International Long Covid Awareness @LCawarenessInt
#LongCovid • #LongCovidAwareness -- #LongCovidAwarenessDay -March 15 -- #LongCovidAwarenessMonth -March -- Get profile pic frame @ link below⬇️ longcovidawareness.life world-wide Joined February 2023-
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Hacia el 15,con la misma ilusión y esperanza de siempre.Las calles son de la #MareaVerde. ¡Acompáñamos! #SienteEnVerde @LCawarenessInt #SOSLongCoVID #SOS_LC 🆘🆘🆘 #NoSurrender #LongCoVIDAwareness #NotRecovered #JoTaKe
My doctor wrote a letter for disability and sent my medical records. She told me there was a fee. She just sent me a bill for $1500.00 i thought it was a mistake bc her appt fee is $150. It wasn’t. #LongCovid #DisabilityTwitter
We are proud to have supported this new paper published in @BrainBehavImm. Led by @MBVanElzakker & team at @MGHMartinos, it is the is first study to document neuroinflammation in the long COVID brain along with evidence of vascular problems: polybio.org/longcovid-brai…
BIG NEWS: I was able to get a verbal commitment from the LAUSD Committee on Special Education- 2nd LARGEST 🇺🇸 SCHOOL DISTRICT- to begin next steps on implementing the U.S. DOE’s July 2021 “Long COVID Under Section 504 & the IDEA” Guidance for THE FIRST TIME! #LongCOVIDKids 1/🧵
BIG NEWS: I was able to get a verbal commitment from the LAUSD Committee on Special Education- 2nd LARGEST 🇺🇸 SCHOOL DISTRICT- to begin next steps on implementing the U.S. DOE’s July 2021 “Long COVID Under Section 504 & the IDEA” Guidance for THE FIRST TIME! #LongCOVIDKids 1/🧵 https://t.co/0GbDFVGlAt
I see the Tocilizumab trial in the UK requires elevated CRP. How many Long Covid patients have consistently elevated CRP? I was under the impression it is not generally.... For those with #LongCovid, is your CRP consistently high?
📅Desde AMACOP os deseamos a tod@s un feliz día del trabajador! 📌Y en este día de reivindicación queremos denunciar q ha pasado un año más y los pacientes de #CovidPersistente seguimos luchando pq se nos adapten los puestos de trabajo a nuestra realidad, siendo denegadas las…
Have you filed for SSDI because of your Long Covid?
📢MONTH OF NOISE📢 Safe Inside has teamed up with @65for65 and @long_covid We are asking people to make a 65 second phone call to their local dentist or optician and tell us the outcome. We will combine and amplify. See safeinside.co.uk/month-of-noise
On May Day, we make a Mayday call. People with #LongCovid need help, via treatments and research funding. Stand up for workers who want their lives back across the world, and sign our Bill of Rights #MayDay2024
Some very exciting news!
Today is the last day U.S. hospitals will be required to report COVID admissions, capacity, or occupancy data to the federal government. This will make it even more difficult to track the state of the ongoing COVID pandemic, as well as monitor potential pandemics like bird flu.
What is the most prominent symptom of your ME/CFS? (See the previous post for the survey on Long Covid patients.) #longcovid #mecfs P.S.: The reason I conduct these mini-surveys is to accurately interpret studies in the context of treatment.
What is the most prominent symptom of your Long Covid? (See the next post for the survey on ME/CFS patients.) #longcovid #mecfs P.S.: The reason I conduct these mini-surveys is to accurately interpret studies in the context of treatment.
#LongCovid is complex to diagnose and treat, so we need #biomarkers! 1. to confirm viral persistence, and 2. to map the failing/overactive immune response. So we tried to hit two birds with one stone using digital transcriptomics 👇👇 (1/n) thelancet.com/journals/lanmi…
NEW: Sen. Bernie Sanders’ $10 billion long COVID research proposal received mixed reviews from patient-advocacy groups ahead of his April 23 comment deadline. But these recommendations could influence what Sanders includes in the final bill. My latest: dlvr.it/T5ywRm
My real name is Dave. I have #LongCovid. I'm from the first wave. I've had some ups and downs. I've lost everything. I'm in the 5th year. I am declining more than I ever have. I do not know what is going to happen. I do not want this to happen to you. Today is the first day…
The impact on the economy is significant. Read more here from @CambridgeEcon #LongCovid could be a long-term drag on economic growth in the UK and add pressure to an already strained NHS. Download the Report Summary for more insights - camecon.com/wp-content/upl…
The impact on the economy is significant. Read more here from @CambridgeEcon #LongCovid could be a long-term drag on economic growth in the UK and add pressure to an already strained NHS. Download the Report Summary for more insights - camecon.com/wp-content/upl…
This THE 🩸 transcriptomic viral load test we’ve been highlighting at LCAP & to the press since it came out - shouting for NIH to open access to its SARS2 transcriptomic viral load tests to people w/ Long Covid that’s in use behind closed doors #AntiviralsNow #ViralLoadTestsNow
This THE 🩸 transcriptomic viral load test we’ve been highlighting at LCAP & to the press since it came out - shouting for NIH to open access to its SARS2 transcriptomic viral load tests to people w/ Long Covid that’s in use behind closed doors #AntiviralsNow #ViralLoadTestsNow https://t.co/qgtsP1JNPU
Here is our joint press release with @long_covid & @covidactionuk sent out after the most recent @ONS data (for England &Scotland not Wales) “Our government consistently fails to consider Long Covid when discussing the long-term health of the country” longcovidsos.org/post/why-is-th…
It's time for an update : Share this far and wide for better picture of reality. How long have you had #LongCovid?
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332 Followers 2K Following Fait tourner des atomes lents (@DimSirteq, @univ_spn). Ancien métrologue @lkb_lab. On peut prouver que le progrès social est encore meilleur avec du sucre.AuDHDeepThought * SAR.. @AuDHDeep1
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707 Followers 2K Following Our smallest fresh air monitor! Combines with the AirSpot App to help optimise your AirHealth.Rete Long Covid Press @ReteLongCovid
154 Followers 1K Following Benvenuti nella Rete Long Covid Italia 💙 https://t.co/T6NThQfoQLDianna Cangiolosi @Cangiolo2Dianna
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254 Followers 2K Following we export medicine from Bangladesh. #Semaglutide #Generic_medicine #Antiviral, #Anti_cancer, #Paxlovid #Medicine_exporter #Xeljanz5mg WhatsApp :+8801929123476Udderly Fresh 🐄 �.. @musicom67
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881 Followers 1K Following Building a database of places with clean air protocols https://t.co/FXLlVEfc4I please read, like and repost pinned tweet to help spread the word.Marooncast @marooncast
1K Followers 150 Following Maroon Anarchism. TGNCNBQ Liberation. "Coming Out The Cistem". Culture. Arts. Media. Mental Health Peer Support. #MutualAid. #HarmReduction. 🎤:@simaleerbgLexi @t_rexi13
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0 Followers 109 FollowingFredda Luedke @lued_fre
53 Followers 5K FollowingDesiree Dynes @DesireeD84553
109 Followers 5K Followingshivastrishula 🏳�.. @shivas_trishula
5 Followers 150 Following 🇮🇳🇦🇺🏳️🌈🏳️⚧️ Elec Engineer, writer, Yoga teacher Fighter for LBGT+ girls & womens rights globally Homeland : Rajasthan. India. #LongCovid 06/2021ColaHoff 🍉 @colahoff
528 Followers 2K Following Proud heathen || contrarian since '81 || burn it down #DEFUNDTHEPOLICE #UNIVERSALCHILDCARE #M4AHeather Dwyer @HeatherJDwyer
0 Followers 239 FollowingGabriel Stolar @gabrie_sto
27 Followers 5K FollowingSafe Inside - Clean T.. @SafeInside2024
881 Followers 1K Following Building a database of places with clean air protocols https://t.co/FXLlVEfc4I please read, like and repost pinned tweet to help spread the word.Johan Van Weyenbergh @johanvawe
4K Followers 4K Following Researcher in #HTLV #HIV #NTDs respiratory viruses and vaccine response. 'Nothing in #human #immunology makes sense outside the light of #clinical #evolution'Bertrand Léoz @BertrandLeoz
62 Followers 58 Following ESPOIRS Long Covid since 2019 december,I'm still down. I try to testify cause you are not alone, be patient researchs go foward I take part of it 🤞🏻🙏🏻❤️Gina 😷 SARS2 is Ai.. @Saffiya_Khan1
18K Followers 11K Following Against the repeated mass infection of the population with SARS2. Wear a respirator. Campaign for clean air. #GreensAgainstCovid @GrnsAgnstCvdCindy Wilinski @crwequine
12K Followers 9K Following Basic Scientist, mainly F(ab')2🐴 No political affiliations, they’re all incompetent. Views my own. 🌈allyBobbie Callaghan @bobbie_cal
360 Followers 174 Following A Social Care worker who had to press pause because of Long Covid #longcovid🇮🇪Rebecca Logan♿🌻�.. @rebslogan
4K Followers 1K Following Wife/mum/#NHSnurse/fitness instructor on ⏸️ C19 survivor battling #LongCovid for 48 months. Advocating for LC sufferers in NI. LC advisor with @hope4mefibroni.Judah Friedlander @JudahWorldChamp
373K Followers 10K Following 90 min livestream stand-up shows every week. Pay what you want. Next show is this Saturday April 27 8pm ET/5pm PT. https://t.co/BKsF0cwuKlLindsey 🩵🇨🇦 @LindseyMarie_xo
1K Followers 729 Following Life | Empathy | Love | Meditation | Health&Fitness | Music Festivals | Travel. MUA | Web/UX Designer. Disabled by #LongCovid & #MECFS since Jan/22 💔Farid Jalali, MD @farid__jalali
24K Followers 1K Following Personal account. Tweets are not Medical Advice. Posts = personal opinions only, not professional opinions. RTs + likes ≠ endorsement.Ya'el Courtney @ScienceYael
5K Followers 2K Following neuroscience PhD candidate @PiN_Harvard • @LehtinenLab • 2021 @HHMINews Gilliam Fellow • NSF Fellow • Harvard Grad Prize Fellow • scicomm • 32 books in 2024plague rat 🐀 @x3r0gxx
8K Followers 7K Following federation of plague rats against forced mass infection 🐀 🐀 🐀 🏴Pat Just Pat 🍉 @PatTheSocialist
70K Followers 25K Following Adam Schiff tried to censor me 🎙️ Co-host of @PunchUpPod 🎙️ #GeneralStrike #MedicareForAll #StopCopCity #CancelDebt ☁️ BlueSky:PatTheSocialistUniteToFight2024 @U2Fight_World
4K Followers 133 Following 15th and 16th of May! LC & ME/CFS conference project. community-driven. independent. global.Jo house @Drjohouse
1K Followers 612 Following Climate scientist, policy advisor, land use and forests, #IPCC. currently #longcovid. @long_covid advocate. stay safe #FBLCJalen Brown @itsJalenB
6K Followers 5K Following Congressional Health Care Reporter @InHealthPolicy | Past: @BGOV, @CNN, @Forbes | @NABJ | ❝The people must know before they can act...❞ — Ida B. WellsElise Racine, MSc, MP.. @Elise_Racine
485 Followers 1K Following Health/tech advocate #AI #COVID #ethics 🏳️🌈 PhD candidate @Oxford_NDPH @EthicsInAI @Ethox_Centre 🇬🇧 MPA @thehertieschool 🇩🇪 MSc @LSE_ID 🇺🇸 BA @StanfordDr Satoshi Akima FRAC.. @ToshiAkima
34K Followers 3K Following Nephrology & Internal Medicine. Immunothrombosis incl DIC. @ISTH Member. No Conflicts of Interest. Views my own etcDaniel Freeman (on hi.. @LongCovidKiwi
2K Followers 1K Following Used to be @GayKiwiDan. 44 y/o battling #LongCovid since 01 June 2022. Here to correspond with fellow sufferers. #MECFS #FBLC #MillionsMissing 🤒 😷Shingola G @ShingolaG
142 Followers 105 Following 🇨🇵 In a painful #LongCovid jail since March 2020 #CovidLongRenee. Long Cvid 💀.. @LCaddams
116 Followers 169 Following 1st wave Long Covid sufferer. I also like dinosaurs.PostCovid NL @PostCovidNL
1K Followers 56 Following PostCovid NL is de patiëntenorganisatie voor iedereen met langdurige klachten na coronaJesse Hagopian @JessedHagopian
13K Followers 1K Following Teacher|My Books: "#TeachTruth" (forthcoming), Co-editor "#BlackLivesMatterAtSchool," https://t.co/lOGKwbMaLJ|Editor @RethinkSchools|4 booking: @SpeakOutIDECL., MA @leslieleeiii
31K Followers 11K Following Critic | Writer | https://t.co/vb3d69JCXg | threads: theleslieleeiii https://t.co/VCqC1jnAxC #LongCOVID Vnmo: lleeiii | No mutants, no discourse🙏🏿Stan 9 From Outer Spa.. @stanwoof
475 Followers 2K Following Increasingly sweary resting live promoter & digital marketing bore • Disabled by SARS2😷 • Exiled in 🏴Sebas @sebajones
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59K Followers 2K Following Global keynote speaker and emcee. Multiple Walkley Award winning journalist & broadcaster. Buy my new book about AI bias, MAN-MADE: https://t.co/SMrISiV0fZPandemic Resistance I.. @pandemicresist
926 Followers 400 Following We're a grassroots, community organisation committed to spreading awareness of the damage COVID is doing around the world and to combat COVID misinformation.Bond Turner Covid Tea.. @bondturnersols
179 Followers 372 Following We are a team of Lawyers representing Health Care Workers in England and Wales who have contracted Covid-19 during their employment.Ben King 🌏 @benking01
7K Followers 441 Following Long Covid & PE recovery. Geography Teacher. Sustainability & Climate Change. BSc Env Science & Physics (Stirling). Soil Erosion PhD & Geog PGCE (Exeter). Tuba.LongCOVIDWARRIOR @Bodalicious1
2K Followers 5K Following Struggling with #longcovid after a ‘mild’ infection during the March 2020 first wave. Sharing news and remedies for holistic recovery. Love little dogs.ExtroSpecteur @ExtroSpecteur
771 Followers 2K Following All that is not given is lost. Gandhi. 🇨🇮 🇪🇺 🇫🇷 🌍 Born at 319 ppm CO2 #COVIDISAIRBORNE@CleanAirClassrm is o.. @CleanAirClassrm
3K Followers 3K Following #CleanAir #HealthyLearning PublicHealth #VaccinePlusPlan Allied Health & Building Professn Led Founder @mishwoz https://t.co/ZiHARbeQMwDame Sa 🐝 3.5% @LongCovidHell
8K Followers 7K Following Anti Covid and anti Tory. Raising awareness for #LongCovid. I suffered heart, lung & eye damage from a 2020 Covid infection. #FBLC #CleanAir #CovidisAirborneClinically Vulnerable.. @cv_cev
14K Followers 12K Following 𝗖𝗼𝗿𝗲 𝗣𝗮𝗿𝘁𝗶𝗰𝗶𝗽𝗮𝗻𝘁 in the 𝗨𝗞 𝗖𝗼𝘃𝗶𝗱-𝟭𝟵 𝗜𝗻𝗾𝘂𝗶𝗿𝘆 JOIN us on FB 📸cv_cev 🟦☁️@cvcev.bsky.socialMichelle Miyagi @MichelleMiyagi
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686 Followers 641 Following *Physical Therapist, Athletic Trainer, CSCS, dedicated runner and mom. *disabled since 10/2021. Advocate for #LongCOVID, #POTS, #MECFS as able.Julia MV @julialmv
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2K Followers 5K Following Freelance journalist specializing in medicine, public health, and health policy. English prof when the whim hits. Literature and medicine always.Hacia el 15,con la misma ilusión y esperanza de siempre.Las calles son de la #MareaVerde. ¡Acompáñamos! #SienteEnVerde @LCawarenessInt #SOSLongCoVID #SOS_LC 🆘🆘🆘 #NoSurrender #LongCoVIDAwareness #NotRecovered #JoTaKe
My doctor wrote a letter for disability and sent my medical records. She told me there was a fee. She just sent me a bill for $1500.00 i thought it was a mistake bc her appt fee is $150. It wasn’t. #LongCovid #DisabilityTwitter
We are proud to have supported this new paper published in @BrainBehavImm. Led by @MBVanElzakker & team at @MGHMartinos, it is the is first study to document neuroinflammation in the long COVID brain along with evidence of vascular problems: polybio.org/longcovid-brai…
BIG NEWS: I was able to get a verbal commitment from the LAUSD Committee on Special Education- 2nd LARGEST 🇺🇸 SCHOOL DISTRICT- to begin next steps on implementing the U.S. DOE’s July 2021 “Long COVID Under Section 504 & the IDEA” Guidance for THE FIRST TIME! #LongCOVIDKids 1/🧵
Sometime between 7:15pm-8:15pm PT tonight, I’ll be speaking live at the Los Angeles Unified School District (LAUSD) Board of Education to demand action & accountability on the SARS2/Pediatric PASC & Long COVID Crisis. You can stream it via YouTube here: youtube.com/live/hOq0ep42A…
I see the Tocilizumab trial in the UK requires elevated CRP. How many Long Covid patients have consistently elevated CRP? I was under the impression it is not generally.... For those with #LongCovid, is your CRP consistently high?
📅Desde AMACOP os deseamos a tod@s un feliz día del trabajador! 📌Y en este día de reivindicación queremos denunciar q ha pasado un año más y los pacientes de #CovidPersistente seguimos luchando pq se nos adapten los puestos de trabajo a nuestra realidad, siendo denegadas las…
Have you filed for SSDI because of your Long Covid?
📢MONTH OF NOISE📢 Safe Inside has teamed up with @65for65 and @long_covid We are asking people to make a 65 second phone call to their local dentist or optician and tell us the outcome. We will combine and amplify. See safeinside.co.uk/month-of-noise
On May Day, we make a Mayday call. People with #LongCovid need help, via treatments and research funding. Stand up for workers who want their lives back across the world, and sign our Bill of Rights #MayDay2024
A #SciencePerspective by @zalaly and @EricTopol identifies key issues that need to be prioritized in the study of #LongCovid. Learn more on #LongCovidAwarenessDay: scim.ag/6ez
Some very exciting news!
The Sick Times is excited to announce we have received an award of $250,000 from the biotech giving fund Kanro. This grant will fund our general operations over the next 18 months, enabling our expansion to a larger newsroom. Read more: thesicktimes.org/2024/04/30/pre…
What is the most prominent symptom of your ME/CFS? (See the previous post for the survey on Long Covid patients.) #longcovid #mecfs P.S.: The reason I conduct these mini-surveys is to accurately interpret studies in the context of treatment.
#LongCovid is complex to diagnose and treat, so we need #biomarkers! 1. to confirm viral persistence, and 2. to map the failing/overactive immune response. So we tried to hit two birds with one stone using digital transcriptomics 👇👇 (1/n) thelancet.com/journals/lanmi…
There’s broad consensus among groups that the final bill should actively involve Black Americans and other underserved communities in the research and advisory processes + emphasize the possibility that the virus may persist in the body after infection.
NEW: Sen. Bernie Sanders’ $10 billion long COVID research proposal received mixed reviews from patient-advocacy groups ahead of his April 23 comment deadline. But these recommendations could influence what Sanders includes in the final bill. My latest: dlvr.it/T5ywRm
My real name is Dave. I have #LongCovid. I'm from the first wave. I've had some ups and downs. I've lost everything. I'm in the 5th year. I am declining more than I ever have. I do not know what is going to happen. I do not want this to happen to you. Today is the first day…
In January of this year I was able to see a profile of a girl from the USA who was trying Rituximab infusions to treat her Long Covid. I haven't been able to find her and it would help me a lot to know how she is doing and what effects she had. Can you help me find it?