PANDAS Network - Official @PANDASnetwork
Advocating for those impacted by PANDAS/PANS/AE through research, education, advocacy, and awareness programs. pandasnetwork.org Menlo Park, CA Joined February 2011-
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Pandas kids need medicine
PN Awardee Dr Akcan reports findings at the IOCDF Conference this week!
PN Awardee Dr Akcan reports findings at the IOCDF Conference this week!
Dr. Ugur Akcan @occludens gave a nice presentation today.
Dr. Ugur Akcan @occludens gave a nice presentation today.
Please send your questions that you may have for a chance to answer them at the end of the webinar on 6/29.
Please send your questions that you may have for a chance to answer them at the end of the webinar on 6/29.
CLINICIANS & RESEARCHERS! Join Dr. Dritan Agalliu for an in-depth scientific & medical discussion on breaking PANDAS/PANS research! The free webinar will take place on 6/29 at 6pm ET. bit.ly/dragalliuwebin…
This is an important paper to read in order to understand not only the biology of these receptors but also how autoantibodies against these receptors may trigger activation. #PANDAS #Sydenhamchorea
This is an important paper to read in order to understand not only the biology of these receptors but also how autoantibodies against these receptors may trigger activation. #PANDAS #Sydenhamchorea
Our AE Scientific Board member, Dr Westbrook
Learn about the mechanisms & inflammatory cytokines found in PANDAS PANS. June 29th we will have a second webinar for researchers & clinicians. Sign at pandasnetwork.org/events
Watch our latest free CME webinar: Preventing & Responding to Insurance Denials for PANS/PANDAS Treatments. pandasppn.org/cme The presentation will discuss: 🔵Defining ‘Medical Necessity’ 🟣UR-Related Laws 🟢Insurance UR/UM Systems 🟡Advocacy Strategies
Great images PANDAS mechanisms
Leading basic science & PANDAS PANS researcher, Key Note speaker, Dr Agalliu, at CSHL meeting
Leading basic science & PANDAS PANS researcher, Key Note speaker, Dr Agalliu, at CSHL meeting
READ IMPORTANT NEW WORK! OPENS DOORS FOR TREATMENT & NEW AVENUES OF ADVANCEMENT!
READ IMPORTANT NEW WORK! OPENS DOORS FOR TREATMENT & NEW AVENUES OF ADVANCEMENT!
A PANDAS PANS immune trigger identified! Columbia Univ. Patent! Paper to follow.
A PANDAS PANS immune trigger identified! Columbia Univ. Patent! Paper to follow.
Good morning to World Encephalitis Day! #WED My research team in Oxford shows representation from 🏴 , 🏴 , 🇩🇪, 🇲🇰, 🇹🇷, 🇲🇾, 🇰🇷, 🇮🇪 , 🇨🇳 and 🇧🇷. So we really do embrace the world 🌎 today @encephalitis
Fantastic review of CNS and AE a Review in Nature
Fantastic review of CNS and AE a Review in Nature
Please make sure you know the symptoms of sepsis- & if doctors are struggling to identify what’s wrong just ask the question: Could it be #sepsis ? I was treated for pneumonia for 3 weeks but kept getting sicker. Turns out was a kidney infection that had turned septic untreated
So brave of you to share your traumatic journey. As you say, could’ve been so different.
So brave of you to share your traumatic journey. As you say, could’ve been so different. https://t.co/zsUesxAKEY
The @BBCNews coverage of #GroupAStrep is helpful: but what's really important is to educate about the associated risk of #sepsis as that's what endangers lives! Most of us have these bugs somewhere on us, it's when it becomes invasive we worry!
We are happy to share with you the exciting news that Congress has taken action on PANS/PANDAS! BIDEN has signed into law the 2023 omnibus appropriations bill which is another step forward towards our goal of significantly growing federal funding for NIH research
Hopeful @Hopesaxons
2K Followers 2K Following Raising awareness of Pans Pandas - brain inflammation triggered by a Virus or infectionJane Bird @LindaLaHughes9
956 Followers 1K Following Raising awareness of the paediatric conditions PANS and PANDASPANS PANDAS UK @PandasPans
4K Followers 892 Following PANS/PANDAS UK provides support to families of children with PANS/PANDAS. We aim to raise awareness of an easily treated, often misdiagnosed condition in kids.Sarah Hughes @SHughesDr
834 Followers 975 FollowingNB @np9000
760 Followers 1K Following Tick-Borne Infections & Pans/Pandas in the UK #Pans #Pandas #Lyme #Bartonella #Babesia #TickBorneInfections #MCAS #POTS #ME Views my ownDiane Palmer @NurseDiane2020
2K Followers 2K Following NHS Director of Specialist Services (Veterans Mental Health, Trauma informed care, TRiM, Occupational Mental Health Services) Trustee of PPUK. My personal viewsPANDAS PHYSICIANS NET.. @PANDASPPN
2K Followers 1K Following PANDAS Physicians Network (PPN) - Nonprofit helping clinicians diagnose & treat #PANDAS #PANS. #strep #infection #OCD #neuroinflammation #MentalHealthNotes to my boy ✉�.. @notestomyboy
4K Followers 2K Following Hi, please see pinned tweet. My beautiful boy fell ill with #PANS #PANDAS when he was 9. I love you Son more than anyone can know and I am proud of you ❤️Joanne Holloway @CharmingAngelCo
814 Followers 1K Following Mom 2 girl with #Pans.Took 2.5 years & huge battle 2 get 2 diagnosis!Delays are damaging. Goal 2 raise awareness 2 end present suffering & stop future sufferingPaula Scott @PaulaScottUK
994 Followers 2K Following Raising awareness of PANS PANDAS #itstimeforchangeKathryn Gillett @kathryn_gillett
771 Followers 694 Following Raising awareness for PANS Paediatric Acute Onset Neuropsychiatric Syndrome. Mum, theatre lover, events.Dritan Agalliu @DAgalliu
2K Followers 3K Following A neuroscientist with a passion for visual & performing arts, classical & jazz music and dance in search of new adventures in NYC. Opinions are my own.Ticcers Unite @TiccerU
556 Followers 460 Following Mental Health, Chronic Illness, & Neurodivergency Awarenesslaura aylott @aylott_laura
560 Followers 1K Following Just a mum of 3 boys ! volunteer supporter of families & parents, interest in child development & trying to raise awareness of PANS PANDASObsessively OCD @obsessivelyocd
5K Followers 2K Following Obsessive Compulsive Disorder isolated me to my bedroom for two years of my Life. Now I work to spread awareness through my blog, “Obsessively OCD.”Inflamed Brain Allian.. @inflamedbrain_
333 Followers 316 Following Canadian charity on a mission to restore brain health for everyone affected by PANS/PANDAS by improving health, delivering education, and accelerating research.katie wright @katiewr31413491
9K Followers 5K Following Children’s Health Defense. Autism Speaks founded after my son lost all skills, speech & dev. autism post Vax & PANDAS. ❤️Title 9, birds #AdoptDontShop & NY NY.Susannah H @firebug70
2K Followers 4K Following Mum. Carer for my son. Former English teacher. Researching #Lyme #ME #LongCovid #Pandas #Pans #believethepatient #believetheparentJo Joyner @dollyjoyner
338K Followers 1K Following Ex-blue ticked Actor/Actress whatever you call one of those people that likes pretending to be other people... @CVGG @bespoke_voicesCynthiaRoland @32gTf6D6asoCDU8
2 Followers 209 FollowingJoyNancy @v08Vmw8gtPg0cWV
0 Followers 445 FollowingSuetis @SuetisWsn
1 Followers 288 FollowingPanda Mama @PandaMama2024
28 Followers 443 Following Parent raising awareness of Pandas Pans ~ I'll always have your back. No more lost children. Time for change 💓 🇮🇪🇪🇺MeroyTrollpoe @VOhkCyE8e8CJe
1 Followers 441 FollowingJane Riley @jane_k_riley
29 Followers 231 Following Philonoist. Passionate about reforming the (in)justice and prison system, esp through the lens of neuropsychology. Studying alt therapy modalities to treat SUDKim Haddad @KimHaddad13
9 Followers 118 FollowingNeuroimmune Scout @neuroimm_scout
16 Followers 62 FollowingJennifer Jansen @kronic_diamond
10 Followers 69 Following My illness’ may be chronic, but my strength is iconic. Battling PANS/PANDAS, POTS & Dysautonomia, encephalitis & mast cell activation, one emergency at a time.Mel Allen @MelAllen10
6 Followers 153 FollowingRebecca W1986 @W1986Rebecca
182 Followers 473 Following Mum. English Teacher. Lang and Lit Content Creator. MA in Education. Teach First Ambassador. PansPandas advocate.Diane Duncan @Diane_Duncan
2K Followers 2K Following Hard-working procrastinator. Caffeine addict, Scottish Head of English/Associate SLT. Cat in a former life. Ask the right questions (there are no right answers)Roz Adams @adams_roz
7 Followers 114 FollowingScarlet Bridges @ScarletBri144
94 Followers 5K FollowingHong Speirs @SpeirHo
51 Followers 5K FollowingAbi Scrichfield @AScrichfie
36 Followers 5K FollowingJennifer Robertson @DrJMSRobertson
1 Followers 26 Following Polish-American, 15-year expat, lived in 7 countries, PhD zoologist, raw food chef, working on healing from #LongCovid, #POTS, life between Cyprus and ScotlandAniyah Siphan @AniyahSiph84127
36 Followers 5K FollowingSeene @Seene59567
43 Followers 2K FollowingCora Bottrell @BottrellCo63539
39 Followers 5K FollowingEsmae Mccomber @EsmaeMccomb
31 Followers 5K FollowingBeyond PANS @BeyondPANS
6 Followers 13 Following My name is Emilia Metzel. I produce animated science videos. I’m a parent of PANDAS/PANS twins. I'm on a mission to spread awareness (visually).Ashley Pitts @ashleympitts12
0 Followers 2 FollowingLachelle Hixon @lache_hi
50 Followers 5K Followingmerica @merica32447164
113 Followers 661 FollowingDenna Solis @DennaSolis65512
32 Followers 5K FollowingAngelique Graffeo @AngeliqGraffe
49 Followers 5K FollowingMatilde Barick @matil_bari
32 Followers 4K FollowingHarriet Peeler @harrie_peel
30 Followers 5K FollowingHOPE @HOPE345281
1K Followers 437 FollowingAdi Mihalache @adimihal144
21 Followers 876 FollowingTeresa Heiskanen @tmheisk
4 Followers 111 FollowingWes Levandoski @WesLevy
240 Followers 461 Following🦇 Jennifer 🐁�.. @Jenn030303
933 Followers 2K Following The creation of the world did not occur at the beginning of time, it occurs every day. Marcel ProustKelbi Banducci @kelbibanducci13
43 Followers 158 Following CSUB 2026 | First-gen | Pre-MD/PhD | Gancarz Lab | @SalkInstitute Intern in Tye Lab 2023 | Fitness Lover |Neuroscience nerd🧠🧪Kayla @kaylafitz71
8 Followers 218 FollowingPatMcShane @mcshackie
60 Followers 318 FollowingKeara @raindropki
10 Followers 125 Following 🕸🕷🥀💃 I decided, very early on, just to accept life unconditionally; I never expected it to do anything special for me -Audrey HepburnStepping Stones TFC @SteppingStTFC
44 Followers 78 Following Stepping Stones offer Occupational Therapy services to children in Newcastle, NSW Australia. Helping your child to reach their potential.Leah Brzezinski @Gioe611
72 Followers 566 FollowingBUY @BitcoinBull69
297 Followers 3K Followingnw98104 @98144chris
65 Followers 399 FollowingRose Dowell @RosemarieDowell
76 Followers 143 Following Health Services Coordinator for Palo Alto Unified School DistrictLong Covid Advocacy I.. @LCAIreland
2K Followers 3K Following The voice for Long Covid in Ireland. An advocacy group comprised of Long Covid patients fighting for awareness of LC & adequate services in Ire for all patientsPANS PANDAS UK @PandasPans
4K Followers 892 Following PANS/PANDAS UK provides support to families of children with PANS/PANDAS. We aim to raise awareness of an easily treated, often misdiagnosed condition in kids.Sarah Hughes @SHughesDr
834 Followers 975 FollowingNB @np9000
760 Followers 1K Following Tick-Borne Infections & Pans/Pandas in the UK #Pans #Pandas #Lyme #Bartonella #Babesia #TickBorneInfections #MCAS #POTS #ME Views my ownPANDAS PHYSICIANS NET.. @PANDASPPN
2K Followers 1K Following PANDAS Physicians Network (PPN) - Nonprofit helping clinicians diagnose & treat #PANDAS #PANS. #strep #infection #OCD #neuroinflammation #MentalHealthJoanne Holloway @CharmingAngelCo
814 Followers 1K Following Mom 2 girl with #Pans.Took 2.5 years & huge battle 2 get 2 diagnosis!Delays are damaging. Goal 2 raise awareness 2 end present suffering & stop future sufferingPaula Scott @PaulaScottUK
994 Followers 2K Following Raising awareness of PANS PANDAS #itstimeforchangeDritan Agalliu @DAgalliu
2K Followers 3K Following A neuroscientist with a passion for visual & performing arts, classical & jazz music and dance in search of new adventures in NYC. Opinions are my own.Inflamed Brain Allian.. @inflamedbrain_
333 Followers 316 Following Canadian charity on a mission to restore brain health for everyone affected by PANS/PANDAS by improving health, delivering education, and accelerating research.Susannah H @firebug70
2K Followers 4K Following Mum. Carer for my son. Former English teacher. Researching #Lyme #ME #LongCovid #Pandas #Pans #believethepatient #believetheparentBruce K. Patterson MD @brucep13
21K Followers 94 Following Bruce K. Patterson MD, CEO IncellDx, Previously Assoc Prof Stanford School of MedicineMoleculera Labs @MoleculeraLabs
818 Followers 333 Following The Cunningham Panel, an autoantibody test, can assist providers in diagnosing autoimmune-induced neuropsychiatric disorders.International OCD Fou.. @IOCDF
20K Followers 720 Following Helping people with OCD and related disorders live full and meaningful lives. https://t.co/4Y1TwyYtg6CalCoalition @cal_coalition
85 Followers 68 Following CalCoalition | A California PANS/PANDAS Advocacy GroupHarold Perrineau @HaroldPerrineau
60K Followers 833 Following You may know me from FROM, Lost, OZ or The Matrix Trilogy...or as Aurora, Wynter and Holidays dad. Either way, it's all Good.Scripps Research @scrippsresearch
238K Followers 537 Following Scripps Research is one of the world's largest, private, non-profit biomedical research organizations. We are Science Changing Life.UW Virology @UWVirology
185K Followers 117 Following Worldwide leader in virology research specializing in diagnostic testing for respiratory, herpes group, HIV, hepatitis, and enteric viruses.Dr. Vivek Murthy, U.S.. @Surgeon_General
1.1M Followers 187 Following 19th & 21st U.S. Surgeon General. Dad, husband, doctor, author. Dedicated to building a healthier, kinder, more connected world. https://t.co/GxSi2TxtADTedros Adhanom Ghebre.. @DrTedros
2.0M Followers 2K Following Director-General of the World Health Organization. Retweets are not endorsementsCDC @CDCgov
5.6M Followers 256 Following CDC's official source for daily credible health & safety updates from Centers for Disease Control & Prevention. Privacy/comment policy: https://t.co/9LbZmE3WzgWorld Health Organiza.. @WHO
12.3M Followers 2K Following We are the #UnitedNations’ health agency - #HealthForAll. ▶️ Always check our latest tweets on #COVID19 for updated advice/information.Eyo @eyolab
6K Followers 630 Following Elucidating the role of microglia in acute brain injuries, neurovascular function and sex differences in development, maturity and disease @BIG_Center_UVAProf Peter Hotez MD P.. @PeterHotez
452K Followers 8K Following Vaccine Scientist-Author-Combat Antiscience @bcmhouston Professor Pediatrics Molecular Virology, @bcm_tropmed Dean, @TexasChildrens Chair in Tropical PediatricsJenny Bøving Arendt @Jennyboeving
3K Followers 2K Following Direktør. AI policy Fellow. Tweeter som mig selv. Mener noget om politik, AI, skærmforbrug, ligestilling, 🛸 og alkohol. Ualmindelig godt gift med @b_arendtnature @Nature
2.6M Followers 4K Following Research, News, and Commentary from Nature, the international journal of science. For daily science news, get Nature Briefing: https://t.co/wGmQlQ8a4DDr. Ron Daniels BEM @SepsisUK
55K Followers 17K Following That Sepsis 6 guy. CEO @UKSepsisTrust (charity 1158843) & VP Global Sepsis Alliance. Compassion foremost. ICU doc. Solihull/Birmingham/LondonᐯIᑕTOᖇ ᑎIᘔE.. @victornizet
7K Followers 843 Following Physician/Scientist, Bacterial Pathogenesis, Innate Immunity, Experimental ID Rx, Questionable Puns/Memes, Fighting AMR @CHARM_UCSD 🇧🇪🇬🇷🇺🇸🇸🇪Megan Lane @meganlaneCO
574 Followers 2K Following #boymom; #dogmom; #Colorado born & raised; health care & research communicator; lover of sunsets and nachos (opinions my own)Drew Calandrelli @Drew_T_Cal
143 Followers 388 FollowingMorgan Housel @morganhousel
521K Followers 702 Following @collabfund The Psychology of Money: https://t.co/Q2XICE6VhE Same As Ever: https://t.co/1HOKjvZAcU Director at Markel GroupRishi_1985 @Rishi_CUIMC
107 Followers 126 Following Associate research scientist (vascular biologist with a focus on the CNS) @agalliulab, amateur wildlife photographer, and occasional mountaineer.Charlotte Wayne @CharlotteRWayne
370 Followers 1K Following Postdoc @RockefellerUniv • PhD @Columbia • Interested in T cells & neuroimmunology 🧫🔬🧠 • she/herCSHL Meetings @cshlmeetings
9K Followers 167 Following CSHL meetings and conferences: Facilitating the latest ideas in the biological sciences since 1933. For info on our courses: @cshlcoursesLong Covid Advocacy �.. @LongCovidAdvoc
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2.3M Followers 2K Following Contributor, @TheAtlantic. Board President, @chkbal. gtconway3 on https://t.co/0XKwJFGwNu.jesse parker @chronicalyparks
3 Followers 9 Following 22. any pronouns. PANDAS🎗💚 + POTS & hEDS. equestrian.John Fetterman @JohnFetterman
934K Followers 5K Following Dad, husband to @GiseleFetterman, and Senator for the Commonwealth of Pennsylvania. 🇺🇸Jenna Stone, LMSW (sh.. @jennastone_msw
657 Followers 1K Following Queer AuDHD Therapist specializing in EDs, BFRBs, OCD, & Anxiety at the intersection of neurodivergenceWaitingforFireflies @wait4fireflies
263 Followers 473 Following Waiting for Fireflies Respectful parenting and UnschoolingLizzie Manning @DrLizzieManning
2K Followers 2K Following 🧠🔬🐁 Lecturer @Uni_Newcastle ⚫ alum of @neuronewy @ahmari_lab @mvandenbuuse @anthonyjhannan ⚫ Spacey and Poppy's mum 🐕🐕 ⚫ she/herAlper Bülbül @AlperBlbl11
73 Followers 529 Following M.S.c. Student in Molecular Biology and Biotechnology Departmant at İstanbul Technical University Co-Founder of Stardust BiotechFulvio D'Acquisto @FulvioDAcquisto
832 Followers 1K Following Professor of Immunology at the University of Roehampton where he is studying the link between emotions and the immune response.😀😊😍😑🙄😣💉💊⚕️🏥👩⚕️👨⚕️Lucy McDonald @lucymcdonald
6K Followers 2K Following Writer. Child and teen counsellor. Host of PANS/PANDAS Stories podcast https://t.co/QLgs5pOX7D…Neuroimmunology Resea.. @neuroimmuno_gla
271 Followers 124 Following AKA the Willison group. We have an interest in autoimmune diseases of the peripheral nervous system, particularly Guillain-Barré syndrome. Based at @iiiglasgowGanesha Liyanage @Ganesha_Li
92 Followers 137 Following PhD candidate investigating 🧠 autoimmune disorders at @kids_research, Children's Hospital at Westmead! 👩🏽🔬Alişan Kayabölen @alisankayabolen
328 Followers 398 Following PostDoc @MIT — PhD @Koç University — Mol. Bio. Gen. @METU/ODTÜ — AntakyaIain Perkes @iain_perkes
50 Followers 68 FollowingBrian Gloss @brian_gloss
306 Followers 95 Following I only tweet at conferences... Enamoured by transcriptional complexity in biology. tweets are my own and should not be taken aurally.Russell Dale @RussellCDale
477 Followers 51 Following Kids Neuroscience Centre | Paediatric neurologist brain researcher | enquirer | observer | super nerdJenifer Lewis @JeniferLewis
158K Followers 528 Following A triple threat: actress, singer, dancer...what's your triple? Instagram: @jeniferlewisforrealShrujna Patel @ShrujnaPatel
170 Followers 487 Following Neuroscientist, postdoc @RPC_Sydney and #kidsneurosciencecentre Neurodevelopment, environment, epigenetics, fetal programming. Views own.Marc E. Elias @marceelias
828K Followers 198 Following Founder @DemocracyDocket. Chair @EliasLawGroup. My dog's name is Bode.Hey twitter Fam…can I get a little help getting my support for bill AB 907 @GavinNewsom attention? Very close to my heart. Helping the children of California get insurance coverage for PANDAS/PANS My daughter is in remission, other kids need our help. 🙏🏾
Dr. Ugur Akcan @occludens gave a nice presentation today.
Thank you very much, Dritan. This remarkable project wouldn't have existed if you and Tyler @Agrostophile hadn't initiated this work initially. Also, I would like thanks to @IOCDF and @PANDASnetwork for their contributions.
Dr. Ugur Akcan @occludens gave a nice presentation today.
@TheRickWilson There isn’t enough viagra.
Electile dysfunction hits a lot of men. Republicans sound alarm over DeSantis's sagging campaign thehill.com/homenews/campa…
@TheRickWilson I'm first born American in my family. Both of my parents came to this country for a better life than what their home countries offered and that's what they achieved. I became an entrepreneur officially at 19 and have grown and sold 2 companies since, employing multiple people…
@TheRickWilson Requires an amendment to the Constitution 🙄
@TheRickWilson Florida’s going to find it rather difficult to sustain an viable economy without immigrant labor.
In an important victory for Black Alabamians and voters of color across the country, the Supreme Court has upheld Section 2 of the Voting Rights Act. nytimes.com/2023/06/08/us/…
CLINICIANS & RESEARCHERS! Join Dr. Dritan Agalliu for an in-depth scientific & medical discussion on breaking PANDAS/PANS research! The free webinar will take place on 6/29 at 6pm ET. bit.ly/dragalliuwebin…
No one earning less than $400,000 a year will pay a penny more in federal taxes.
@TheRickWilson I respectfully disagree. While Hillary may not have had “the Gift”, donors did not hate her when they met her as they do DeSantis. That’s where any similarities ends.Donors and media did not spend months fluffing her up and trying to make her palatable,only to fall flat in public
Put up or shut up
NEWS: House Republicans allege Biden family members received millions in payments from from foreign entities in China & Romania -- including when Biden was VP -- in a new report @AnnieGrayerCNN @SaraMurray @jeremyherb & I dug into the bank records cnn.com/2023/05/10/pol…
@GenMhayden The amazing, and scary /sad thing is there will be people who will believe that.... in Russia and here
Another landmark approved… thank you @TheCalgaryTower! Lets keep the momentum going. 10 minutes is ALL that it takes! Submit a landmark lighting request today and you’ll make a BIG impact in your community on Oct 9 PANS/PANDAS Awareness Day 2023.
@AdamKinzinger @joncoopertweets 1. What in the hell do they think they need to protect(?) with all that firepower?........... 2. If they are so proud of what they're doing, why are they hiding their faces?
This is nuts
I’m all for the 2nd amendment, but when I saw these guys outside the AR state capitol, I thought “this is nuts”.
I’m all for the 2nd amendment, but when I saw these guys outside the AR state capitol, I thought “this is nuts”.
@gtconway3d Repeat after me … M A L I G N A N T N A R C I S S I S T
Trump defends his comments from the “Access Hollywood” tape in his taped deposition: Trump: “Historically, that’s true with stars…If you look over the last million years, I guess that’s been largely true. Not always, but largely true. Unfortunately or fortunately.”