Escape the Fog @EscapeFog

Mild-Moderate ME/CFS. SIBO, autoimmunity, POTS, MCAS, Gluten Sensitive, post-infectious onset. Software engineer, career on pause. California Joined August 2021

Tweets

381
Followers

63
Following

128
Likes

1K

Escape the Fog @EscapeFog

2 years ago

Recently inclined my bed a few inches at the head side to help with POTS. But now I've got a cough from covid so I'm contemplating a reverse incline to combat the post nasal drip. 🤔

Dr. Ashley | The Panicked Foodie @PanickedFoodie

2 years ago

Chronic illness and disabled friends: How many of you have been directly harmed by a psychosomatic diagnosis that later turned out to be incorrect? Like if it's never happened to you. Retweet if it has happened to you.

36 189 177 32K 21

Escape the Fog @EscapeFog

2 years ago

I just unlocked Amaterasu's Necklace in the Chronic Illness Survey Adventure! Can you help us achieve balance by sharing this message? We need to be sure we get enough people with #MECFS, #POTS, #MCAS, #hEDS, #LongCOVID, & healthy controls. meaction.net/necklace

Karli Skiles @KarliSkile89566

16 Followers 917 Following

Camila Von @VonCamila79035

35 Followers 3K Following

Patient led nonprofit 501c3 on #MECFS & #LongCovid • https://t.co/Tv4Sb4yLzd 💙 Runs project @remissionbiome • Donate ▶️ https://t.co/Qovzyu0mqp

Renegade Research @RenegadeRes

3K Followers 3K Following Patient led nonprofit 501c3 on #MECFS & #LongCovid • https://t.co/Tv4Sb4yLzd 💙 Runs project @remissionbiome • Donate ▶️ https://t.co/Qovzyu0mqp

Slausmtho @Slausmthokdly

49 Followers 5K Following

ChristineFanny @8Ah1R9vBAO7mn

31 Followers 3K Following

On medical leave due to a debilitating chronic illness. Surviving Not Living. Sick Not Tired. We all just want our lives back. Posts are not medical advice.

Nina A Tomei, MD @doctormom63

4K Followers 1K Following On medical leave due to a debilitating chronic illness. Surviving Not Living. Sick Not Tired. We all just want our lives back. Posts are not medical advice.

Creating fun moments !

Teyjo @Teyjo126408

9 Followers 563 Following Creating fun moments !

Phawheson @phawheson847

20 Followers 2K Following #35

Interest in PANS/PANDAS, COVID, and patient-centered, affordable/equitable heath care

Kimberly @Realist_Resist

522 Followers 4K Following Interest in PANS/PANDAS, COVID, and patient-centered, affordable/equitable heath care

Greta Frisone @FrisoneGreta

80 Followers 561 Following

Pacing all the way to make the best of #LongCovid (March 2020), #ME/CFS, POTS. Hardest lesson: surrender gets me farther than striving.

LongHaultotheTop @HaultotheTop

740 Followers 712 Following Pacing all the way to make the best of #LongCovid (March 2020), #ME/CFS, POTS. Hardest lesson: surrender gets me farther than striving.

Mary Clare @MaryCla72653695

111 Followers 2K Following

Counselor to plw chronic illnesses: disease-informed, medical trauma-informed, lived experience

YT: https://t.co/Cptrzt8xCu

#MEcfs #longCOVID #Lyme etc

Scott Simpson -- Reme... @RemediesPodcast

4K Followers 5K Following Counselor to plw chronic illnesses: disease-informed, medical trauma-informed, lived experience YT: https://t.co/Cptrzt8xCu #MEcfs #longCOVID #Lyme etc

Software Engineer - Sports, Medicine, Health, IAQ | https://t.co/r4zU0hO4kW | https://t.co/Uuv2fGfTYs | https://t.co/XyeNWdoZkt | https://t.co/AS1sbsA2zo

Meder O @meder_o

2K Followers 7K Following Software Engineer - Sports, Medicine, Health, IAQ | https://t.co/r4zU0hO4kW | https://t.co/Uuv2fGfTYs | https://t.co/XyeNWdoZkt | https://t.co/AS1sbsA2zo

Be on the right side of history… pass the Long COVID Research Moonshot Act!

Daniel Lewis (but wit... @dsethlewis

3K Followers 359 Following Be on the right side of history… pass the Long COVID Research Moonshot Act!

AuDHD individual with premium resources and product recommendations for sensory sensitivities | yoga, meditation + pranayama | YT 200 hr, in 300/500 YTT | hEDS

🌙 @sensoryalcove

2K Followers 3K Following AuDHD individual with premium resources and product recommendations for sensory sensitivities | yoga, meditation + pranayama | YT 200 hr, in 300/500 YTT | hEDS

Seated in His palm, Learning at His feet. Blooming in my own divine timing ~ Entrepreneurship, Corporate Governance, Social Justice, Digital Health.

Dr. Lydia Nyambere Ke... @Kemtotweets

230 Followers 2K Following Seated in His palm, Learning at His feet. Blooming in my own divine timing ~ Entrepreneurship, Corporate Governance, Social Justice, Digital Health.

Disabled writer with words in @Refinery29AU, @ABCNews, @PublicHerald | Activist | Feminist | MECFS | Follow on IG - same handle

Natalia @NataliaHodgins

6K Followers 986 Following Disabled writer with words in @Refinery29AU, @ABCNews, @PublicHerald | Activist | Feminist | MECFS | Follow on IG - same handle

Teacher, librarian, ME/CFS cartoonist. ME/CFS for 32 years.

S.Jones @seastarsal

2K Followers 2K Following Teacher, librarian, ME/CFS cartoonist. ME/CFS for 32 years.

#MECFS for almost a decade now. Hoping to connect with others & find a way out.

Alice @Alice_mecfs

1K Followers 783 Following #MECFS for almost a decade now. Hoping to connect with others & find a way out.

Well Done @welldone00

1K Followers 7K Following Amor Fati

ME patient. Spouse with LC & ME.
Fund marginalized diseases. Plow under suburbia. Build walkable, accessible towns and cities.

Matt Lazell-Fairman @mfairma

1K Followers 1K Following ME patient. Spouse with LC & ME. Fund marginalized diseases. Plow under suburbia. Build walkable, accessible towns and cities.

Working my way through COVID research

AlphaBetaDelta @AlphaBetaDelta4

28 Followers 337 Following Working my way through COVID research

Lynn P Razaitis @PRazaitis

20 Followers 266 Following

PhD geography: money & finance • Life mostly on hold from #LongCovid 03/2021

Same handle elsewhere

Gary Robinson @lessorfewer

902 Followers 2K Following PhD geography: money & finance • Life mostly on hold from #LongCovid 03/2021 Same handle elsewhere

Advocate for research and support for all who suffer from the neglected illness MEcfs. Including my son.

Andrea Joliat @AndreaJoliat

1K Followers 1K Following Advocate for research and support for all who suffer from the neglected illness MEcfs. Including my son.

balaganista @balaganista

465 Followers 2K Following

Despondent over the political and social handling of the pandemic and its victims

Warp Speed for a LC/M... @corinap19

757 Followers 3K Following Despondent over the political and social handling of the pandemic and its victims

Just a Philly girl, livin' in a lonely world…and a Luddite learning to Twitter. #LongCovid since March 2020 || Lawyer on Pause

Melissa Mazur @PhillyPhile215

2K Followers 4K Following Just a Philly girl, livin' in a lonely world…and a Luddite learning to Twitter. #LongCovid since March 2020 || Lawyer on Pause

Medically retired RN, #pwME since 2001. #POTS, #EDS, #MCAS, #DDD https://t.co/nLYrg2JBod

It's M.E. Kathryn @JoyK8

526 Followers 2K Following Medically retired RN, #pwME since 2001. #POTS, #EDS, #MCAS, #DDD https://t.co/nLYrg2JBod

nraffz @nraffz

135 Followers 3K Following

Dislike exploitation of precarity and its enabler, incrementalism. Here mostly to read. Wearing N95s or better; using Smart Air Blast, Levoit, & Coway. #pwME

Luna @PaperJamLuna

842 Followers 1K Following Dislike exploitation of precarity and its enabler, incrementalism. Here mostly to read. Wearing N95s or better; using Smart Air Blast, Levoit, & Coway. #pwME

Sandy B @Sam_B_79

331 Followers 1K Following

Barely living with #MECFS, and #ComplexChronicIllness including #PAIS #IACCs #CIRS #EDS #POTS #PSSD #TooTiredToThink #MUFC #Socialism

T @Yrrepmot

873 Followers 2K Following Barely living with #MECFS, and #ComplexChronicIllness including #PAIS #IACCs #CIRS #EDS #POTS #PSSD #TooTiredToThink #MUFC #Socialism

I am pro-humans. Spoiler:Jesus wins. Full time volunteer. https://t.co/Ui7S1LQjAp

Looking for solutions... @Solutionary101

823 Followers 2K Following I am pro-humans. Spoiler:Jesus wins. Full time volunteer. https://t.co/Ui7S1LQjAp

Professor of Strategic Management at IESE Business School. Studying ESG and Impact Investing before it was cool (or hated). Also @fferraro.bsky.social

Fabrizio Ferraro @f_ferraro

2K Followers 3K Following Professor of Strategic Management at IESE Business School. Studying ESG and Impact Investing before it was cool (or hated). Also @fferraro.bsky.social

JC @JC70_3

93 Followers 911 Following

NK Cell Function Deficiency Chronic.. HHV6 CMV EBV CXB VZV HSV BB SC2 🦠#ItsTheVirus #1stWaver #Cycloferon #Artemix #Salicinium #GcMaf 🫧 #EgosKill ␕

Natural Killer Cell F... @nkfd_deficiency

726 Followers 2K Following NK Cell Function Deficiency Chronic.. HHV6 CMV EBV CXB VZV HSV BB SC2 🦠#ItsTheVirus #1stWaver #Cycloferon #Artemix #Salicinium #GcMaf 🫧 #EgosKill ␕

A London based science and maths tutor

Marianne @Polymathtutor

62 Followers 502 Following A London based science and maths tutor

Qz @riceparktrees

175 Followers 1K Following

50, Covid Long Hauler since 2020. I mostly post about Covid, Long Covid, ME/CFS, gut microbiome, scientific research.

@LongHaulerBear.bsky.... @LongHaulerBear

1K Followers 295 Following 50, Covid Long Hauler since 2020. I mostly post about Covid, Long Covid, ME/CFS, gut microbiome, scientific research.

CEO & founding member Renegade Research, Co-founder Renegade Medical Coaching, Director Remissionbiome Decentralized, human-centered research. #MECFS #longcovid

Isabel Burnett | Rene... @IsabelRamirezRD

4K Followers 2K Following CEO & founding member Renegade Research, Co-founder Renegade Medical Coaching, Director Remissionbiome Decentralized, human-centered research. #MECFS #longcovid

Di @Di13024092

73 Followers 904 Following

Writer with ME/CFS & Lyme & son w/#MECFS & #Lyme; love to travel, read & spend time outdoors w/family & friends; write 2 blogs & author of chronic illness book.

Suzan Jackson @livewithmecfs

4K Followers 3K Following Writer with ME/CFS & Lyme & son w/#MECFS & #Lyme; love to travel, read & spend time outdoors w/family & friends; write 2 blogs & author of chronic illness book.

Engineer, Programmer, Knitter, Spinner, Designer, Mother of 1. #WearAMask #SFN #Dysautonomia @NinjaBex@mastodonapp.uk @Ninjabex.bsky.social

NinjaBex @NinjaBex

521 Followers 873 Following Engineer, Programmer, Knitter, Spinner, Designer, Mother of 1. #WearAMask #SFN #Dysautonomia @[email protected] @Ninjabex.bsky.social

Professor-scientist disabled due to worsening #MECFS. Ally for ppl with infection-associated chronic conditions. #longcovid 🏳️‍🌈

Susan Kandarian @susan_mecfs

1K Followers 788 Following Professor-scientist disabled due to worsening #MECFS. Ally for ppl with infection-associated chronic conditions. #longcovid 🏳️‍🌈

ME/CFS , POTS and fibromyalgia . Love food , foreign films and my wee Siamese beasties .Once was witty now happy if I can form complete sentences 🤪

Annette Streich @annetteStreich9

872 Followers 2K Following ME/CFS , POTS and fibromyalgia . Love food , foreign films and my wee Siamese beasties .Once was witty now happy if I can form complete sentences 🤪

ME/CFS | Long COVID | IACC | bhanlon15.bsky

Billy Hanlon @bhanlon15

14K Followers 13K Following ME/CFS | Long COVID | IACC | bhanlon15.bsky

Physician, Assistant Prof @UofT Family & Community Medicine | Health systems | Health equity | Health in all policies | Long COVID/ME/POTS. Tweets are my own

Jennifer Hulme @jenniferhulme

4K Followers 2K Following Physician, Assistant Prof @UofT Family & Community Medicine | Health systems | Health equity | Health in all policies | Long COVID/ME/POTS. Tweets are my own

Neurodevelopmental Child Psychiatrist. Physician Activism brought me into the Secretary of Energy Advisory Board Task Force for the Zero-Yield CTBT battle.

Daniel Kerlinsky MD @DrDan20000

7K Followers 329 Following Neurodevelopmental Child Psychiatrist. Physician Activism brought me into the Secretary of Energy Advisory Board Task Force for the Zero-Yield CTBT battle.

Sicker than your average. Stoked anyway.
#mecfs | #chronicpain | #heds | #mcas
@imperfectkira.bsky.social

Kira Stoops // Imperf... @TheArghonaut

423 Followers 433 Following Sicker than your average. Stoked anyway. #mecfs | #chronicpain | #heds | #mcas @imperfectkira.bsky.social

Interest in PANS/PANDAS, COVID, and patient-centered, affordable/equitable heath care

Kimberly @Realist_Resist

522 Followers 4K Following Interest in PANS/PANDAS, COVID, and patient-centered, affordable/equitable heath care

Greta Frisone @FrisoneGreta

80 Followers 561 Following

Pacing all the way to make the best of #LongCovid (March 2020), #ME/CFS, POTS. Hardest lesson: surrender gets me farther than striving.

LongHaultotheTop @HaultotheTop

740 Followers 712 Following Pacing all the way to make the best of #LongCovid (March 2020), #ME/CFS, POTS. Hardest lesson: surrender gets me farther than striving.

Founder @wecrunchme | Data-informed advocacy to accelerate research on infection-associated chronic illnesses (IACIs) 💙 | #MECFS #LongCovid

Ror Preston @RorPreston

3K Followers 810 Following Founder @wecrunchme | Data-informed advocacy to accelerate research on infection-associated chronic illnesses (IACIs) 💙 | #MECFS #LongCovid

Science comms, public health, climate justice. @WHO Fides member, @grist Fixer, Creative Change alum. Opinions my own & don’t reflect my employer.

Dr. Lucky Tran @luckytran

73K Followers 4K Following Science comms, public health, climate justice. @WHO Fides member, @grist Fixer, Creative Change alum. Opinions my own & don’t reflect my employer.

A global network fighting for equality for Myalgic Encephalomyelitis. #MEAction #MillionsMissing
https://t.co/JhhNZoFYJi

#MEAction Network @MEActNet

19K Followers 3K Following A global network fighting for equality for Myalgic Encephalomyelitis. #MEAction #MillionsMissing https://t.co/JhhNZoFYJi

PI and CEO of Simmaron Research Inc. @redefiningMECFS

Gunnar Gottschalk @ggottschalkPhD

822 Followers 401 Following PI and CEO of Simmaron Research Inc. @redefiningMECFS

Counselor to plw chronic illnesses: disease-informed, medical trauma-informed, lived experience

YT: https://t.co/Cptrzt8xCu

#MEcfs #longCOVID #Lyme etc

Scott Simpson -- Reme... @RemediesPodcast

4K Followers 5K Following Counselor to plw chronic illnesses: disease-informed, medical trauma-informed, lived experience YT: https://t.co/Cptrzt8xCu #MEcfs #longCOVID #Lyme etc

Software Engineer - Sports, Medicine, Health, IAQ | https://t.co/r4zU0hO4kW | https://t.co/Uuv2fGfTYs | https://t.co/XyeNWdoZkt | https://t.co/AS1sbsA2zo

Meder O @meder_o

2K Followers 7K Following Software Engineer - Sports, Medicine, Health, IAQ | https://t.co/r4zU0hO4kW | https://t.co/Uuv2fGfTYs | https://t.co/XyeNWdoZkt | https://t.co/AS1sbsA2zo

PharmD/PhD in Pharmacology,
Founder 4C, Co-founde RTTP at Stanford, Director of Genomics and Leader of

fereshteh jahanbani @fereshtehjahan1

1K Followers 84 Following PharmD/PhD in Pharmacology, Founder 4C, Co-founde RTTP at Stanford, Director of Genomics and Leader of "ME/CFS related disorders" Multi-omics study at SCGPM.

Director, Institute for Neuro Immune Medicine,KPCOM Nova Southeastern University and Miami VA Health Care System

nancy klimas @ngklimas

2K Followers 63 Following Director, Institute for Neuro Immune Medicine,KPCOM Nova Southeastern University and Miami VA Health Care System

Now at https://t.co/I4VuRICbDS.

C.H. Romatowski @CHRomatowski

847 Followers 1K Following Now at https://t.co/I4VuRICbDS.

@WestHam Fan ⚒ 🏴󠁧󠁢󠁥󠁮󠁧󠁿 | Accidental Centrist I Pro-Pragmatism and Real World Outcomes I Anti-Ideologues.

Shaney Wright @ShaneyWright

16K Followers 448 Following @WestHam Fan ⚒ 🏴󠁧󠁢󠁥󠁮󠁧󠁿 | Accidental Centrist I Pro-Pragmatism and Real World Outcomes I Anti-Ideologues.

Prof @HarvardAnthro works on sci+tech+med+ hackers// Faculty Associate @HarvardHistSci & @BKCHarvard // Curator of @HackCurio // words these days in email …

Gabriella "Biella" Co... @BiellaColeman

43K Followers 3K Following Prof @HarvardAnthro works on sci+tech+med+ hackers// Faculty Associate @HarvardHistSci & @BKCHarvard // Curator of @HackCurio // words these days in email …

Tracking the Covid Pandemic and other health news. Opinions are my own. My YouTube channel: https://t.co/CYHulpYCge

Data Report @CovidDataReport

26K Followers 1K Following Tracking the Covid Pandemic and other health news. Opinions are my own. My YouTube channel: https://t.co/CYHulpYCge

I used to post news and interesting information on ME/CFS but have retired to focus on other things.

ME/CFS News @MECFSNews

14K Followers 687 Following I used to post news and interesting information on ME/CFS but have retired to focus on other things.

@MayoClinicGIM Physician specializing in ME/CFS, Long COVID, & associated complex disease | Assistant Professor of Medicine | She/Her/Hers

Stephanie Grach MD MS @GrachStephanie

1K Followers 835 Following @MayoClinicGIM Physician specializing in ME/CFS, Long COVID, & associated complex disease | Assistant Professor of Medicine | She/Her/Hers

physician-scientist, author of SUPER AGERS https://t.co/ZEdooyyJpP
and Ground Truths: https://t.co/YhatcBT0hA

Eric Topol @EricTopol

678K Followers 605 Following physician-scientist, author of SUPER AGERS https://t.co/ZEdooyyJpP and Ground Truths: https://t.co/YhatcBT0hA

Patient-led research and advocacy for #LongCovid and infection-associated chronic conditions!

Patient-Led Research ... @patientled

26K Followers 661 Following Patient-led research and advocacy for #LongCovid and infection-associated chronic conditions!

Author of The Long Covid Handbook with @daltmann10, published by @penguinUKBooks (see link). Represented by the Blair Partnership @TBP_agency

Gez Medinger @gezmedinger

19K Followers 702 Following Author of The Long Covid Handbook with @daltmann10, published by @penguinUKBooks (see link). Represented by the Blair Partnership @TBP_agency

Assistant Professor of Dermatology @McGillMed. MD/residency @med_umontreal. Fellowship @HarvardDerm. Focus: complex medical dermatology and medical education.

Dr. Lisa Iannattone @lisa_iannattone

68K Followers 2K Following Assistant Professor of Dermatology @McGillMed. MD/residency @med_umontreal. Fellowship @HarvardDerm. Focus: complex medical dermatology and medical education.

#MECFS #EDS
Community Liaison // The Naviaux Lab, UCSD
Author of IN GOOD HEALTH cookbook, available for pre-order!
https://t.co/BBQZ4ptWJg

Rachel Riggs @therachelriggs

1K Followers 379 Following #MECFS #EDS Community Liaison // The Naviaux Lab, UCSD Author of IN GOOD HEALTH cookbook, available for pre-order! https://t.co/BBQZ4ptWJg

California mom trying to stay informed on #COVID19 to protect my family as Public Health has left it in the hands of the individual. N95s + Clean Air

CaliforniaCodes @CaliforniaCodes

5K Followers 2K Following California mom trying to stay informed on #COVID19 to protect my family as Public Health has left it in the hands of the individual. N95s + Clean Air

Founder of EONutrition & @objectivenutri ||
Thiamine supremacist

Elliot Overton @EO_Nutrition

22K Followers 753 Following Founder of EONutrition & @objectivenutri || Thiamine supremacist

Pandemic Patients is a 501(c)(3) non-profit organization that works to relieve the harm caused by COVID-19.

Pandemic Patients @PandemicPatient

2K Followers 354 Following Pandemic Patients is a 501(c)(3) non-profit organization that works to relieve the harm caused by COVID-19.

The easy way to request and share public records, making government more transparent and democracies more informed.
📪: https://t.co/3vqbhXMR6m

MuckRock @MuckRock

33K Followers 4K Following The easy way to request and share public records, making government more transparent and democracies more informed. 📪: https://t.co/3vqbhXMR6m

A place to post tools which were created for a specific purpose.
Doesn't necessary have to be *one* purpose

Specialized Tools @specializedtooI

97K Followers 8 Following A place to post tools which were created for a specific purpose. Doesn't necessary have to be *one* purpose

Teacher, librarian, ME/CFS cartoonist. ME/CFS for 32 years.

S.Jones @seastarsal

2K Followers 2K Following Teacher, librarian, ME/CFS cartoonist. ME/CFS for 32 years.

The global professional association for medical practitioners, scientists and researchers in the field of #MECFS, #LongCovid and related postviral disease

Doctors with M.E. @DoctorsWithME

5K Followers 302 Following The global professional association for medical practitioners, scientists and researchers in the field of #MECFS, #LongCovid and related postviral disease

Very healthy/sick person. #MECFS #LongCovid
Trying everything so you don’t have to.
Also sailing, food, economics.
Health coach but not in an annoying way.

Rachel @hortonrachel_

1K Followers 1K Following Very healthy/sick person. #MECFS #LongCovid Trying everything so you don’t have to. Also sailing, food, economics. Health coach but not in an annoying way.

Wilhelmina Jenkins @minadjenkins

2K Followers 1K Following

A Finnish dentist. Health blogger. Interested in evidence-based medicine, nutrition, metabolism, photobiomodulation therapy etc...

Vladimir Heiskanen @ValtsuH

797 Followers 711 Following A Finnish dentist. Health blogger. Interested in evidence-based medicine, nutrition, metabolism, photobiomodulation therapy etc...

actor, writer, perpetual foreigner • she/her 🇨🇦🇸🇰 @BerlinBuyers 🖤

Laura @lauragetsbetter

2K Followers 2K Following actor, writer, perpetual foreigner • she/her 🇨🇦🇸🇰 @BerlinBuyers 🖤

on twitter/x hiatus. formerly: @patientled | MPP | she/her | natures 10 2022

Lisa McCorkell @LisaAMcCorkell

6K Followers 2K Following on twitter/x hiatus. formerly: @patientled | MPP | she/her | natures 10 2022

Be on the right side of history… pass the Long COVID Research Moonshot Act!

Daniel Lewis (but wit... @dsethlewis

3K Followers 359 Following Be on the right side of history… pass the Long COVID Research Moonshot Act!

Specializing in treating the cause of complex chronic illness #LymeDisease, #MoldIllness, #MCAS #LongCOVID #MECFS #autoimmune

Todd Maderis, ND @dr_todd

5K Followers 222 Following Specializing in treating the cause of complex chronic illness #LymeDisease, #MoldIllness, #MCAS #LongCOVID #MECFS #autoimmune

Making ME/CFS, Long Covid & associated conditions widely understood, diagnosable, & treatable. #SolveME #MECFS #LongCovid Donate @ https://t.co/P6umwzCRA4

Solve ME/CFS Initiati... @PlzSolveCFS

12K Followers 4K Following Making ME/CFS, Long Covid & associated conditions widely understood, diagnosable, & treatable. #SolveME #MECFS #LongCovid Donate @ https://t.co/P6umwzCRA4

journalist, editor/co-founder @thesicktimes | she/her/🏳️‍🌈 | @betsyladyzhets@bsky.social & betsy@thesicktimes.org & betsyladyzhets.25 on signal

betsy ladyzhets 📊 @betsyladyzhets

5K Followers 1K Following journalist, editor/co-founder @thesicktimes | she/her/🏳️‍🌈 | @[email protected] & [email protected] & betsyladyzhets.25 on signal

Progressing research | Providing Hope | Preserving Dignity — We do biological ME/CFS research at @UniofOxford #OxMEDiscovery

MortenGroupOxford @OxMEDiscovery

3K Followers 210 Following Progressing research | Providing Hope | Preserving Dignity — We do biological ME/CFS research at @UniofOxford #OxMEDiscovery

Mark Camenzind @ENDMECFSdotORG

328 Followers 241 Following

501(c)3 transforming how #LongCovid, #ME/CFS & Lyme+ are studied, diagnosed, and treated. Leading the #LongCovid Research Consortium.

PolyBio @polybioRF

13K Followers 2K Following 501(c)3 transforming how #LongCovid, #ME/CFS & Lyme+ are studied, diagnosed, and treated. Leading the #LongCovid Research Consortium.

I am exploring treatments for my daughter's EDS & ME/CFS & implications for people with #EDS, #MECFS, and #LongCOVID. Not an MD or professional scientist.

Jeffrey Lubell (EDS, ... @JeffLubell_C19

3K Followers 542 Following I am exploring treatments for my daughter's EDS & ME/CFS & implications for people with #EDS, #MECFS, and #LongCOVID. Not an MD or professional scientist.

Mama & Wife | #Disabled ♿️ | #WomxnsHealth Nurse Practitioner & Clinical Scientist | Prev MIT/Stanford | Connector | Healing in my Garden | #JusticeAccomplice

Erin C. Sanders, MSN,... @ErinSandersNP

19K Followers 8K Following Mama & Wife | #Disabled ♿️ | #WomxnsHealth Nurse Practitioner & Clinical Scientist | Prev MIT/Stanford | Connector | Healing in my Garden | #JusticeAccomplice

Personal ads for covid safe friends and dating ❤️ follow to view/share. 18+

CSC @CovidSafeCuties

2K Followers 1K Following Personal ads for covid safe friends and dating ❤️ follow to view/share. 18+

ME patient. Spouse with LC & ME.
Fund marginalized diseases. Plow under suburbia. Build walkable, accessible towns and cities.

Matt Lazell-Fairman @mfairma

1K Followers 1K Following ME patient. Spouse with LC & ME. Fund marginalized diseases. Plow under suburbia. Build walkable, accessible towns and cities.

23 year old long hauler trying to piece my life back together. Former CC/T&F athlete. @miamiheat fan. #longcovid #notrecovered.

Junior @nolimitjuni0r

2K Followers 814 Following 23 year old long hauler trying to piece my life back together. Former CC/T&F athlete. @miamiheat fan. #longcovid #notrecovered.

UntoNuggan@bsky.social. bendy (POTS. MCAS. hEDS?) + neurodivergent. ♿ queer. white. emperor of typos. brain fog zone ⚠️. they/them

Sparrow @UntoNuggan

9K Followers 2K Following [email protected]. bendy (POTS. MCAS. hEDS?) + neurodivergent. ♿ queer. white. emperor of typos. brain fog zone ⚠️. they/them

A 😎 @AaronCa11

5K Followers 6K Following

We mobilize and educate with and for seniors and people with disabilities, fighting for individual rights and social justice

Senior and Disability... @sdaction1

3K Followers 1K Following We mobilize and educate with and for seniors and people with disabilities, fighting for individual rights and social justice

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