Nicola phelan @_Nikki75

be beautiful in your own way. mum of 5 suffers m.e cfs ,fibromyalgia & the rest Joined June 2014

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CV Primary @claytonprimPAY

2 years ago

Year 6 Prom 🫶🏽⭐️

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Today we share important news with you all: Kara’s death certificate has been issued, and it records myalgic encephalomyelitis as the underlying cause of her death. Kara’s family wish to thank everyone for their incredible support this week. karajanesings.com/2023/01/06/dea…

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Open Medicine Foundation @OpenMedF

3 years ago

Time's running out to make a year-end donation to OMF! Give the gift of hope 👉 bit.ly/38LllXw Your gift fuels our mission to find effective treatments and a cure for #MECFS, #longcovid, and related multi-system chronic, complex diseases (msCCD). #givingback #donate

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Ntisec 𓆣 🏴 @ntisec

3 years ago

The @BhupeshPrusty Files: HHV-6 Found in the Brains of ME/CFS Patients. We need more research like this, research on treatment's. Trials with antivirals etc, to help #MEcfs patients that have been ignored for decades. This might also help #LongCovid healthrising.org/blog/2022/12/1…

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Bhupesh K Prusty @BhupeshPrusty

3 years ago

Grateful for the excellent news of approval of our pilot grant application by @dg_mecfs. Thank you for your support. In this 1 year pilot project, we aim to identify cell-specific protein targets of serum antibodies in ME/CFS patients using various types of primary human cells.

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Bhupesh K Prusty @BhupeshPrusty

3 years ago

Tissue specific signature of HHV-6 infection in ME/CFS frontiersin.org/articles/10.33…

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Sean O'Neill @TimesONeill

3 years ago

Maeve would have been 28 today. Her life was taken last year by the cruel disease myalgic encephalomyelitis (ME) which doctors fail or refuse to understand. This picture was taken a decade ago on her 18th birthday ❤️💔

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Nicola phelan @_Nikki75

3 years ago

Hope

Sajid Javid @sajidjavid

3 years ago

Hope

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Bhupesh K Prusty @BhupeshPrusty

3 years ago

Today for the first time we had a long discussion on ME/CFS research in our lab meeting where everyone except for me was a non-ME researcher. was a interesting discussion & was clear that exciting & modern science is on its way to solve this disease. Am hopeful than ever before.

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Nicola phelan @_Nikki75

4 years ago

Horrible disease it’s called the life ruiner

Leon @leowmya

4 years ago

Horrible disease it’s called the life ruiner

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Janet Dafoe @JanetDafoe

4 years ago

Here’s a link to the Times of London article with no paywall. archive.is/2022.01.12-025…

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Nicola phelan @_Nikki75

4 years ago

Please sign petition for government testing on micro clots present on M.E & Long covid

Elizabeth Smith #FBLC 💙 @IssyDublin

4 years ago

Please sign petition for government testing on micro clots present on M.E & Long covid

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Dr Asad Khan FRCP FRACP 🇵🇸🇳🇿🇮🇳🇬🇧#pwLC @doctorasadkhan

4 years ago

‘#LongCovid doesn’t come for you all at once; instead, with methodical precision, it slowly robs you’. This is an unprecedented public health emergency. Time for proper diagnostics & treatments- otherwise there will be more Heidis 😢#TeamClots theguardian.com/commentisfree/…

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Nicola phelan @_Nikki75

4 years ago

Everything crossed 🤞🏼

Janet Dafoe @JanetDafoe

4 years ago

Everything crossed 🤞🏼

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Action for ME @actionforme

4 years ago

In the third episode of our Learn about ME podcast, Dr Nina Muirhead, Dr Gregor Purdie & Helen Brownlie discuss the changes to the newly updated NICE guideline on #ME/CFS and what this could mean for #pwME Listen today: ow.ly/c3UX50H6bkN