Nicholas @Nicholas_pwme
40s, Severe ME/CFS 18+yrs;95% bedbound. A dog, a yacht and a wide open space=🙂.🇬🇧♥️🇪🇺🌍🌌🦋https://t.co/yhmLaD7zU0 Dorset, ENG, UK Joined May 2014-
Tweets1K
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Followers661
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Following1K
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Likes10K
Can any #pwme recommend a firm in the UK that can do gut bacteria tests via post? (Can't visit anywhere). Thanks.
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Fair enough though I thought this was a public health and climate change issue.
Fair enough though I thought this was a public health and climate change issue.
Nicholas retweeted
REVEALED: the campaigners who dreamed up the contents of Liz Truss’s mini-budget have given the Conservative Party £35m (Location: 55 Tufton St. Collaboration with Democracy for Sale. Narration by @carolvorders)
Nicholas retweeted
A doctors take down of Acu Seeds on Dragons Den: vm.tiktok.com/ZGerTE8rb/
We're always told it's all 'young men' coming.Probably least likely to require medical services.And they're allowed to start working much quicker in france so they would have salary coming in, likely could afford doctors.People are waiting what 2 years for government to process
Pure speculation. No facts there
Pure speculation. No facts there
Nicholas retweeted
Survey for people with ME/CFS and/or Long Covid: The biopsychosocial (BPS) models suggest that ME/CFS and LC are perpetuated by psychological factors. What effect have the BPS models had on your psychological stress levels?
Nicholas retweeted
How many #MECFS , #LongCovid, post-infectious disease patients, and their respective loved ones are active on Twitter? It would be great to get a rough estimate of how many folks we can mobilize. Please like and RT. Let's see if this works.
Hi @MEAssociation . Thanks so much for the hamper for my carer mum. Xmas is stressful for her and when it arrived today it really changed her mood for the better. Really appreciated 💙☺
It's my birthday today, 22 years flatout in bed, amusing myself with wildlife cameras in garden. Here's a Fox and hedgehog kind of sharing. #hedgehog #fox #garden #pwME #MyalgicEncephalomyelitis #winter #BBCWildlifePOTD
Nicholas retweeted
German TV news on what is happening in British politics is amazing. No need to understand German, watch to the end
Having fun with camera on our birdfeeder. Robin, joined by bluetit. #pwme #birds #wildlifefrombed #MyalgicEncephalomyelitis
Petition: Make people on disability benefits eligible for the £650 one off payment. petition.parliament.uk/petitions/6174…
Nice to see a woodpecker in the garden but an unwelcome guest at the bluetit box! #birdwatching #birds #MyalgicEncephalomyelitis #pwME #wildlife
So I got my carers to put up bird box cameras.A bit of nature as I'm mostly bedbound & had my 1st visitor yesterday. #TwitterNatureCommunity #birdphotography #pwME #birds #MyalgicEncephalomyelitis
Nicholas retweeted
ungrateful hostage
Nicholas retweeted
I bloody love this idea! What do you think?
Katy B @KatyBruce108
6K Followers 6K Following Myalgic Encephalomyelitis ME + POTS 39 yrs Donor to @mecfsbiobank for 10 years & @DecodeMEstudy Please watch https://t.co/pUUJO34e5k #pwME
Anil van der Zee © @AnilvanderZee
10K Followers 865 Following Former professional ballet dancer | Bed-bound M.E. patient | Using ✖️ to raise awareness for #MyalgicE | #IACI #art2cureME #pwme #millionsmissing
Wading through treacl... @kimisgubbed
3K Followers 3K Following Advocate & sharer of bio research for INFECTION ASSOCIATED CHRONIC DISEASES inc MECFS, Long COVID, MCAS, Dysautonomia, Vaccine injuries, FMS, Sjogrens & Lyme 🔬
PwME 4 bioMEdical res... @ValeBodi
4K Followers 3K Following Surviving #MyalgicE #AAG to tell the story, patient&advocate w/ a JD, into: MEdicine, Social justice & the Arts, Human neutrino/MEdical apolide/gnarled Pacer
Dan Wyke 🦠➡️�... @Dan_Wyke
13K Followers 5K Following M.E. inactivist; person-centred counsellor (currently not practicing); recovering poet (Rack & Waterloo Press)
Paula Knight @Paula_JKnight
6K Followers 4K Following Author Artist THE FACTS OF LIFE (Myriad) Kidlit books x3 author. Words and pictures. Disabled. Bedridden 7yr v severe M.E. IG: @paulajkstudio
Daniel Moore @Talmandaniel
5K Followers 4K Following Curious & exhausted peace seeker, co-host of @pempodcast23, photographer and blogger. PwME, sidelined social worker, grief dealer, joy peddler, SAFC fan, He/Him
#MEAction Network @MEActNet
19K Followers 3K Following A global network fighting for equality for Myalgic Encephalomyelitis. #MEAction #MillionsMissing https://t.co/JhhNZoFYJi
Open Medicine Foundat... @OpenMedF
14K Followers 1K Following OMF is fundraising to support open, collaborative research to find effective treatments and diagnostic markers for ME/CFS, Long COVID, and related diseases.
Carole Bruce @CaroleBruce17
7K Followers 5K Following 💙Art, Nature, Books, Some Music. Severe ME 32 years. Daughter severe 38 years. Furious about treatment of ME. https://t.co/gEIrl86Wim
Rivka @Rivkatweets
4K Followers 2K Following Activist/Organizer: ChronicIllness, disability, ME/CFS, Lyme, LongCovid, women | Writer: WashPost, MarieClaire, NPR, Ms, Newsweek | Playwright: Many productions
Adam @ABrokenBattery
8K Followers 1K Following Severe ME patient currently on a 10% battery, the gas goes out more than I do. I also compile ME/CFS Awareness videos.
Sabrina Poirier (On H... @Sabrina_Poirier
6K Followers 6K Following Community Builder / Passionate Collaborator / Chair - #MedicalEducation Group / #ResearchPartner / #MECFS #LongCovid Advocate / #PwME / #MCAS / #POTS / #Fibro
Naomi Harvey PhD #Wea... @Naomi_D_Harvey
17K Followers 4K Following Zoologist. She/her. ME/CFS since 2002, now Severe. Pro-vax but vaccine injured. Life on pause (views my own - unemployed) ♿️ https://t.co/YeMrEWwEg5
Crafty Miss @CraftyMissB
6K Followers 3K Following I'm Beth, embroidery, craft & art are my buzz. Politically adrift #pwme #disabled insta: thecraftymissb
ME Association @MEAssociation
19K Followers 2K Following We raise funds for medical research into ME/CFS and provide support, information & campaign for people in the UK. RPs do not necessarily mean endorsement.
Alisontomyradioooo @arisonsned
3K Followers 5K Following @arisonsned.bsky.social Cat and Dog botherer. YP counsellor retired. Want my bike and my health back 🩵
Cʟᴀᴜᴅɪᴀ S. @claudespu
2K Followers 3K Following Seit 2008 an #MECFS erkrankt | Team #MillionsMissing Deutschland @mmissinggermany | Team #SIGNforMECFS | @oeg_mecfs
Suzan Jackson @livewithmecfs
4K Followers 3K Following Writer with ME/CFS & Lyme & son w/#MECFS & #Lyme; love to travel, read & spend time outdoors w/family & friends; write 2 blogs & author of chronic illness book.
DoreenSarah @9kIt18k53pe6vG0
26 Followers 2K Following
TA_Master🇺🇸 @Velal930
51 Followers 2K Following 15-30% Monthly | 2 High-Conviction Stocks.Short-Term Gains: 15-20% in Days/Weeks.DM "JOIN" for WhatsApp Alerts. Live Trade Signals • Market Analysis
Lilly Dee @LillyDeeeeee
180 Followers 84 Following ME. Just trying to research & navigate this illness. Loves birds. Former graphic artist. Posts are not medical advice, I have no idea what I'm doing.
PandoraMorrison @0sRSr7FmYB6SF1
31 Followers 1K Following
EstherMadge @93v9mVdmjRX8s
26 Followers 2K Following
Rhi @rhirhiarhii
2K Followers 1K Following BSc, PgDip Molecular Biology. Neuroscience Nerd & Science Communicator. Eternally trapped in bed
JOwME @JohannaBorde
771 Followers 2K Following Designer・Architecture photographer・Art lover ・Mof2・ME/CFS since 2020
Kags ❇ 😷 #pwME �... @Klang764
1K Followers 2K Following M.E (not cfs) for 27 years. Mainly here for M.E advocacy,disability rights & Scottish independence.
karla P. Holland @Physicians_News
1K Followers 3K Following MAGA 🇺🇸 WWGIWGA ✝️ Jesus Christ is King 👑 truthseeker 🦋🧚🏼♀️🌸 pureblood 🌹 Trump is my Prez ⚡️NCSWC #bitcoin 🪙 crypto lover 📊 📈
Alex☮︎ @Aelvidra
307 Followers 239 Following ●(v)severe ME ●CCI ●EDS ●Gofundme: https://t.co/op7gGeiInu Instagram: @alekpalek ♥︎Please consider donate to save my life ♥︎
Julie_leach00 @leach00_julie
214 Followers 3K Following I'm.JULIE LEACH Powerball winner, Congratulations you have been randomly picked among those I will be giving $30,000 for my giveaway program going on
a tired human @saffronandsky
2K Followers 1K Following disability justice💜. Mod chronic illness 4 decades. long covid in '22 = very severe MCAS, ME&POTs= bedbound. Parent, mixed race, writer, gardener ♿ 🏳️🌈☸️
Joanne Smith - Jo @_Joannesmith
822 Followers 1K Following ME since 1991.Owned by Shih Tzu called Teddy 🐾 Interested in ME advocacy & research.Dogs.Wildlife. Books. Bit of Politics. #pwme @joannesmith.bsky.social
Peter Hope @IPeterHope
511 Followers 1K Following Saving people with ME/CFS time, money, and sanity on the cure-chasing treadmill. Helping them improve QoL and survive the ride.
Environmental and Com... @FatigueMe92484
1K Followers 1K Following Health educator/patient researcher. Background in biology/Public Health. Topics: #MECFS, #PTSD, #LongCovid, #MCAS, #MCS, environmental illness etc.
pz8yaqjpnw2 @pz8yaqjpnw87965
11 Followers 151 Following Pioneer Wealth: Prof. Matthew’s AI + finance pros boost profits! Free 1st month. AI scans data, experts guide stocks/crypto. Click to join now!
Smee Goan @GoanSmee
230 Followers 614 Following An extremist and supporter of the vulnerable in our society. ❤️RNLI
Rachel ♿ 🌍 🇪�... @ChasingGlimmers
20K Followers 22K Following Northumbrian. Severe M.E Sufferer. SEND Mam. Disability Rights Advocate. Opinions Own. Writer @TheCanaryUK Blogger @wearecarers
Pekka Puupää 🇺�... @Raichu_pokem0n
604 Followers 5K Following
Jayne Ricketts Starke... @ohiojayne
3K Followers 5K Following Same on 🦋*Protect our Democracy*When the free world hesitates, that’s when dictatorships celebrate*Zelensky*Retired*Widow*ME/cfs*NO Bullies Liars Bigots
Nikki @liccle_princess
13 Followers 523 Following
Mani g @MalikMa91877084
729 Followers 4K Following follow me follow back 💯💯💯💯💯💯💯💯💯💯💯💯💯💯💯💯💯💯💯💯💯💯💯💯💯💯💯💯
Thomas @t_hubert53
641 Followers 724 Following Product & services 🛢 Mentor👊Motivator👍Bodybuilder💪NO CRYPTO OR BITCOIN 🚫 NO PORN 🚫Supporter of freedom and human rights without barriers✨
Athena @AthenaCFS
378 Followers 492 Following Disabled advocate with #mecfs. I’m sharing my experience living in a nursing home at 31 years old to raise awareness. Welcome to the inner circle.
Schnickelfritz @KSchnickelfritz
632 Followers 545 Following Bedbound knitter with a chocolate habit and bird obsession. #ME #POTS #LC #Lyme
The Drifter @justadrifter31
848 Followers 3K Following Certified Nutrition Coach. Certified Personal Trainer. BofSc. MofSc. X'ing about: Clean Air. Masks/Respirators. Sports. BB27
Niko Suvisto @nikosuvisto
771 Followers 405 Following Life on hold by severe #MECFS, currently 99% bedbound 🛌 Documenting my life like it is now, advocacy through photography 📷 📍Finland
Rachel @rachelleese84
579 Followers 999 Following Londoner, wife, Mum, pwME (myalgic encephalomyelitis). Lover of wine 🍷.
OhneAtemKeinLeben @OhneAtem
145 Followers 507 Following Bewusstsein & Sichtbarkeit schaffen für leben mit #longcovid #MECFS 🤍💙 Auch NichtBetroffene sind herzlich willkommen 💫 #eskannjedenbetreffen
Amanda Crist @ZebraLoveCo
826 Followers 1K Following Writing about #hEDS 🦓, #muscle, health☕️, genetics, and how I’m trying to walk again🌱 #bedbound #homebound #calfproblems #zoology
Nikkie Gallant 💜 @... @nikkie_music
2K Followers 5K Following Singer/Songwriter, potter, & a whole bunch of other things. She/her/they/them 🎶📖✍️🎤🎸🍶🏳️🌈🖼️💃🎛️ 🥄 bluesky mstdn ca & insta nikkiegallant #PwLC
Meg Mundell @MegMundell
2K Followers 2K Following Writer | Researcher | Cultural Geographer | THE TRESPASSERS | WE ARE HERE | BLACK GLASS | Place, homelessness, belonging, nature, cities, spatial justice
Sofia @ThomsonSofia11
152 Followers 2K Following Life isn't about finding yourself. Life is about creating yourself. 🌈
Amy Boylan @amyboylanwrites
4K Followers 3K Following Freelance #copywriting rock doc. Sticky #websitecopy, long #content & expert #articles. Life on ⏸ Household of pre-vax #LongCovid #PoTS #MCAS (she/her)
Colin Smith. = 🇪�... @Everboro
2K Followers 5K Following Pensioner in my 70’s, saddened by #Toryscum removing UK from EU & robbing my children/grandchildren of freedom of movement and the prosperity I have had. #UTB !
Welfare not warfare @niwroffyc
3K Followers 6K Following Diagnosed autistic, OCD, dyscalculia, ADHD. Housebound, can't work Corbynista. Green party member #UBI Socialist
KJ Cassells @lifeinacrash
714 Followers 1K Following Danced around the ME/CFS spectrum for 7 years. Here's me making sense of it - https://t.co/yrWFMjHDOF #MECFS
My True Stripes @MyTrueStripes
170 Followers 763 Following Mostly horizontal due to #MECFS. Trying to make a life for myself in unlivable conditions. Challenge (reluctantly) accepted. I retweet a lot.
Jo Smiley Mc @JoSmileyMc99
40 Followers 187 Following
Martin Arber CQSW; BA... @thearbers
78 Followers 461 Following social worker in East London for 15 years, then moved into Training and Lecturing. In 1987 had to retire due to health problems. Eventually diagnosed with ME,
SC @shoshacapps
218 Followers 3K Following
Emma GL 🐙🦋 @GoreLloyd
1K Followers 1K Following DELTA-qualified EAL teacher; also EFL, ESOL and EAP. Caregiver to neuroscientist partner with v severe ME from LC & Lyme. #ThereForME She/her 🏳️⚧️🏳️🌈🇵🇸
Adam 🇬🇧 ME/LC @AdamB92_
547 Followers 457 Following 33. 🏋️ turned very severe progressive LC ME/CFS + co from Covid in 2022 - 100% bedbound unable to sit, stand or walk. Bell score 0. *Rarely can reply*
Minghao Gong @MinghaoGongD960
429 Followers 1K Following Musically-inspired Postdoc @ Jackson laboratory for Genomic Medicine - Pains sharpen the mind and channel the spirit to the utmost heights!
Katy B @KatyBruce108
6K Followers 6K Following Myalgic Encephalomyelitis ME + POTS 39 yrs Donor to @mecfsbiobank for 10 years & @DecodeMEstudy Please watch https://t.co/pUUJO34e5k #pwME
Bhupesh K Prusty @BhupeshPrusty
15K Followers 66 Following A passionate molecular virologist who believe in patient oriented scientific research. Using viruses to understand human existence. Science is for society.
Anil van der Zee © @AnilvanderZee
10K Followers 865 Following Former professional ballet dancer | Bed-bound M.E. patient | Using ✖️ to raise awareness for #MyalgicE | #IACI #art2cureME #pwme #millionsmissing
Janet Dafoe @JanetDafoe
16K Followers 225 Following Caregiver for very severe ME/CFS son, advocate and fundraiser for End ME/CFS PROJECT at OMF and CFSRC at Stanford. The rest of my life is on hold...
Tom Kindlon @TomKindlon
15K Followers 621 Following With ME 36 years (31 yrs severe). 95% of posts on #MEcfs/#LongCovid/#chronicillness. 26 publications in peer-reviewed journals. @IrishMECFSAssoc trustee 28 yrs
Lizzy H @hopefullizzy
7K Followers 3K Following 30y/o creative, with complex health issues🤞🏼ME/CFS biomedical research. Passion for the wild, for kindness, and helping all people have a voice. Co-author✨
Wading through treacl... @kimisgubbed
3K Followers 3K Following Advocate & sharer of bio research for INFECTION ASSOCIATED CHRONIC DISEASES inc MECFS, Long COVID, MCAS, Dysautonomia, Vaccine injuries, FMS, Sjogrens & Lyme 🔬
Christoph Ströck @cstroeckw
8K Followers 604 Following Soon, people will look back in disbelief at what has happened to patients with ME/CFS | Godspeed 🙇🏼
PwME 4 bioMEdical res... @ValeBodi
4K Followers 3K Following Surviving #MyalgicE #AAG to tell the story, patient&advocate w/ a JD, into: MEdicine, Social justice & the Arts, Human neutrino/MEdical apolide/gnarled Pacer
Martin @pausedME
8K Followers 494 Following #MECFS-activist⎮#Lawyer by profession: Legal consulting for digital creators and influencers | #Musician by passion
Dan Wyke 🦠➡️�... @Dan_Wyke
13K Followers 5K Following M.E. inactivist; person-centred counsellor (currently not practicing); recovering poet (Rack & Waterloo Press)
Sten Helmfrid 🇺�... @StenHelmfrid
7K Followers 190 Following Ph.D. in physics, also interested in mathematics and science theory. Loves to apply general knowledge of science to other fields, for example ME/CFS.
Whitney Dafoe @DafoeWhitney
11K Followers 72 Following Severe ME/CFS patient and advocate. Sick since 2004, bedridden since 2013. Never. Giving. Up. ✊ Useful info for ME/CFS and Long Covid patients in bio link.
Paula Knight @Paula_JKnight
6K Followers 4K Following Author Artist THE FACTS OF LIFE (Myriad) Kidlit books x3 author. Words and pictures. Disabled. Bedridden 7yr v severe M.E. IG: @paulajkstudio
Daniel Moore @Talmandaniel
5K Followers 4K Following Curious & exhausted peace seeker, co-host of @pempodcast23, photographer and blogger. PwME, sidelined social worker, grief dealer, joy peddler, SAFC fan, He/Him
#MEAction Network @MEActNet
19K Followers 3K Following A global network fighting for equality for Myalgic Encephalomyelitis. #MEAction #MillionsMissing https://t.co/JhhNZoFYJi
Hannah Davis @ahandvanish
56K Followers 4K Following Research, algorithmic music, machine learning, anti-bias in AI data. #LongCovid research & advocacy @patientled. DMs rarely checked
Open Medicine Foundat... @OpenMedF
14K Followers 1K Following OMF is fundraising to support open, collaborative research to find effective treatments and diagnostic markers for ME/CFS, Long COVID, and related diseases.
davidtuller @davidtuller1
11K Followers 2K Following Senior Fellow in Public Health and Journalism, Center for Global Public Health, UC Berkeley. My academic position is largely funded by donations from patients.
Lilly Dee @LillyDeeeeee
180 Followers 84 Following ME. Just trying to research & navigate this illness. Loves birds. Former graphic artist. Posts are not medical advice, I have no idea what I'm doing.
Rhi @rhirhiarhii
2K Followers 1K Following BSc, PgDip Molecular Biology. Neuroscience Nerd & Science Communicator. Eternally trapped in bed
JOwME @JohannaBorde
771 Followers 2K Following Designer・Architecture photographer・Art lover ・Mof2・ME/CFS since 2020
RonaldwDavis @Ronaldw_Davis
665 Followers 22 Following
World ME Alliance @WorldMEAlliance
2K Followers 254 Following An alliance of ME organisations across the world, we want to see a coordinated public health response to ME from the WHO and together founded #WorldMEDay.
Tina Katsaros @tinakatsaros
1K Followers 250 Following PhD candidate researching ME/CFS at La Trobe University
Kags ❇ 😷 #pwME �... @Klang764
1K Followers 2K Following M.E (not cfs) for 27 years. Mainly here for M.E advocacy,disability rights & Scottish independence.
ChronicleBio @ChronicleBioAI
132 Followers 18 Following AI-ready data for real-world impact. We're driving actionable insights that fuel breakthroughs.
Rohit Gupta @rogupta50
202 Followers 24 Following
Grieving ME Caregiver... @mecaregiver
1K Followers 993 Following Caregiver of #MyalgicEncephalomyelitis patient & lost one son to #MEkills #PostVac #VaccineCritical IMPORTANT INFO: ME IC PRIMER: https://t.co/tnfTPKyIGj
Jeremy Jeffs @magnetoJJ
2K Followers 2K Following Director at Magneto FIlms, making films for not for profits. Currently shooting photos of #PwME. Living with #ME since 1987
Michael Gordon @TeamKarenGordon
439 Followers 14 Following
Nick Wellings @Nick_Wellings
3K Followers 6K Following used to love opera + ballet, some books. now disabled by ME
Katie's on the patio @SockFoam
1K Followers 918 Following She/her. Chronically ill with ME and POTS, Blogger on Substack.
Alex☮︎ @Aelvidra
307 Followers 239 Following ●(v)severe ME ●CCI ●EDS ●Gofundme: https://t.co/op7gGeiInu Instagram: @alekpalek ♥︎Please consider donate to save my life ♥︎
Dr Nicole Melzack (th... @nmelzack
2K Followers 440 Following Spacecraft Engineer 🚀 DID | Migraines | Chronically Unreliable | #ActuallyAutistic 🏳️🌈♿
Brian Allen @allenanalysis
195K Followers 313 Following Founder & Editor-in-Chief @ https://t.co/vEmIyjBCUP 2B+ views/year | Political sledgehammer; If it needs to be said, I’m saying it. 🎙 @Allen_Analysis | NYC
a tired human @saffronandsky
2K Followers 1K Following disability justice💜. Mod chronic illness 4 decades. long covid in '22 = very severe MCAS, ME&POTs= bedbound. Parent, mixed race, writer, gardener ♿ 🏳️🌈☸️
Joanne Smith - Jo @_Joannesmith
822 Followers 1K Following ME since 1991.Owned by Shih Tzu called Teddy 🐾 Interested in ME advocacy & research.Dogs.Wildlife. Books. Bit of Politics. #pwme @joannesmith.bsky.social
Renegade Research @RenegadeRes
2K Followers 3K Following Patient led nonprofit 501c3 on #MECFS & #LongCovid • https://t.co/Tv4Sb4yLzd 💙 Runs project @remissionbiome • Donate ▶️ https://t.co/Qovzyu0mqp
Environmental and Com... @FatigueMe92484
1K Followers 1K Following Health educator/patient researcher. Background in biology/Public Health. Topics: #MECFS, #PTSD, #LongCovid, #MCAS, #MCS, environmental illness etc.
Meiners PT, PhD @KellyMMeiners
2K Followers 871 Following *Physical Therapist, Athletic Trainer, CSCS, dedicated runner and mom. *disabled since 10/2021. Advocate for #LongCOVID, #POTS, #MECFS as able.
Rupert Read 🌍 🔥 @GreenRupertRead
39K Followers 2K Following Co-Director of the Climate Majority Project @CMP_voice | Emeritus Prof of Philosophy @uniofeastanglia | @bluesky - https://t.co/DMqxAICYpd
Tamara C @tamararivc
838 Followers 249 Following Published a Long Covid/ME/CFS hypothesis about Phosphatidylcholine, Insulin Signaling and Noradrenergic Dysfunction
fereshteh jahanbani @fereshtehjahan1
1K Followers 84 Following PharmD/PhD in Pharmacology, Founder 4C, Co-founde RTTP at Stanford, Director of Genomics and Leader of "ME/CFS related disorders" Multi-omics study at SCGPM.
Tessa Munt MP 🔸 @tessamunt
7K Followers 1K Following @LibDems MP for Wells & Mendip Hills, passionate to serve my home area with energy, experience and deep care for people. [email protected]
Fritz is tired. @ChronicFritz
645 Followers 3K Following Chronically ill academic, #pwME #Lyme #dysautonomia. Here to learn and amplify chronically ill, #disabled, and covid-cautious. #MaskUp. she/her.
Dfrizz @Dfrizz007
750 Followers 349 Following Doug. 43y/o dealing with #longcovid #MECFS #POTS #Encephalitis since May 9th 2021. Housebound/Bedbound. Fucking A
The RAC @TheRAC_UK
33K Followers 1K Following Helping drivers get back on the road since 1897 🚗 Got a question? 👉 @RAC_Care
Jack | amatica health @JackHadfield14
5K Followers 1K Following ex Aerospace Engineer, now ME/CFS & LC patient researcher and cofounder @amaticahealth https://t.co/BvmsOvch0p - email [email protected] questions
Chronicillnesswarrior... @ME_Fiona7
1K Followers 2K Following Wife, mum, Severe ME, MCAS, LC, MALS, hEDS, POTS, dogs, peace, love & forgive ❤️ #Chronicillness #takingthepip @MEWarrior1.bsky.social
dianna haze @diannahaze
16K Followers 248 Following Tweeting through the hazy brain fog of Severe Long Covid. (Chronically ill alter-ego of @thephysicsgirl)
Jan Sussex @JanSussex
779 Followers 962 Following Living a 1/4 of a life due to #MyalgicEncephalomyelitis, lost my future, missing who I might have been.
Sangita Myska @SangitaMyska
123K Followers 8K Following Journalist & Presenter | 📻 Formerly LBC ‘Sangita Myska 1-4pm Weekends ’, BBC @Radio4 Documentaries & 📺@BBCNews TV | @JSchofieldTrust | personal account.
Rachel ♿ 🌍 🇪�... @ChasingGlimmers
20K Followers 22K Following Northumbrian. Severe M.E Sufferer. SEND Mam. Disability Rights Advocate. Opinions Own. Writer @TheCanaryUK Blogger @wearecarers
Klaus @bedridden_hero
827 Followers 3K Following #MECFS, #POTS, #MCAS, #SFN, chron. pain +PostC. Bell0.PG4. INFP. IQ151. HSP. Former highperformer now 24/7 bedridden. Lang: DE-EN-NL #verysevereME #pwME
#ThereForME @ThereForME_UK
981 Followers 110 Following
Matt @MGTmecfs
528 Followers 53 Following Graduate of @UWMadison class of 2020 - ME/CFS since 2021 - gofundme ⬇️
RTHM @RTHM_Health
5K Followers 3K Following RTHM connects you with a digital care team specializing in Long COVID and ME/CFS that provides access to a range of therapies based on the latest research.
Make ME Visible @makemevisible24
601 Followers 274 Following An initiative in India to spread awareness about ME/CFS (Myalgic Encephalomyelitis/Chronic Fatigue Syndrome).
Fidelity UK @Fidelity_UK
17K Followers 2K Following We tweet the latest investment news and opinions. Call us on 0800 41 41 61 (Mon-Fri 8:30am - 5:30pm)
Schnickelfritz @KSchnickelfritz
632 Followers 545 Following Bedbound knitter with a chocolate habit and bird obsession. #ME #POTS #LC #Lyme
Alexis @alexis___me
641 Followers 247 Following Come find me on instagram https://t.co/7Ct9LmHoIP and Blue Sky https://t.co/RziExOeEYP
Michael R Scoma MD @DrMichaelScoma
8K Followers 97 Following Infectious Disease Immunology physician specializing in complex chronic diseases. Views are my own; no medical advice given.
Niko Suvisto @nikosuvisto
771 Followers 405 Following Life on hold by severe #MECFS, currently 99% bedbound 🛌 Documenting my life like it is now, advocacy through photography 📷 📍Finland
Rachel @rachelleese84
579 Followers 999 Following Londoner, wife, Mum, pwME (myalgic encephalomyelitis). Lover of wine 🍷.Trends for United States
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