Grace Science @gracescience
We are changing how scientific research is done. By working to find a cure for NGLY1 Deficiency, we’re helping those suffering from countless other diseases. gracescience.org Joined June 2014-
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We hope everyone had a restful, long Labor Day weekend! Today is a post to celebrate all the hard work and labor that goes into the rare disease and clinical research fields. Extra thanks for all those working hard to make a difference in science and medicine!
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Happy, Happy, Happy Birthday to our August Grace Science kiddos! We wish you another joyful year around the sun filled with laughter, love, and memories. ❤️🧡💛💚🩵💙💜
A HUGE thank you to Tyson Black (and friends) for raising over $35,000 for the Grace Science Foundation and the Gibson family by running across the state of Tennessee! This is an unbelievable accomplishment, and we are so grateful for the Tyson's dedication to raise awareness…
Grace Science Foundation recently hosted our NGLY1 Family Zoom Meeting with guest speaker Noah Seidman, a rare disease Patient Advocate. We discussed Rare Siblings and how to navigate family dynamics, and provided a NGLY1 gene therapy clinical trial update. Looking forward to…
Happy birthday to our NGLY1 kiddos with July birthdays! Hoping all of your birthday wishes come true 🎂
Happy 4th of July to our American followers! Wishing you a wonderful long weekend full of family fun! 🌭⛱🎆
Happiest of birthdays to our June month kiddos! Wishing everyone a fantastic birthday and cheers to another trip around the sun.🌞🎂
On this historical day, we celebrate the emancipation of enslaved people in America in 1865, two years after the Emancipation Proclamation was created. Cheers to a day commemorating freedom and civil rights.
Wishing all Dads out there a Happy Fathers' Day, but Rare Dads deserve an extra hug today! Thank you for all that you do ❤️.
Starting June 9th, a group led by Tyson Black will run across the state of Tennessee to raise awareness for NGLY1 Deficiency and raise funds for the Grace Science Foundation. Inspired by a brave and beautiful 3-year-old girl named Callie, who is courageously fighting this…
Remembering and honoring those we've lost. #MemorialDay
Happy birthday to our May birthdays! Wishing everyone a joyful and colorful year! 🌷🌼🪻☀️
We are incredibly appreciative of all mothers, and want to take a special moment to appreciate rare moms. Your love and dedication is a superpower, and we want to recognize all that you do! ♥️
A big thank you to all the families that joined our April NGLY1 Family Zoom call! We discussed general updates and introduced our NGLY1 Family Cookbook project 🍳🥞🧆. (submit your best recipes here to participate: gracesciencefoundation.box.com/s/x3imq1i2ay1w… ) Looking forward to chatting with you…
Today is reminder to do our best to take care of the beautiful place we all call home! Plant a seed, hug a tree, and smile at the sky—Happy Earth Day! 🌳😊
Hoppy Easter everybunny!🐰Wishing you an egg-stra special Easter filled with sunshine, sweet treats, and lots of peeps! 🐥 Happy shell-ebrations! 🐣
Wishing these kids the happiest of birthdays, and for all their birthday dreams to come true! Hope you have another year full of love, laughter, and joy! 🌿🌷🌞
Happy birthday to our March NGLY1 kiddos! 🎈🎈We wish you wonderful celebrations with your family and loved ones. Cheers to another year around the sun!
I'rish you a Happy St. Patrick's Day! May your day be filled with silly shenanigans and lots o' luck 🍀
Happy Holi to those that celebrate! And to everyone, we wish you joy and celebrations of new beginnings!
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