Sock it to SS @SockItForACure
Help #sockitforacure to raise awareness for Systemic Sclerosis Scleroderma and donating to this important cause. Visit https://t.co/xNtM5mLLqe 👊🧦🌻 bit.ly/sockittoss Melbourne Joined July 2019-
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🧦👊Thank you to everyone involved. ❤️🌻 I've written a blog post on the outcomes of my five week #sockitforacure campaign! bit.ly/2mzsfdK #letsdothis #sclerodermaawareness #sclerodermastrong #goals
🧦The Sock it to SS #sockitforacure campaign is coming to an end! I want to thank everyone that has participated. It's not too late to give at donation at sockittoss.com there will be one last blog post today. Stay tuned🌻 #letsdothis #sclerodermaawareness #goals
For pain awareness month, I wanted to talk about pain from the viewpoint of an observer. Blog Link: bit.ly/2mrTJSH or follow the link in bio if you're on Insta #sockitforacure #letsdothis #sclerodermaawareness #sclerodermastrong #goals
A quote that really hit me was "at least it's not cancer". If you know someone with Scleroderma or another chronic illness please be aware that it's more than meets the eye, everyone's story is different. #sockitforacure #sclerodermaawareness #sclerodermastrong #goals
Discrimination can occur because people cannot visibly see pain. In turn causing isolation; at work, at home and amongst our social groups. For the sake of our mental health it's important to share our experiences with ones we trust 🧦👊❤️🌻
Do you have a story of pain related discrimination or isolation you’d like to share? 🌻
Do you have a story of pain related discrimination or isolation you’d like to share? 🌻
September is pain awareness month! Take it as a month to recognise and take seriously our friends that may have chronic pain. ❤️🌻 #scleroderma
September is pain awareness month! Take it as a month to recognise and take seriously our friends that may have chronic pain. ❤️🌻 #scleroderma
We are all expected to be money-making, socially interacting, society-conforming machines. But we’re not. thekiwispoonie.com/thekiwispoonie…
❤️Love this: “It’s kinda like chronic illness is turning us into a little army and sending us into different spaces to—in our own little ways—change the world.” ❤️thecomicalcolon.com/2019/09/11/you… via @TheComicalColon
“The #future as a sick person is scary. Can I work, can I have a #relationship, can I get better? Who knows”: buff.ly/2XR6gAf #spoonies #ChronicIllness #ChronicLife
Stories from the blog 🧦👊❤️🌻 - mailchi.mp/57cdc03d4c16/s…
#Number 3. I have Scleroderma… but I don’t look sick. ‘I don’t look sick’ is a series that acknowledges the hidden pains of Scleroderma; usually covered up by a brave face. #sockitforacure #letsdothis #sclerodermaawareness #sclerodermastrong #goals
I love this post from eatmoveshift Happiness 🙌🏻🙌🏻 You are the creator of your own happiness! Happiness is helping one another, feeling grateful, feeling giggly, feeling motivated, feeling grounded and confident ✅… instagram.com/p/B2iH0Jsgee6/…
#Number 4. I have Scleroderma… but I don’t look sick. ‘I don’t look sick’ is a series that acknowledges the hidden pains of Scleroderma; usually covered up by a brave face. #sockitforacure #letsdothis #sclerodermaawareness #sclerodermastrong #goals
What a beautiful animation 🌻🌷🌺🌸 instagram.com/p/B2gkSzrgE4z/…
#Number 5. I have Scleroderma… but I don’t look sick. ‘I don’t look sick’ is a series that acknowledges the hidden pains of Scleroderma; usually covered up by a brave face. #sockitforacure #letsdothis #sclerodermaawareness #sclerodermastrong #goals
#Number 6. I have Scleroderma… but I don’t look sick. ‘I don’t look sick’ is a series that acknowledges the hidden pains of Scleroderma; usually covered up by a brave face. #sockitforacure #letsdothis #sclerodermaawareness #sclerodermastrong #goals
#Number 7. I have Scleroderma… but I don’t look sick. ‘I don’t look sick’ is a series that acknowledges the hidden pains of Scleroderma; usually covered up by a brave face. #sockitforacure #letsdothis #sclerodermaawareness #sclerodermastrong #goals
Imagine a world full of empathy and kindness ❤️
Amanda LJ @AccessibilityLJ
593 Followers 626 Following Accessibility Inclusion Consultant. President Scleroderma Victoria & Australia. Bilateral Amputee & person with Scleroderma. Views my own.
Scleroderma Framed @Scleroframed
732 Followers 315 Following Gives more awareness for scleroderma in a positive and artisitic manner
National Scleroderma ... @sclerotxchapter
330 Followers 98 Following National Scleroderma Foundation Texas Bluebonnet Chapter
Crest Documentary @crest_doc
9 Followers 61 Following A revealing look at the auto-immune epidemic involving major conditions Scleroderma and Raynaud’s - and how it can affect you.
SclerodermaAwareness @__Scleroderma__
210 Followers 96 Following Scleroderma is a Rare Autoimmune Disease. There is no cure.
ChiariTracy @ChiariTracy
2K Followers 5K Following Rare Disease & Healthcare Consultant, Clinical Research Advisor. Medically retired Healthcare pro.
Usen Israel @UsenIsrael1
17 Followers 200 Following
Scleroderma Nigeria @Scleroderma_ng
108 Followers 130 Following Scleroderma Nigeria is committed to raising awareness about scleroderma.
Fightorflightstress @Fightorflights1
97 Followers 397 Following A fun and natural alternative to Stress Management - because life can get pretty hectic! 🙃
Scleroderma Victoria @scleroderma_vic
386 Followers 158 Following Supporting the Scleroderma Community in Victoria
InvisiblyMe @invisiblymeblog
2K Followers 596 Following Blogger & Freelance Writer Living With Chronic Illness & Pain. InvisiblyMe : Health, Lifestyle, Wellbeing, Leisure, Finances, News & Reviews.
Jewelry_Queen_NZ @jewelryqueennz
1K Followers 3K Following Choose what you want in life. Trends are for monkeys. I live by example-fibro warrior, online shop owner, great Aunty. @jewellery @Jewelry #jewelryqueen
To Be Mindful @to_be_mindful
46 Followers 99 Following “The body and mind are almost one entity. If your mind is tense with anxious thoughts, your body automatically tenses as well. They go together, hand in hand."
The Comical Colon @TheComicalColon
367 Followers 662 Following 👋 I'm Jenna, #ulcerativecolitis & #PSC patient advocate 💊 Oral #vancomycin saved my life 📣 I believe in the power of off-label drugs and the patient voice
Sarah Woolford @sarahwoolford1
22 Followers 276 Following
A Chronic Voice @AChVoice
18K Followers 15K Following I share #ChronicIllness, #ChronicPain & #disability info fr VARIOUS #perspectives. #Lupus #Sjogrens #AntiphospholipidSyndrome #epilepsy #MentalHealth
SclerodermaRF @SclerodermaRF
887 Followers 937 Following Scleroderma Unit @royalfreenhs Tweets by long term #dcSSc patient, Nicola Whitehill, volunteer https://t.co/b5D1YSUThT
Alicia @aliciamgms
286 Followers 2K Following This account is for escapism purposes. Please do not take my posts too seriously. I’m here for the laughs.
spaceforgrowth @spaceforgrowth1
23 Followers 86 Following Promoting the benefits of community gardens 🌱 A Swinburne University of Technology assignment.
Up and at em! @Upandatem3
51 Followers 153 Following Get off your bum and start moving! Take a mini-break every 30 minutes to avoid chronic health problems.
SRUK | Scleroderma & ... @WeAreSRUK
5K Followers 1K Following Scleroderma & Raynaud’s UK is the only charity dedicated to improving the lives of people affected by scleroderma and Raynaud’s.
The Mindfulness Space @TheMindfulness3
26 Followers 39 Following Helping women to be more mindful. A Swinburne University student campaign.
SuperStarz38 @skindeep217
128 Followers 294 Following Patient Advocate,SPIN, Steffens Board Member, SYNC Creator,CoFounder of The Waiting Room Entertainment
Scleroderma Canada @SclerodermaCAN
3K Followers 2K Following Scleroderma Canada is committed to promoting public awareness, supporting those affected by Scleroderma and funding research to find a cure.
Lauren Martyn @laurenmartyn
470 Followers 774 Following art, design, social media, education, technology, innovation
Me & Sclero Foundatio... @MeSclero
24 Followers 23 Following To raise awareness and to educate Africa about Scleroderma. Registered with CORPORATE AFFAIRS COMMISSION - Nigeria
We Roar @WeRoarFeminist
20 Followers 153 Following 🤜Empowering women empower women. 👊Kill gender stereotypes. #equalrights ✊I am woman, hear me roar! #feminism
Re:Run Campaign @reruncampaign
19 Followers 34 Following Re:Run is a 5-week health campaign for Swinburne University to promote work/exercise balance and motivation for busy individuals and students.
reFrame @reFrameAndRelax
58 Followers 397 Following reFrame is a 5 week campaign to help you de-stress by bringing you art and relaxation insights. This is a Swinburne Online design project.
Sue Farrington @FarrSue01
419 Followers 437 Following Chief Exec Scleroderma & Raynaud's UK (SRUK) - @wearesruk - President FESCA - Chair Patient Information Forum (PiF) @pifonline
Eat Ya Veggies @eatyaveg
47 Followers 125 Following We're here to encourage people to head down to their local farmers' market for fresh produce, grown by our farmers - Swinburne University design project
Adam Gruszka @adam_gruszka
523 Followers 208 Following I am in a band called @daylighthours check it out ;) Learn, Live & Love Music.
Swyftx @SwyftxAU
40K Followers 867 Following Less cryptic, more crypto. The crypto exchange built by Aussies for Aussies. Buy, Sell & trade 440+ cryptocurrencies.
Chronic Pain Australi... @ChronicPainAust
9K Followers 845 Following The national grassroots voice for people living with chronic pain. Non profit health promotion charity established in 2001. https://t.co/DAPxsmGB1v
Painaustralia @Painaustralia
7K Followers 752 Following Painaustralia is Australia’s leading pain advocacy body working to improve the quality of life of people living with pain, their families and carers.
Jewelry_Queen_NZ @jewelryqueennz
1K Followers 3K Following Choose what you want in life. Trends are for monkeys. I live by example-fibro warrior, online shop owner, great Aunty. @jewellery @Jewelry #jewelryqueen
TheKiwiSpoonie @KiwiSpoonie
119 Followers 57 Following Your Spoonie Blogger down Under. Sharing and creating the content that matters, makes us laugh, and gets us through the rough nights.
InvisiblyMe @invisiblymeblog
2K Followers 596 Following Blogger & Freelance Writer Living With Chronic Illness & Pain. InvisiblyMe : Health, Lifestyle, Wellbeing, Leisure, Finances, News & Reviews.
ChronicAlly Box @ChronicAllyBox
1K Followers 4K Following The 1st Chronic Illness Girl's Health & Beauty Subscription Box! Subscribe today & sign up for our newsletter to get 10% off for life! [email protected]
Lelena @LelenaPeacock
12K Followers 9K Following Human Being. pain patient, chronic illness, healthcare EDS/Arachnoiditis.
BrainlessBlogger🧠 @brainless_blog
3K Followers 2K Following #Blogger and #Writer- I blog about #fibromyalgia, #chronicmigraine and living with #ChronicPain and #ChronicIllness Book: https://t.co/0BRxz30Re4 she/her
ChiariTracy @ChiariTracy
2K Followers 5K Following Rare Disease & Healthcare Consultant, Clinical Research Advisor. Medically retired Healthcare pro.
Ashley Boynes-Shuck @ArthritisAshley
8K Followers 7K Following Thriving w/ Rheum RA, Celiac, POTS, Migraine, Chiari, OA, JIA. 🦋 Emerging from pain! Advocate. Author. Behavioral Health. @abshuck *views are my own
ChronicallySomething @ChronicSomeone
212 Followers 208 Following passionate sometimes ramble #chronicillness #autoimmune #mixedconnectivetissuedisease #chronicpain #mentalhealth #spoonies 30s, woman, likes the arts
Up and at em! @Upandatem3
51 Followers 153 Following Get off your bum and start moving! Take a mini-break every 30 minutes to avoid chronic health problems.
The Mindfulness Space @TheMindfulness3
26 Followers 39 Following Helping women to be more mindful. A Swinburne University student campaign.
Best Medicine @bestmedicinepat
32 Followers 118 Following An annual comedy event, benefitting @SRFcure, in memory of Patricia Connors-Zini ♥️
Mummify Me @mummify_me
38 Followers 37 Following Living the Scleroderma Life. Nutrition 🍽 lifestyle 🤸🏽♀️ treatment 🚑👩🏽⚕️ If you can't beat it, tweet it! 🐦
SuperStarz38 @skindeep217
128 Followers 294 Following Patient Advocate,SPIN, Steffens Board Member, SYNC Creator,CoFounder of The Waiting Room Entertainment
Project Scleroderma @PScleroderma
1K Followers 293 Following Project Scleroderma's mission is to raise the level of scleroderma awareness and to help support the patient community as they cope with this autoimmune disease
National Scleroderma ... @sclerotxchapter
330 Followers 98 Following National Scleroderma Foundation Texas Bluebonnet Chapter
Scleroderma Fndtn GW @SFGWDC
219 Followers 76 Following Scleroderma Foundation Greater Washington, DC Chapter is a nonprofit for people with scleroderma, their families & friends. Disclaimer: https://t.co/JdrgscnAYd
sclerodermami @sclerodermami
1K Followers 218 Following Scleroderma is an autoimmune disease with no known cause or cure. Our chapter is dedicated to changing that, and we hope to help our patients along the way.
Scleroderma Phils @SclerodermaPhil
404 Followers 23 Following Scleroderma Philippines, a nonprofit patient organization which aims to promote patient education and raising public awareness of Scleroderma.
Raynaud's Assn. @raynaudsorg
4K Followers 692 Following The Raynaud's Association is a national non-profit organization providing support and education to the millions of sufferers of Raynaud's Phenomenon.
National Scleroderma ... @sclerodermaflpr
239 Followers 145 Following The National Scleroderma Foundation’s mission is to advance medical research, promote disease awareness, and provide support and education.
Scleroderma Info @SclerodermaInfo
253 Followers 8 Following Completely Get Rid of your Multiple Sclerosis no matter what type you have or how long you've suffered from it http://t.co/NWZVQYF40x
Scleroderma Canada @SclerodermaCAN
3K Followers 2K Following Scleroderma Canada is committed to promoting public awareness, supporting those affected by Scleroderma and funding research to find a cure.
Me & Sclero Foundatio... @MeSclero
24 Followers 23 Following To raise awareness and to educate Africa about Scleroderma. Registered with CORPORATE AFFAIRS COMMISSION - Nigeria
National Scleroderma ... @OhioScleroderma
389 Followers 316 Following
National Scleroderma ... @SclerodermaCO
870 Followers 128 Following The National Scleroderma Foundation was founded to advance medical research, promote disease awareness, and provide support to people with scleroderma.
Scleroderma Foundatio... @SclerodermaNE
391 Followers 42 Following Scleroderma Foundation New England Chapter
Dalai Lama @DalaiLama
18.0M Followers 0 Following Welcome to the official twitter page of the Office of His Holiness the 14th Dalai Lama®️.
Eat Ya Veggies @eatyaveg
47 Followers 125 Following We're here to encourage people to head down to their local farmers' market for fresh produce, grown by our farmers - Swinburne University design project
Autoimmune Gal @AutoimmuneGal
3K Followers 2K Following Living with autoimmune disease and sharing the medical and personal adventures that come with it. #Sjogrens #Raynauds #Uveitis #FoodAllergies #Spoonie
Raynauds Probs @raynaudsprobs
10 Followers 0 Following relatable tweets for those who suffer from #raynauds
Raynaud's Disease @Raynauds_UK
766 Followers 128 Following We are here to help with guidance, advice & products to help you manage Raynaud's Disease.
Rare Voices Australia @RareVoices
3K Followers 507 Following Rare Voices Australia (RVA) is Australia’s national peak body for Australians living with a rare disease.
Scleroderma Aware @SclerodermaHelp
47 Followers 77 Following Raising awareness about Scleroderma, 1 person at a time.
Juliet Maruru 🇰�... @Sheblossoms
4K Followers 3K Following | Living with Lupus, Myositis, Raynauds, Scleroderma & Fibromyalgia | Writer | Editor | Love ALL Cats, Adore MY Dog
𝗙𝗮𝗿𝗮𝗵 @FarahKhaleck
5K Followers 1K Following Creative content connoisseur & digital wizard with a passion for positive impact. Surviving Scleroderma & defying odds daily | Founder @thefarahfdn #InspireLife
Justin Lewis @jlew21_
1K Followers 607 Following RIP Daddy RIP Papa|In the fight to win against #scleroderma help find a cure. Keep that same ENERGY |Don't Boost
Amanda LJ @AccessibilityLJ
593 Followers 626 Following Accessibility Inclusion Consultant. President Scleroderma Victoria & Australia. Bilateral Amputee & person with Scleroderma. Views my own.
scleroderma/cancer wa... @liz_rogers74
161 Followers 584 Following fighting scleroderma since 2015 and stage2 breast cancer 2021...loves to be by the sea ..and guinea🐹 pigs
Scleroderma @SclerodermaSCal
1K Followers 8 Following We provide peer-to-peer patient support service, educational programs, and raise funds to support the Foundation’s research and awareness.
SclerodermaRF @SclerodermaRF
887 Followers 937 Following Scleroderma Unit @royalfreenhs Tweets by long term #dcSSc patient, Nicola Whitehill, volunteer https://t.co/b5D1YSUThT
Sue Farrington @FarrSue01
419 Followers 437 Following Chief Exec Scleroderma & Raynaud's UK (SRUK) - @wearesruk - President FESCA - Chair Patient Information Forum (PiF) @pifonline
A Chronic Voice @AChVoice
18K Followers 15K Following I share #ChronicIllness, #ChronicPain & #disability info fr VARIOUS #perspectives. #Lupus #Sjogrens #AntiphospholipidSyndrome #epilepsy #MentalHealthTrends for United States
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