🇺🇦Yules with ME/CFS🇺🇦 @FunWithCFS

#pwME (and on-hold Phd student) fighting for #MECFS awareness. Creates funny videos for #spoonies on her good days 😊 https://t.co/6oiUClnHna youtube.com/FunwithCFS Brooklyn, NY Joined August 2017

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🇺🇦Yules with ME/CFS🇺🇦 @FunWithCFS

2 years ago

Beautiful artwork by #MECFS artist Inga Topolnicki, titled "Time Spent." Today we honor the #MillionsMissing and demand biomedical research. Please donate to the Open Medicine Foundation to support people with #MyalgicEncephalomyelitis and #LongCOVID. omf.ngo/?form=MayMomen…

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Anil van der Zee © @AnilvanderZee

2 years ago

1) Since I've been living isolated from the world since 2013, and from 2015, one visitor per year has not been uncommon. I've decided to film my current life with M.E. Not that my days are that exciting, but I often get questions about how I get by. How youtu.be/SYLMqnEWRBg

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PZ @pzneedsrest

2 years ago

It's #WorldMEDay and this year's theme is PEM - Post-exertional Malaise. It is part of what makes #MECFS so disabling. If you push harder, you get sicker. #MEAwarenessDay #MyalgicEncephalomyelitis #pwME #MillionsMissing

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Vlad Vexler @VladVexler

3 years ago

Each person here is holding in their heart thousands who cannot be here. #MillionsMissing

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Steve Topple @MrTopple

3 years ago

"my daughter died - the system does not work... we have a problem with the medical establishment, how at 27 you die from ME has to be answered" says Sarah Boothby whose daughter Maeve died of #MEcfs last year #MillionsMissing

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🇺🇦Yules with ME/CFS🇺🇦 @FunWithCFS

3 years ago

Governor Kathy Hochul has signed Assembly Bill A7712B, which "Provides for a myalgic encephalomyelitis/chronic fatigue syndrome education and outreach program" #MECFS #MyalgicEncephalomyelitis

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🇺🇦Yules with ME/CFS🇺🇦 @FunWithCFS

3 years ago

You know, I've never had a gay agenda before today.

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🇺🇦Yules with ME/CFS🇺🇦 @FunWithCFS

4 years ago

Other uses for the N-95: covering acne, protection against the cold, cutting onions🧅

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🇺🇦Yules with ME/CFS🇺🇦 @FunWithCFS

4 years ago

Living in Brooklyn with sound sensitivity be like...

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🇺🇦Yules with ME/CFS🇺🇦 @FunWithCFS

4 years ago

#BookTwitter My friend @RachelKrantz wrote this awesome investigative memoir about non-monogamy: prh.com/open (I reviewed it on Goodreads: bit.ly/32Ao6vp)

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🇺🇦Yules with ME/CFS🇺🇦 @FunWithCFS

4 years ago

This helped, especially Hannah's advice to get to the event late. I'm still flared after Christmas, but would have been much worse if I'd showed up on time. meaction.net/2021/11/30/12-…

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🇺🇦Yules with ME/CFS🇺🇦 @FunWithCFS

4 years ago

I am so excited to learn that "Piranesi" won the Women's Prize for Fiction 2021! ❤️ It's a really special book and I've been rooting for it all year. Congrats to the author, who conceived of it during a long period of suffering with CFS.