Idiopathic pulmonary fibrosis @IpfRm
Helping you better understand, manage and talk about idiopathic pulmonary fibrosis (IPF). Join us at https://t.co/gSi1wts8u6 raremark.com/idiopathic-pul… Joined May 2018-
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Which 5 words would you use to describe IPF? Share your answer on the Raremark website here: bit.ly/3KiqU1s #MakeTheRareReal #IPF #IdiopathicPulmonaryFibrosis
Almost 9 out of 10 carers (91%) have taken time off from work for caregiving duties. What’s the financial cost of being a rare caregiver? We take a look: bit.ly/3nxs4MM #MakeTheRareReal
When a family member gets a life-altering diagnosis life may suddenly feel broken. Here are a few ways to heal from @DeniseMBrown3, founder of @CareYrsAcademy: bit.ly/34UKmkx
Taleena Koch, the founder of Breathe Support Network, explains why you need a pulmonologist who specializes in pulmonary fibrosis to get the best IPF care.
What do IPF patients and caregivers think about their medication? Find out here: bit.ly/3FG4qUy
Living with IPF has its challenges, but there are ways you can stay in control. Here are some tips: bit.ly/3A1qJ66 #IPF #PulmonaryFibrosis
See how others are living with IPF and share your experiences at Raremark. Head to our website to become a member: bit.ly/3Gv4WG2
"If you are not a priority in your life, you will not be fully equipped to care for another." Taleena Koch, the founder of the Breathe Support Network, shares some lessons she learned as a caregiver: bit.ly/3Ked8wH
What is genetic testing and what happens when someone has a test? We spoke to specialists to find out: bit.ly/3Gnk60f
Do you have trouble remembering what to talk to your doctor about, or what they tell you? Here are some tips to help you keep track. #IPF #PulmonaryFibrosis
Noah Greenspan, DPT goes over five aspects of your health that are important to consider while living with IPF: #IPF #PulmonaryFibrosis bit.ly/2zCpBek
Open communication is important between you and your caregiver. This downloadable patient tool can help guide you through some important discussions. Get it here: bit.ly/33h2rsj #IPF #IdiopathicPulmonaryFibrosis
What advice would you give to someone who just got diagnosed with IPF? Sign up or log in to Raremark and share your answer: bit.ly/3HJhNVn #IPF #IdiopathicPulmonaryFibrosis
Together we can help each other understand, manage, and talk about IPF. Join Raremark: bit.ly/3HEeMFQ
Fatigue is one of the most common symptoms of idiopathic pulmonary fibrosis (IPF). Here's some advice on how to manage fatigue, read the article in full here: bit.ly/3n5nSDA #IPF #PulmonaryFibrosis
“I cherish quality time spent with family and friends now, and I’m not sure I would have appreciated this simple pleasure so early in my life if it weren’t for my IPF diagnosis.” Read about Charlene's and other people's experiences here: bit.ly/3rcSchd
Have a look at this article for some tips and suggestions to help manage life with pulmonary fibrosis: bit.ly/3sYdCAS #IPF #PulmonaryFibrosis
Let's chat! What would you love to achieve this year?
Happy new year! We hope 2022 brings you plenty of opportunities for joy, self-care, and memories to cherish ✨
Looking for a nice painting or artwork? Take a look at the auction below 448-455 👀 Filter category by paintings 🤞💜 Please help us fundraise for @ActionPFcharity Pulmonary Fibrosis lung disease needs a cure #art #painting #photomontage #artistOnTwitter live.adampartridge.co.uk/m/view-auction…
Steve Jones @ActionPFsteve
2K Followers 381 Following Trustee of @ActionPFcharity, a patient organisation committed to supporting people living with pulmonary fibrosis. President of @EU_IPFF
Naftali Kaminski @KaminskiMed
13K Followers 2K Following First Generation Physician-Scientist, & many other things. This account is Private - opinions and tweets do not represent any of the organizations I work with.
Action for Pulmonary .. @ActionPFcharity
5K Followers 4K Following 💜UK charity supporting people affected by pulmonary fibrosis 🧬funding research towards a better future for people living with PF 🤝together we are stronger
Pilar Rivera-Ortega @PilarRiveraOrt1
3K Followers 5K Following Respiratory Consultant, subspecialty in Interstitial Lung Diseases #ILD🫁🧬Manchester University NHS Foundation Trust. Tweets=my own🇵🇪🇪🇸🇬🇧 #DEI #RWE #RCTs
Kerri Johannson MD MP.. @KerriBerriKerri
5K Followers 1K Following Physician. Interstitial Lung Disease. Environmental Health. Feminism. Human Rights. She/Her. May All Beings Be Happy.
ILFA Ireland @ILFA_Ireland
2K Followers 1K Following Irish Lung Fibrosis Association provides research, education and support for patients and families of Lung Fibrosis - a serious and life-limiting condition.
ILD IPF Doc: Nazia Ch.. @ILDIPFDoc_NI
1K Followers 385 Following Diagnose, manage and treat patients with IPF, Sarcoidosis; CTD-ILD, NSIP and other fibrotic lung diseases in NI UK.
PF Trust @PFTrust
2K Followers 947 Following The aim of the Pulmonary Fibrosis Trust is to provide personal support to people affected by Pulmonary Fibrosis, a very debilitating and life-limiting illness.
patientMpower @patientMpower
2K Followers 2K Following Empowering patient-centred specialist respiratory healthcare & research insights through digital innovation. #ILD #CF #lungtransplant #asthma
Liam Galvin @IPFthurles
911 Followers 598 Following Patient Advocate, Director, Irish Lung Fibrosis Association (@ILFA_Ireland) CEO, European Pulmonary Fibrosis Federation (@EU_IPFF), Patient Co-Chair @ErnLung
Tameside Pulmonary Fi.. @TamesideGroup
612 Followers 1K Following The group aims to provide support and information for patients, their families and friends. Clive & Sue Green email: [email protected]
Louise Doran @FoxyLady0811
618 Followers 2K Following Fundraising and trying to improve awareness of Pulmonary Fibrosis. Animal lover, technology lover. Enjoy baking cakes
Puja Mehta 🧩 🌻 @DrPujaMehta1
6K Followers 2K Following Rheumatology SpR | Research Fellow Respiratory Medicine 🫁🤚🧬 @UCLRespiratory | ILD: RA/CTD/IPF | COVID | ResearchCulture |✍️ AssocEdit @RheumJnl🎙️ @ThoraxBMJ
Bolton Pulmonary Fibr.. @BoltonFibrosis
1K Followers 798 Following We are a support group made up of men and women who live with Idiopathic Pulmonary Fibrosis, Our aim is to help and support those who have Pulmonary Firbrosis
Laura Fabbri @Istamina
909 Followers 1K Following Respiratory physician, clinical research fellow, human being, Italian heart. she/her. 🇮🇹🇬🇧🇪🇸🇫🇷 #curePF #ILD #EveryVoiceMatters #PPI
PF Warrior @IPFWarrior
3K Followers 5K Following PF Warriors is an international support network that provides education, inspiration, & hope to those with pulmonary fibrosis. Patients helping patients!
Prof. Anne-Marie Russ.. @anmari_russell
2K Followers 784 Following Clinical Academic: #ILD person-centred research; supported self-management & patient reported measures #ATSFellow. Support women in academia. Love a sunset.
Joanna Porter @DrJoPorter
1K Followers 1K Following Resiratory physician/researcher UCL/ UCLH London UK Loves lungs + myeloid cells Passionate about breathing + making life better for patients w lung fibrosis
Pulmonary Fibrosis NI @PFNI_NIRELAND
522 Followers 392 Following We provide: information, guidance, and support for PF sufferers in N Ireland. Every Tuesday morning at 11am using Zoom. Carers every other Thursday 7pm.
IPF Awareness @IPFawareness
923 Followers 442 Following Aiming to increase awareness of Pulmonary Fibrosis, support charities in helping improve the outcomes and quality of life for patients with this disease
Respiratory Research .. @RRC_Lundquist
8 Followers 47 Following Conducting clinical & translational research to develop new therapies for patients w/ chronic lung diseases & other conditions that limit exercise tolerance.
Jill A @JillA59979880
0 Followers 5 Following
صهيب رامي @Suhib_Rami
3 Followers 38 Following ما الطِّبُّ إلّا وسيلةٌ ، والهدفُ أسمى. صهيب عدوان 🇯🇴🇵🇸 'قد مات حقًا من نجا من دونهم ........ ونجا الذي قد ماتَ يومًا فيهمُ '🖋️💚💔
Jordan Torres, MD @jordantorres_md
44 Followers 159 Following
VoltsWagon @sutwin
293 Followers 475 Following Entrepreneur. Engineering a key 2 solve humanity’s challenges. AI must B Regulated. Our private data shouldn’t B used without our consent. No Dictators in SM
Edesa Biotech Inc. @EdesaBiotech
367 Followers 96 Following We are a clinical-stage biopharmaceutical company exploring new ways to treat inflammatory and immune-related diseases
Jeannie B @BerniusJeanne
613 Followers 777 Following Totally devoted to my husband, God, and this great nation 🇺🇸
Keto, fasting and lif.. @OldKeto
515 Followers 162 Following Anti supernatural beliefs, that includes all religions. Anti fat-acceptance and smoking: big food, big pharma want you to be fat and sick, don't co-operate.
Muse B. Strong ☧ �.. @musebstrong
1K Followers 3K Following We’re being poisoned spiritually, culturally, chemically, pharmacologically, and biologically. Pray, seek God, and fight evil with everything you’ve got. ✝️🙏
Interstitial Lung Dis.. @ILDinfo
194 Followers 267 Following Videos, Podcast, Posts about Pulmonary Fibrosis (lung scarring) and related conditions in an easy-to-understand format. By @scstanel #InterstitialLungDisease
Mamakey @Mamakey67391261
30 Followers 76 Following
Joanne Dallas @JoanneDallas20
20 Followers 92 Following
David Melton @bigbalddad1967
9 Followers 24 Following
Karen Blessington @Graduation1980
0 Followers 24 Following
Temi Diaz Strunz @DiazStrunz
3K Followers 2K Following medico internista, neumologo, intensivista, especialista en trastornos del sueño y en armonizar la fisiología bioquímica del cuerpo
PattyCake$ @SpongeBobMe_Boy
85 Followers 355 Following
최승준 @ssjchoe316
0 Followers 16 Following I am terminal IPF patient, who is an educator and a follower of Jesus Christ. Living day by day not, knowing when my last breath of oxogen will be.
Fibrosis_research @fibrosis_infla
31 Followers 129 Following I'm a biological Ph.D. working in the pharmaceutical industry. I'm dedicated to keeping researchers informed on the latest insights in this fascinating field.
Simon @simon151278874
165 Followers 491 Following #vaping #vape #tattoo #ink #cannabis #medicalcannabis #420
Doug Cai @DougCai_5138
12 Followers 55 Following
MMcIntosh @MMcIntosh2016
237 Followers 973 Following Speech Pathologist, stroke neuro-rehab obsessed, RT+/-❤️ = my reading list. Living on unceded Worimi land.
Ryan Flinn @RS_Flinn
4K Followers 5K Following Comms consultant with 20+ years of experience in PR & journalism. Formerly at Resilience, J&J, Bloomberg. Bylines w/NYT, SFGate, AJMC.
Cathryn Kyle @cathrynkyle1
79 Followers 416 Following
Knowledge Worker @EEOymen
2 Followers 1K Following
Billy Ruiz @willyruiz888
91 Followers 313 Following
Chance Enslow @CEnslow56680
38 Followers 35 Following
Michael Montallana @MichaelMon29284
47 Followers 273 Following
Lisa Reid @Lisareid7062
50 Followers 661 Following
Maureen Nolan @crumbsgalway
156 Followers 1K Following
Doc Nik @DocNikGE
9 Followers 47 Following
The Extracellular Mat.. @ecmcongress
542 Followers 665 Following #ECM2024 Venue: Copenhagen, Denmark Dates: 17-19 June 2024 #ECM #ECMatrix #Pharmacology
Stephen Boon @Boonie75
203 Followers 871 Following
Jennifer Ward 👩�.. @JenWard103
1K Followers 726 Following || Mrs Wylie to be.🥰 || My book - “Nephelle & Morpheus” - coming out soon. ✍🏽
BMAEMDPHD @BMAEMDPHD24
212 Followers 2K Following internal medicine resident interested in haematology, nephrology, immunology, and pathology.
Jorge Derpic @jderpic
3K Followers 5K Following Sociology Ph.D. Political & Urban Sociology, Law & Society, Violence, Latin America. Most tweets in Spanish & on Bolivian politics. From #Potosí, #Bolivia.
Edith morris @EdithEhmorris
4 Followers 158 Following
POLSTAR @POLSTAR73
113 Followers 1K Following
David Lock @DLock1964
381 Followers 268 Following Fan of the Orioles, Star Trek, Batman and Paul McCartney. I love baseball and music.
Beth Brown @elizabeth79424
793 Followers 2K Following Christian Conservative, #1A,#2A, Pro Life, Wife, Mother, Grandmother, Small Business Owner, love Shih Tzu’s, Horse Racing, Travel
Rithana Srikanth @RithanaS84780
11 Followers 128 Following Making patient voices a priority for researchers. @Leapcure https://t.co/AEUdNjKbBu
JUAN CARLOS @LAXSAN90250
86 Followers 1K Following Healthcare, Biosciences, Biotech investor. Ceo/owner logistics/distribution/last mile time-critical parts. (Biotech)delivery services since 2007.
Ashley C. Cozart @ashccozart
59 Followers 123 Following PGY-2 IM Resident @VUMCMedicineRes | MD Class of 2021 @ourmedschool | Forever 🐊 @UF
faye johnson @fayej1985
49 Followers 301 Following
mohammad fleifel @cofleifel
131 Followers 2K Following
Deb Parnall @Debzdot
58 Followers 297 Following
Steve Jones @ActionPFsteve
2K Followers 381 Following Trustee of @ActionPFcharity, a patient organisation committed to supporting people living with pulmonary fibrosis. President of @EU_IPFF
Naftali Kaminski @KaminskiMed
13K Followers 2K Following First Generation Physician-Scientist, & many other things. This account is Private - opinions and tweets do not represent any of the organizations I work with.
Action for Pulmonary .. @ActionPFcharity
5K Followers 4K Following 💜UK charity supporting people affected by pulmonary fibrosis 🧬funding research towards a better future for people living with PF 🤝together we are stronger
Gisli Jenkins @IPFdoc
5K Followers 169 Following NIHR Research Professor. Margaret Turner Warwick Chair of Thoracic Medicine. Imperial College London. President @ActionPFcharity. #Cycling #COYS #CureIPF
Pulmonary Fibrosis Fo.. @PFFORG
7K Followers 1K Following We imagine a world without pulmonary fibrosis. https://t.co/e5cmq67fNV
ERS publications @ERSpublications
30K Followers 308 Following European Respiratory Journal, European Respiratory Review, ERJ Open Research, Breathe, the ERS Monograph and ERS Handbooks, and European Lung White Book
ILD-IN @ild_inn
3K Followers 326 Following A group of ILD health care professionals aiming to provide support, education and influence for the interdisciplinary team & for those in their care with ILD.
ILFA Ireland @ILFA_Ireland
2K Followers 1K Following Irish Lung Fibrosis Association provides research, education and support for patients and families of Lung Fibrosis - a serious and life-limiting condition.
ILD IPF Doc: Nazia Ch.. @ILDIPFDoc_NI
1K Followers 385 Following Diagnose, manage and treat patients with IPF, Sarcoidosis; CTD-ILD, NSIP and other fibrotic lung diseases in NI UK.
PF Trust @PFTrust
2K Followers 947 Following The aim of the Pulmonary Fibrosis Trust is to provide personal support to people affected by Pulmonary Fibrosis, a very debilitating and life-limiting illness.
patientMpower @patientMpower
2K Followers 2K Following Empowering patient-centred specialist respiratory healthcare & research insights through digital innovation. #ILD #CF #lungtransplant #asthma
Liam Galvin @IPFthurles
911 Followers 598 Following Patient Advocate, Director, Irish Lung Fibrosis Association (@ILFA_Ireland) CEO, European Pulmonary Fibrosis Federation (@EU_IPFF), Patient Co-Chair @ErnLung
Tameside Pulmonary Fi.. @TamesideGroup
612 Followers 1K Following The group aims to provide support and information for patients, their families and friends. Clive & Sue Green email: [email protected]
Louise Doran @FoxyLady0811
618 Followers 2K Following Fundraising and trying to improve awareness of Pulmonary Fibrosis. Animal lover, technology lover. Enjoy baking cakes
Bolton Pulmonary Fibr.. @BoltonFibrosis
1K Followers 798 Following We are a support group made up of men and women who live with Idiopathic Pulmonary Fibrosis, Our aim is to help and support those who have Pulmonary Firbrosis
IPF Manchester @ipf_manchester
771 Followers 426 Following ILD nurses Helen, Katie, Jenna and Annie from Manchester ILD service. Views are our own and not of our employer.
PF Warrior @IPFWarrior
3K Followers 5K Following PF Warriors is an international support network that provides education, inspiration, & hope to those with pulmonary fibrosis. Patients helping patients!
Dr. Samir Nusair, MD .. @SamirNus
2K Followers 629 Following Respiratory Physician: tweets on #PulmonaryFibrosis #Sarcoidosis #COPD; focus #RespiratoryPhysiology & #Exercise #Physiology דר' סמיר נסייר
Prof. Anne-Marie Russ.. @anmari_russell
2K Followers 784 Following Clinical Academic: #ILD person-centred research; supported self-management & patient reported measures #ATSFellow. Support women in academia. Love a sunset.
Joanna Porter @DrJoPorter
1K Followers 1K Following Resiratory physician/researcher UCL/ UCLH London UK Loves lungs + myeloid cells Passionate about breathing + making life better for patients w lung fibrosis
Raremark @RaremarkHealth
1K Followers 617 Following Helping you better understand, manage and talk about rare disease. Join us at https://t.co/QfQK9hoRXm
Adeel Nasrullah, MD @adeel_nasrullah
729 Followers 236 Following PCCM 🫁 @AHNtoday | Incoming Pulmintensivit @AHNPCCM | Alumni @AHNIMRES @ShifaAlumni | Editorial Member @BMC_series | MedTwitter | Tweets are my own|
Harsha Banavasi, MD @harshabanavasi
125 Followers 330 Following Pulmonologist @HarbinClinic, ex-chief fellow and IM resident @DMC_heals. An amazing woman’s husband and the cutest girl’s papa!
Respivant Sciences @respivant
46 Followers 44 Following Biopharma company dedicated to developing new therapies for patients with respiratory diseases – with our lead candidate in development for people with #IPF
Tatsuya Tsukui @TatsuyaTsukui
256 Followers 158 Following Assistant Professor at @UCSF. Pulmonary fibrosis | Fibroblast | Tissue injury and remodeling | Immunology
Taskforce For Lung He.. @lungtaskforce
2K Followers 668 Following Our mission: To prevent more people from developing lung disease and transform the care of people living with lung disease in England. #TaskforceforLungHealth
ThoraxBMJ @ThoraxBMJ
21K Followers 388 Following Publishing top research to support the #respiratory & #criticalcare community. Companion #OpenAccess journal, @BMJOpen_Resp. Published with @BTSrespiratory
CHEST @accpchest
45K Followers 5K Following Advancing best patient outcomes in chest medicine. Official account of the American College of Chest Physicians® #CHEST2024 @journal_CHEST
Emma @EmmaMoon_RN
302 Followers 479 Following
Yale PCCSM @YalePCCSM
3K Followers 420 Following This is Yale's Pulmonary, Critical Care, and Sleep Medicine Twitter account.
Open Source Imaging C.. @OSICild
419 Followers 329 Following OSIC is an effort between academia, industry & patient advocacy to enable rapid advances against IPF and other ILDs using machine learning. Global, 501(c)(3)
Boehringer Ingelheim @boehringerus
68K Followers 2K Following Join the conversation on the latest news from Boehringer Ingelheim in the U.S.
Singing4Breathing CIC @CopdSingers
2K Followers 5K Following Award winning Choir + Harmonica players dx with various respiratory conditions eg COPD asthma etc Online + Live Sessions. Northampton based.
Louise Hecker @HeckerLouise
255 Followers 166 Following Research in my lab is focused on 1) why repair responses “go awry” in aging, and 2) developing therapeutics to target age-associated diseases
Katleen Leceuvre @KLeceuvre
169 Followers 163 Following Nursing consultant interstitial lungdisease University Hospital Leuven, Belgium
Louise Stanley @LouiseIPF
273 Followers 167 Following Course Lead and Senior lecturer in Physiotherapy AECC-UcViews are my own
Piddybull @Piddybul
407 Followers 238 Following Biotech investor actual : ALL IN : GRTS 300.000 shares
Taleena Koch @TaleenaK
261 Followers 471 Following #wife - #boymom - Star Wars/GoT/Harry Potter/Pirates GEEK - Stampin' Up! demonstrator - custom paper crafter - #catmom - #dogmom - Pulmonary Fibrosis Advocate
Susan Liegeois @kapuzie
636 Followers 497 Following Hi I have Pulmonary Fibrosis! I trying to spread the word about this disease! I love my tv shows and big Bravo fan. #GH and #DOOL
Nick Banovich @NeBanovich
3K Followers 2K Following Husband, Dad, Associate Professor at @TGen. Interested in functional genomics of disease. Also like trout.
Ingrid Cox @iaecox
456 Followers 674 Following Physician|Health Economist|Menzies Institute for Medical Research.
pulmonologist @pulmonologist_q
186 Followers 78 Following
PulmonaryRehab @PulmonaryRehab
6K Followers 777 Following Breathe better, Get stronger, Live longer! We help people Worldwide on Zoom. Schedule a FREE consultation today!
Orphan Reach @Orphan_Reach
223 Followers 296 Following Orphan Reach: Emmes' global Rare Disease Center. We partner with innovative biotech companies to bring new therapies for rare diseases to the market.
Nan DeCoste Clarke @DecosteNan
57 Followers 191 Following Living one breath at a time with IPF (Pulmonary Fibrosis). Doing great.
Grampian PF Support G.. @GrampianPf
103 Followers 103 Following Grampian Pulmonary Fibrosis Support Group
Mark Pool, M.D. @Mark_PoolMD
2K Followers 227 Following Pathologist. Interests: transfusion medicine, laboratory management, and social media in medicine. Banjo picker. Southern Illinoisan. #TransfusionMedThursday
We Are Undefeatable @undefeatable
11K Followers 457 Following We’re here to help you move more in a way that works for you & your condition. And to cheer you on every step of the way 🙌 Supported by 15 charity partners.
Deji Adegunsoye, MD, .. @drdayjee
2K Followers 499 Following Physician, Dad, Assistant Professor @UChicagoMed| Intensivist |Pulmonologist🫁|Geneticist🧬| Fighting #PulmonaryFibrosis |Opinions=mine only
Breathe Support Netwo.. @BreatheWithPF
659 Followers 1K Following Pulmonary Fibrosis Advocacy and Online Support for patients and families. #LIVEwithPF #BreatheSupport
Pulmonary Wellness Fo.. @PulmWellness
2K Followers 2K Following Cardiovascular, Pulmonary, Complex Medical Rehabilitation, Education and Research
Genetic Alliance UK @GeneticAll_UK
16K Followers 2K Following National charity working for everyone affected by genetic, rare and undiagnosed conditions. We run the campaign @rarediseaseuk and support network @SWAN_UK.
Rare Disease UK @rarediseaseuk
22K Followers 2K Following National campaign run by @GeneticAll_UK to improve the lives of those affected by rare conditions and all who support them. #RareDisease.
Derek Brooks @defyingtheleft
1K Followers 817 Following Working Class Tory from London's East End and lifelong Hammers Fan. Priv. Sector career in HR and a Council Candidate in Gtr. Manchester. Socialism never works!
RarasNoInvisibles @NoInvisibles
54K Followers 8K Following Hablamos de salud, enfermedades raras, inclusion social y biomedicina. Escribe @Sombradoble Mas Información: [email protected]
POWIPF @POWIPF1
242 Followers 329 Following specialist nurse at princess of wales hospital. This account is to tweet and network with others regarding ipf.views are my own and not of my employer
PennPulmonaryFellowsh.. @PennPulmonary
2K Followers 537 Following The official account of the #Penn PCCM fellowship. Content does not reflect opinions of our employer.
Oracio Alvarado @oracio
8K Followers 1K Following SocialMedia Consultant || Photographer | Geek | Gamer | YouTuber | Living w/ PulmonaryFibrosis \\ https://t.co/6PA9UoCVbb //
Scott W @scottwholley
2K Followers 2K Following TV news Videographer. Emerson '02 #videogame #geek #tabletop #boardgames #tabletop. #corgi lover. RIP my #pfwarrior Dad 12/26/18 #pulmonaryfibrosis #donatelife
Kevin E FitzGerald @IPFAdvocate
17K Followers 13K Following Pulmonary Fibrosis (IPF) Patient Advocate - Raising Awareness of #IPF #PulmonaryFibrosis #RareDisease #CureIPF #IPFAdvocate • Inspirational Speaker • Ambassador
I hope these tips help!
When a family member gets a life-altering diagnosis life may suddenly feel broken. Here are a few ways to heal from @DeniseMBrown3, founder of @CareYrsAcademy: bit.ly/34UKmkx
Looking for a nice painting or artwork? Take a look at the auction below 448-455 👀 Filter category by paintings 🤞💜 Please help us fundraise for @ActionPFcharity Pulmonary Fibrosis lung disease needs a cure #art #painting #photomontage #artistOnTwitter live.adampartridge.co.uk/m/view-auction…
Yesterday, someone made a comment in front of me (and mom) that my mother doesn't even know she exists! UGH! Let me ask you all a question...how do we know this about our #lovedones? We don't! We aren't in their minds and hearts, so why do we judge what they do and don't know?
#Sponsored: I’ve been committed to bringing awareness of #idiopathicpulmonaryfibrosis (#IPF) in honor of my dad’s memory since 2017. Most recently, I traveled to the @MLB All-Star Game to spread the word! Learn more about what Breathless means to me: atmlb.com/3wQalBW
For IPF addition of co-trimoxazole or doxycycline compared with usual care did not improvetime to nonrespiratory hospitalization or death. The CleanUP-IPF Randomized Clinical Trial | JAMA @IpfRm #ipf @BCM_Lung @BCM_ALD jamanetwork.com/journals/jama/…
@IpfRm I would include: more frequent symptoms (dyspnea and cough) and signs (velcro-like crackles, digital clubbing), relevant exposure questionnaires and family history (to be completed by patients and delivered to their GP)...🧵
@IpfRm 🧵 ... list of ILD referral centres at regional, national and international level, websites with reliable and easy-to-read material/ information for patients, contact with support groups / patient associations.
Not all heroes wear capes. 💙 It's #NationalNursesDay! Help us say thank you.
@IpfRm Yes. Frustrating! I explain idiopathic and they ask, “but what’s the cause?”
@IpfRm Regarding new methods of IPF diagnosis & treatments !! Also all latest research results in reversal of Fibrosis !! 😑
@IpfRm Light weights with many repetitions. Squats. stretching and balancing exercises to keep my core strong.
@IpfRm I do things in stages on days where I am feeling less well. I try not to give into negativity. I try to stay present and enjoy the now. Just deal with what I see.
@IpfRm Thank you to the donor from a person who wil indirectly benefit from this donation. Many thanks.
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