Swiftsandswallows @Swiftsswallows
@swiftsandswallows.bsky.social My daughter had Severe ME/POTS & MCAS and died in 2024 I am also a parent and carer of a younger daughter with ME & POTS Uk Joined October 2011-
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I made a mistake - and apologised. I've never armed a genocide though. Join.greenparty.org.uk
I made a mistake - and apologised. I've never armed a genocide though. Join.greenparty.org.uk
Spot on Jeremy
Tomorrow should have been Liz’s 18th Birthday. In another world, and other lifetime she would no doubt have been out tonight celebrating with friends. I would have sat home worrying about whether she would be ok. It’s a worry that as I sit here tonight I would give anything to…
Thank you Netanyahu, we'll remember the word 'mishap'. A word useful for such things as a matter of a lost key, or a trip over a doorstep but you've now used to wrap up blood, murder, loss and horror. If this is a mishap the mishap is you.
Today is a day of national and international shame. This famine could have been prevented, if only our government treated Palestinians as human beings whose lives were worth saving. How can food be blocked yet arms still flow?
Remembering Isla today on what would have been her 20th birthday.
A famine has now been formally declared in Gaza for the first time. To stop this genocide, Israel must be hit with the toughest sanctions possible including: ▪️ A full arms embargo ▪️Widespread economic sanctions ▪️ A ban on all trade with illegal Israeli settlements
1/3 ITV News are preparing a news report about #PoTS for middle/late September. They are looking for people who have a diagnosis & are willing to share their story. Complete this form BEFORE Friday 22nd August: surveymonkey.com/r/RBKTZCT We are still looking for volunteers from…
(1/2) We have been blown away by the public response to our initial DNA results. We’ve been delighted to be featured in a range of news outlets, radio programs & articles. A huge thanks to those who helped spread the word & have helped us put ME/CFS research into the public eye.
1/4 This @DailyMail article discusses #PoTS, difficulties obtaining a diagnosis & medication Ivabradine👇 'For more than 20 years Kerry Clayton endured dizzy spells, fainting & constant light-headedness – only to have concerns repeatedly dismissed by doctors.' #MECFS #LongCovid
1/4 This @DailyMail article discusses #PoTS, difficulties obtaining a diagnosis & medication Ivabradine👇 'For more than 20 years Kerry Clayton endured dizzy spells, fainting & constant light-headedness – only to have concerns repeatedly dismissed by doctors.' #MECFS #LongCovid https://t.co/VE2jmXFINK
#MEdTwitter We urgently need #ME experts working in @NHSuk Please take the free 1 hr CPD course by Dr Nina Moorhead studyprn.com/p/chronic-fati… Learn about the recent research breakthrough by @DecodeMEstudy Watch dialogues-mecfs.co.uk/videos/
#MEdTwitter We urgently need #ME experts working in @NHSuk Please take the free 1 hr CPD course by Dr Nina Moorhead studyprn.com/p/chronic-fati… Learn about the recent research breakthrough by @DecodeMEstudy Watch dialogues-mecfs.co.uk/videos/
I desperately wish people (and in particular medics) could leave their prejudice aside, step quietly into a room of someone with ME, see our actual reality. We can tell you so much, through our words if we are able, and through our visual world. This exhibition means you can see
I desperately wish people (and in particular medics) could leave their prejudice aside, step quietly into a room of someone with ME, see our actual reality. We can tell you so much, through our words if we are able, and through our visual world. This exhibition means you can see
“I don’t need sympathy. I need change.” should galvanize the entire patient community. It is not just belief and individual doctors we need - it’s diagnostics, treatments and cures on a massive scale. Science must equal the complexity and needs of this huge patient…
“I don’t need sympathy. I need change.” should galvanize the entire patient community. It is not just belief and individual doctors we need - it’s diagnostics, treatments and cures on a massive scale. Science must equal the complexity and needs of this huge patient…
My garden has a few of these butterflies at the moment, they're loving the Verbena & Sea Holly. What butterflies are they? Google lens can't make its mind up.
Paediatrician Dr Nigel Speight, said parents of sufferers of ME are “a sitting duck” for allegations of FII (Fabricated or Induced Illness). “Without a diagnosis of ME, the guidelines on FII will raise the suspicion of FII in nearly every case of undiagnosed ME.”
Paediatrician Dr Nigel Speight, said parents of sufferers of ME are “a sitting duck” for allegations of FII (Fabricated or Induced Illness). “Without a diagnosis of ME, the guidelines on FII will raise the suspicion of FII in nearly every case of undiagnosed ME.” https://t.co/pw7zH21tMQ
Disgraceful and unjustifiable. Over 400 arrests, all while the UK continues to send arms to a state that is committing the gravest of crimes against humanity. This is why I voted against the chilling proscription of Palestine Action in Parliament.
Such a beautiful voice 💙
Thinking of everyone enduring #SevereME or #verysevereME today, yesterday, tomorrow, 10yrs ago, or 10 from now. Those we have lost, all that are barely clinging on, & all who are existing in the best way they can in the confines. You matter. It’s hell. You’re not alone💙
The most severely affected are too sick to appear on camera - way too much exertion. They live in the shadows, in dark rooms with closed doors & are the least able to advocate for themselves. They really need strong allies campaigning for research, better care & treatment.
The most severely affected are too sick to appear on camera - way too much exertion. They live in the shadows, in dark rooms with closed doors & are the least able to advocate for themselves. They really need strong allies campaigning for research, better care & treatment.
Thinking of everyone affected this #SevereMEDay and remembering our Isla 💙
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feral& (it/its) ☭ �... @Ibushi_Hanyuism
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ꪖꪀᧁꫀꪶꪶꫀ... @angel_leigh
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Rachel ♿ 🌍 🇪�... @ChasingGlimmers
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Ri @pinkchi98
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Covid Persistente Mé... @CovidComunidad
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Amber P @amberloyse
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Shane Coble @cobles85
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Nick Melia @arta_semita
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Vijay Iyer PhD @vijayiyer312
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Richard Lewis @Z3R0Gravitas
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Hindkhoudary @hindkhoudar7
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Eliza @elizaclove
690 Followers 137 Following 28 🇬🇧 😷 M.E + Long Covid since hospitalised with Covid in 2023. I’m using this account to vent and find friends with my condition.
Ben H @benh_mecfs
6K Followers 2K Following ME/CFS patient advocate, @OpenMedF science correspondent. Bedbound. Former biochemist in training, physiology, powerlifter, PT/gym manager. Musician. F1/Boxing.
Garxo @Garxo5357622
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𝕰𝖒𝖒𝖆 📀 @skulletteemma
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Neil @Nah24981105
6 Followers 150 Following
Clara Valverde @enfermarebelde
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elliotf @elliotf
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Allie Cara Raymond @caraallieray
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Paul Coddington @PaulCoddington
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Carolyn Leary @CarolynLeary
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Jessica Taylor-Bearma... @jayletay
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607 Followers 1K Following 🕊️Bilingual (german, english) . Loving my family, garden and anime. #TeamKinderschutz #Teamscience #BringBackMasks #Covidisnotover #MECFS #PEM #POTS
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J @jennyblue333
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Leonore @LeonoreTweet
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Jon Moore @JonClimateMoore
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854 Followers 1K Following Love is the most powerful force in the universe. Serendipity Meets Preparation: @remissionbiome @RenegadeRes 💖🚀She/her. Surviving #LongCovid #MECFS w/you.
Your Party @thisisyourparty
13K Followers 7 Following We're building a new kind of political party. One that belongs to you - join us! 🤝
Dreamy Run @dreamy_run
1K Followers 858 Following 'Someone who knows what they're talking about.' ABD PhD, social science. LongCovid (Feb. 2020) & related illness (POTS, ME, etc.). 🇨🇦 🇺🇸
@Dr.Bailey😷 @BaileyDevine20
2K Followers 2K Following BCBA-D, LBA, PhD experimental psych/verbal behavior #CovidIsAirborne, use respirators, filter shared air, avoid crowds. https://t.co/qZNbK5HY7S
Professor Deborah Lup... @DALupton
26K Followers 1K Following Professor @UNSW Sydney. Risk, health, digital tech. Blog https://t.co/Yh52haFKRu
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2K Followers 1K Following Scottish support group for covid19 vaccine injured & bereaved, granted core participant status in Scottish & UK Public Inquiries. Account managed by Ruth
Schools Week @SchoolsWeek
113K Followers 3K Following School leaders’ favourite newspaper. Multi-award winning journalism, determined to get past the bluster and explain the facts. Published by @educationscape
severeJasmine @severe_Jasmine_
207 Followers 267 Following Severe ME/CFS. Former athletic engineer. Currently surviving.
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Amanda Against Abuse @AmandaAgainstDA
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Amber P @amberloyse
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Amy Rochlin @amyrochlin
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The English Oak Proje... @TheKentAcorn
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Hans Christian Anders... @HansChr52239198
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Erik Johnson @erikmoldwarrior
2K Followers 625 Following If the only way the ME/CFS community can prosper is through the murder of science and truth, then I say with all my heart: let it be destroyed
Bill Clayton @clanman3
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pollypocket66 @pollypocket5000
265 Followers 466 Following ME and fibromyalgia sufferer for over 20 years-if you want to claim it doesn’t exist or all in my head you will be blocked😉
Sarah Spoor @SarahSpoorUK
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Gregg Mallitt 🇭�... @fungus_54
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