Janelle Bowden @JanelleBowden
Muddling through. Passionate abt #medicalresearch #clinicaltrials #technology #innovation #patientvoice #ppi #patientengagement #womeninstem @AccessCR she/her Sydney, Australia Joined March 2010-
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We recently made a submission to the Health Technology Assessment (HTA) Co-design Working Group consultation on the recommendations for an Enhanced #ConsumerEngagement Process in #HTA. Visit our #CCReW blog to see what we said... ccrew.accesscr.com.au/blog/ce-in-hta… #clinicaltrials
Wondering what clinical trials are, or why you'd ever participate in one? Come along to our webinar 24 May to find out more and ask any questions you have about clinical trials. Register free online (Spaces limited to 50 people). bit.ly/CTs_Explained_…
Did you know you can as someone with lived experience, partner in health research? This is an opportunity to learn more about building health partnerships.
Did you know you can as someone with lived experience, partner in health research? This is an opportunity to learn more about building health partnerships.
pxphub.org/event/webinar-… Please join us at the next Webinar series!! Should be excellent!! @wecantrain you might be interested in this too 👇
These include the use of computer adaptive testing, short-forms and the PRO-CTCAE. This one-hour online workshop will introduce and explore these methods in the context of cancer clinical trials. Register > buff.ly/4cw0Kqa
Do you remember when you joined X? I do! Goodness time flies! #MyXAnniversary
Are you living with type 2 diabetes, and living in Hunter New England area or wider NSW? Can you help review some info about physical activity developed by @HMRIAustralia -affiliated researchers? Will take up to 8hrs (and time is reimbursed). Msg me by 27/3/24 for contacts.
1 week left, register now 📣for our webinar: 'Addressing capacity & consent complexities in research' thesphere.com.au/events/address… presented by International Visiting Fellow Dr @VickyLShepherd. Learn how to make your research more inclusive #diversity #equity @MBG_SPHERE @calebferg
Wise words Aus researchers applying for MRFF and NHMRC grants during the year might consider as they bring in their patients partners IN ADVANCE for meaningful engagement #PPI #research #patientpartners #meaningfulengagement
Wise words Aus researchers applying for MRFF and NHMRC grants during the year might consider as they bring in their patients partners IN ADVANCE for meaningful engagement #PPI #research #patientpartners #meaningfulengagement
“Each act of advocacy draws from our already limited reserves.” This is something I am keenly aware of, both balancing a health issue & being an advocate for patient voice in research, as well as in asking people with health concerns to do, share, etc Great post @RenzaS
“Each act of advocacy draws from our already limited reserves.” This is something I am keenly aware of, both balancing a health issue & being an advocate for patient voice in research, as well as in asking people with health concerns to do, share, etc Great post @RenzaS
CIHR has launched an online engagement and we want to hear from you! Have your say in refreshing Canada’s Strategy for Patient-Oriented Research #SPORSRAP. We are collecting feedback until March 31, 2024. letstalk-cihr.ca/spor-refresh
This tweet below is part of a longer thread, but I wanted to boost this specific comment, given Aus is in the early days of implementing the Ntl ClinicalTrials Gov Framework, and I worry abt tokenistic activities to tick accreditation boxes, just as worry 4 research grants appl.
This tweet below is part of a longer thread, but I wanted to boost this specific comment, given Aus is in the early days of implementing the Ntl ClinicalTrials Gov Framework, and I worry abt tokenistic activities to tick accreditation boxes, just as worry 4 research grants appl.
I am confused… I do a lot of #patientvoiceadvocacy. For some reason Twitter seems to now alert me of all the tweets of people who have just passed away or their loved ones grieving a loss. Is anyone else in the #PPI world experiencing this?
🚨 Our pre-print (aka not peer-reviewed) "#Patient and Public Perceptions in 🇨🇦 about Decentralized and Hybrid #ClinicalTrials: “It’s about time we bring trials to people”". researchsquare.com/article/rs-382… - a collab between @clinicaltrialON & #PatientPartners from idea to manuscript /1
🤔Thinking about experiences of #PatientPartners in #Research. Bad experiences compound and have potential to contribute to burnout and harm. We need to do better as a #PatientEngagement community. Sharing some examples in the spirit of learning. 🧵/1
This is very annoying @Telstra. No internet for the next couple of days. I get it’s Christmas, but I pay for the most expensive internet so this doesn’t happen!
What can patients add to research? It’s not just stories to make researchers feel good about what they do. They can offer real insights that can shape research. Kudos to this patient advocate, AND to the researchers that listened. Great series below to read 👇👇#PPI #CCI #ptvoice
This was a cracker discussion. If you REALLY want to know about the work and toll it takes emotionally, logistically, breaking in, to be a patient partner, then this is a must-listen. #PxP #patientspartners #research #PPI #ptexp
This was a cracker discussion. If you REALLY want to know about the work and toll it takes emotionally, logistically, breaking in, to be a patient partner, then this is a must-listen. #PxP #patientspartners #research #PPI #ptexp
MTPConnect @MTPConnect_AUS
6K Followers 2K Following We are Australia's Life Sciences Innovation Accelerator championing the continuing growth of Australia's vibrant medical products sector.
Dr Nicola Straiton (s.. @NicStraiton
2K Followers 2K Following Senior Research Fellow @NRI_research @ACUmedia @SVHSydney | PhD MSc RN BSc | Nurse | Imp Sci | CVD | Digital Health | Consumer Advocate 🏳️🌈 Own thoughts
VCCC Alliance @VCCCAlliance
6K Followers 2K Following VCCC Alliance: alliance of 10 major hospitals and research institutions working together to overcome cancer
AccessCR @AccessCR
1K Followers 1K Following A social enterprise helping researchers & industry engage and involve the community and consumers in their R&D, while supporting the #CCReW to be involved.
Dr Bec Szabo @inquisitiveGyn
10K Followers 11K Following Music | Markets | Pragmatic idealist | #ObGyn #MedEd #Sim #QI @thewomens @unimelb | lead Gandel Sim Service | Perpetual student | @MedEdStuffNN | Tweets own 🌈
Marilyn @mexeccareers
2K Followers 5K Following Technology, health & science-HR-Scientist- 'help-er-outer'- Loves sunshine..🌞 bike rider
Nicki Scholes @scholes_nicki
906 Followers 1K Following Physiotherapist, PhD, Mum and kidney transplant recipient
Dr Emma Beckett @DrEmmaBeckett
25K Followers 11K Following PhD, RNutr, The Ms Frizzle of #Food & #Nutrition #Science. FOODiQ Global #FoodieNerd & academic. First Book: You Are More Than What You Eat - out August.
Mark Brooke - Lung Fo.. @markbrooke68
2K Followers 2K Following Private site of Mark Brooke Lung Foundation Australia CEO - views are my own
Franklin Women @FranklinWomen
10K Followers 4K Following A community of Australian women working in health and medical research related careers. Talking all things science, career, and life. Founder @melina_gee
Julie Leask AO @JulieLeask
10K Followers 3K Following Social scientist | Vaccination | Public Health | Risk communication. School of Public Health. @Sydney_Uni https://t.co/kCexXtdbBP
ARCS Australia @ARCSAustralia
1K Followers 366 Following ARCS Australia provides education, career pathways, professional development and advocacy to the healthcare sector
ANZCA Clinical Trials.. @ctn_anzca
2K Followers 1K Following ANZCA Clinical Trials Network is a world leader in delivering high quality trial evidence that translates into safe and effective practice in anaesthesia
Sydney Health @syd_health
10K Followers 2K Following Research, analysis and health news from @Sydney_Uni's Faculty of Medicine and Health 🏥 CRICOS: 00026A
Bronwyn Le Grice @Bron_LeGrice
1K Followers 2K Following Fearless advocate for digital health commercialisation, governance & diversity in a rapidly changing world. Non-practising VC (for now). Views my own.
Australian Health Jou.. @AUHealthJournal
349 Followers 424 Following Online health show covering advancements in research, medicine, clinical care, policy, workforce and medical devices
Dr Marguerite Evans-G.. @MVEG001
20K Followers 21K Following Exec-NED | Industry-Academia-Gov | Director, Cell & Gene Catalyst @ausbiotech @MedicinesAus joint venture | Ambassador @WomenSciAust | #GeneTherapy #CellTherapy
Claire Whitehouse (#w.. @ClaireW_UK
7K Followers 8K Following Clinical Director R&D & Senior Nurse NMAHP Research @JamesPagetNHS Visiting Prof @StaffsUni @fnightingalef, #whywedoresearch
Dr Anna Singleton She.. @DrAnnaSingleton
1K Followers 1K Following @nhmrc EL1 Fellow @Sydney_Uni | Using #DigitalHealth to empower Ppl w #Cancer | @JCO_ASCO Author: https://t.co/EwU1hIiR7q | @GuideDogAus Puppy raiser 🐶
NSW Medical Research @MedResearchNSW
4K Followers 1K Following NSW Health supports a strong and vibrant research sector to deliver better patient outcomes for NSW
Inclusive @InclusiveGrid
1K Followers 669 Following Inclusive (powered by Research Grid) is a complete solution for community engagement.
bk8n4hzrye2u2sbs @5dfvg293tc3t
22 Followers 215 Following If you want to make friends, you can contact me anytime TG：https://t.co/WlXJLXVcbA
h3qzsdp3vuwpf @beu1ic0jwfzxe5
1 Followers 309 Following If you want to make friends, you can contact me anytime TG：https://t.co/b3vs8GESHq WS：https://t.co/mmVzttoQme
Elon Musk @EMusk54238
70 Followers 380 Following CEO - SpaceX🚀, Tesla🚘 Founder - The Boring Company 🛣️ Co-founder - Neuralink, OpenAl 🤖🦾
Rae Martens -Family E.. @FERProgram
1K Followers 1K Following We train, mentor, and mobilize today’s advocates, champions, and leaders in family engagement.
Doreen_TY @TyDoreen55865
24 Followers 2K Following
Integral Mind @IntegralMindAGI
304 Followers 217 Following First General AI (AGI) and first superintelligence - extensively peer-reviewed, fully validated by US Government. https://t.co/fscgHI6mmz
Dr Jane Thompson @JaneThompsonAdv
573 Followers 749 Following Advocate for public involvement in dementia research; cared for and about husband with dementia of Alzheimer's type.
Aurelia Cotta @AureliaCotta
7K Followers 6K Following The Personal is Political. Parenting after infertility and loss, being a #prochoice #adoptee #LPC #onpoli #adhd #mentalhealth #covid19 #cdnpoli #COVID19vaccine
Prof Laura Downie @DrLauraDownie
2K Followers 3K Following Professor of Optometry, PhD, BOptom. Dame Kate Campbell Fellow @unimelb. Clinician, researcher, innovator and educator. https://t.co/ZRJwvqwmDf lab🔬👩⚕️👓🎻
Research4Less @Research4Less
52 Followers 115 Following We are #VeteranOwned & sell quality, used lab & science equipment online We work w/ 100+ Universities to find the best #research equipment at the best price
Shytot @Shytot987771
70 Followers 958 Following
Alies Maybee @amaybee
1K Followers 1K Following Involved patient deeply interested in all aspects of #healthcare especially digital health + patient engagement
Luna @leteyth59970
2 Followers 211 Following Can we be good friends? I'm looking for a serious relationship
Tanadeth @Tanadeth292628
7 Followers 1K Following
Luna @teennertou4208
5 Followers 240 Following Can we be good friends? I'm looking for a serious relationship
Luna @thotea27224
1 Followers 203 Following Can we be good friends? I'm looking for a serious relationship
JenVinz @jen_vinz12659
79 Followers 2K Following
Jessica Weaver @JWeaver29661
1 Followers 41 Following
jillianengages.bsky.s.. @JillianEngages
443 Followers 687 Following Patient partnership in research. Team Lead, #PatientPartnership for @CIHR_IG. Genetics. #RareDisease. JIA. Disabled. Opinions mine & not that of my employer.
james Okay @jamesOkay241820
249 Followers 1K Following
Hetty Mulhall @HettyMulhall
609 Followers 589 Following Associate Scientific Director @CIHR_IMHA | Views my own, RTs not endorsements | Non-practising Veterinary Surgeon
Dr Shoba Dawson @ShobaDawson
2K Followers 2K Following Senior Research Fellow @SCHARRSheffield interests: inclusive research, health inequalities, evidence synthesis, involvement & engagement, trials. Views my own
Angus Pratt 🇨🇦 @anguspratt
1K Followers 2K Following Poet, watercolourist, and intrepid local adventurer. I dabble in Drupal and advocate for patients with lung and breast cancer, both of which I have.
Delane Linkiewich @delanelinkie
880 Followers 854 Following PhD Student | Clinical Child & Adolescent Psychology @uofg |#PPHCLab | Pediatric pain, peer support, patient engagement |#ChronicPain PWLE Advocate | she/her
Dr. Andrea C. Tricco @ATricco
4K Followers 3K Following Canada Research Chair, Director @ Unity Health Toronto, Associate Professor @ University of Toronto, Co Editor in Chief @ Journal of Clinical Epidemiology
Maggie Keresteci 🇨.. @MaggieKeresteci
12K Followers 9K Following I care about improving lives of patients & caregivers | Author | Speaker | Advocate | Caregiver | Healthcare Policy | Views are my own, influenced by many
Éle Quinn @ele_quinn
252 Followers 710 Following PhD student working on #ThePeoplesReview (Follow us here - @thepeoplesrev) | Occupational Therapist | Sanctuary Runner - @SanctuaryRunGal | she/her
Amanda Doherty-Kirby .. @biochemmama
1K Followers 5K Following Mom to 6 slowly reinventing myself. Using all of the things I have learned to fulfull the dream of my 6 year old self - to be a helper. Active patient partner.
Kelly Cobey, PhD @KDCobey
1K Followers 1K Following Scientist and educator at the @HeartInstitute, Associate Professor @uOttawa_SEPH, member of the The Centre for @_journalology ; she/her
Rachel Martens ♿️.. @RaeofSunshine79
5K Followers 5K Following Research Knowledge Broker, speaker, knowledge mobilization, cancer, childhood disability, rare disease, spoonie, coffee drinker. Opinions are my own.
sue robins (she/her) @suerobinsyvr
8K Followers 5K Following Senior Partner @birdcomm | Mama Bear | Former Cancer-Haver | Patient Engagement Consultant |
Shilpa Jesudason @shilpa_jes
2K Followers 1K Following Nephrologist, Director of Dialysis, Royal Adelaide Hospital | Clinical Professor | Pregnancy and Kidney Research Australia @preg_kidney_aus | @ANZDATARegistry
Rare Genetics @THES_rare_genes
104 Followers 177 Following Tricho-hepato-enteric syndrome is a rare genetic disease. This twitter page aims to teach about genetic diseases, raise awareness and funding for a cure!
Clinvigilant @Clinvig
158 Followers 825 Following Clinvigilant offers digital solutions & consulting for clinical trials globally, including EDC, eConsent, CDM, eTMF, Patient Engagement tool & CRO services.
James @James17385159
389 Followers 1K Following Ingénieur junior et concepteur en génie civil option bâtiment 👨💻🏗️
Barry Slotnick @BSlotnick50341
77 Followers 328 Following The strength of a nation is directly tied to its naval power and command of the seas.
Patrick O. Gee, Ph.D... @PGee51
930 Followers 1K Following Speak up for those who have no voice, for the justice of all who are dispossessed. Speak up, judge righteously, and defend the cause of the oppressed and needy.
Nadine El-Kabbout @nafs_counsellor
37 Followers 116 Following I counsel and empower Muslims spiritually, mentally, and emotionally with faith in mind, leading to holistic healing | Reviving Islam’s Legacy of Mental Health
Janice Tufte @Hassanah2017
2K Followers 5K Following Patient Collaborator #HealthSystemsResearch #Evidence #Disparities #HealthIT #SDOH #PCORIAmbassador Tweets are my own. Hassanah in Arabic=Good Deeds
Kristine Russell (she.. @kristinerussell
633 Followers 2K Following Maternal Sepsis Survivor ▪️🤱🏼of a Neonatal Sepsis Survivor▪️ICU Patient Engagement▪️HRQoL ▪️Health Equity ▪️Healthcare Communications ▪️Views my own
ICanCME Research Netw.. @ICanCMEResearch
621 Followers 377 Following The primary resource to initiate, support and sustain innovative and collaborative #MyalgicEncephalomyelitis (ME) research in Canada. #ICanCME #PwME
Julie Marcoux @majulli
70 Followers 230 Following Post-infectious illness advocate | Former social worker | She/Her/Elle | #MECFS #EMSFC #LongCovid #CovidLongue
Rosie Twomey PhD @Rosie_Twomey
1K Followers 2K Following Research Development Facilitator @BCCHresearch & @WomensResearch She/her
AQEM @AQEM_SFC
548 Followers 1K Following L’AQEM est un organisme à but non lucratif dédié à la reconnaissance de l'encéphalomyélite myalgique depuis plus de 30 ans.
MTPConnect @MTPConnect_AUS
6K Followers 2K Following We are Australia's Life Sciences Innovation Accelerator championing the continuing growth of Australia's vibrant medical products sector.
Melissa Sweet @MelissaSweetDr
30K Followers 13K Following Journalist sharing news re health equity, First Nations health, climate justice, health in all policies. See @CroakeyNews @WePublicHealth. She/her.
Dr Nicola Straiton (s.. @NicStraiton
2K Followers 2K Following Senior Research Fellow @NRI_research @ACUmedia @SVHSydney | PhD MSc RN BSc | Nurse | Imp Sci | CVD | Digital Health | Consumer Advocate 🏳️🌈 Own thoughts
VCCC Alliance @VCCCAlliance
6K Followers 2K Following VCCC Alliance: alliance of 10 major hospitals and research institutions working together to overcome cancer
Prof Marie Bismark @mbismark
17K Followers 3K Following Weaving threads of ideas together. Psychiatrist, public health physician, health lawyer, company director, researcher, mother of three. Professor @unimelb.
AccessCR @AccessCR
1K Followers 1K Following A social enterprise helping researchers & industry engage and involve the community and consumers in their R&D, while supporting the #CCReW to be involved.
Public Health Austral.. @_PHAA_
24K Followers 2K Following Australia's peak body for public health. We advocate for fewer people getting sick.
Marilyn @mexeccareers
2K Followers 5K Following Technology, health & science-HR-Scientist- 'help-er-outer'- Loves sunshine..🌞 bike rider
Nicki Scholes @scholes_nicki
906 Followers 1K Following Physiotherapist, PhD, Mum and kidney transplant recipient
Dr Emma Beckett @DrEmmaBeckett
25K Followers 11K Following PhD, RNutr, The Ms Frizzle of #Food & #Nutrition #Science. FOODiQ Global #FoodieNerd & academic. First Book: You Are More Than What You Eat - out August.
Mark Brooke - Lung Fo.. @markbrooke68
2K Followers 2K Following Private site of Mark Brooke Lung Foundation Australia CEO - views are my own
Franklin Women @FranklinWomen
10K Followers 4K Following A community of Australian women working in health and medical research related careers. Talking all things science, career, and life. Founder @melina_gee
Research Australia @ResAustralia
12K Followers 1K Following Research Australia is the national alliance representing the entire HMR pipeline from the laboratory through to the patient and the marketplace.
Julie Leask AO @JulieLeask
10K Followers 3K Following Social scientist | Vaccination | Public Health | Risk communication. School of Public Health. @Sydney_Uni https://t.co/kCexXtdbBP
ARCS Australia @ARCSAustralia
1K Followers 366 Following ARCS Australia provides education, career pathways, professional development and advocacy to the healthcare sector
Prof Brendan Crabb @CrabbBrendan
31K Followers 1K Following Medical researcher & Director & CEO @BurnetInstitute & Chair @ausglobalhealth & @PacificFriends | also @BrendanCrabbAC & https://t.co/5BaDvLZ2Tw
Sydney Health @syd_health
10K Followers 2K Following Research, analysis and health news from @Sydney_Uni's Faculty of Medicine and Health 🏥 CRICOS: 00026A
Bronwyn Le Grice @Bron_LeGrice
1K Followers 2K Following Fearless advocate for digital health commercialisation, governance & diversity in a rapidly changing world. Non-practising VC (for now). Views my own.
COSA @COSAoncology
4K Followers 727 Following The Clinical Oncology Society of Australia (COSA) represents health professionals from all disciplines whose work involves the care of cancer patients.
Australian Health Jou.. @AUHealthJournal
349 Followers 424 Following Online health show covering advancements in research, medicine, clinical care, policy, workforce and medical devices
Inclusive @InclusiveGrid
1K Followers 669 Following Inclusive (powered by Research Grid) is a complete solution for community engagement.
Lynn Laidlaw (she/her.. @lynn_laidlaw
3K Followers 3K Following Vocal about co production and patient and public involvement in health research. Co Investigator COVID Shielding Voices. Visiting Fellow Uni of Bournemouth
UKCRC CTU Network @UKCTUNetwork
2K Followers 242 Following A network of academic clinical trials units who have been assessed by an international panel of experts. RT does not mean endorsement.
Shaun Treweek @shauntreweek
4K Followers 2K Following Professor of Health Services Research, Health Services Research Unit, University of Aberdeen; trying to make trials more efficient https://t.co/xKksiiVZ1I
Trinity (she/her) @TrinityLowthian
169 Followers 444 Following All things Patient & Youth Engagement @C4T_Canada//@CIHR_IMHA//@IMPaCTrials. and sometimes I fence too ♿️🤺
Rae Martens -Family E.. @FERProgram
1K Followers 1K Following We train, mentor, and mobilize today’s advocates, champions, and leaders in family engagement.
Dr Jane Thompson @JaneThompsonAdv
573 Followers 749 Following Advocate for public involvement in dementia research; cared for and about husband with dementia of Alzheimer's type.
Amanda Doherty-Kirby .. @biochemmama
1K Followers 5K Following Mom to 6 slowly reinventing myself. Using all of the things I have learned to fulfull the dream of my 6 year old self - to be a helper. Active patient partner.
Alies Maybee @amaybee
1K Followers 1K Following Involved patient deeply interested in all aspects of #healthcare especially digital health + patient engagement
jillianengages.bsky.s.. @JillianEngages
443 Followers 687 Following Patient partnership in research. Team Lead, #PatientPartnership for @CIHR_IG. Genetics. #RareDisease. JIA. Disabled. Opinions mine & not that of my employer.
Angus Pratt 🇨🇦 @anguspratt
1K Followers 2K Following Poet, watercolourist, and intrepid local adventurer. I dabble in Drupal and advocate for patients with lung and breast cancer, both of which I have.
sue robins (she/her) @suerobinsyvr
8K Followers 5K Following Senior Partner @birdcomm | Mama Bear | Former Cancer-Haver | Patient Engagement Consultant |
Anna M. Chudyk (she/h.. @AMChudyk
248 Followers 349 Following Patient-oriented researcher “SHARE”-ing the responsibility for better healthcare (https://t.co/MNr4HPF5Q1). Views are my own.
Maureen Smith @Maureenchats
520 Followers 207 Following Passionate patient partner, rare disease advocate, Adjunct Professor @UofT_dlsph, Teacher at ❤️@INFORMRARE @CochraneConsumr @EvidenceComm @SPORAlliance
Dr. Nancy Butcher @NancyJButcher
691 Followers 856 Following Co-Director @IMPaCTrials PhD Researcher @SickKidsNews Asst Prof @UofTPsych Mom-of-2. She/her. Trials | Meta-research| PPI | Views my own.
Dr. Andrea C. Tricco @ATricco
4K Followers 3K Following Canada Research Chair, Director @ Unity Health Toronto, Associate Professor @ University of Toronto, Co Editor in Chief @ Journal of Clinical Epidemiology
Delane Linkiewich @delanelinkie
880 Followers 854 Following PhD Student | Clinical Child & Adolescent Psychology @uofg |#PPHCLab | Pediatric pain, peer support, patient engagement |#ChronicPain PWLE Advocate | she/her
Janice Tufte @Hassanah2017
2K Followers 5K Following Patient Collaborator #HealthSystemsResearch #Evidence #Disparities #HealthIT #SDOH #PCORIAmbassador Tweets are my own. Hassanah in Arabic=Good Deeds
Rachel Martens ♿️.. @RaeofSunshine79
5K Followers 5K Following Research Knowledge Broker, speaker, knowledge mobilization, cancer, childhood disability, rare disease, spoonie, coffee drinker. Opinions are my own.
Dr Shoba Dawson @ShobaDawson
2K Followers 2K Following Senior Research Fellow @SCHARRSheffield interests: inclusive research, health inequalities, evidence synthesis, involvement & engagement, trials. Views my own
Clara Chow @clara_chow
2K Followers 1K Following Professor of Medicine/ Academic Director WARC, CSANZ Past President, Cardiologist
Stuart Dignam @StuDignam
325 Followers 224 Following Chief Executive Officer at MTPConnect. Making it happen in the Australian MTP sector. New Orleans Saints fan! From Lord Howe Island, now call Melb home.
Siân Slade @sianslade
364 Followers 2K Following 🇬🇧🇦🇺kombi maintainer 🚎, 🌏 #NavigatingHealth PhD 🧭🏴🇦🇺@NossalInstitute Director @LeukaemiaAus @HepVic @TheBridgeIncOrg
Jenny Preston @jen_preston1
2K Followers 3K Following Patient & Public Involvement Policy Manager/University of Liverpool. PhD student. All views my own. Read my latest #Research https://t.co/rNyc3nwfjG
Patrick O. Gee, Ph.D... @PGee51
930 Followers 1K Following Speak up for those who have no voice, for the justice of all who are dispossessed. Speak up, judge righteously, and defend the cause of the oppressed and needy.
Reema Harrison, PhD @reemaharrison
1K Followers 1K Following Professor, Health Systems & Safety @AIHI_MQ. Passionate about improving clinician and consumer healthcare experiences & co-creating safer care.
Jean-Frederic Levesqu.. @jfredlevesque
2K Followers 652 Following CEO, Agency for Clinical Innovation @nswaci, New South Wales, Australia. Health services researcher. Passionate about classical guitare. Tweets are my own.
Nadine El-Kabbout @nafs_counsellor
37 Followers 116 Following I counsel and empower Muslims spiritually, mentally, and emotionally with faith in mind, leading to holistic healing | Reviving Islam’s Legacy of Mental Health
Sax Institute @SaxInstitute
4K Followers 2K Following A non-profit that unlocks the potential of research to have a real-world impact. We accelerate research into policies, programs and services that improve lives.
Lucid Health Consulti.. @LucidHealthCon
401 Followers 1K Following Experience Matters. Providing expert advice in health economics, pricing & reimbursement market access & regulatory affairs in Australia.
Kristine Russell (she.. @kristinerussell
633 Followers 2K Following Maternal Sepsis Survivor ▪️🤱🏼of a Neonatal Sepsis Survivor▪️ICU Patient Engagement▪️HRQoL ▪️Health Equity ▪️Healthcare Communications ▪️Views my own
ICanCME Research Netw.. @ICanCMEResearch
621 Followers 377 Following The primary resource to initiate, support and sustain innovative and collaborative #MyalgicEncephalomyelitis (ME) research in Canada. #ICanCME #PwME
Rosie Twomey PhD @Rosie_Twomey
1K Followers 2K Following Research Development Facilitator @BCCHresearch & @WomensResearch She/her
J Greg Merritt, PhD @patientispard
562 Followers 729 Following Partnering with healthcare teams to engage patients to innovate together. (e.g. Increase utilization of cardiac rehab). ❤️😊|Firstgen PhD|Questionologist
Janet Gunderson @JanetGunderson
659 Followers 1K Following Patient Partner with the Chronic Pain Network & Saskatchewan SPOR unit. Living with systemic vasculitis and Sjogrens. Canadian Arthritis Patient Alliance
Sabrina Poirier (On H.. @Sabrina_Poirier
6K Followers 6K Following Community Builder / Passionate Collaborator / Chair - #MedicalEducation Group / #ResearchPartner / #MECFS #LongCovid Advocate / #PwME / #MCAS / #POTS / #Fibro
Agnes Nsofwa @AggieMN
945 Followers 623 Following Global SCD Advocate | RN | CEO @olanas_world | @uniqueliving247 |Exec Director @Ausickle | @scd_talks | Founder @amplifySCDvoice Co- Founder @Znsava | Mum ❤️
Linda Hunter RN, MScN.. @lhunter1310
2K Followers 3K Following CanTrain Clinical Trials Training Program National Stream Coordinator, former HC exec, IMHA IAB, PERA, CAPA 🇨🇦#ChronicPain #SpinalStenosis #Arthritis #Fibro
Greenphire @GreenphireINC
2K Followers 2K Following Greenphire® is the leading provider of global #clinicaltrial budget, payment and travel technologies. Get started here: https://t.co/FhWWH2fXW1
trudy @trudyflynn_
2K Followers 3K Following Fibromyalgia, Co-Chair MSSU PPPC & Chair Fibromyalgia Association Canada, PERA alumni CIHR-IMHA, Patient Partner #Fibromyalgia #FAC #PatientEngagement #MSSU
PxP @PxPHub
403 Followers 304 Following 👉For Patients, By Patients 👈 The PxP initiative brings together resources for the patient engagement community in health research.
Linny Kimly Phuong @DrLinnyKP
1K Followers 2K Following Paediatric Infectious Diseases Physician | Founder & Director of The Water Well Project | PhD candidate | Proud mummy
Australian Leadership.. @ausleaderindex
18K Followers 3K Following The largest ever ongoing research study of leadership for the greater good in Australia, by Swinburne University.
Gillian Mason (she/he.. @gillyminn
3K Followers 3K Following Proudly disabled patient representative & clinician-researcher. Accessible, digitally-enabled healthcare is everyone's business! @TheInstituteDH @HMRIAustralia
ACTA: Australian Clin.. @ACTA_org
1K Followers 1K Following Promoting effective and cost-effective healthcare in Australia based on quality evidence through investigator-led #clinicaltrials and registries.
Carebox @CareboxConnect
244 Followers 940 Following Carebox connects #patients, families, and their #physicians with treatment options only available in #clinicaltrials.
Mark Burdack @BurdackMark
388 Followers 637 Following As CEO of the Healthy Communities Foundation Aust I work to achieve equity for disadvantaged Australians. All views are my own. Retweet not an endorsement.
Hon. Jaala Pulford @JaalaPulford
16K Followers 2K Following Diver, dog pillow, marathon participation medalist. @unimelb VC Fellow. NonEx Dir @mtpconnect_AUS @CCF_MDL #Cyban. Providing advisory services to exciting orgs.
Look I love Melbourne but can't deny this is one of the best views on flight approach in the world
@davidgmandel The whole narrative needs to change.
Had some super energizing and thought-provoking calls with #PatientPartners this week. So grateful for the work I’m privileged to do and the amazing people I get to work with and learn from 🙏💜
@JanelleBowden @CaroleBruce17 It’s so frustrating. We know our bodies they need to trust us when we tell them something is wrong.
Excited to kickstart the clinical trials training journey with the 2024-25 IMPaCT Fellow cohort today! 🎉 To learn more about our fellows, their research, and mentors visit: impactrials.ca/fellows
This brand new report about participation in research comes from a survey of 262 patients and caregivers - experienced in research or interested in becoming involved. A report about patients and caregivers in research, by patients and caregivers!! @rb33canada @PatientCommando
We are pleased to share the story of research – as told by people who share their lived/living experiences as partners in healthcare/health research. Thanks to @cihr for supporting this contribution to the #SPOR Refresh Strategy. bit.ly/3VJYuWa
LC consumers, worth adding this to your calendar, to improve your knowledge about quality of life measures. @ALKPositiveinc @JanelleBowden
🚨 FREE WORKSHOP The increasing emphasis on patient-reported outcomes (PROs) and methodological advancements in recent years have driven significant development in methods to effectively measure quality of life in healthcare.
@JanelleBowden You're a year ahead of me. I joined in April 2011.
What matters: Last night I received a testimonial from a parent of a young girl with cancer. It was a 'thank you' for the support one of our amazing physiotherapists has been providing. I love the work we do. Seeing the impact is everything. I shared the story with my board at…
This weather’s kicking my butt today. So I thought I’d get a start on a project I’m working on about kindness, empathy and self-awareness in #PatientEngagement Been lovely to dig back into @NightShiftMD book on kindness during another round of winter in Calgary.
@whereisdaz I hear professors complain about a postdoc shortage .... and really it's not a shortage. It's a shortage of exploitable postdocs ...
Here is the best photo of the day of my wife as a new Australian Citizen, plant in hand. A huge congratulations to her. It has been a long and expensive process. I’m very proud of her. A new day. 👌👏
Ohhhhhh brand new clinical trial unit is coming together nicely. Fresh paint smell. #gettingexciting #almostready #clinicaltrialsmatter
The slots are feeling up 🚨. If you are passionate about inclusive research and want to learn how to do this practice…then this seminar is one not to miss 👇 @BiancaBrijnath @JuleeMcDonagh @AnneMckenzieAM @JanelleBowden @jennysim_1 @GarvanInstitute @SVHSydney @ACUmedia
1 week left, register now 📣for our webinar: 'Addressing capacity & consent complexities in research' thesphere.com.au/events/address… presented by International Visiting Fellow Dr @VickyLShepherd. Learn how to make your research more inclusive #diversity #equity @MBG_SPHERE @calebferg
Uh-huh - what Sue said.
What are the barriers to professionals + patients presenting + authoring TOGETHER? I tire of orgs saying they are patient-centred + believe in engagement but when it comes to conferences or publications, only the professionals are represented. Why do you keep dumping patients?
The moment at @AusBiotech Women in Life Sciences luncheon where @CSIRO CEO Doug Hilton calls out outgoing @nhmrc CEO Prof Anne Kelso as his greatest inspo 👊 under her leadership in 2023 gender equity was achieved for investigator grant funding 💸 #InvestinWomen @FranklinWomen
..and for recruiting (and retaining) individuals from ethnic minority groups, you could look at: trialsjournal.biomedcentral.com/articles/10.11…
Having trouble recruiting for your randomized trial? Or even better, planning to avoid such trouble? This classic systematic survey tells you the empirical evidence of strategies to aid recruitment. bmjopen.bmj.com/content/3/2/e0…
Congratulations to the newly funded RareKids-CAN! IMPaCT has teamed up with RareKids-CAN, amplifying our efforts to revolutionize pediatric rare disease clinical trials!! 🚀 With the help of this new grant, we will be launching the RareKids-CAN Fellowship for the next two years!
Every year in Canada, 14,000 children die from a #RareDisease. That is why the #GoC, through CIHR, is investing $20M in the creation of a national pediatric rare disease #ClinicalTrials and treatments network, led by Dr. Thierry Lacaze-Masmonteil and his team.
Pre-webinar hugs before I kick the kids out of their room to host tonight’s @FranklinWomen webinar on Re-thinking Productivity with the amazing @DickersonPsych 🤩 Follow along #FWReThink
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