PANDAS Network - Official @PANDASnetwork
Advocating for those impacted by PANDAS/PANS/AE through research, education, advocacy, and awareness programs. pandasnetwork.org Menlo Park, CA Joined February 2011-
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Pandas kids need medicine
PN Awardee Dr Akcan reports findings at the IOCDF Conference this week!
PN Awardee Dr Akcan reports findings at the IOCDF Conference this week!
PANDAS Network - Official retweeted
Dr. Ugur Akcan @occludens gave a nice presentation today.
Dr. Ugur Akcan @occludens gave a nice presentation today.
PANDAS Network - Official retweeted
Please send your questions that you may have for a chance to answer them at the end of the webinar on 6/29.
Please send your questions that you may have for a chance to answer them at the end of the webinar on 6/29.
CLINICIANS & RESEARCHERS! Join Dr. Dritan Agalliu for an in-depth scientific & medical discussion on breaking PANDAS/PANS research! The free webinar will take place on 6/29 at 6pm ET. bit.ly/dragalliuwebin…
PANDAS Network - Official retweeted
This is an important paper to read in order to understand not only the biology of these receptors but also how autoantibodies against these receptors may trigger activation. #PANDAS #Sydenhamchorea
This is an important paper to read in order to understand not only the biology of these receptors but also how autoantibodies against these receptors may trigger activation. #PANDAS #Sydenhamchorea
Our AE Scientific Board member, Dr Westbrook
Our AE Scientific Board member, Dr Westbrook
Learn about the mechanisms & inflammatory cytokines found in PANDAS PANS. June 29th we will have a second webinar for researchers & clinicians. Sign at pandasnetwork.org/events
PANDAS Network - Official retweeted
Watch our latest free CME webinar: Preventing & Responding to Insurance Denials for PANS/PANDAS Treatments. pandasppn.org/cme The presentation will discuss: 🔵Defining ‘Medical Necessity’ 🟣UR-Related Laws 🟢Insurance UR/UM Systems 🟡Advocacy Strategies
Great images PANDAS mechanisms
Leading basic science & PANDAS PANS researcher, Key Note speaker, Dr Agalliu, at CSHL meeting
Leading basic science & PANDAS PANS researcher, Key Note speaker, Dr Agalliu, at CSHL meeting
READ IMPORTANT NEW WORK! OPENS DOORS FOR TREATMENT & NEW AVENUES OF ADVANCEMENT!
READ IMPORTANT NEW WORK! OPENS DOORS FOR TREATMENT & NEW AVENUES OF ADVANCEMENT!
A PANDAS PANS immune trigger identified! Columbia Univ. Patent! Paper to follow.
A PANDAS PANS immune trigger identified! Columbia Univ. Patent! Paper to follow.
PANDAS Network - Official retweeted
Good morning to World Encephalitis Day! #WED My research team in Oxford shows representation from 🏴 , 🏴 , 🇩🇪, 🇲🇰, 🇹🇷, 🇲🇾, 🇰🇷, 🇮🇪 , 🇨🇳 and 🇧🇷. So we really do embrace the world 🌎 today @encephalitis
Fantastic review of CNS and AE a Review in Nature
Fantastic review of CNS and AE a Review in Nature
PANDAS Network - Official retweeted
Please make sure you know the symptoms of sepsis- & if doctors are struggling to identify what’s wrong just ask the question: Could it be #sepsis ? I was treated for pneumonia for 3 weeks but kept getting sicker. Turns out was a kidney infection that had turned septic untreated
PANDAS Network - Official retweeted
So brave of you to share your traumatic journey. As you say, could’ve been so different.
So brave of you to share your traumatic journey. As you say, could’ve been so different. https://t.co/zsUesxAKEY
PANDAS Network - Official retweeted
The @BBCNews coverage of #GroupAStrep is helpful: but what's really important is to educate about the associated risk of #sepsis as that's what endangers lives! Most of us have these bugs somewhere on us, it's when it becomes invasive we worry!
We are happy to share with you the exciting news that Congress has taken action on PANS/PANDAS! BIDEN has signed into law the 2023 omnibus appropriations bill which is another step forward towards our goal of significantly growing federal funding for NIH research
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