Saba Ahmad @SabSaba3
ALS Advocate Gurgaon India Joined August 2013-
Tweets595
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Followers88
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Following272
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Likes6K
Request FDA to please look into this urgently out of their busy schedule. ALS patients are dying waiting for the approval of #Nurown . Or let the community know if it will never get approved so that patient don’t pin their hopes #ALS #rightolive #endals
Request FDA to please look into this urgently out of their busy schedule. ALS patients are dying waiting for the approval of #Nurown . Or let the community know if it will never get approved so that patient don’t pin their hopes #ALS #rightolive #endals
Neuralink has been life changing for this man, and I believe it will be life changing for all of us with brain diseases. Technology like this and AI will change the landscape of medical research and development of treatments. #ALS fortune.com/2025/08/23/neu…
I’m 34. My mind is sharp. My body is failing. ALS doesn’t care about age, dreams, or plans — it just moves in and takes everything. Here’s what living with it is like. 🧵
The chamber of secrets has been opened
Dear @wesstreeting, Tofersen is life-saving, and free, yet around 20 people with SOD1 MND are being denied access to it. They do not have time to wait. You’ve got the power. Please use it. #PrescribeLife
Sharing my thoughts with @LeedsNews on the most beautiful Rob Burrow Centre for #MND @LeedsHospitals @LDShospcharity @RugbyLeeds @leedsrhinos - a big shout out to the public for walking shoulder to shoulder with us 🌺 gbr01.safelinks.protection.outlook.com/?url=https%3A%…
A group of Veer Naris and widows of fallen soldiers called on President Droupadi Murmu at Rashtrapati Bhavan. This interaction was organised by the Army Women’s Welfare Association.
Requesting Govt of India to approve Tofersen @biogen for SOD1 #ALS patients. #timeismeltingaway @aiims_newdelhi @MoHFW_INDIA @PMOIndia @DDNewslive @ZeeNews @ndtv @JPNadda @AnupriyaSPatel @alscasindia @TargetALS_fdn @alsadvocacy @mndassoc @mndcampaigns
Requesting Govt of India to approve Tofersen @biogen for SOD1 #ALS patients. #timeismeltingaway @aiims_newdelhi @MoHFW_INDIA @PMOIndia @DDNewslive @ZeeNews @ndtv @JPNadda @AnupriyaSPatel @alscasindia @TargetALS_fdn @alsadvocacy @mndassoc @mndcampaigns
It’s been more than 2 plus years that Tofersen @biogen has been approved by FDA to treat SOD1 #ALS but unfortunately not approved in India nor it’s available under EAP program. Hope for an approval @alscasindia @MoHFW_INDIA @CDSCO_INDIA_INF @JPNadda @DDNewslive @aiims_newdelhi
Indian parliament discussion be like …… We need Tofersen for treating SOD1 #ALS . Cure ALS @alscasindia @alsadvocacy @aiims_newdelhi @MoHFW_INDIA @CDSCO_INDIA_INF @JPNadda @AnupriyaSPatel @mndassoc @TargetALS_fdn @AgamJung @AshaEkHope
Indian parliament discussion be like …… We need Tofersen for treating SOD1 #ALS . Cure ALS @alscasindia @alsadvocacy @aiims_newdelhi @MoHFW_INDIA @CDSCO_INDIA_INF @JPNadda @AnupriyaSPatel @mndassoc @TargetALS_fdn @AgamJung @AshaEkHope
Urging indian government to approve Tofersen in India too. Make it accessible and affordable. People with SOD1 ALS don’t have time to wait. @CDSCO_INDIA_INF @MoHFW_INDIA @aiims_newdelhi @alscasindia @JPNadda @AnupriyaSPatel @PMOIndia @alsadvocacy @mndcampaigns
Urging indian government to approve Tofersen in India too. Make it accessible and affordable. People with SOD1 ALS don’t have time to wait. @CDSCO_INDIA_INF @MoHFW_INDIA @aiims_newdelhi @alscasindia @JPNadda @AnupriyaSPatel @PMOIndia @alsadvocacy @mndcampaigns
Thank you @DrMakaryFDA to talk about neuro degenerative diseases which needs attention. #ALS treatments need attention. Faster approval to save lives @MoHFW_INDIA @JPNadda @aiims_newdelhi
Thank you @DrMakaryFDA to talk about neuro degenerative diseases which needs attention. #ALS treatments need attention. Faster approval to save lives @MoHFW_INDIA @JPNadda @aiims_newdelhi
More than 75k patients of #ALS in India . Why no treatment yet? Why no research in India ? Why no hope? Why Tofersen for #SOD1 not approved here?Just like cancer treatment/therapies why can’t we have better facilities. @aiims_newdelhi @alscasindia @TargetALS_fdn @alsadvocacy
A Citizen Petition was submitted to the FDA requesting a new review of data supporting NurOwn®. We remain focused on advancing the ENDURANCE Phase 3b trial and exploring pathways that could bring meaningful options to people living with #ALS. Here: bit.ly/4nArET5
.@DrMakaryFDA @FDACBER @SecKennedy, as a physician with ALS, I’m pleading for justice morningstar.com/news/accesswir… Survival data have long been the gold standard for FDA approvals; and as @MartyMakary has emphasized: "gold standard science and common sense" will guide this FDA's…
On this day 86 years ago, Lou Gehrig gave his iconic “Luckiest Man Alive” speech at Yankee Stadium — just weeks after his ALS diagnosis. We’re forever grateful to Lou for helping bring awareness to ALS. His legacy lives on forever. 💜
Today would have been Doddie's 55th birthday and the community he built is still as strong as ever 💪
India has 75000 cases of #ALS patients. survive 2-5 year max. This disease doesn’t have a cure, no clinical trials in India, no therapy available, people just die. @Tofersen is approved drug for SOD1 ALS but not in India. @MoHFW_INDIA @alscasindia @TargetALS_fdn @JPNadda
This is super awesome. Being a #MND #ALS patient & an Advocate, such news gives lot of hope. May we soon find a cure. #AI is definitely a game changer @alsassociation @alsadvocacy @alscasindia @TargetALS_fdn @MoHFW_INDIA @aiims_newdelhi @ZydusUniverse @JPNadda
This is super awesome. Being a #MND #ALS patient & an Advocate, such news gives lot of hope. May we soon find a cure. #AI is definitely a game changer @alsassociation @alsadvocacy @alscasindia @TargetALS_fdn @MoHFW_INDIA @aiims_newdelhi @ZydusUniverse @JPNadda
Good News for #ALS community in India . @aiims_newdelhi is soon going to start ALS clinic with multidisciplinary doctors team. Thank you @alscasindia for organising the Gobal Awareness Day @MoHFW_INDIA @DDNewslive @ZeeNews @ndtv @airnewsalerts @TargetALS_fdn
ALS News Today @alsnewstoday
2K Followers 1K Following We are dedicated to sharing the latest news, research, and ALS patient perspectives.
Andrea Pauls Backman ... @AndreaBackman05
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AZ Latina ☮️🌊�... @aVoice4ALS
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TetraMouse @TetraMouse
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v @techx7pro
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Thenar @ThenarJYus2hW
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Walter_Jones @carljones_aggie
138 Followers 568 Following Texas Aggie Living with ALS, but not forever.
Kathy @Kathy7483672148
135 Followers 552 Following Married to the love of my life who is dying from 100% Fatal ALS,mama, grandmama, full time caregiver. Counting everyday with my hubby as a blessing. #ALSsucks
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Soumya Sharma @sharmasoumya707
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Myrtle @m_garnett74
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Alaina @hooglandalaina6
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richa ... @richa374386
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Gaurav @gauravchhabra04
2 Followers 24 Following
Gomez @Gomez1099268
367 Followers 7K Following JESUS IS MY KING. ✝️JESUS IS MY TRUTH. ✝️ JESUS IS MY SAVIOR. JESUS IS MY FATHER. ✝️ JESUS IS MY HEALER. ✝️ JESUS IS MY TEACHER. ✝️ JESUS IS MY EVERYTHING.✝️
MUKESH KUMAR @Mukeshk_dr
20 Followers 179 Following
Seth Giddings @sethgiddings
780 Followers 1K Following Professor of Ludic Technologies, Winchester School of Art, University of Southampton (he/him). Getting by with motor neurone disease (MND / ALS)
𝐀𝐫𝐩𝐚𝐧 ... @DrArpan100
2K Followers 2K Following Neurologist with an interest in studying the role of kinases in ALS/MND @mrcppu. SAP member @MNDScotland. Trustee @PhysicsPartners.
Alys Griffiths @alysgriffiths_
3K Followers 2K Following Cymraes 🏴 • psychologist • dementia, MND & care home researcher • chronic hiraeth • based at @neuroshef
Devdas Anchan @anchan_devdas
53 Followers 139 Following
ALS ACCESS @brainmatters10
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MNDA CARDIFF & VALE @MNDACARDIFFVALE
886 Followers 1K Following Working together in Cardiff & The Vale to raise awareness of & money for MNDA & support people with MND in the local area #aworldfreefrommnd
Clem @Clemleo_C
217 Followers 1K Following The greatest glory in living lies not in never falling, but in rising every time we fall💪 #TrumpsAmerica #ETH
Tasnim Arif تسني�... @ariftasnim
554 Followers 923 Following Labour Rights | Advocacy | Associate member of NAPSWI | Poetry | Politics and Economics | Social Justice | Love kind hearted ppl.Views Personal
Aidan Osborne @Aidan_Osborne
205 Followers 1K Following Human being with many interests - SLP, runner, story teller
ALS Advocacy @alsadvocacy
12K Followers 2K Following ALS = Lou Gehrig's Disease Thought it had been cured by now? Still no known cause. Still no cure. Still no treatment. Still quickly fatal. Still outrageous.
Frank Williams @SirIDA1246739
48 Followers 609 Following
Gillian Sapia RN @GillianHSapia
2K Followers 4K Following Rare Disease mom. Legislative Advocate and Activist. Opinions expressed are MY OWN and do not reflect the views of any organization, employer, or other entity.
César Pulex 🇺🇸... @PulexCesar
537 Followers 3K Following I have met great loss. I lost my son🕊💙 to Amyotrophic Lateral Sclerosis ALS ELA w/C9orf72 February 26 2022 #forever18 #tooyoung #Madridistaforever #Forever12
Andrew Wing BEM. @andy_wing1
494 Followers 1K Following Endeavours to Keep the company of the brave and the wise.
pat wharton @Pjwharton80
615 Followers 594 Following fighting MND with everything I got 👊👊,blessed with a beautiful wife and four amazing children and 1 beautiful granddaughter xxx. love u all forever and ever x
Robert Daniels @rpd628
781 Followers 517 Following Blessed husband, father & grandfather and ALS warrior. I want to make a difference in the fight for a cure, if not for me but for those that follow me.
Mike Wilson* @Redsmail
8K Followers 4K Following Reds season ticket holder since ‘87. Patron and Event Lead for @darbyrimmermnd. Survivor. Scouser. #HillsboroughLawNow #YNWA #JFT97 #GrassrootsFootballTour
Farmstrong @farmstronginfo
1K Followers 4K Following Fan of good UX & #techcomm. Together we can save my husband & hundreds of thousands who TODAY battle #ALS. #EsriMaps #DyingWaiting #BLM #LGBTQIA #mirfanda
Martyn Clarke @clarkemartyn1
1K Followers 943 Following 3 x IM 140.6 Keep Believing Always want more Never Give In.
craig eskrett @eskcraig14
745 Followers 1K Following ALS MND Battler - Raise Awareness 🧡 #attackmnd Associate practitioner NHS Hull KR🔴⚪ Liverpool FC🔴
Pam Piscitelli @pam91923
432 Followers 1K Following CRPS warrior, knitter and quilter, diamond painter
Geoff @Gebinh1
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Mark Defund The ALSA @Ml1969
2K Followers 2K Following I’m a 56 year old man living with ALS. I am a conservative!!! I will defend my 2A right. #MAGA #KAG 🚫 DM 🧑🏼🦽Great to be Gen X!
ClemsonOne @ClemsonOne
32 Followers 914 Following
Jake Schneider @PairedWith_P7
3K Followers 45 Following Neuralink BCI Cyborg P7. Life at the intersection of hope & technology. Wired for the impossible. 🧠⚡️
Maj Gen (Dr) YashMor @YashMor5
27K Followers 584 Following Veteran | Life Coach | Fitness Enthusiast | UN Peacekeeper | CEO, Save the Himalayas| PhD| Author | TEDx speaker| Atheist https://t.co/CcwJAmrUbI
Audrey Crews @NeuraNova9
32K Followers 37 Following Follow me on my Journey to a bigger and brighter future!!
President of India @rashtrapatibhvn
27.6M Followers 2 Following Official Twitter account of Rashtrapati Bhavan and is run by the President’s Secretariat | Smt Droupadi Murmu, President of India.
Frank McNally MP @FJMcNally
3K Followers 995 Following @scottishlabour Member of Parliament for Coatbridge and Bellshill
ALS Center Wash U @ALSCenterWashU
229 Followers 154 Following Our mission is to cure ALS, also known as Lou Gehrig’s disease. We treat patients, run clinical trials, and work in the lab to learn more about the disease.
Les Turner ALS Founda... @LesTurnerALS
4K Followers 571 Following The leader in comprehensive #ALS care in Chicagoland
Kristen #endals @titan1ium
232 Followers 223 Following Quiet but Loud. Educator| fuck als | I fight for sensible gun laws | trying to stick to my personal values on this platform.
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Walter_Jones @carljones_aggie
138 Followers 568 Following Texas Aggie Living with ALS, but not forever.
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10K Followers 6K Following The most comprehensive lab focused on ALS/Lou Gehrig's Disease. We are the Drug Discovery Engine discovering & inventing effective treatments for ALS. #EndALS
Craig Reagan @CraigReagan2
712 Followers 423 Following Aggie. Texan. Entrepreneur. ALS Advocate living with ALS.
Sheree Paolello WLWT @ShereeWLWT
34K Followers 3K Following Cincinnati girl💗Mom💗Animal Lover💗News Junkie💗Emmy & Edward R. Murrow award winning Anchor📺 Links/RTs aren’t endorsements. Opinions are my own.
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Anupriya Patel @AnupriyaSPatel
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Change.org India @ChangeOrg_India
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Indian Academy of Neu... @neuro_ian
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Jagat Prakash Nadda @JPNadda
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