lisa machado @Iamlisamachado
Patient advocate | Living with cancer | Journalist | Dog lover | Coffee with lots of cream & Springsteen. Instagram: iamlisamachado | TikTok: iamlisa_machado linktr.ee/iam.lisamachado Joined February 2020-
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Imagine if we could make cancer therapies tolerable and quality of life focused? @survivornetca @LLSCanada @cancersociety @OHSUNews #symptomscience #cancer #livedexperience #qualityoflife healthing.ca/wellness/opini…
We have research to prove that #cancer doesn't care how old you are, so isn't it time the @cantaskforce updated #screeningguidelines? @CancerCanuck @coloncanada @cancersociety @ccranorg #cancer #livedexperience #life healthing.ca/wellness/opini…
Paper bags to the rescue? Really? What about the crisis in #PrimaryCare or the need for solutions #ER departments? What about affordable housing….but sure paper bags
Paper bags to the rescue? Really? What about the crisis in #PrimaryCare or the need for solutions #ER departments? What about affordable housing….but sure paper bags
I liked the new @thenfb film #stolentime, but I'd really hoped the execs from #forprofitltc would have been put on the spot. To see the change we need, we have to make sure they know we are watching. #caregivers #livedexperience #ltc #dignity healthing.ca/wellness/opini…
Long-term care is still not OK. Until we truly recognize the value of the lives we care for and the essential roles of loved ones, nothing good is going to happen with LTC. In fact, it’s just going to get worse. @healthing_ca healthing.ca/wellness/opini…
It's unconscionable that non-profit organizations are consistently the target of bitter criticisms about funding — where they get it from, what they use it for, how much of it is used to pay them. Such a tired debate. @UncharitableMov @cmrherder @IRPP healthing.ca/wellness/opini…
@Iamlisamachado @healthing_ca @rethinktweet @CanCertainty @cancersociety Great article on medical trauma. I hear you @Iamlisamachado and agree very much with “finding people who know what it’s like, who share your experience, but most of all, understand your “special kind of hell”. We are not ok. #cancer #survivorship #QoL
Kate Ellis was diagnosed with breast cancer twice. She calls the anxiety of uncertainty a "special kind of hell." @healthing_ca @rethinktweet @CanCertainty @cancersociety #cancer #trauma #mentalhealth healthing.ca/wellness/menta…
No one chooses to be sick. @raredisorders @RareDiseases @curecc #cancer #rarediseases #patientvoices #mentalhealth healthing.ca/wellness/opini…
Sick changes everything, whether you are the patient or the caregiver. #patientvoices #livedexperience #cancer healthing.ca/wellness/opini…
#love #CML Despite a dismal 10-per-cent expectation of survival, there once was a mom who took a shot. Her son is now a man. Ask her now what she would have done with even worse odds, and she’ll tell you that she would have still tried. @cmlnet healthing.ca/wellness/opini…
Big kudos to Julia for speaking up about her daughter’s awful health care experience. The weight of advocacy has been placed squarely on the shoulders of patients + families. Patient advocates don’t have unions or orgs to protect us…we only have each other. Sending 💗.
Big kudos to Julia for speaking up about her daughter’s awful health care experience. The weight of advocacy has been placed squarely on the shoulders of patients + families. Patient advocates don’t have unions or orgs to protect us…we only have each other. Sending 💗.
Here's what some top advocates have to say about the findings of recent patient and doc survey by @Novartis aimed at identifying gaps in CML patient care. @llsc @cmlnet #healthing #patientvoices youtube.com/watch?v=mda2sw…
Did 10,000 people in northern Ontario just lose their access to primary healthcare? You bet. Group Health Centre's decision to de-roster 10,000 patients due to a doctor shortage is alarming. Another indicator of the emergence of healthcare deserts in our rural communities.
Did 10,000 people in northern Ontario just lose their access to primary healthcare? You bet. Group Health Centre's decision to de-roster 10,000 patients due to a doctor shortage is alarming. Another indicator of the emergence of healthcare deserts in our rural communities.
There's a one or the other vibe that hangs over the debate around public healthcare versus private, but there are actually many shades in between, and it’s critical that we don’t ignore that. @healthing_ca #universalhealthcare healthing.ca/wellness/opini…
🤔Thinking about experiences of #PatientPartners in #Research. Bad experiences compound and have potential to contribute to burnout and harm. We need to do better as a #PatientEngagement community. Sharing some examples in the spirit of learning. 🧵/1
Our med schools are admitting only 167 more doctors for mandatory postgrad training than they did 10 years ago. @CBCNews #healthcare #doctors
Our med schools are admitting only 167 more doctors for mandatory postgrad training than they did 10 years ago. @CBCNews #healthcare #doctors
We keep telling the same stories of a healthcare system in crisis, but the catalyst for change is taking a hard look at where we'll be if we don't hold decision-makers accountable for not making decisions. #patientsvote #timeforchange #patientvoices healthing.ca/wellness/opini…
We can't let stories of overcrowded ERs, burned out staff and doctor shortages lose their sting healthing.ca/wellness/opini… @Iamlisamachado | @healthing_ca 🍁 Canada's hub for health news: CanadaHealthwatch.ca
Thanks for the excellent thoughts, @BenoitHebert 🔥
Thanks for the excellent thoughts, @BenoitHebert 🔥
Nili Kaplan-Myrth MD .. @nilikm
63K Followers 10K Following Family Doc | Anthro | Trustee | @mcgillu | @UCL | @Yale | writer | feminist | @FulbrightPrgrm | @[email protected] | personal account | (she/her) 🟦
sue robins (she/her) @suerobinsyvr
8K Followers 5K Following Senior Partner @birdcomm | Mama Bear | Former Cancer-Haver | Patient Engagement Consultant |
Donna Thomson @Thomsod
4K Followers 3K Following Caregiver, author, educator & research partner. The personal is political.
Claire Snyman @clairehsnyman
3K Followers 3K Following #Braintumor | Healthcare advocate | Patient partner | Pnt Engagement/Pnt Experience are essential | Author & #TEDx speaker | Two Steps Forward | Tweets are mine
Maggie Keresteci 🇨.. @MaggieKeresteci
12K Followers 9K Following I care about improving lives of patients & caregivers | Author | Speaker | Advocate | Caregiver | Healthcare Policy | Views are my own, influenced by many
Cancer Canuck (Jason .. @CancerCanuck
6K Followers 3K Following #StageIV #ColonCancer patient with mets to liver, spine, and legs. Advocate for #AYA cancer and patient inclusion. Not really a crab IRL. #AYACSM 🇨🇦 🦀💙
CML AdvocatesNetwork @cmlnet
2K Followers 674 Following CML Advocates Network: Network of 128 chronic myeloid leukemia patient groups in 93 countries. #CML #Leukemia #CureCML #PatientAdvocacy
Robin McGee @TCOrobin
7K Followers 8K Following Cancer Survivor, Psychologist, Patient Advocate, Author The Cancer Olympics
Jana Buhlmann @baldgrrl
2K Followers 5K Following Prose writer. Patient/caregiver/#MAiD advocate. Approach with curiosity, listen to understand. (Un)learning on the unceded land of the Qayqayt.
Angus Pratt 🇨🇦 @anguspratt
1K Followers 2K Following Poet, watercolourist, and intrepid local adventurer. I dabble in Drupal and advocate for patients with lung and breast cancer, both of which I have.
Beth Campbell Duke 32.. @BCampbellDuke
460 Followers 613 Following Former biotechie / High school teacher dropout / Transplant spouse/ care partner #COVIDsmart #MaskUp #AsLongAsItTakes
Kathleen O'Grady @kathleenogrady
10K Followers 11K Following CEO @QUOIMedia, #Ottawa. Affiliate Assistant Professor, Simone de Beauvoir Institute, Concordia University, #Montreal. Wardrobe = concert Ts & jeans.
FatCatAnna 🇨🇦 �.. @FatCatAnna
3K Followers 3K Following #Podder #NationalPharmacare #T1D #MentalhealthMatters #AccessForAll #Insulin4all #CGM4all - blogger/advocate/mentor/cat Mum/eyeglass hoarder🤓
DocSplain - AI Doctor.. @DocSplain
15K Followers 2K Following 🩺 AI-powered Medical Assistant | 🧠 38 diverse specialties | 💡 Quick & accurate health answers | 👩⚕️👨⚕️ Empowering physicians & patients #AskDocSplain
George F @ChiconMartin31
116 Followers 843 Following
Curvy_kass @kass_curvy
335 Followers 3K Following I am here to find a serious,loving ,reliable and loyal man. and I will take care of his bills…..Say Hi and I will response back to you.
Jock Schulz @JockSchulz
398 Followers 1K Following Co-Founder of @welsharehealth - a web3 app to personalize your contribution to medical research 💙🔬 Decentralized Science #DeSci
Chris Gallaway @CGallawayYEG
1K Followers 871 Following He/Him • Treaty 6 • Executive Director at @FriendsMedicare • People Before Profits
Louise Kinross @LouiseKinross
3K Followers 5K Following Editor of BLOOM, a blog on parenting children with disabilities. Mom to 4, Grandma to 1. Works @HBKidsHospital. Opinions my own. [email protected]
Charles Stanley @stanley_ch52651
375 Followers 4K Following Obey God and leave the consequences to him
Ian is 1453 days w/o .. @ianwrob
2K Followers 5K Following Winning the BSL3 Pascal's Wager one day at time ... a man wears a mask for the sake of the whole line.
kass @angylizard_
448 Followers 1K Following 24. too much. protein engineer, microbiologist, and immunology laboratory technician #anticolonialist #anticapitalist #antiimperialist #hotdogs
CancerChoices @Choices4Cancer
512 Followers 2K Following An independent, science-informed resource helping you make sense of your choices in integrative cancer care.
Liz McLachlan @lizmclachlan
530 Followers 1K Following Managing Director for Accenture Ecosystems & Technology. Passionate about Diversity & Inclusion. Advocate. Mentor. Proud Mom. My views are my own.
MaryBeth Leatherdale @mbleatherdale
630 Followers 1K Following AUTHOR of TERRY FOX AND ME and more. Children's Book Editor. Library lover.https://t.co/WAHcP0GESA
John Warlich @jwarlich28
16 Followers 24 Following Manager of Court Operations, Leukaemia/cancer survivor.
Samuel Young @SamuelY48674627
38 Followers 484 Following
Alex Wellstead @AlexWellstead
7K Followers 2K Following Present: @NovartisCanada. Past: worked for 🇨🇦's Prime Minister & Minister of Industry. Also tweet about family, running and a few other things.
therese lane @Therese_Lane01
398 Followers 801 Following passionate about exercise as a relief for my chronic pain and mental wellness. hope that EDI will prevail and health care can be accessible for all
Bill Dempster @billdempster
642 Followers 1K Following
Nick Tsergas @nicktsergas
16K Followers 6K Following Health News Editor at @CanHealthwatch. Registered Nurse. Tweets are representative of my opinions only, but maybe yours too.
Grouchy 😷 Bug @grouchy868
69 Followers 123 Following Random grumps about the world. Cancer survivor, caregiver, wife, scientist. Amplifying the science that can impact cancer patients.
Brain Cancer Canada @braincancercan
503 Followers 664 Following Brain Cancer Canada is a national charity that supports people diagnosed with primary malignant brain tumours by funding research, technology and treatment.
Benoit Larose🩺💉.. @blarose33
1K Followers 3K Following PDG BioQuébec. Voir mon profil LinkedIn has it all... https://t.co/nj5hqMqHRV
Benoît Hébert @BenoitHebert
303 Followers 294 Following Pharma entrepreneur; Healthcare consultant. Pharma executive; Deal maker; Virologist. Expertise in emerging viruses. Over-educated but still learning daily.
Alies Maybee @amaybee
1K Followers 1K Following Involved patient deeply interested in all aspects of #healthcare especially digital health + patient engagement
Tara Bingham @TaraBingham
83 Followers 1K Following Government Affairs and Public Relations Expert. Respected Leader and Collaborator. Articulate and Insightful Influencer. Passionate and Creative Strategist.
David Mott @davidjohnmott
523 Followers 524 Following Health Economist, specialising in measuring and valuing health outcomes.
HollisVillarrvel @villarrvel49306
95 Followers 2K Following
Phil Harbridge @Harbsy
700 Followers 2K Following Ad Soli Deo Gloria. Husband, Father, GRANDFATHER, Pastor, Teacher, Learner, Sinner, Hope Dealer, Cancer Fighter. Tweets ‡ endorsements (but maybe)
Ariane~I NEED A GI DO.. @arianek
4K Followers 2K Following Co-founder @Textillia! ✂️💕• SFU Geog • Public health/urban planning/web nerd • Sick AF #Sjogrens #Dysautonomia #IatrogenicIllness #IVIG / ♿️🌈🇦🇲🦆🐶🖖📚💌🌿
MCatharine @bluesznblu
38 Followers 3K Following
MorePeopleShouldKnowT.. @MPSKT_
8 Followers 42 Following unbiased opinion based content, looking to spread the word on important health promotion, social justice, illness and world-wide topics
A @Allisvalued
2 Followers 67 Following
Bring Back Masks In H.. @okawesomethanks
230 Followers 664 Following She/Her Arty & Crafty, Knitter, Tea drinker, 90's indie music Living with #CysticFibrosis #COVIDisAirborne #MaskUp
Susan @sgsma4
399 Followers 569 Following Susan Steels, Social Worker (ON, NB) inspired by truth tellers, heartist and big thinkers views are mine
Kristina McGuire @kristinafromACH
408 Followers 1K Following ex-Nurse, Wife, CHD and ASD Mom, Patient & Family Advisor/Advocate/Activist, and lifelong dissident. Views are my own with no proper affiliations. she/her
Catherine J. Goodenou.. @cathgoodenough
564 Followers 2K Following - CWHHA - Advocacy - Heart Sister - Kind / Peer support - retired R.N./ mother / wife / enjoy outdoors -- INOCA / MCVD / glaucoma
Sevtap Savas, PhD @savaslab
2K Followers 3K Following https://t.co/xVZeQxjvSU Prof @MemorialU Opinions mine; RTs, mentions not endorsements No DMs I don't engage with trolls YOUTUBE: https://t.co/qtsEuML1W7
Margaret @margare10592371
382 Followers 3K Following
James W Forsythe, MD @Dr_Forsythe
5K Followers 5K Following Author, Integrative Oncologist and Anti-Aging Specialist
Kevin Mclaughlin @KevinMclau47009
85 Followers 3K Following
Something Something @somethingtodo4u
621K Followers 208 Following
Brenda Lenahan @BrenLenahan
360 Followers 614 Following Advocate for disability rights & equity, entrepreneur, mom to kiddo with complex disabilities, optimist (she/her) @BCComplexKids @SparkAdaptive @Disability_WP
Camille Currie @CCurrieadvocate
662 Followers 343 Following BC Greens MLA candidate for Esquimalt-Colwood, Founder of BC Health Care Matters, Healthcare advocate, Business owner, Parent. https://t.co/vAFbaB8zbI
WatsonX @laurajean591
2K Followers 4K Following Books, photography, crafts, music, felines, true crime. Roman Catholic. Fiscal conservative. Social libertarian Lifetime member of the Air & Space Forces Assoc.
Angie Bautista @AngieBauti86439
105 Followers 3K Following
Selina Brudnicki @sbrudnicki
2K Followers 2K Following Former Project Director, Clinical Applications Program & Program Lead, Digital Patient Experience @UHN | Activating patients to take control of their own health
Dr. Brian Goldman @NightShiftMD
102K Followers 4K Following ER MD (he/him). Author of four Canadian bestsellers including Nightshift, Power of Kindness and my latest The Power of Teamwork. RTs are not endorsements.
Nili Kaplan-Myrth MD .. @nilikm
63K Followers 10K Following Family Doc | Anthro | Trustee | @mcgillu | @UCL | @Yale | writer | feminist | @FulbrightPrgrm | @[email protected] | personal account | (she/her) 🟦
André Picard @picardonhealth
140K Followers 2K Following André Picard is the health columnist at The Globe and Mail and author of "NEGLECTED NO MORE". I tweet about public health, health policy, and journalism.
sue robins (she/her) @suerobinsyvr
8K Followers 5K Following Senior Partner @birdcomm | Mama Bear | Former Cancer-Haver | Patient Engagement Consultant |
Donna Thomson @Thomsod
4K Followers 3K Following Caregiver, author, educator & research partner. The personal is political.
Claire Snyman @clairehsnyman
3K Followers 3K Following #Braintumor | Healthcare advocate | Patient partner | Pnt Engagement/Pnt Experience are essential | Author & #TEDx speaker | Two Steps Forward | Tweets are mine
Maggie Keresteci 🇨.. @MaggieKeresteci
12K Followers 9K Following I care about improving lives of patients & caregivers | Author | Speaker | Advocate | Caregiver | Healthcare Policy | Views are my own, influenced by many
Cancer Canuck (Jason .. @CancerCanuck
6K Followers 3K Following #StageIV #ColonCancer patient with mets to liver, spine, and legs. Advocate for #AYA cancer and patient inclusion. Not really a crab IRL. #AYACSM 🇨🇦 🦀💙
CML AdvocatesNetwork @cmlnet
2K Followers 674 Following CML Advocates Network: Network of 128 chronic myeloid leukemia patient groups in 93 countries. #CML #Leukemia #CureCML #PatientAdvocacy
White Coat Black Art @cbcwhitecoat
21K Followers 2K Following Dr. Brian Goldman pulls back the curtain on health care on CBC Radio and looks at health news that matters to you on The Dose podcast. This account is inactive.
Robin McGee @TCOrobin
7K Followers 8K Following Cancer Survivor, Psychologist, Patient Advocate, Author The Cancer Olympics
Jana Buhlmann @baldgrrl
2K Followers 5K Following Prose writer. Patient/caregiver/#MAiD advocate. Approach with curiosity, listen to understand. (Un)learning on the unceded land of the Qayqayt.
Angus Pratt 🇨🇦 @anguspratt
1K Followers 2K Following Poet, watercolourist, and intrepid local adventurer. I dabble in Drupal and advocate for patients with lung and breast cancer, both of which I have.
Natasha Fatah @NatashaFatah
116K Followers 2K Following
Jan Geissler @jangeissler
3K Followers 524 Following Patient activist and research patient advocate. Life is precious.
Theresa Boyle @theresaboyle
23K Followers 6K Following Health reporter @TorontoStar, #SCAD survivor, Well-being Champ. [email protected]. Tweet on human/animal rights, #bullying #burnout #journalism #MeToo
The Globe and Mail @globeandmail
2.0M Followers 1K Following Canada's national news organization. Customer care: @GlobeHelp. Share info with us anonymously: https://t.co/ROPEUBZwoO
Chris Gallaway @CGallawayYEG
1K Followers 871 Following He/Him • Treaty 6 • Executive Director at @FriendsMedicare • People Before Profits
Canadian Covid Societ.. @CanCovSoc
3K Followers 41 Following A non-profit dedicated to continuing the fight against the acute and long term risks of Covid-19
CADTH @CADTH_ACMTS
20K Followers 10K Following Not-for-profit providing Canada's health care decision-makers w/ independent evidence on drugs & medical devices. Tweets/RTs/Likes≠Endorsements. FR @ACMTS_CADTH
Alex Wellstead @AlexWellstead
7K Followers 2K Following Present: @NovartisCanada. Past: worked for 🇨🇦's Prime Minister & Minister of Industry. Also tweet about family, running and a few other things.
Frente al Cancer #Esp.. @actitud_cancer
3K Followers 1K Following #NoElegimostenerCancer pero SI nuestra Actitud ➕Conocimiento ➕Formacion ⬆️ nuestros Valores Humanos. #ConectandoPacientesyProfesionales @DraAnaCasas
Libby Znaimer @libbyznaimer
2K Followers 1K Following Host - The Zoomer Report, Zoomer Week in Review, Columnist, VP News Zoomer Media, Cancer Advocate
Nick Tsergas @nicktsergas
16K Followers 6K Following Health News Editor at @CanHealthwatch. Registered Nurse. Tweets are representative of my opinions only, but maybe yours too.
Aska Patel @PatelAska
325 Followers 908 Following Pharmacist• Diverse Conversations Podcast host• Innovator I like to build solutions that contribute to good health and well being.
Brain Cancer Canada @braincancercan
503 Followers 664 Following Brain Cancer Canada is a national charity that supports people diagnosed with primary malignant brain tumours by funding research, technology and treatment.
Bill Dempster @billdempster
642 Followers 1K Following
AdvantAge Ontario @AdvantAgeOnt
3K Followers 890 Following AdvantAge Ontario is the trusted voice for not-for-profit senior care. We are community-based organizations dedicated to supporting the best aging experience.
FamilyCaregivers @FamilyCarersAB
2K Followers 4K Following Our focus is “Caregiver-Centered Care”-- person-centered care for family caregivers.
Ontario Caregiver Org.. @CaregiverON
5K Followers 4K Following OCO supports 4 million Ontario #caregivers; people providing #healthcare, physical & emotional support to family, partner, friend or neighbour. #communitycare
Acute Leukemia Advoca.. @AcuteLeuk
2K Followers 544 Following The Global acute #leukemia #PatientAdvocacy network. Improving #AML #ALL #APL outcomes, awareness & experience #WorldLeukemiaDay #BeLeukemiaAware #ALANsummit
Patient Advisors @PatientAdvisors
4K Followers 3K Following A national group of patient & family advisors engaged with healthcare.
CHPCA @CanadianHPCAssn
5K Followers 2K Following The Canadian Hospice Palliative Care Association is the national voice for #Hospice #PalliativeCare & advocates for quality #EOL/#HPC in Canada.
Julia Roberts @JuliaRobertsTV
24K Followers 750 Following Mother, TV Presenter, CPFC fan, animal lover, novelist,RNA member. Opinions my own. https://t.co/gsUYpYTuNd My books https://t.co/XZjEIVB0eu
Guts & Glory @GtsNGlry
528 Followers 342 Following #gtsnglry is a podcast about all things IBD, with host Chantel, an #IBDWarrior from Toronto. No topic off limits. Episodes with Drs, patients, researchers, etc.
Tambre Leighn, MA, CP.. @tambreleighn
15K Followers 13K Following Healthcare Engagement & Communications Specialist. Innovative Solutions 4 Patient Adherence & Engagement. Advocate. Disruptor. Finally here: @tambre.bsky.social
Samantha Nier (She/He.. @SamanthaNier
215 Followers 408 Following Patient advocate, Network Manager @acuteleuk, yoga teacher, world traveller, road accident survivor living with chronic pain
Canadian Centre for C.. @CdnCaregiving
2K Followers 950 Following We support and empower #caregivers and care providers, advance the capacity of the #caregiving field and advocate for effective and visionary social policy.
Meghan McMahon @McMahon_Meg
2K Followers 1K Following Associate Scientific Director @ihspr_cihr | Assistant Professor @ihpmeuoft @UofT | PhD @ihpmeuoft @UofT | Mom @home
Gail Attara 🇨🇦 @Gail_Attara
561 Followers 791 Following CEO, @GISociety; past chair, Best Medicines Coalition @BMC_Patients; mother of 4, grandmother of 7; writer; painter (see header). Healthcare advocate.
Priti Chawla @chawla_priti
270 Followers 210 Following Leading the Movement to Improve Obesity Care and Shape Perceptions Through Patient Education, Community Engagement, and Personal Empowerment
Simply Kristy @SimplyKristyD
575 Followers 761 Following Wife. Mother of 3 awesome kids. Founder of Chronically Simple (@cshealthapp). #EDS Warrior. Advocate for patient empowerment. Lover of coffee.
International CML Fou.. @icmlf
408 Followers 203 Following Advancing research, improving outcomes, and finding a cure for chronic myeloid leukemia (CML). #CML Registered charity no. 1132984
Catherine Mac Neil @neil_catherine
2K Followers 5K Following Former ICU Nurse. Writer. Obsessed with quality health care as a basic human right . Author of : Dying to be Seen: The Race to Save Medicare in Canada.
Gabriel Fabreau MD, M.. @gabefabreau
6K Followers 4K Following Cdn General Internist, #publichealth, #refugeehealth, & #healthservices research, father, husband. Tweets mine. @UCalgary, @OBrien_IPH Treaty 7 land
Mirna Tomasevic @MirnaTomasevic
73 Followers 231 Following Graphic & Web Designer, Communications Manager and Administrative Coordinator working in patient advocacy l Artist & traveller l Croatian living in UK
Association_Amal @AssociationAma3
260 Followers 234 Following
Pamela P. @PerraultPam
346 Followers 174 Following I am a wildlife and nature photographer. I am a kayaker, a cancer survivor and blogger: https://t.co/TxxtxhDWFG
Wendy Haaf @whaaf
4K Followers 5K Following Freelance writer specializing health and medicine. Mom, cat-lady, and loyal subject of a mini-Dachshund. [email protected]
SCDAC @sicklecellca
2K Followers 611 Following Sickle Cell Disease Association of Canada. Advocating for those with SCD in Canada. Like us on Facebook https://t.co/oZX9osWbLi
Tara Parker-Pope @taraparkerpope
45K Followers 4K Following WaPo Well+Being Editor, founder NYTWell, Emmy & GLAAD winner, prev @wsj, @houstonchron, @statesman Yale MPH. Will post dog pix of Sugar. https://t.co/wGkO2MMxxE
Nicole Smigiel @nvsmigiel
213 Followers 952 Following wife, mother, teacher, learner, friend, RR MS warrior and love my doggy
Angela Kokott @angelakokott4AB
912 Followers 695 Following Wife, mother, community advocate, part time radio producer/announcer
Glenn Bragonier I @GlennBragonier
431 Followers 2K Following Content Producer for Let's Talk w/ Dani Stover [email protected] (He/Him) All opinions are my own. Retweet does NOT equal endorsement
Amy Nakajima @SocialObGyne
2K Followers 2K Following An obstetrician-gynecologist aiming to address social inequities. MSc Human Factors & Systems Safety, Lund Univ. Currently in the DrPH program, Univ of Toronto
kathy kastner @KathyKastner
5K Followers 5K Following Lover of chocolates, dogs, plus large dollops of laughter. #TEDx #StanfordMedX #Author.Should you want to know more: https://t.co/vTCnFDTfnz
TerrenceHo.eth @terrencewkho
2K Followers 3K Following Practicing Daily Gratitude publicly for over 1,000 days and counting! Join me 🙏🏼
Dr. Blake Pearson @DrBlakePearson
447 Followers 365 Following Canadian medical doctor focused on Cannabinoid & Integrative Medicine | Founder of https://t.co/WC8WpcUQPU & https://t.co/gxTLLToGP5 | Not medical advice.
Formula 1 @F1
10.2M Followers 95 Following The home of risk takers, late brakers and history makers 💫 NEXT UP - RACE 6 OF 24: MIAMI 🇺🇸 03-05 MAY
Anthony Fong MD👨�.. @fongafriend
1K Followers 587 Following ER doctor - Journalist - Disaster Medicine - Clinical Assistant Prof @UBC - Director @CMATeams (disastermed) & Roots CHC (refugeehealth). He/him, views my own
Robert Steiner @dlsphjournalism
2K Followers 787 Following Director, Fellowship in Journalism and Health Impact, Dalla Lana School of Public Health, U of T: Helping specialists become freelance journalists.
Keith Meldrum 🇨�.. @keith_meldrum
2K Followers 816 Following VP at Arthon Constructors, civil engineer technologist, pain & mitochondrial disease advocate, neuropathic pain, dorsal root ganglion pt., researcher
Deb Maskens @DebMaskens
3K Followers 3K Following Patient advocate for kidney cancer. volunteer for @IKCCorg, Former Patient Advocate NCI Renal Task Force, No FCOI. Tweets= personal views.
Kristine 🇨🇦 @KristineKSL
301 Followers 472 Following Healthcare | Patient Engagement/Experience | Partnered Healthcare | #meningitis #childhooddisability | Mobile Game Dev |
🌟✨Today's Advisory Board meeting was pumped with energy and creativity! Each idea sparked more excitement, and we're buzzing with anticipation for what's ahead. Stay tuned for some amazing developments coming your way. 🚀 #ObesityMatters #ChangeMakers #OMAdvisoryBoard
Data from the U.S., U.K., Sweden, Netherlands, and Germany all point to the same conclusion. Private equity ownership of health services is linked to worse patient outcomes and higher costs to taxpayers.
Protecting public healthcare from private investors thestar.com/opinion/contri… @DanyaalRaza @karenpalmeryvr CanadaHealthwatch.ca — Canada's hub for health news 🍁
Super cool astronomy! Back to work now. (Yeah, running outside between patients, the mask stays on - this photo is to annoy anti-science nitwits). #SolarEclipse2024
Super excited to be joining in the #coproduction session tomorrow! This is where it’s happening 🙌 #quality2024
Wednesday M10: Improving Together - #Coproduction in Action half day workshop 1.30 - 4.30 Capital Suite 10-12, Room 10 - Level 3 As part of the session @okpedrodelgado will be joining me on a panel with @tlord1967 USA, @clairehsnyman Canada, moderated by @ballardridley 🤩Join Us
I’m never sure how much detail to give in a #cancer update. As always, I’ve appreciated the love and support. From the pings, DMs, and calls. Over the last week or so, I’ve been experiencing some new symptoms. Jaundice being the worst and scariest. It means that my…
@Iamlisamachado @healthing_ca @rethinktweet @CanCertainty @cancersociety Great article on medical trauma. I hear you @Iamlisamachado and agree very much with “finding people who know what it’s like, who share your experience, but most of all, understand your “special kind of hell”. We are not ok. #cancer #survivorship #QoL
Speaking of coauthoring… Breaking Canadians features a diverse group of clinician, researcher, academic, patients, caregivers and scientist authors! Woot!
So cool! Back home in Ottawa to copies of #BreakingCanadians from @utpress! HUGE thanks to the amazing Canadians who wrote chapters. Thanks @NightShiftMD @suerobinsyvr for foreword & postscript, and @PeterHotez @WriterWong @CheriDiNovo @cathyacrowe @deonandan @boiby for reviews.
Check out this wonderful @patientvoiceca series. These short stories pack a powerful punch. Full disclosure: the kick-ass advocate featured here is my friend + colleague @tatterededge.
Following a string of misdiagnoses, Lelainia Lloyd (@tatterededge) was ultimately diagnosed with #NMOSD in 2015. In the years since, she’s found her voice as an outspoken advocate for #patientcentricity and #raredisease awareness. patientvoice.io/shorts/living-…
Sometimes I give talks about storytelling + patient engagement for internal groups at health organizations. These aren't advertised publicly, but it doesn't mean they don't exist! /1
Ended up having the hair stylist do a home visit. Absolutely no way I’d be hopping in the car and heading to the salon. I feel more like a human being now that I’m cleaned up a smidge. #StageIV #ColonCancer #SelfCare
It arrived! I did this thing with a group of amazing Canadians. We reflected on our experiences with #COVID19. Brought together by the inimitable @nilikm we told our stories & shared insights in a way I hope helps to fix what is broken & will crisis proof Canada’s #HealthSystem
@suerobinsyvr @Iamlisamachado My mom passed of cancer and she always wondered what she "did wrong". I know that with my chronic migraines I too have been told that if I can figure out how they benefit me and fill that need in other ways they will resolve. It's not true of course and isn't at all helpful.
Solid piece by @Iamlisamachado about patient blaming. When I was recovering from cancer surgery, a relative said to me, "maybe you will live healthier now." People blame patients because they think they are invincible + sickness cannot happen to them. That's simply not true.
No one chooses to be sick. @raredisorders @RareDiseases @curecc #cancer #rarediseases #patientvoices #mentalhealth healthing.ca/wellness/opini…
"When healthcare professionals slough off the worry of patients, it has nothing to do with a healthcare system that’s barely standing. It's about a person unable to consider the human in front of them." @Iamlisamachado #cancer healthing.ca/wellness/opini…
There's a one or the other vibe that hangs over the debate around public healthcare versus private, but there are actually many shades in between, and it’s critical that we don’t ignore that. @healthing_ca #universalhealthcare healthing.ca/wellness/opini…
Big kudos to Julia for speaking up about her daughter’s awful health care experience. The weight of advocacy has been placed squarely on the shoulders of patients + families. Patient advocates don’t have unions or orgs to protect us…we only have each other. Sending 💗.
My latest in @nationalpost, reflecting on the failures of @ONThealth my family experienced during my daughter's need for critical care. nationalpost.com/opinion/my-dau… @StMarysGenHosp @grhospitalkw @SylviaJonesMPP
Oh lord, it is #WorldCancerDay again. Re-upping a post I wrote about awareness days a year after I went through cancer treatment. A note: SO many women in my breast cancer community have had a recurrence. Metastatic cancer deserves more. suerobins.wordpress.com/2018/02/04/my-…
@CdnCMLNetwork @Novartis @llsc @cmlnet Important work and important to keep the conversations going
🤔Thinking about experiences of #PatientPartners in #Research. Bad experiences compound and have potential to contribute to burnout and harm. We need to do better as a #PatientEngagement community. Sharing some examples in the spirit of learning. 🧵/1
I feel bad I whined about my CT scan this morning. My oncologist more than made up for it. He left me a message after lunch telling me the scan was clear. No progression. How's that for service?! He knew I was worried about rising tumor markers. I'm smiling now! @ThanksCancer
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