Decentralized Chronic Network @DChronicNet
A Global Community for Patients with Chronic Complex Illnesses (Always follow back people on the community) The network Joined December 2023-
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Everyone is waiting for AGI (Artificial General Intelligence): when an AI can perform as well as a human in all domains But no one is celebrating API (Artificial Political Intelligence), which has already happened: the moment an AI became better than all politicians. What model…
I wonder why decentralized organizations aren’t bigger in 2025. I’d build on Ethereum L2 and drop the “autonomous”—real systems still need humans. With AI cutting coordination (proposal digests, anti-sybil, treasury ops), this can scale. Scammy noise ≠ fake rails.
Breast-cancer research boomed because hospitals, charities, and drug companies saw power in a pink-ribbon story: a deadly tumour they could treat, a simple image they could market, and millions of survivors who could run races and fill donation jars. Women were celebrated as long…
Breast-cancer research boomed because hospitals, charities, and drug companies saw power in a pink-ribbon story: a deadly tumour they could treat, a simple image they could market, and millions of survivors who could run races and fill donation jars. Women were celebrated as long…
1) OMG we did it‼️‼️ In this film for #MEawarenessmonth, five medical doctors open up about living with #PAIS/#IACC conditions like ME, #longCOVID, and chronic #Lyme. It’s a format that I believe has never been shown before, not just in the Netherlands youtu.be/J0ywwLIfH_w?si…
I’ve just browsed through the agenda and what a stellar line-up of speakers and subjects 💜✨✨ events.mecfs-research.org/en/events/conf…
I’ve just browsed through the agenda and what a stellar line-up of speakers and subjects 💜✨✨ events.mecfs-research.org/en/events/conf…
1. Join us on May 16, 2025 for this Renegade Research Clinician's Roundtable (Registration link in comment) Stuart Malcolm, MD, medical director of RTHM & John Haughton, MD, our medical director will discuss and treatment pathways and challenges.
With #mecfs, the aerobic energy system is damaged. Cells can't produce enough energy for basic activities: showering, dressing, digestion, standing, walking, talking & even thinking. Pushing ourselves to exercise worsens symptoms so sharply that we can become permanently sicker.
With #mecfs, the aerobic energy system is damaged. Cells can't produce enough energy for basic activities: showering, dressing, digestion, standing, walking, talking & even thinking. Pushing ourselves to exercise worsens symptoms so sharply that we can become permanently sicker.
There's many excellent resources on #GreatestMEdicalScandal, the historical & ongoing neglect of people with #MyalgicEncephalomyelitis #MECFS (Dx for which ≈50% of #LongCovid qualify). We gathered some of our favorite for #JohnVsJonVsME @JohnVsJonVsME: johnvsjon.com
I’m calling on the whole community to join a discussion group so we can get organized. It's time to come together and work in favor of our own interests, without depending on self-serving leadership. We've created a Telegram group (ownership will be decided by vote or lottery) DM
The handling of ME/CFS is clearly one of—if not the—biggest systemic failures in modern medicine. I’m convinced that nothing else even comes close, at least not in the Western world. In no other case is there not only such profound neglect, but also so much active harm inflicted.
It's an open secret. Doctors don't know that much. We're barely scratching the surface at the deeper mysteries. The honest ones will tell you so.
This is a serious issue. Celine @healingfromlc is already severely ill with COVID-related complications. She had a dangerous reaction to the CT contrast and hasn’t slept in 2 weeks. She needs urgent attention! @ministerVWS Please share to help reach someone who can help her.
Long COVID and ME/CFS were associated with significant reductions in all aspects of quality of life in our recent systematic review at the NCNED. Read the full article here: doi.org/10.1186/s12967… @NCNEDResearch @SonyaGradisnik @NEatonfitch @ThapaliyaK #LongCOVID #MECFS
ZenobiaJoyce @727W66yO4O07wf7
0 Followers 261 Following
AlexiaAnna @2CWww81ty1OR8
2 Followers 126 Following
Sally @armendariz_sall
301 Followers 3K Following
Irdreewir @Irdreewir57702
52 Followers 2K Following
Christina @christina4hope
4K Followers 6K Following ME/CFS ,Fibromyalgia ,Longcovid,lyme Boriliose,MCS ,Vax Injured( not corrona vax ),Hearing loss ect . Also find me on @christina4hope.bsky.social
Greg Mayer @mayer_greg25591
20 Followers 2K Following
living man :Shane: @ShaneCh54490629
1K Followers 1K Following
MEcfs Mom @MEcfsMom
157 Followers 2K Following
RemissionBiome MECFS/... @remissionbiome
10K Followers 990 Following Project run by @renegaderes, a non-profit 501c3 focused on #MECFS & #LongCovid • https://t.co/kbmqa2yImN • https://t.co/IkTfALVBWC💙 Donate now ▶️ https://t.co/yNyiFapV80
Tess Falor, Ph.D. | R... @tessfalor
9K Followers 6K Following Founder - Renegade Research @renegaderes - RemissionBiome @remissionbiome
Herpes Virus Reactiva... @thegodofpleasur
650 Followers 670 Following Devoted husband to Deb - who (like Ariadne) I rescued from a Greek island. Who was Dionysos & why is Naxos is special to me? https://t.co/sw9wsiylND
Well Lah-Di-Dahh @WellLahDiDah
513 Followers 541 Following
Luke Holmes 🏴�... @Lukeholmes11
86 Followers 97 Following
Dolores martin @maria6831423712
118 Followers 403 Following 3,5 años 2,5 grave #PostCOVID. Autodidacta con ansias de aprender. Me encanta la Ciencia. Discapacitada. Rasgos Asperger. Aventurera. #EMSFC #FM #MPE
Kate @museryuk
92 Followers 406 Following design strategist. long hauler. sick and tired of always being sick and tired.
Jana Petersen @janaxpetersen
2K Followers 1K Following In love 🥰 journalist @tazgezwitscher @zeitonline @queer_anthro – on pause w/ #LongCovid und #MECFS since 05/22 @janaxpetersen.bsky.social ☿
N.Crawford 🐈⬛... @Caitshith
740 Followers 3K Following eco-socialist. disabled with moderate-severe viral ME, neurodivergent with adhd + autism. RT-heavy account due to energy limits. I boost mutual aid. she/her
Brenda chenowith @ChenowithBrenda
3 Followers 1K Following
Bella Dubrov @BellaDubrov
46 Followers 6K Following
jibé @jibe_jeybee
612 Followers 7K Following
Meder O @meder_o
2K Followers 7K Following Software Engineer - Sports, Medicine, Health, IAQ | https://t.co/r4zU0hO4kW | https://t.co/Uuv2fGfTYs | https://t.co/XyeNWdoZkt | https://t.co/AS1sbsA2zo
rbenlg @rbenLG
1K Followers 954 Following Covid persistente. Me está intentando quitar las ganas de vivir....., pero lo lleva crudo.💪✊ @covid_larioja
T @Yrrepmot
872 Followers 2K Following Barely living with #MECFS, and #ComplexChronicIllness including #PAIS #IACCs #CIRS #EDS #POTS #PSSD #TooTiredToThink #MUFC #Socialism
Ted Monroe @TedMonroe91
248 Followers 1K Following English teacher; writer; impatient long Covid patient
Mike Hoerger, PhD MSC... @michael_hoerger
38K Followers 12K Following Expert in weighing medical evidence, cancer, COVID forecasting & mitigation, health disparities, financial analytics. 120 publications. PhD program director.
Tracey Burgess @TraceyABurgess
3K Followers 4K Following Mum to a trans daughter 🏳️⚧️ who loves the natural world.🌿Degrees in Hist/Phil & Counselling/Psychotherapy. Unwell since 2007, worse 2016/17. Improved.🌼
Bellatrix Sesh @beatriceroths
145 Followers 763 Following Sweden, plant fueled , religion free, cats is happiness, longcovid since -22 Airborne aware! TAEMate Shinee G-Dragon & BB. XLOV
X_user @transhumanoXY
64 Followers 138 Following PhD in Mathematics | Housebound/Bedbound | #SevereME #Dysautonomia | Boosting & following back chronically ill voices 💙
Renegade Research @RenegadeRes
2K Followers 3K Following Patient led nonprofit 501c3 on #MECFS & #LongCovid • https://t.co/Tv4Sb4yLzd 💙 Runs project @remissionbiome • Donate ▶️ https://t.co/Qovzyu0mqp
Lisa Bella @LisaBella294061
365 Followers 7K Following 𝐈𝐍𝐕𝐄𝐒𝐓𝐎𝐑𝐒 𝐌𝐄𝐍𝐓𝐎𝐑 📊𝐌𝐚𝐧𝐚𝐠𝐞𝐬 𝐓𝐫𝐚𝐝𝐞 𝐀𝐜𝐜𝐨𝐮𝐧𝐭𝐬, 𝐅𝐨𝐫𝐞𝐱 & 𝐂𝐫𝐲𝐩𝐭𝐨 📥𝐒𝐞𝐧𝐝 𝐌𝐞 𝐃𝐢𝐫𝐞𝐜𝐭 𝐌𝐞𝐬𝐬𝐚𝐠𝐞
Kyle @lovelyson116564
106 Followers 1K Following
Amelia Solomon @FilmandTVMania
886 Followers 2K Following Film Critic @movieboozer, Producer @adversityseries, Screenwriter, & lover of cats. Bedbound with #LongCovid, #POTS, #MECFS Forgotten, but still here.
Suzaku has Long Covid... @Suzaku_is_tired
1K Followers 2K Following Long Covid / MECFS patient since March 2021 • 🇪🇦🇨🇵🇬🇧 •
ArianeK 💜 #Care4Co... @arianek
4K Followers 3K Following Co-founder @Textillia! ✂️💕 • SFU Geog • Public health/urban planning/web nerd • #NeuroSjogrens • #Dysautonomia #Care4ComplexCanada ♿️🌈🇦🇲🦆🐶📚🖖💌🌿
Arsen Balls @ArsenBalls
1K Followers 3K Following Former taxi driver of Cab 666, Satan’s official driver. Fmr political staffer to hazzas. MECFS certified meat in human skin. Living on unceded Kokatha land.
Lene Benedicte @BenedicteLene
1K Followers 788 Following Former musician mostly housebound with #ME. BA in Music. BA in Theatre. 3/4 of a MA in Theatre, had to stop due to MECFS. I write. Languages. Genealogy.
Carrie Anna McGinn @Carrie_McGinn
1K Followers 2K Following Infection-associated chronic illness advocate | MSc | #PatientPartner | She/Her | #MECFS #MyalgicEncephalomyelitis #POTS #LongCovid #CovidLongue #CovidLong
Sarah @BirbsAreReal
485 Followers 1K Following Forty-something retired biologist and ME advocate. Lover of birds and yarn. Former athlete. https://t.co/rBbNBTEspH
Matt Lazell-Fairman @mfairma
1K Followers 1K Following ME patient. Spouse with LC & ME. Fund marginalized diseases. Plow under suburbia. Build walkable, accessible towns and cities.
Claire 🧠🔥 #pwME... @Naylor007
2K Followers 5K Following ME, FM, OH, MCAS, TMJ, OSA, DDD, TOS, hypothyroid stole too much from me. Doing everything I can to take back what's mine💪 I will do what i can to help others
Webb Powell @DoubleYouPowell
261 Followers 5K Following Disabled by Long Covid w/ ME + POTS, Jan 2020. Crohn’s. Probably AuDHD.
Sabrina Poirier (On H... @Sabrina_Poirier
6K Followers 6K Following Community Builder / Passionate Collaborator / Chair - #MedicalEducation Group / #ResearchPartner / #MECFS #LongCovid Advocate / #PwME / #MCAS / #POTS / #Fibro
Chronically Illumise ... @ChronIllumise
420 Followers 786 Following Lily. #pwME, pwPOTS, Pokémon fan (she/her).
isa @anardiska
517 Followers 495 Following 🇻🇪 Disabled/Chronically ill. Film lover that can’t even do that bc very severe Myalgic Encephalomyelitis + comorbidities. Can’t reply/interact conssitently 🏴
Ekhi @Ekhi_sasienGain
561 Followers 391 Following Let's move ME! Lo hice porque no sabía que era imposible
MEcfs Mom @MEcfsMom
157 Followers 2K Following
Amy Proal, PhD @microbeminded2
29K Followers 5K Following Microbiologist at @polybioRF: studying how persistent pathogens drive inflammaging, mitochondrial dysfunction & cognitive decline #longcovid #lyme #alzheimers
Tess Falor, Ph.D. | R... @tessfalor
9K Followers 6K Following Founder - Renegade Research @renegaderes - RemissionBiome @remissionbiome
FionaPWME @fioname.bs... @FionaPWME
2K Followers 3K Following Was a journo/writer/editor. #MECFS has crushed my life for 15 years. (Profile pic: excerpt of cartoon by @KorneliaPaulson.)
Katie Klocksin, by th... @KatieKlocksin
3K Followers 5K Following 😷 LONG COVID IS COMMON 😷 Radio +podcast producer, one of the #MillionsMissing with #LongCovid #MECFS / @transom_org alum
X_user @transhumanoXY
64 Followers 138 Following PhD in Mathematics | Housebound/Bedbound | #SevereME #Dysautonomia | Boosting & following back chronically ill voices 💙
Luke Holmes 🏴�... @Lukeholmes11
86 Followers 97 Following
Dolores martin @maria6831423712
118 Followers 403 Following 3,5 años 2,5 grave #PostCOVID. Autodidacta con ansias de aprender. Me encanta la Ciencia. Discapacitada. Rasgos Asperger. Aventurera. #EMSFC #FM #MPE
Well Lah-Di-Dahh @WellLahDiDah
513 Followers 541 Following
Breanna Weigel @breannaweigel_
42 Followers 100 Following Public Health PhD Candidate by day, Piano Teacher by afternoon | she/her
Not suffering in sile... @MECFSsufferer
54 Followers 224 Following ME/CFS sufferer. Advocating for research on how to explain, diagnose and treat this condition. ……………………🧡 Follow me! 🧡
Lisa @rainbowjanelane
448 Followers 94 Following mostly just my rants about my illness. i'm 31, living with #LongCovid since February 2021. 2nd covid infection as of February 2025.
masked & vaxxed @sorchaDe
1K Followers 2K Following blm. she. NoVA. new england irish. education is underfunded. NPS. USPS. 911 = socialism sometimes works
Julie Houston @JulesAHouston
2K Followers 2K Following Body malfunctioning since 1998 MECFS POTS MCAS. #LongCovidKids #LongCovid #PANS #PANDAS ally #MasksInHealthcare #CleanAirForAll https://t.co/VJrLviBZCz
Jana Petersen @janaxpetersen
2K Followers 1K Following In love 🥰 journalist @tazgezwitscher @zeitonline @queer_anthro – on pause w/ #LongCovid und #MECFS since 05/22 @janaxpetersen.bsky.social ☿
Tone Bakkevold @TBakkevold
91 Followers 284 Following
Kate @museryuk
92 Followers 406 Following design strategist. long hauler. sick and tired of always being sick and tired.
N.Crawford 🐈⬛... @Caitshith
740 Followers 3K Following eco-socialist. disabled with moderate-severe viral ME, neurodivergent with adhd + autism. RT-heavy account due to energy limits. I boost mutual aid. she/her
Meder O @meder_o
2K Followers 7K Following Software Engineer - Sports, Medicine, Health, IAQ | https://t.co/r4zU0hO4kW | https://t.co/Uuv2fGfTYs | https://t.co/XyeNWdoZkt | https://t.co/AS1sbsA2zo
jibé @jibe_jeybee
612 Followers 7K Following
Adam @ABrokenBattery
8K Followers 1K Following Severe ME patient currently on a 10% battery, the gas goes out more than I do. I also compile ME/CFS Awareness videos.
Ragnhildvhlien @ragnhildvhlien
212 Followers 668 Following Wife, mother of 3, trying to stay informed.
Kirsten Nakken @Kirsrana
728 Followers 943 Following Mum, grandma. Love(d) running, hiking, skiing, tapdancing. One of the #millionsmissing/#ME for 18 years. 90% bedridden. #handquilting# #Audiobooks#
rbenlg @rbenLG
1K Followers 954 Following Covid persistente. Me está intentando quitar las ganas de vivir....., pero lo lleva crudo.💪✊ @covid_larioja
T @Yrrepmot
872 Followers 2K Following Barely living with #MECFS, and #ComplexChronicIllness including #PAIS #IACCs #CIRS #EDS #POTS #PSSD #TooTiredToThink #MUFC #Socialism
ArianeK 💜 #Care4Co... @arianek
4K Followers 3K Following Co-founder @Textillia! ✂️💕 • SFU Geog • Public health/urban planning/web nerd • #NeuroSjogrens • #Dysautonomia #Care4ComplexCanada ♿️🌈🇦🇲🦆🐶📚🖖💌🌿
Bellatrix Sesh @beatriceroths
145 Followers 763 Following Sweden, plant fueled , religion free, cats is happiness, longcovid since -22 Airborne aware! TAEMate Shinee G-Dragon & BB. XLOV
Diewertje @Diewertje10
575 Followers 485 Following
Arlette @ArlettePoolen
1K Followers 868 Following I am one of the #MillionsMissing since 2005 - 31 jaar - She/her
Mike Hoerger, PhD MSC... @michael_hoerger
38K Followers 12K Following Expert in weighing medical evidence, cancer, COVID forecasting & mitigation, health disparities, financial analytics. 120 publications. PhD program director.
Ted Monroe @TedMonroe91
248 Followers 1K Following English teacher; writer; impatient long Covid patient
Democracy Internation... @democracy_intl
8K Followers 2K Following The global coalition for democracy: Democracy International aims at strengthening democracy in the nation states, in Europe & at the global level.
Javier G. Recuenco @Recuenco
42K Followers 7K Following Ex-IT nerd. Complex Problem Solver. Founder @SingularSolving. MENSA. Author. Bookworm. Academic Dr. CPS & AI Council at @uniruniversidad. Haber elegido TVE™
XAI 🎮⛓️ @XAI_GAMES
296K Followers 521 Following Onboarding the next billion gamers into Web3. Codeveloped with @OffchainLabs. Powered by @Arbitrum
Jonathan Blow @Jonathan_Blow
145K Followers 269 Following Designer/Programmer of Braid and The Witness. President, Thekla, Inc. Partner in Indie Fund. Working hard on a new game and a programming language.
The AI Timeline @TheAITimeline
24K Followers 1 Following covering the latest AI & LLM research /// see "highlights" for all previous weekly threads /// building the best AI paper search engine @findmypapersai
vitalik.eth @VitalikButerin
5.8M Followers 503 Following I choose balance. First-level balance. mi pinxe lo crino tcati https://t.co/gCQrmCb0ih
David D. Baek @dbaek__
2K Followers 31 Following PhD Student @ MIT EECS / Mechanistic Interpretability, Scalable Oversight
John Shepard @JohnShepard86
12 Followers 41 Following
(((ل()(ل() 'yoav)))... @yoavgo
65K Followers 2K Following
TuringPost @TheTuringPost
76K Followers 13K Following Newsletter exploring AI&ML - AI 101, Agentic Workflow, Business insights. From ML history to AI trends. Led by @kseniase_ Know what you are talking about👇🏼
Emad @EMostaque
289K Followers 23 Following Distributing Intelligence. Building the Intelligent Internet @ii_posts. Founder @StabilityAI.
Soumith Chintala @soumithchintala
250K Followers 1K Following Cofounded and lead @PyTorch at Meta. Also dabble in robotics at NYU. AI is delicious when it is accessible and open-source.
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