Michelle Burleigh @ShePersevered_
Co-Chair, Canadian Immunocompromised Advocacy Network Author | Speaker | Health Advocate | lnk.bio/Michelle_Burle… Halton Hills, Ontario Joined May 2016-
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Last week, CIAN visited the @CPHA_ACSP #PH24SP conference to present a poster on our collaborative survey on the impacts of COVID-19 on Immunocompromised Canadians with CARP. Read it here: shorturl.at/bKMU1 #immunocompromised #CIAN
Masking in hospitals should be universal and permanent! Masks are not political. They save lives. It's science. @safecareON
Masking in hospitals should be universal and permanent! Masks are not political. They save lives. It's science. @safecareON
Today we are spotlighting our partner, @LupusCanada Executive Director, Leanne Mielczarek, shares why they support CIAN’s mission! We’re always looking new partners. Visit us at immunocompromised.ca to learn more about our growing network. 🇨🇦💪 #Immunocompromised #CIAN
As #caregivers we have voices; we are not voiceless. We have insights that must be part of codesigning a better #HealthSystem. But first, decision makers have to welcome our voices. We don’t need to “give voice to the voiceless.” We need to give “ears to the earless.” #CDNhealth
Over 20 patients and groups have joined our network! Today we are introducing our Co-Chairs: Michelle Burleigh Jia Hu, and Theresa Tang. We're always looking for new voices to join CIAN. Visit our website shorturl.at/jHMNU to learn more. 🇨🇦💪#Immunocompromised #CIAN
Love is in the air. 🥰 A @TorontoFC supporters' couple tied the knot tonight before the match!
Canadian Association of Retired Persons (CARP) is a champion for CIAN's mission! CIAN participated in one of CARP's recent surveys, which found that Canada's IC population needs extra support to return to normal life after sheltering. Read it here: shorturl.at/prvEH
Happy International Women’s Day from #CIAN! Our Co-Chair, Michelle Burleigh, recently sat down with @cancercolab to chat navigating the healthcare system as a woman diagnosed with cancer. Watch here : youtube.com/watch?v=nZKwlU… #IWD2024 #Immunocompromised #Advocacy
Visit our website immunocompromised.ca (linked in bio) to learn more about the unique challenges faced by immunocompromised individuals, and what we can do together to help. 🇨🇦💪#Immunocompromised #CIAN
Welcome to the Canadian Immunocompromised Advocacy Network (CIAN) page! We are a growing network of patient groups and people with lived experiences who are dedicated to raising awareness and understanding about how to protect the well-being of immunocompromised Canadians.
Ready for My Shot was established to advocate for COVID vaccine priorities. And to encourage folks to get their COVID vaxx and boosters. Now measles is back. Please get your measles vaccination too. Here is some clear direction.
Big thanks to @Healcanpatadv for spotlighting the Canadian Immunocompromised Advocacy Network on page 60 of their latest issue! #patientadvocacy #immunocompromised issuu.com/healcanada/doc… via @issuu
Hey Toronto tweeps, I picked up food from House of Gourmet on Dundas this evening (Spadina Chinatown), and every single staff member was masked. Not patrons, but obviously owners/management still care about this. Plus, the food was GREAT!!!! Noodles on a chilly evening. Yum!
Are folks with developmental + intellectual disabilities able to access Paxlovid in your province? (One of the reasons we joined CIAN was to advocate for a common CEV list in Canada). cc: @ShePersevered_ immunocompromised.ca
Immunocompromised Canadians are still being left in the dust in what many call “the aftermath” of the new “C” word. They need your help to get back to some semblance of normalcy. #immunocompromised everythingzoomer.com/featured/spons…
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2K Followers 5K Following Prose writer. Patient/caregiver/#MAiD advocate. Approach with curiosity, listen to understand. (Un)learning on the unceded land of the Qayqayt.Last week, CIAN visited the @CPHA_ACSP #PH24SP conference to present a poster on our collaborative survey on the impacts of COVID-19 on Immunocompromised Canadians with CARP. Read it here: shorturl.at/bKMU1 #immunocompromised #CIAN
Masking in hospitals should be universal and permanent! Masks are not political. They save lives. It's science. @safecareON
.@CHEO has dropped its mask requirement, tho staff must comply if patients ask them to mask. ‼️ I would argue that the “ask” to not come out of a hospital sicker than you went in is implied at all times...esp for kids‼️ The mask mandate in hospitals/healthcare should stand.
Today we are spotlighting our partner, @LupusCanada Executive Director, Leanne Mielczarek, shares why they support CIAN’s mission! We’re always looking new partners. Visit us at immunocompromised.ca to learn more about our growing network. 🇨🇦💪 #Immunocompromised #CIAN
#ICYMI: @CAPA_Arthritis recently published, "Living With COVID-19 When The World Has Moved On." Read about the challenges that immunocompromised people face due to COVID-19 and how to support here: shorturl.at/zIJPZ #CIAN #immunocompromised 🇨🇦💪
@DavidJuurlink Does that include immunocompromized vaccinated people ?
@DavidJuurlink What about immunocompromised? For example, recipients of allogeneic HCT?
As #caregivers we have voices; we are not voiceless. We have insights that must be part of codesigning a better #HealthSystem. But first, decision makers have to welcome our voices. We don’t need to “give voice to the voiceless.” We need to give “ears to the earless.” #CDNhealth
Why wouldn't you want your research to be written up so *everybody* can understand it? An awesome use of plain language + technology!
LOVE THIS. A journal article from @BJLD_Wiley that includes a video explaining the paper AND an accessible summary so *everybody* can understand research! Great work from @yonalunsky @HCARDD and team! onlinelibrary.wiley.com/doi/10.1111/bl…
I’m making the move from palliative care at home to inpatient care at the hospital this afternoon. I have a bed at a really nice, new facility. It’s private, has a generous amount of space, and is very comfort-focused. This is the best decision for me.
My nieces made me a pillowcase. It’s fun. They put a lot of effort into working in some detailed likes of mine.
I’m here, alive after being admitted to the palliative care hospital last week. #palliativecare
Over 20 patients and groups have joined our network! Today we are introducing our Co-Chairs: Michelle Burleigh Jia Hu, and Theresa Tang. We're always looking for new voices to join CIAN. Visit our website shorturl.at/jHMNU to learn more. 🇨🇦💪#Immunocompromised #CIAN
"My desire to be well-informed is currently at odds with my desire to remain sane." via @NewYorker
Love is in the air. 🥰 A @TorontoFC supporters' couple tied the knot tonight before the match!
Canadian Association of Retired Persons (CARP) is a champion for CIAN's mission! CIAN participated in one of CARP's recent surveys, which found that Canada's IC population needs extra support to return to normal life after sheltering. Read it here: shorturl.at/prvEH
In-depth genomic analysis of SCLC demonstrates that treatment-naive tumors show clonal homogeneity, but chemotherapy triggers significant genetic diversity. Effective first-line treatment is crucial in SCLC, as it shapes the genomic landscape of relapse & resistance…
In Fall 2023, CIAN launched a position paper focused on how to protect IC Canadians from COVID-19 and other infectious diseases. Visit our website to read the position paper and find ways what we can do together to help. immunocompromised.ca 🇨🇦💪#Immunocompromised #CIAN
Kate Ellis was diagnosed with breast cancer twice. She calls the anxiety of uncertainty a "special kind of hell." @healthing_ca @rethinktweet @CanCertainty @cancersociety #cancer #trauma #mentalhealth healthing.ca/wellness/menta…