WAMES @WAMESMECFS

WAMES acts as a voice for people with ME/CFS, PVFS their carers, families and professionals. Website: https://t.co/sL34tzYWHX Facebook and Instagram: WAMESMECFS Wales Joined April 2012

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WAMES @WAMESMECFS

2 days ago

A new study finds that patients with ME/CFS have heightened innate immune responses to bacteria, viruses & fungi. When unchecked this can cause damage. Possible treatments could include metformin, rapamycin, prebiotics, probiotics. tinyurl.com/4re5dyaz

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WAMES @WAMESMECFS

2 days ago

OMF gives an update on BioQuest, a new large-scale biomarker project for ME/CFS, which effectively moves this project into the “Recruitment, Data Collection” stage of the research process. With 1,000 samples collected phase 1 is ready to launch. tinyurl.com/23ha9fvc

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WAMES @WAMESMECFS

2 days ago

On Sun 7 Sep at 3pm the UK gov will carry out a national test of the Emergency Alerts system to mobile phones connected to 4G & 5G networks. If you do not have a compatible device, the gov will also use other channels in a real emergency. gov.uk/alerts

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WAMES @WAMESMECFS

2 days ago

Next APPG on ME meeting on Wed 10 Sep 4–5pm will open the Group’s enquiry into severe ME, with attendees hearing of its devastating impact, directly from people with lived experience. Invite your local MP to attend with a template letter tinyurl.com/eppcbbp7

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WAMES @WAMESMECFS

2 days ago

MERUK highlights a study of largely ‘severely affected housebound individuals’ which found that haptoglobin (Hp)–a protein that plays a crucial role in recycling iron & protecting the body from the harm caused during oxidative stress–may be linked to PEM. tinyurl.com/557jk3y5

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WAMES @WAMESMECFS

2 days ago

Develop individualised management plan 4 ur ME/CFS or FM in a free online self-study course. Course includes modules on treating symptoms, pacing, stress, emotions, relationships & building new life. Each module includes worksheets & steps 4 implementation tinyurl.com/2h23jt77

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WAMES @WAMESMECFS

2 days ago

Find the full list of links to IiME conference talks here, including some highly techincal/scientific ones we didn't post here. tinyurl.com/5ptwdur9

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WAMES @WAMESMECFS

2 days ago

Dr Nancy Klimas and Haylie Pomroy explain how persistent spike protein may be the missing link behind long COVID and ME/CFS persistent symptoms. [39 mins] +Chapters +Transcript tinyurl.com/5xjyawhm

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WAMES @WAMESMECFS

2 days ago

A study published in July found there is an elevated risk of developing CFS/ME for both hospitalized & non-hospitalized COVID-19 up to 4 years post-infection. Females & people with autoimmune & anxiety disorders were more susceptible. tinyurl.com/476nytkc

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WAMES @WAMESMECFS

2 days ago

MERUK explains the terms DNA, genes, genome and genome-wide association study (GWAS) and their relevance for ME/CFS. tinyurl.com/43fr6myd

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WAMES @WAMESMECFS

4 days ago

Dr Jarred Younger looks at a new study: Placebo reduces fibromyalgia pain more than cannabidiol (CBD) [15 mins] +Transfer tinyurl.com/2s49dc46

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WAMES @WAMESMECFS

4 days ago

If you have ME and live anywhere in North Wales you are invited to join the private North Wales ME Group on Facebook to ‘meet’ and chat to each other. tinyurl.com/46cjmupv

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WAMES @WAMESMECFS

4 days ago

Etianne Martini Sasso talks about Australian research into Neurological & Immunological mechanisms underlying ME: an innovative & multidisciplinary investigation. [20 mins] +Transcript tinyurl.com/5cpedcpr

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WAMES @WAMESMECFS

4 days ago

A new report from 6 major charities & a leading energy supplier has warned that Disabled people & millions on low incomes are facing deepening fuel poverty. It calls for an energy social tariff & extra measures to protect Disabled people. tinyurl.com/r4mzyjpb

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WAMES @WAMESMECFS

4 days ago

The British Dietetic Association food factsheet for ME/CFS advises "a healthy, balanced diet with adequate fluid intake. This will aid energy management & help manage your symptoms." It also addresses Gastrointestinal symptoms & Food Intolerances. tinyurl.com/3j6zxtn8

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WAMES @WAMESMECFS

4 days ago

MERUK highlights research into the potential role HPA axis dysfunction may play in ME/CFS, specifically relating to the orexin system which coordinates the HPA axis, & plays a crucial role in regulating wakefulness, energy metabolism, & appetite. tinyurl.com/4hk5pb7e

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WAMES @WAMESMECFS

5 days ago

Nominate WAMES to win £1,000 before 22 Sep - the more nominations we get, the better our chance of winning. All previous 2025 nominations are carried forward. Please spread the word and help WAMES win! Charity no. 1144534 tinyurl.com/mrxmec9t

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WAMES @WAMESMECFS

5 days ago

An app for young carers in Wales offers: digital identity card; a way to ping your school or college; contact list for support network; useful info; and local discounts are coming soon. Download AiDi and apply online. aidi.cymru/en/

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WAMES @WAMESMECFS

5 days ago

Katharine Cheston has explored how stigma & shame are experienced by analysing memoirs & conducting interviews with patients with ME & similar illnesses. Her newer work looks at how (& why) this stigma is inflicted on patients & recalls her own experience. tinyurl.com/ynmyw49z

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WAMES @WAMESMECFS

5 days ago

Dr Wenzhong Xiao discusses his TREAT survey which asked patients with ME/CFS and Long COVID about the treatments they use. [21 mins] +Transcript tinyurl.com/ynyvth3w