It still shocks me that people wake up everyday and just feel... healthy. No pain, no fatigue, no headache, no stomach ache, no joint pains just... a body floating through the day. As a chronically ill person I literally cannot imagine or remember what that feels like.
Please know that if someone can't work due to a chronic illness or disability that's not a good thing. It's not living your best life and enjoying your free time. It's actually giving up on career dreams and having no financial stability. Please don't glorify it because it sucks.
When will people realise that Chronically I’ll people cannot predict how they will feel in the next few minutes, hours, days or months. I could wake up feeling fine and then feel like I’ve been hit by a truck within the hour. There are no warning signs. #MyalgicEncephalomyelitis
56K Followers 43K FollowingAspiring Author ✍🏼📖 |Singer/Actress, Trainee Therapist on hold due to #MECFS ♿️ for 6 years | #POTS / #IST✨Spiritual Awakening. Lessons from the void. 💖
916 Followers 5K FollowingNon-Profit. We magnify your health journey to help others. https://t.co/7VLiqMV99u Sharing your story can heal: [email protected].
8K Followers 8K FollowingDisabled & ND. Writer, teacher, disability justice & advocacy. Animist. It’s the end of an era, build well-relations up from ashes.
Wear a mask.
24 Followers 88 Following38, newly diagnosed with Fibromyalgia a chronic illnesses it’s not just pain. but I try and find something positive each day. 😃
6K Followers 2K Following🎥 ✨Australian Actress in Italy. Care about #mecfs #longcovid #climate #dv #auspol 🎭co-founder Mi Casa Theatre 📚Words in SoulTread & RoutledgePress She/her
2K Followers 5K Following🇬🇧. 🇮🇪. 🇺🇸Father of two sets of twins plus one. Youngest now 21. 2 mad dogs. 1 wife. Still masking for ongoing SARS 2 pandemic. #SaveOurNHS
1K Followers 1K FollowingConvalescing drummer and ME patient. Dry Sense of Humour. 'Never attribute to malice that which is adequately explained by stupidity'. 🥁🌱
2K Followers 2K FollowingAn M.E. sufferer for 20 years. Wanting to help others with this illness, raise awareness and promote understanding through my poetry and my blogs
721 Followers 3K FollowingFormer chartered teacher Living/Enduring EDS and CFS late diagnosis (again 🙄) ADHD Wishing the next Gen a better ride, hope for future INFP pretty accurate
4K Followers 6K FollowingME/CFS ,Fibromyalgia ,Longcovid,lyme Boriliose,MCS ,Vax Injured( not corrona vax ),Hearing loss ect . Also find me on @christina4hope.bsky.social
1K Followers 5K FollowingCurator/gallerist/writer/art historian/researcher. Co-author McCulloch’s Encyclopedia of Australian Art. Director Everywhen Art @mccandmcc
767 Followers 3K Following#ActuallyAutistic 🥄🥄 wishing she could change the world.... #PwME, #Dysautonomia and #NEISvoid-er.
She/her. Academic/professional account @DpsychAs.
695 Followers 4K FollowingCan usually be found creating something, and can't remember the last time she was bored. Emotional Support Canadian.🍁
30+ years with #MyalgicEncephalomyelitis
5K Followers 303 FollowingThe global professional association for medical practitioners, scientists and researchers in the field of #MECFS, #LongCovid and related postviral disease
3.6M Followers 818 Followingbestselling author of Why Am I Like This? 🌍 slow fashion and pro planet 🎙️ award winning podcaster @goodinfluencegs 🧠 ambassador @mqmentalhealth
460 Followers 2K FollowingNon-Profit 501(c)(3) recording & magnifying #health journeys to advocate and inform. Support us at https://t.co/isMqLDywtT and [email protected]
4K Followers 202 FollowingEvolutionary anthropologist, love & dad scientist. Author: Why We Love & The Life of Dad. Host: How We’re Wired and Why? pods. Mad dog lady.
1K Followers 298 Following26, world champion gymnast turned sick person w/ #MyalgicEncephalomyelitis. The account where I accept it + vent, thank you for listening 😇 #mecfs #pwme
19K Followers 2K FollowingWe raise funds for medical research into ME/CFS and provide support, information & campaign for people in the UK. RPs do not necessarily mean endorsement.
3K Followers 490 FollowingWe are a charity that sends Smiles to ME sufferers and their carers to brighten their day and make them smile 😊 Registered Charity Number 1185760 🩵
3K Followers 2K FollowingIrish Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Assoc. NB: Posts should not be considered advice. RCN 20100254 CHY 22039. Some #LongCovid items also.