Vigil Neuroscience @VigilNeuro
Harnessing the power of microglia to improve the lives of patients, caregivers and families through transformative treatments for neurodegenerative diseases. vigilneuro.com Cambridge, Massachusetts Joined November 2020-
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May is #ALSPAwarenessMonth. At Vigil, this month is an opportunity to raise awareness & support those affected by this rare genetic disease. If you or a loved one is diagnosed with #ALSP, we encourage you to learn about our Natural History Study: bit.ly/3JdnjT7
Our VP of Patient Advocacy, Cynthia Cassandro is at @GlobalGenes’s Rare Drug Development Symposium in Philadelphia. Our team is sharing a poster on the #ALSP patient journey, misdiagnosis & genetic testing. To connect with us, reach out to [email protected]. #RareDisease
Our VP of Patient Advocacy, Cynthia Cassandro attended @OrphanConf’s #WorldOrphanUSA conference. Cynthia joined leaders on the panel: Challenges of Diagnosing & Treating Rare Diseases in Adult Patients. This was a great opportunity to share our experience in the #ALSP community.
Vigil honors #NationalDNADay & celebrates advances of DNA research. Understanding your genome is crucial for those at risk for genetic diseases. If you have a family history of #ALSP, learn about ALSPAware, a no-cost, confidential genetic testing program: bit.ly/3Qjq88Y
Our team at Vigil honored #EarthDay by hosting a Lunch & Learn, “Trash Talk: Savoring Sustainability – A Lunch & Learn Feast for a Greener Tomorrow.” Thank you Masha Ushomirsky, our Sustainability Consultant from Venture Forward Partners for sharing your wisdom! #VigilantForYou
This week, our VP of Patient Advocacy Cynthia Cassandro joined @VigilNeuro's team at #AANAM. The team shared 3 presentations that included findings from Vigil’s natural history study, Illuminate, in individuals with #ALSP. Learn more: bit.ly/3UmlRUR
#ICYMI our team presented key findings on our lead indication at @AANmember's 2024 Annual Meeting. Learn more about our multiple presentations: bit.ly/3UmlRUR. #AAN2024 #HarnessingMicroglia
Science Corner is a recurring segment where Vigil scientists share their work. In honor of #WomensHistoryMonth Sara Ospina-Mora presented on Dr. Zoghbi – a trailblazer in neurogenetics. Learn more about the Vigil team here: vigilneuro.com
Earlier this year, Dr. La Piana shared a comprehensive overview of #ALSP, the diagnostic process & the importance of raising awareness in an interview with CheckRare. Listen to the interview to learn more: bit.ly/4aOawlY #ALSPdisease #ALSPmeaning
Today marks the start of #ArabAmericanHeritageMonth! Join our team at Vigil in celebrating the Arab American heritage and learning about their history, culture, & experiences. Learn more: bit.ly/3TAFJlv
$VIGL reports fourth quarter and full year 2023 financial results and provides business update. #HarnessingMicroglia Read more: bit.ly/49jSJlu
$VIGL appoints Petra Kaufmann, M.D., as Chief Medical Officer. Read more: bit.ly/4clVTYy
Vigil President and CEO, @IvanaLiebisch, PhD, JD is participating in a fireside chat at the 2024 Stifel CNS Days virtual event, March 19 at 3:30 pm ET. A recording of the webcast will be available on the Vigil website: bit.ly/48Okcvt
This #BrainAwarenessWeek the Vigil team is honoring the millions of Americans diagnosed with a brain disease. Join us in raising awareness about the importance of brain health & advocating for expanding brain research. Learn more: dana.org/brain-awarenes…
At the @Arsenal_Yards Women’s Networking Group, the women from Vigil formed new connections with women from other biotechs in our neighborhood. #InternationalWomensDay #WomensHistoryMonth #LifeAtVigil #VigilantForYou
Vigil is presenting at @adpdnet’s 2024 International Conference. Join us March 5 – 9 virtually or in Lisbon, Portugal to learn more about our small molecule TREM2 agonist, VG-3927. #ADPD2024 #Neuroscience
When you hear hoofbeats… it might be a zebra. The Vigil team celebrated #RareDiseaseDay by wearing stripes, playing rare trivia, and learning more about the importance of awareness. #ShowYourStripes #ALSP
Vigil is presenting a poster on the impact of misdiagnosis in ALSP at @ACTRIMS. Visit the ‘Publications’ section of our website to learn more: bit.ly/3UVXr55 #ALSP #ACTRIMSForum
At Vigil, patients are always at the center of our work. Learn how Vigil President & CEO, @IvanaLiebisch, PhD, JD wove the patient voice into Vigil's culture and strategy from inception in Bruce Booth's latest @LifeSciVC blog post. Read more: bit.ly/49yQ3RK
Bruce Booth @LifeSciVC
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16 Followers 318 Following Army Retired; Pharmacist; CONSERVATIVE. May GOD have mercy on our rebellious nation! Romans 8:6Addie Minerva @AddieMinerva
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35K Followers 231 Following Biotech Journalist. Founder @TimmermanReport. Mountaineer. Volunteer. @LS_Cares @DamonRunyonJay Bradner, M.D. @jaybradner
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35 Followers 28 Following Providing information about adult-onset leukoencephalopathy with axonal spheroids (ALSP).Association ELA @ELAOfficielle
11K Followers 1K Following Association Européenne contre les Leucodystrophies. #MetsTesBaskets 👟 et fais un don pour battre les leucodystrophies ! 💪Sisters' Hope Foundat.. @SistersHopeALSP
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302K Followers 2K Following Publishing the very best of biotech science and business. Part of @SpringerNature and @NaturePortfolio. On Facebook (natbiotechnol) & IG (nature.biotechnology)Genetic Engineering &.. @GENbio
88K Followers 4K Following Serving the biotech industry since 1981. EIC @johnsterling4; publisher @liebertpub Subscribe to GEN: https://t.co/KzqMccOt9QOur VP of Patient Advocacy, Cynthia Cassandro is at @GlobalGenes’s Rare Drug Development Symposium in Philadelphia. Our team is sharing a poster on the #ALSP patient journey, misdiagnosis & genetic testing. To connect with us, reach out to [email protected]. #RareDisease
Earlier this year, Dr. La Piana shared a comprehensive overview of #ALSP, the diagnostic process & the importance of raising awareness in an interview with CheckRare. Listen to the interview to learn more: bit.ly/4aOawlY #ALSPdisease #ALSPmeaning
The @VigilNeuro team was proud to be a part of @ABFbrain's Commitment to Cures Gala which was an opportunity to support brain disease research & hear from those impacted by these diseases including #ALSP ahead of the #AANAM. Learn more: bit.ly/3UmlRUR
Did you know the symptoms of #ALSP can be similar to other neurologic conditions, often causing misdiagnosis? Learn how you can receive confidential, no-cost genetic counseling & testing with ALSPAware: informeddna.com/ALSPAware/ #ALSPdisease #ALSPAware
This week, our VP of Patient Advocacy Cynthia Cassandro joined @VigilNeuro's team at #AANAM. The team shared 3 presentations that included findings from Vigil’s natural history study, Illuminate, in individuals with #ALSP. Learn more: bit.ly/3UmlRUR
What is #ALSP disease? ALSP is a rare genetic disease caused by a mutation in the CSF1R gene. This mutation causes specific brain cells, called microglia, to stop functioning properly. Learn more about ALSP & the common symptoms: alspinfo.com #ALSPdisease
Our VP of Patient Advocacy, Cynthia Cassandro attended @OrphanConf’s #WorldOrphanUSA conference. Cynthia joined leaders on the panel: Challenges of Diagnosing & Treating Rare Diseases in Adult Patients. This was a great opportunity to share our experience in the #ALSP community.
Have you joined the #ALSP Registry? In June, you can help research & raise money for @SistersHopeALSP by registering today. 1 registration = $50 For iPhones: apple.co/3NpRZ3R For Android phones: bit.ly/3ax12BH #ALSP #CSF1R #thepatientsvoice
The ALSP Registry is now live in the US, UK, Netherlands, and Germany. Join using the QR code for the study app at sistershopefoundation.com/the-alsp-patie… #alsp #csf1r #hdls #sistershopefoundation #microglia #vigilneuro #alspinfo #leukodystrophy #raredisease
Learn how a mother has been empowered by information & reduced the stresses of caregiving through @SistersHopeALSP network and resources #ALSPinfo #CSF1R #ALSP #HDLS #adultonsetleukoencephalpathy #leukoencephalopathy #leukodystrophy #raredisease #microglia #ALSPawarenessmonth
Please enjoy reading our latest ALSP patient story, "When Caregiving Becomes Personal." sistershopefoundation.com/when-caregivin… #alsp #csf1r #hdls #sistershopefoundation #raredisease #adultonsetleukoencephalopathy #leukodystrophy
A disease informational guide is available for patients & families who have recently been diagnosed with ALSP: bit.ly/3Jay9HK #ALSPinfo #CSF1R #ALSP #HDLS #adultonsetleukoencephalpathy #leukoencephalopathy #leukodystrophy #raredisease #microglia #ALSPawarenessmonth
I encourage you all to share your story. Every story is important and should be heard. You are not alone in your journey with #ALSP. -Heidi Edwards, @SistersHopeALSP #ALSPinfo #CSF1R #HDLS #adultonsetleukoencephalpathy #leukoencephalopathy #leukodystrophy #raredisease #microglia
A Sister's Hope: the Story Behind Sisters' Hope Foundation sistershopefoundation.com/a-sisters-hope… #sistershopefoundation #csf1r #alsp #hdls #raredisease #microglia #leukodystrophy #adultonsetleukoencephalopathy
#ALSP is an #adultonsetleukodystrophy: symptoms typically appear in adulthood. The average age of first symptoms is 43 but can begin as early as the 30s & as late as the 70s. bit.ly/35C4hpq #ALSPinfo #CSF1R #HDLS #leukoencephalopathy #leukodystrophy #raredisease
"We honor the immeasurable contributions that women have made on our team and in the greater biotech industry." Thank you @VigilNeuro for supporting AWIS in honor of #WomensHistoryMonth and International Women's Day! #IWD awis.org/womens-history…
Vigil Neuroscience closed a $98 million IPO on Tuesday, pricing 7 million shares at $14. Most of that is going toward VGL101, an ex-Amgen TREM2 agonist in Phase I for a rare neurodegenerative disease. endpts.com/vigil-neurosci…
Today is #undiagnosedDay. NORD is proud to share resources to support #undiagnosed patients throughout their journey in hopes that they can find a correct diagnosis sooner. View our registry and resources on the NORD website: bit.ly/3d5tR4d
Biotech looking up? After real volatility this year, aggregate net fund flows into sector moved into positive territory YTD as of April 28th (Source: Lipper, FactSet, Piper Sandler)
Biotech Funding Tops The Charts Again... with reflections and questions about the discipline of its deployment. lifescivc.com/2021/04/biotec…
These are the most detailed images of a human cell to date, obtained by radiography, nuclear magnetic resonance and cryoelectron microscopy.
TREM2 might be the link between beta amyloid and tau. Exciting target, for sure. @VigilNeuro
There's a resurgence of focus on tau in understanding #Alzheimers pathology & potential treatment. This is Wainwright's note today pushing TREM2 as a tau-relevant target. Affects esp. $ALEC $DNLI. Also indirectly $ACIU and of course $BIIB $LLY.