Perlara @PerlaraPBC
https://t.co/fyNyv0FS57 The first biotech public benefit corporation est. 2014. Direct-to-patient and decentralized. Co-owner @epalrestat cureodysseys.com Distributed / Slack / Meetups Joined November 2013-
Tweets7K
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Followers5K
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Following2K
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Likes8K
Perlara retweeted
@fulop_dan @PerlaraPBC Perlara absolutely is interested in using many screening setups to connect drugs to diseases! This is a type they currently don’t use, protein localization in cultured human cells, but could. We are discussing in DMs actually whether they’d adopt the project, maybe STTR 😄
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Perlara retweeted
Restoring Balance To The Flux CDGs are a 200+ gene family of inherited metabolic diseases, GMPPA-CDG and SRD5A3-CDG to name a few. Turns out GMPPA deficiency is rescued by SRD5A3 deficiency 🤯. Two genetic wrongs can make a right.
Perlara retweeted
Do you love the movie - Hackers? Of course you do. Maybe you'll enjoy this story too. "She Found the Backdoor - One Mom’s Hack on Genetic Diagnosis w/ Julia Taravella" I met Julia Taravella in a Seattle coffee shop in 2022, after she messaged me while she was in town from…
Perlara retweeted
A little girl in Hong Kong with the rare genetic disease PIGN-CDG has been seizure-free for a year while taking ascorbyl palmitate aka fat-soluble Vitamin C. Still blows my mind everytime I hear case reports like this, especially because we went straight from a yeast hit in the…
Perlara retweeted
Anyone who says DeSci is a scam is jaded by short termism and has lost the values that created Bitcoin and Ethereum. Solving long term problems for real people. @BioProtocol first BioDAO on Solana is by Harvard alumni and biotech legend @eperlste who has dedicated his life to…
Perlara retweeted
Let’s go parabolic in the final 24 hours of the $CURES auction 📈 $520,000 raised so far despite the market sentiment 💪 Max target is $3M 🎯
Perlara retweeted
CDG CARE is kicking off a new chapter with a brand-new Core Team and updated 2025 Board roles. Our passionate leaders are set to drive innovation and strengthen our CDG community. Congrats to our inspiring team!
Perlara retweeted
Happy Darwin Day! Today we’re thinking about how to use evolution to accelerate biomedical research. We think the answer is to expand the repertoire of organismal models. Search for the best ones using our new portal Zoogle: zoogle.arcadiascience.com/about 🧵
Perlara retweeted
It’s been a tough few weeks. My 10yo daughter was diagnosed with a very rare, aggressive cancer called interdigitating dendritic cell sarcoma (IDCS). I’m reaching out to identify clinicians/patients who have encountered pediatric IDCS, indeterminate dendritic cell histiocytosis…
Perlara retweeted
Wow! Incredible working coming from @PerlaraPBC and @endrarediseases ! Incredible Presentation! @cure4ars #rarediseaseday
Perlara retweeted
✨ It Was Rare & I Was There ✨ Join us on Rare Disease Day + February 28th for an evening of connection, celebration, and community! We’re gathering at Brigantine Portside Pier from 3:30–6:30 PM for food, drinks, music, and rare disease festivities. At the end of the event,…
Perlara retweeted
Hi team! I've been quiet since the last tweet on Monday. The reality is that during the week, it's hard for me to make a lot of progress on $MIRA because I am a full time startup CEO, and I have a sick child to take care of, but I am committed to this with the time I have on…
Perlara retweeted
Curetopia community call tomorrow Jan 10 @ 3PM EST We’ll discuss the upcoming $CURES governance token auction and how DeSci will be the talk of JPM Health week
Perlara retweeted
📣 Attention all rare disease warriors and DeSci enthusiasts in NYC: Curetopia (@endrarediseases) launch party is next Wednesday Jan 8 and graciously hosted by @shelbynewsad at @CompoundVC! Limited availability so please register for a spot 👇
Perlara retweeted
> Watch @eperlste's talk from DeSci Berlin: youtube.com/watch?v=9OWEtq… > Learn more about Curetopia: curetopia.xyz > Join Curetopia's Telegram: t.me/curetopia
Perlara retweeted
New BioDAOs are cooking 🔥 Say hello to Curetopia (@endrarediseases), tackling the $1T Rare Disease space. There are around 10,000 rare diseases, each with an impassioned community of patient and patient families urgently seeking cures. But the average market size of each rare…
Perlara retweeted
Excited to launch my first DeSci project/BioDAO called Curetopia! If you’re a rare disease community member, scientist or clinician working in rare, a curious crypto or TradBio investor, or just a DeSci enthusiast, check out the site 👇
Perlara retweeted
Curetopia invites you on an odyssey of discovery as we illuminate the dark matter of the human genome and attempt to eradicate rare genetic diseases for all humankind. curetopia.xyz
Perlara retweeted
Did you know a simple derivative of vitamin C is transforming the lives of children with congenital disorders of glycosylation? This breakthrough, led by Dr. @eperlste and the CDG Cure Collective is helping kids experience fewer seizures and improved symptoms—an incredible leap…
Perlara retweeted
We show significant changes in glycopeptide abundance along with alterations in glycosylation machinery, lysosomal and mitochondrial proteins in SRD5A3-deficient fibroblasts. Led by @kilroykishore from our team in collaboration with @SappaniFDN @PerlaraPBC @EvaMorava
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