA vaccines help but cannot stop it🔬🧠🦠🧵👇@cellhostmicrobe cell.com/cell-host-micr…
I think about this at least once a day. Along with how shorter quarantine times were dictated by airlines that lobbied the government out of fear they’d lose money instead of being based on sound medical or scientific basis.
The RISK of LONG COVID ⤴️ with each infection 13% after 1 infection 23% after 2 37% after 3 ...and yet - RAPID TESTS aren't widely available -MASKING isn't required in healthcare settings -AIR FILTRATION is under-utilized
The RISK of LONG COVID ⤴️ with each infection 13% after 1 infection 23% after 2 37% after 3 ...and yet - RAPID TESTS aren't widely available -MASKING isn't required in healthcare settings -AIR FILTRATION is under-utilized
This is my 3rd Halloween with #MECFS and my 2nd completely bedbound. It's the scariest experience of my life. Can @jonstewart or @iamjohnoliver help ME? #JohnVsJonVsME #GreatestMEdicalScandal
After 3 long, hard years of tireless work, our cross-campus, multi-discilinary academic team reaching our goal: State of CT support to scale up CR Boxes for every classroom in Connecticut! 💪🌬️💫💫 This passion project started from the point of care at @uconnhealth 🏥where I…
"Whether they were hospitalized or not, adults who have had COVID-19 are about 36% more likely than uninfected people to develop GI disorders including ulcers, pancreatitis, IBS, & acid reflux, according to a study in Nature Communications." #LongCovid time.com/7027179/covid-…
If 20% of those infected get Long COVID, and 37% of those quit work due to the symptoms, that’s over 7% of the people catching COVID that leave the workforce and school. (See Stanford study linked below) That is a staggering number. Let’s sanity check that. Figure some 60%…
Folks, the clock is running down on telehealth: we're set to lose access in < 3 months! It's all hands on deck: call your 3 Members of Congress & say you feel *extremely strongly* about telehealth, & they need to pass legislation *now* to maintain access past Dec. 31. 1/6
Folks, the clock is running down on telehealth: we're set to lose access in < 3 months! It's all hands on deck: call your 3 Members of Congress & say you feel *extremely strongly* about telehealth, & they need to pass legislation *now* to maintain access past Dec. 31. 1/6
A FOIA request has revealed that thousands of patients caught COVID in NSW hospitals last year and hundreds died. This is happening in hospitals all around the world. Hospitals need to require masks and do more to stop preventable infections. abc.net.au/news/2024-10-1…
Maskless healthcare workers - would you be willing to tell me WHY you don’t mask? I’m not looking for “because I don’t have to”. I want to know why you don’t mask mirror for patients and/or CHOOSE to take precautions? Respectful answers only please. I’m genuinely asking.
“In the most expansive study of its kind, researchers have for the first time shown serious and prevalent symptoms of #LongCovid in kids and teens. The study, which followed 5367 children, found that 20% of kids (ages 6-11) and 14% of teens met researchers' threshold for LC”
This week in key Covid publications and preprints: —Increased risk of major adverse cardiovascular events 3-years out, irrespective of severity ahajournals.org/doi/10.1161/AT… —7T MRI showing brainstem inflammation months after severe Covid academic.oup.com/brain/advance-… —Long Covid individuals…
.@VP needs to articulate a clear and comprehensive plan to address the crisis of #LongCovid. Many Americans like Martha (in this video) are severely impacted by Long Covid, have lost their jobs and incomes, and are waiting far too long for disability support.
.@VP needs to articulate a clear and comprehensive plan to address the crisis of #LongCovid. Many Americans like Martha (in this video) are severely impacted by Long Covid, have lost their jobs and incomes, and are waiting far too long for disability support.
If you have a disease as severe as the worst cancers, yet it isn’t recognized enough by the medical community, feeling like less of a human isn’t just in your head—they actually see you as less of a human. #MECFS #LongCovidKids #LongCovid
It is 2024 and long covid researchers are still unaware of PEM. I really don't get it. It wasn't like I myself knew what PEM was before I fell ill. But I was forced to learn. How are researchers allowed to get away with less than the bare minimum time and time again? 🤷♂️
frequently horizontal... @AislingReverdie
1K Followers 2K Following Solidarity with sick people but for real (she/her)
Minghao Gong @MinghaoGongD960
428 Followers 1K Following Musically-inspired Postdoc @ Jackson laboratory for Genomic Medicine - Pains sharpen the mind and channel the spirit to the utmost heights!
jesus hilario mena @jesushilariomen
11 Followers 808 Following 🥗Enjoy the freedom of Echi nicotine pouches—elegance without smoke. WhatsApp:852-90568182
Whselo @WhseloaPdHYaV
1 Followers 54 Following
#MEAction Network @MEActNet
19K Followers 3K Following A global network fighting for equality for Myalgic Encephalomyelitis. #MEAction #MillionsMissing https://t.co/JhhNZoFYJi
#9 Dream @GayFabFourFan
4K Followers 6K Following Gay Beatlemaniac who’s doing his best to stay safe and help protect others during an ongoing pandemic. #COVIDisAirborne
˚ ཐི⋆𝔩𝔞�... @intogolddust
763 Followers 2K Following 𝔱𝔴𝔢𝔫𝔱𝔶 𝔱𝔥𝔯𝔢𝔢 ⋆ 𝔪𝔢𝔠𝔣𝔰 ⋆ 𝔞𝔪𝔟𝔲𝔩𝔞𝔱𝔬𝔯𝔶 𝔴𝔥𝔢𝔢𝔩𝔠𝔥𝔞𝔦𝔯 𝔲𝔰𝔢𝔯 ⋆ ♡𝔠𝔥𝔞𝔯𝔩𝔦𝔢♡
Karen Lubell @karenlubell
3K Followers 2K Following ME/CFS is a connective tissue weakening caused/worsened by a virus. This can lead to Craniocervical Instability, Venous Compressions, CSF leaks and more.
Adam Van Bavel 🤝 @AdamVanBavel
7K Followers 8K Following +Δ | 4X @City_Paper #DoGooder @Baltimoremag #40U40 | #GoodTrouble ✊ | #LongCOVID 🦠 | #YallMasking #IndoorAirQuality 😷https://t.co/wsNiNrogqy 🙏
Covid Caution - BA.3.... @CovidCaution
9K Followers 3K Following Collection of news, resources, discourse on the ongoing COVID-19 pandemic & health advocacy. Occasional venting & hot-takes. Let data be the light in the dark.
Liv @oliviaahliv
2K Followers 632 Following
AloneLonghaulLady @LadyLonghaul
1K Followers 8K Following severe ME • needs more 🥄 • LC 2020 • prefers clean air • some adult language • #ADHD #HSD #pwME #FBLC #MCAS #CareShareGive https://t.co/w5DtMNfLbn
A 😎 @AaronCa11
5K Followers 6K Following
baguels @baguels
31 Followers 251 Following
Anil van der Zee © @AnilvanderZee
10K Followers 865 Following Former professional ballet dancer | Bed-bound M.E. patient | Using ✖️ to raise awareness for #MyalgicE | #IACI #art2cureME #pwme #millionsmissing
Autisdick @hiimchiralkthx
1K Followers 2K Following Better the devil you know than the devil you don’t
Flor 🥀 @lugaresxcomunes
2K Followers 1K Following we need funding for research and treatments for Myalgic Encephalomyelitis and Long Covid NOW | #pwME #adhd
Ron Chusid @RonChusid
12K Followers 13K Following Doctor posting about saving lives: following the science on the pandemic, ending the wars, #ceasefirenow, preserving safe & legal abortions & #MedicareForAll.
plague rat 🐀 @x3r0gx4
7K Followers 7K Following
RemissionBiome MECFS/... @remissionbiome
10K Followers 990 Following Project run by @renegaderes, a non-profit 501c3 focused on #MECFS & #LongCovid • https://t.co/kbmqa2yImN • https://t.co/IkTfALVBWC💙 Donate now ▶️ https://t.co/yNyiFapV80
Top Media Pi𝕏 @JasonXMedia
10K Followers 9K Following Movies, Music, Gaming, & Anime Nerd…Sometimes Sports & Politics. ME/CFS Warrior & 💯 % Anti WEF
Misty @crescendomisty
192 Followers 1K Following Caregiver & Organizer. Following COVID, Long COVID, MCAS, ME/CFS, POTS, and other disabilities.
Marie McNulty @mcnulty_marie
463 Followers 817 Following “Junior” infection Dr. On pause due to #LongCovid. Previous work @NHS_HealthEdEng @DiabetesUK #type1 #diabetes since ‘88, Hybrid loop. ❤️ the #NHS. Views my own
Kat E @smallmercies1
428 Followers 3K Following #MECFS/#Fibromyalgia warrior. Post-flu onset in 2007. Formerly a physician. G93.32
Erin Kidd @erinskidd
404 Followers 2K Following Feminist Theologian, Associate Professor @StJohnsU, Doing Theology from the Gut. she/her. #LongCovid #MECFS
A Tired Owl ⒶⓋ @aTiredOwl
1K Followers 3K Following #MyalgicEncephalomyelitis #LongCOVID ally. Networking with #pwME and other chronic illnesses. ⒶⓋ🍉
Charlotte @CharlotteMECFS
238 Followers 777 Following Clinical pharmacist with an interest in ME, long covid, POTS and post-infectious sequelae
a tired human @saffronandsky
2K Followers 1K Following disability justice💜. Mod chronic illness 4 decades. long covid in '22 = very severe MCAS, ME&POTs= bedbound. Parent, mixed race, writer, gardener ♿ 🏳️🌈☸️
Heidi Fidler @HidFid
497 Followers 5K Following RN, PhD drop-out (for now at least) 💓 Peds & NICU. POTS (likely LC triggered), MCAS, ME/CFS, HSD & endometriosis. https://t.co/DLWQcItnjY
Vital Reaction® @h2vitalreaction
818 Followers 5K Following Full Body Rejuvenation! Vital Reaction® is a #health and #wellness company specializing in molecular #hydrogen. #LongCovid #MECFS #CKD #Fatigue #millionsmissing
Jenn @JennBrandice
146 Followers 388 Following
Ttifc @Ttifc1
390 Followers 5K Following
kim93 @kimgl1993
625 Followers 147 Following Vor meiner Infektion immer auf Reisen und die Welt entdeckt. Fitnessfreak und sehr gesund unterwegs. Dann nahm mir Corona Me/cfs + Pots mein wundervolles Leben.
Explorer @ExplorerinTwitt
248 Followers 2K Following
Laila 🌻 @lailamourthe
227 Followers 2K Following Architect and researcher from Brazil 🔬. A decade through ME/CFS. #homebound 99% and #bedbound 80%.
Nathan Ambrose Barry @nambrosebarry
673 Followers 5K Following vExpert VCIX-DCV, VCAP 2020 Design, VCAP6-Deploy, VCP6, DECS-SA VNX, MCSA 2012, MCITP:Virtualization. Beginner blacksmith
Celine @Celinegardenss
1 Followers 5K Following
Matthew Kirby @aintnometaphor
590 Followers 1K Following ME/CFS, long-covid, generally finding it impossible to live life on life's terms, #FBLC
Stephanie #KeepMasksi... @acrobatsteph
430 Followers 2K Following Math and Science Educator🧪MechE🔧 Retired Acrobat🤸 ME/CFS and Long Covid🛌 Advocate for Clean Air in Schools🫧 & Masks in Healthcare Settings😷
Blake Johnson @BlakeJohnson
8K Followers 5K Following Reporter and aviation nerd for @7NewsMelbourne. [email protected] || https://t.co/5jPi0xjpfX
Cataplasme #DavosStan... @Cataplasme3
463 Followers 665 Following #covidlong #apresj20. Pas arrêtée mais qualité de vie dégradée depuis mars 2020. France. Je ne suis plus là je suis sur Mastodon @[email protected]
Susana Santina @susa7170
9K Followers 6K Following ZDF-Reporterin, twittere privat. Kein ZDF-Account #RassismusTötet #FreeThemAll #StandWithUkraine #StandWithIranianPeople #PutinToDenHaag
Martin Picard @MitoPsychoBio
22K Followers 843 Following Mitochondrial Psychobiology. Bridging the science of energy and the human experience to create Healing Science. Upcoming book: ENERGY (2027).
Katrin Boniface @KatBoniface
2K Followers 3K Following Historian. Equestrian. Cheese-lover. https://t.co/52OqfKDI3E Also sometimes at: @Equine_History Previously: @SHOT_ECIG @HNet_Sport @Wheats2018 @RsideLatinoPH
CBS Sports Golazo ⚽... @CBSSportsGolazo
429K Followers 1K Following Welcome to the home of... ⚽️ The World's Game 🌎 📺 CBS Sports Golazo Network. 24/7 and FREE 👉 Link in bio 🎶 And... THE CHAAAMPIONS 🎶
Julia Marie @julia_doubleday
13K Followers 3K Following Writer of The Gauntlet, about COVID and public health. Read: https://t.co/uzPwhelci9 Subscribe: https://t.co/ZOMe31Rwbo
Andra @BioavailableNd
137K Followers 721 Following Naturopath. Fertility. Nose To Tail. Lactoferrin. Independent Researcher. Food Allergy Mommy. Educational content only · Not medical advice
Data Report @CovidDataReport
26K Followers 1K Following Tracking the Covid Pandemic and other health news. Opinions are my own. My YouTube channel: https://t.co/CYHulpYCge
Kristina Lebedevaitė @KLebedevaite
263 Followers 102 Following Family doctor, ultrasonographer. Fields of interest: patient's complex case management; ME/CFS; POTS; dysautonomias; Long Covid. Think outside the box 🧠
Prof Gemma Carey, PhD... @gemcarey
24K Followers 2K Following This account is no longer active Views are my own
Gaza Funds @gazafunds
29K Followers 129 Following Visit https://t.co/J2mcURjKQv or https://t.co/zqWCPSiEtM Palestinian led. Volunteer @gazachampions! Follow @sudanfundshare @sameerproject
A 😎 @AaronCa11
5K Followers 6K Following
Niall Harbison @NiallHarbison
552K Followers 1K Following On a mission to save street dogs around the world. You can support here...
Ron Chusid @RonChusid
12K Followers 13K Following Doctor posting about saving lives: following the science on the pandemic, ending the wars, #ceasefirenow, preserving safe & legal abortions & #MedicareForAll.
Adam Wong @Engineer_Wong
9K Followers 105 Following Engineer of hydromechanics. Love to invent all kinds of air purifier. Founder of the brand "AirFanta". Email: [email protected].
Salvatore Mattera @SalvMattera
13K Followers 1K Following Finance manager @Google. Biohacker. Best source for Long COVID info: https://t.co/cIDx3DafoK - All opinions my own.
Joaquín Beltrán Fre... @joaquinlife
20K Followers 10K Following
Top Media Pi𝕏 @JasonXMedia
10K Followers 9K Following Movies, Music, Gaming, & Anime Nerd…Sometimes Sports & Politics. ME/CFS Warrior & 💯 % Anti WEF
nature @Nature
2.6M Followers 3K Following Research, News, and Commentary from Nature, the international science journal For daily science news, get Nature Briefing: https://t.co/wGmQlQ8a4D
Gator | Dentist @BowTiedGatorDDS
83K Followers 897 Following I’m the dentist that doesn’t agree with the other 9 | Not Medical Advice | Co-founder of Twitters favorite toothpaste @betterbiom 👇
Danielle Beckman @DaniBeckman
38K Followers 4K Following Just a nerd (trying to be a decent human). Researcher @CNPRCresearch, @alzassociation fellow. Cure #LongCovid https://t.co/nM3l9AkPsF
Sign Languages @sign__languages
112K Followers 10 Following Building tons of projects, one block at a time with the knowledge of sign language. ✌️🌟
Whitney Dafoe @DafoeWhitney
11K Followers 72 Following Severe ME/CFS patient and advocate. Sick since 2004, bedridden since 2013. Never. Giving. Up. ✊ Useful info for ME/CFS and Long Covid patients in bio link.
Charlotte @CharlotteMECFS
238 Followers 777 Following Clinical pharmacist with an interest in ME, long covid, POTS and post-infectious sequelae
Lindsay McAlpine MD @McAlpineLabYale
1K Followers 134 Following Neuroimmunologist Principal Investigator, McAlpine Lab Researcher & Expert in Neuropsychiatric Long COVID Yale University School of Medicine
Visions In Veils @VisionsInVeils
1K Followers 298 Following Splicing Science & Spirituality, V.I.V. offers HOCl 101 classes, generator kits, test strips, private tarot readings, bespoke N95 veils & more!
NootBro @nootropicguy
81K Followers 2K Following Unlock peak performance. Biohacking, supplements, nootropics, & pharmacology. Followed by @HubermanLab. Tweets are not medical advice.
Rebecca Ryan @DrRebeccaRyan
5K Followers 751 Following Gastroenterologist & Hepatologist. Disorders of the Gut Brain Axis. Treating Long Covid, POTS, MCAS, hEDS.
A Tired Owl ⒶⓋ @aTiredOwl
1K Followers 3K Following #MyalgicEncephalomyelitis #LongCOVID ally. Networking with #pwME and other chronic illnesses. ⒶⓋ🍉
Brian Fog @useless_priest
8K Followers 5K Following Mild LC/ME Apr 2022 | ME, when triggered by SARS-CoV-2, is a subset of Long COVID | Repeated triggering of PEM leads to lowering of baseline | 🏳️🌈 | 🇮🇪
Junior @nolimitjuni0r
2K Followers 814 Following 23 year old long hauler trying to piece my life back together. Former CC/T&F athlete. @miamiheat fan. #longcovid #notrecovered.
Bateman Horne Center @BatemanHorne
7K Followers 1K Following Bateman Horne Center is a non-profit medical, research, and education center devoted to eradicating ME/CFS, FM, Long COVID, and related conditions.
a tired human @saffronandsky
2K Followers 1K Following disability justice💜. Mod chronic illness 4 decades. long covid in '22 = very severe MCAS, ME&POTs= bedbound. Parent, mixed race, writer, gardener ♿ 🏳️🌈☸️
Heidi Fidler @HidFid
497 Followers 5K Following RN, PhD drop-out (for now at least) 💓 Peds & NICU. POTS (likely LC triggered), MCAS, ME/CFS, HSD & endometriosis. https://t.co/DLWQcItnjY
Post-Viral Trials New... @postviraltrials
4K Followers 158 Following No longer posting updates here – find me at https://t.co/jJvezA5luH
Ziyad Al-Aly, MD @zalaly
32K Followers 954 Following Physician-Scientist | TIME100 Health https://t.co/AXG4WotuRc Profile: https://t.co/ywweQn5DHA…
Alice Wong 王美華 @SFdirewolf
76K Followers 4K Following Disabled oracle. Founder, @DisVisibility. Editor, DISABILITY INTIMACY https://t.co/HUW0gq4JTd Available NOW!
NBC Sports Soccer @NBCSportsSoccer
660K Followers 785 Following Supporters of the beautiful game. The American home of the Premier League on NBC, @usanetwork and @peacock.
CranioCervicalInstabi... @CranioUnstable
708 Followers 3K Following My entire adult life has been a daily struggle with #cervicalspine instabi(ity symptoms, and now totally disabling and untreated #CCI and #MECFS. Please help!
Nancy Scagnelli @NancyAnnScagnel
65 Followers 813 Following
Breathe Safe Air @safe_breathe
6K Followers 78 Following Everything that you need to know about air pollution. Respirators, masks, air purifiers, monitors and more.
Anil van der Zee © @AnilvanderZee
10K Followers 865 Following Former professional ballet dancer | Bed-bound M.E. patient | Using ✖️ to raise awareness for #MyalgicE | #IACI #art2cureME #pwme #millionsmissing
Christoph Ströck @cstroeckw
8K Followers 603 Following Soon, people will look back in disbelief at what has happened to patients with ME/CFS | Godspeed 🙇🏼
Neuro Sjogrens @NeuroSjogrens
3K Followers 947 Following 🔎 Search this profile for topic info. Neuro damage is prominent in Sjogrens. NeuroSjogrens/Sjogrens/chronic illness info posted. Advocacy, not med advice.
Richard Lewis @Z3R0Gravitas
1K Followers 2K Following Extropian sci/tech geek. Improving moderate #MEcfs, #non24-hour sleep. #ADHD-PI, #AuDHD, #dyslexic. "ZeroGravitas" in PC gaming. He/him. 42. Please correct me.
Josh @ProperChels34
3K Followers 268 Following #LongCovid+ ME/CFS since Feb 2021. #POTS #AdrenalInsufficiency #CCI
Nicholas Boyd-Gibbins... @NBoydGibbins
3K Followers 647 Following UCL | Kyoto Univ. | cell engineering, synthetic biology, iPSCs, data science, long COVID, cancer, genetics and neuroscience @amaticahealth
Ben H @benh_mecfs
6K Followers 2K Following ME/CFS patient advocate, @OpenMedF science correspondent. Bedbound. Former biochemist in training, physiology, powerlifter, PT/gym manager. Musician. F1/Boxing.
Aftab Khan, MD @aftab_usa
14K Followers 4K Following Board Certified Internal-Medicine Physician. Views my own; Likes, RT-🚫endorsements/medical advice.
Efthymios Kalafatis @lifeanalytics
5K Followers 3K Following Data Scientist, Patent owner of Artificial Intelligence-assisted methodology for Medical Discovery. Tweets are mine/not medical advice or endorsements.Trends for United States
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