Georgia Elle @_memyselfandwhy

26, world champion gymnast turned sick person w/ #MyalgicEncephalomyelitis. The account where I accept it + vent, thank you for listening 😇 #mecfs #pwme instagram.com/_memyselfandwhy Newcastle Upon Tyne, England Joined March 2022

Tweets

743
Followers

1K
Following

298
Likes

1K

Georgia Elle @_memyselfandwhy

3 years ago

I’ve not been active for ages, once again. How’s everyone? How’s Wednesday going? 🫶

Georgia Elle @_memyselfandwhy

3 years ago

Long Covid, ME/CFS + Medical Misogyny: theguardian.com/society/2022/o…

Georgia Elle @_memyselfandwhy

3 years ago

It’s been a while, twitter 👋

Georgia Elle @_memyselfandwhy

3 years ago

So, yesterday I had my photoshoot for the article in the guardian. I genuinely thought it was a singular headshot… Be prepared to see me dressed like a sack of potatoes from the shoulders down. And in flip flops 🤦🏼‍♀️🤣

Georgia Elle @_memyselfandwhy

3 years ago

Surviving is thriving my friends

Georgia Elle @_memyselfandwhy

3 years ago

This morning I did an interview on misogyny and this afternoon I met an actual misogynist!!! Funny how worlds align isn’t it 🙃

Georgia Elle @_memyselfandwhy

3 years ago

I’ve not been active for a while - sometimes I have to get my head away from everything! But today I am here to say helloooo 👋

5'3 🇸🇱❤️ @hannahldn__

3 years ago

What a view at @WirelessFest for us disabled people 🙃 basically outside the park and away from everything. P.S. I want a refund 😒

CreoleSauce @itsKatouche

3 years ago

What a view at @WirelessFest for us disabled people 🙃 basically outside the park and away from everything. P.S. I want a refund 😒

453 5K 33K 0 761

Georgia Elle @_memyselfandwhy

3 years ago

My entire body feels out of breath 😮‍💨

Georgia Elle @_memyselfandwhy

3 years ago

_memyselfandwhy tweet picture

Dan Wyke 🦠➡️🧠🔥 @Dan_Wyke

3 years ago

@alaceywill @_memyselfandwhy Me trying to make it to the bathroom...

Dan_Wyke tweet picture

Georgia Elle @_memyselfandwhy

3 years ago

I thought my phone was vibrating in my pocket and then realised I was holding my phone and my leg is just doing that “thing” again

Georgia Elle @_memyselfandwhy

3 years ago

Fun fact: Zombies aren’t dead people, they’re a depiction of #MyalgicEncephalomyelitis 🤣🧟‍♀️

Georgia Elle @_memyselfandwhy

3 years ago

Pain, pain go away don’t come back another day

M.E. inactivist; person-centred counsellor (currently not practicing); recovering poet (Rack & Waterloo Press)

Dan Wyke 🦠➡️�... @Dan_Wyke

13K Followers 5K Following M.E. inactivist; person-centred counsellor (currently not practicing); recovering poet (Rack & Waterloo Press)

30y/o creative, with complex health issues🤞🏼ME/CFS biomedical research. Passion for the wild, for kindness, and helping all people have a voice. Co-author✨

Lizzy H @hopefullizzy

7K Followers 3K Following 30y/o creative, with complex health issues🤞🏼ME/CFS biomedical research. Passion for the wild, for kindness, and helping all people have a voice. Co-author✨

I tasted chronic illness in the form of Long Covid. It tasted horrible. But I was lucky & improved over 4 years. Now I’m here for those still struggling

John K @j_b_kennedy

17K Followers 6K Following I tasted chronic illness in the form of Long Covid. It tasted horrible. But I was lucky & improved over 4 years. Now I’m here for those still struggling

#ME #CFS #CCI #POTS #MCAS

Marky Mark @MrkStdngr

12K Followers 6K Following #ME #CFS #CCI #POTS #MCAS

Advocate & sharer of bio research for INFECTION ASSOCIATED CHRONIC DISEASES inc MECFS, Long COVID, MCAS, Dysautonomia, Vaccine injuries, FMS, Sjogrens & Lyme 🔬

Wading through treacl... @kimisgubbed

3K Followers 3K Following Advocate & sharer of bio research for INFECTION ASSOCIATED CHRONIC DISEASES inc MECFS, Long COVID, MCAS, Dysautonomia, Vaccine injuries, FMS, Sjogrens & Lyme 🔬

Former professional ballet dancer | Bed-bound M.E. patient | Using ✖️ to raise awareness for #MyalgicE | #IACI

#art2cureME #pwme #millionsmissing

Anil van der Zee © @AnilvanderZee

10K Followers 865 Following Former professional ballet dancer | Bed-bound M.E. patient | Using ✖️ to raise awareness for #MyalgicE | #IACI #art2cureME #pwme #millionsmissing

CFS(!) & POTS diagnosis, ME symptoms - trying to accept. Still me. Sense of humour intact. Proud “Anti-Recovery Activist” On justjo@bskysocial if X goes tu

Jo @cfs_jo

4K Followers 2K Following CFS(!) & POTS diagnosis, ME symptoms - trying to accept. Still me. Sense of humour intact. Proud “Anti-Recovery Activist” On justjo@bskysocial if X goes tu

Myalgic Encephalomyelitis ME + POTS 39 yrs
Donor to @mecfsbiobank for 10 years & @DecodeMEstudy
Please watch https://t.co/pUUJO34e5k
#pwME

Katy B @KatyBruce108

6K Followers 6K Following Myalgic Encephalomyelitis ME + POTS 39 yrs Donor to @mecfsbiobank for 10 years & @DecodeMEstudy Please watch https://t.co/pUUJO34e5k #pwME

💙Art, Nature, Books, Some Music. Severe ME 32 years. Daughter severe 38 years. Furious about treatment of ME. https://t.co/gEIrl86Wim

Carole Bruce @CaroleBruce17

7K Followers 5K Following 💙Art, Nature, Books, Some Music. Severe ME 32 years. Daughter severe 38 years. Furious about treatment of ME. https://t.co/gEIrl86Wim

Doctor of Pharmacy. Long Covid, EBV & ME/CFS research. Here to share & learn. Tweets not medical advice.
https://t.co/jqc4g8cFLa
https://t.co/lKQezPwtQs

LongCovidPharmD @organichemusic

35K Followers 1K Following Doctor of Pharmacy. Long Covid, EBV & ME/CFS research. Here to share & learn. Tweets not medical advice. https://t.co/jqc4g8cFLa https://t.co/lKQezPwtQs

Curious & exhausted peace seeker, co-host of @pempodcast23, photographer and blogger. PwME, sidelined social worker, grief dealer, joy peddler, SAFC fan, He/Him

Daniel Moore @Talmandaniel

5K Followers 4K Following Curious & exhausted peace seeker, co-host of @pempodcast23, photographer and blogger. PwME, sidelined social worker, grief dealer, joy peddler, SAFC fan, He/Him

I'm Beth, embroidery, craft & art are my buzz. Politically adrift #pwme #disabled insta: thecraftymissb

Crafty Miss @CraftyMissB

6K Followers 3K Following I'm Beth, embroidery, craft & art are my buzz. Politically adrift #pwme #disabled insta: thecraftymissb

Founder - Renegade Research @renegaderes - RemissionBiome @remissionbiome

Tess Falor, Ph.D. | R... @tessfalor

9K Followers 6K Following Founder - Renegade Research @renegaderes - RemissionBiome @remissionbiome

ME/CFS | Long COVID | IACC | bhanlon15.bsky

Billy Hanlon @bhanlon15

14K Followers 13K Following ME/CFS | Long COVID | IACC | bhanlon15.bsky

Philosopher - ethics, politics, music | Slowly writing a book on Isaiah Berlin | Grew up in USSR, Isr, UK. Home is London | Living with ME since 2003. | 🔗 🎥

Vlad Vexler @VladVexler

22K Followers 1K Following Philosopher - ethics, politics, music | Slowly writing a book on Isaiah Berlin | Grew up in USSR, Isr, UK. Home is London | Living with ME since 2003. | 🔗 🎥

This account can no longer be managed at this time due to Debbie's deteriorating condition. She is okay, but not improving.

#LongCovid #MECFS #POTS

Debbie Seymour @debbie_seymour

2K Followers 714 Following This account can no longer be managed at this time due to Debbie's deteriorating condition. She is okay, but not improving. #LongCovid #MECFS #POTS

Community Builder / Passionate Collaborator / Chair - #MedicalEducation Group / #ResearchPartner / #MECFS #LongCovid Advocate / #PwME / #MCAS / #POTS / #Fibro

Sabrina Poirier (On H... @Sabrina_Poirier

6K Followers 6K Following Community Builder / Passionate Collaborator / Chair - #MedicalEducation Group / #ResearchPartner / #MECFS #LongCovid Advocate / #PwME / #MCAS / #POTS / #Fibro

@arisonsned.bsky.social
Cat and Dog botherer. YP counsellor retired. Want my bike and my health back 🩵

Alisontomyradioooo @arisonsned

3K Followers 5K Following @arisonsned.bsky.social Cat and Dog botherer. YP counsellor retired. Want my bike and my health back 🩵

MSc | AD | ICL, UCL, UOB alum | Geoscientist, cyclist, adventurer, athlete, dad | Sidelined after a “mild” Covid infection, Dec 2021 | #LongCovid #FBLC #Climate

GeoCK @GeoEduOne

6K Followers 865 Following MSc | AD | ICL, UCL, UOB alum | Geoscientist, cyclist, adventurer, athlete, dad | Sidelined after a “mild” Covid infection, Dec 2021 | #LongCovid #FBLC #Climate

Investigating ME for 39 years

The Why

Hillary Johnson Autho... @oslersweb

4K Followers 956 Following Investigating ME for 39 years The Why "Indispensable" Reimagining Ruth "..has a raw power" Osler's Web "A relentless, meticulous, highly persuasive expose"

Northumbrian. Severe M.E Sufferer. SEND Mam. Disability Rights Advocate. Opinions Own. Writer @TheCanaryUK Blogger @wearecarers

Rachel ♿ 🌍 🇪�... @ChasingGlimmers

20K Followers 22K Following Northumbrian. Severe M.E Sufferer. SEND Mam. Disability Rights Advocate. Opinions Own. Writer @TheCanaryUK Blogger @wearecarers

lincoln0471 🐭 @lincoln0471

279 Followers 2K Following

一人前になるには50年はかかるんだ。功を焦るな。悲観するな。もっと根を深く張るんだ。根を深く張れ

🧳🧳 @Obukie30763

17 Followers 1K Following 一人前になるには50年はかかるんだ。功を焦るな。悲観するな。もっと根を深く張るんだ。根を深く張れ

Melissa @melissawaring_

3K Followers 4K Following

1988 m.e /fm/MCS/CMV/toxoplasmosis/Grover's disease/ severe pain and it's still the same in 2024

geoff brown @geoffbr85790890

203 Followers 912 Following 1988 m.e /fm/MCS/CMV/toxoplasmosis/Grover's disease/ severe pain and it's still the same in 2024

CJ @CJ_Bellamy3

7 Followers 90 Following

Petra Sola @PetraSola72

854 Followers 2K Following

Ashley @ashleymarlyn

11 Followers 1K Following

#mecfs #pots #animals #oi Animals deserve to be treated with respect and be happy. Don’t paint others with a broad brush, you’ll miss the important details.

EmmersandBear @GBearEmmaG

786 Followers 3K Following #mecfs #pots #animals #oi Animals deserve to be treated with respect and be happy. Don’t paint others with a broad brush, you’ll miss the important details.

Nurse Practitioner. Follows, Likes, RT not endorsements
Fullscript Supplements 30% Off - Limited Time
https://t.co/rAyc8JrMgH

Julie (30% Fullscript... @julie_stod4545

306 Followers 1K Following Nurse Practitioner. Follows, Likes, RT not endorsements Fullscript Supplements 30% Off - Limited Time https://t.co/rAyc8JrMgH

Srrar @SrrarkU_9I

13 Followers 472 Following

Danced around the ME/CFS spectrum for 7 years.

Here's me making sense of it - https://t.co/yrWFMjHDOF

#MECFS

KJ Cassells @lifeinacrash

713 Followers 1K Following Danced around the ME/CFS spectrum for 7 years. Here's me making sense of it - https://t.co/yrWFMjHDOF #MECFS

ME/CFS..........

Martin @fmartin467

277 Followers 1K Following ME/CFS..........

Aim High ... Fly-Fight-Win
Integrity first, Service before self, Excellence in all we do.

Gregory M. Guillot @gregorymguillo

611 Followers 3K Following Aim High ... Fly-Fight-Win Integrity first, Service before self, Excellence in all we do.

On medical leave due to a debilitating chronic illness. Surviving Not Living. Sick Not Tired. We all just want our lives back. Posts are not medical advice.

Nina A Tomei, MD @doctormom63

4K Followers 1K Following On medical leave due to a debilitating chronic illness. Surviving Not Living. Sick Not Tired. We all just want our lives back. Posts are not medical advice.

Luna @LaylaLilli95610

10 Followers 717 Following

America without her soldiers is like God without his angels

Philip Kieswetter @PhilipKies31612

12 Followers 375 Following America without her soldiers is like God without his angels

Providing gold-standard rapid diagnostics that support personalised medicine and patient empowerment. RTs not an endorsement. Founder: @ProfAndrewShaw

Attomarker @Attomarker

634 Followers 807 Following Providing gold-standard rapid diagnostics that support personalised medicine and patient empowerment. RTs not an endorsement. Founder: @ProfAndrewShaw

Coder. Previously at Stripe and Microsoft.

Andy @AndyNosretep

557 Followers 4K Following Coder. Previously at Stripe and Microsoft.

26/ i have long covid for 36 month, and now suffer from severe mecfs (bell 0-10) and pots. I prob have other issues as well but too fatigue to get tested #mecfs

holdingonME @JoannaWo4

645 Followers 880 Following 26/ i have long covid for 36 month, and now suffer from severe mecfs (bell 0-10) and pots. I prob have other issues as well but too fatigue to get tested #mecfs

Wiltshire
Graduate 🎓 MA pending...

Sian @Maries_4798

59 Followers 702 Following Wiltshire Graduate 🎓 MA pending...

Patient-Centric community platform for long Covid patients in Arkansas #healthequity #longcovid #healthjustice #dataprivacy. Part of @CareConnectlc

LongCOVID Patients Ar... @pwlcArkansas

148 Followers 362 Following Patient-Centric community platform for long Covid patients in Arkansas #healthequity #longcovid #healthjustice #dataprivacy. Part of @CareConnectlc

Patient-Centric community platform for Long Covid patients in Maine #longcovid #healthequity #healthjustice #dataprivacy. Part of @CareConnectlc

LongCOVID Patients Ma... @pwLCMaine

160 Followers 492 Following Patient-Centric community platform for Long Covid patients in Maine #longcovid #healthequity #healthjustice #dataprivacy. Part of @CareConnectlc

Long Covid long-hauler since January 2021 ❤️ #POTS. Advocate for Long Covid. Management Consultant @EY Animal Welfare Volunteer @Assisi Animal Sanctuary🐈

Elizabeth Smith #FBLC @IssyDublinNewAC

235 Followers 1K Following Long Covid long-hauler since January 2021 ❤️ #POTS. Advocate for Long Covid. Management Consultant @EY Animal Welfare Volunteer @Assisi Animal Sanctuary🐈

Dr Bahadir Baykal @DrBaykal

54 Followers 297 Following 🥰💖🥰

The voice for Long Covid in Ireland. An advocacy group comprised of Long Covid patients fighting for awareness of LC & adequate services in Ire for all patients

Long Covid Advocacy I... @LCAIreland

3K Followers 4K Following The voice for Long Covid in Ireland. An advocacy group comprised of Long Covid patients fighting for awareness of LC & adequate services in Ire for all patients

🦋My Invisible Nightmare🦋
💋@Toisich69's better half💋💜Mum of 4💜🌈Granny of 12!🌈 🦋Fibro/CDM/ON/PTSD/MH Warrior!🦋 🦄Indy2🦄

🏴󠁧󠁢󠁳󠁣�... @Pookiehugz

575 Followers 3K Following 🦋My Invisible Nightmare🦋 💋@Toisich69's better half💋💜Mum of 4💜🌈Granny of 12!🌈 🦋Fibro/CDM/ON/PTSD/MH Warrior!🦋 🦄Indy2🦄

Ex-⚗️🔬📈🗂, #PostVac Asthma+ #MCAS, #CFS 2000, #Autoimmun, #MS 2021 ... noch interessiert/still interested🧐🤠

Gabrielle Shakti @GabrielleShakti

283 Followers 761 Following Ex-⚗️🔬📈🗂, #PostVac Asthma+ #MCAS, #CFS 2000, #Autoimmun, #MS 2021 ... noch interessiert/still interested🧐🤠

Chronically ill academic, #pwME #Lyme #dysautonomia. Here to learn and amplify chronically ill, #disabled, and covid-cautious. #MaskUp. she/her.

Fritz is tired. @ChronicFritz

644 Followers 3K Following Chronically ill academic, #pwME #Lyme #dysautonomia. Here to learn and amplify chronically ill, #disabled, and covid-cautious. #MaskUp. she/her.

nature lover • cat + dog mum • psychology student • autistic • chronically ill • i’m actually really boring • #PwME

🐈‍⬛🦮🪷 @_cloudycat

112 Followers 605 Following nature lover • cat + dog mum • psychology student • autistic • chronically ill • i’m actually really boring • #PwME

How it really feels to have moderately severe CFS/ME, without the filter I usually use to protect loved ones.

ME-CFS Diary of Truth @MECFSdiarytruth

14 Followers 67 Following How it really feels to have moderately severe CFS/ME, without the filter I usually use to protect loved ones.

But how shall we educate … to goodness, to a sense of one another, to a love of the truth? And more urgently, how shall we do this in a bad time? ~D.Berrigan

Kevin G. O'Neill @kgo81

2K Followers 4K Following But how shall we educate … to goodness, to a sense of one another, to a love of the truth? And more urgently, how shall we do this in a bad time? ~D.Berrigan

♿️ chronisch krank - ME/CFS, POTS, FIBRO, SFN, MCAS & mehr l Bell 10-20 l hauptsächlich auf Instagram l für mehr Aufklärung, gegen Ableismus und Vorurteile 💬

mein.mecfs.tagebuch @mecfs_diary

379 Followers 518 Following ♿️ chronisch krank - ME/CFS, POTS, FIBRO, SFN, MCAS & mehr l Bell 10-20 l hauptsächlich auf Instagram l für mehr Aufklärung, gegen Ableismus und Vorurteile 💬

George Ogbonna @GeorgeOgbonna7

5 Followers 46 Following

Hurricane Cat @upsetcat8

217 Followers 3K Following Hurricane

Composer Singer Drummer Synthesist Spaceman

Stephen Teller @Phaseshifter77

103 Followers 699 Following Composer Singer Drummer Synthesist Spaceman

Dealing with Longhaul Covid/MECFS since the first wave. 4 year anniversary 3/24/2024
'I Create The Space For Good Things To Happen'

lindagdetroit @lindagdetroit

249 Followers 661 Following Dealing with Longhaul Covid/MECFS since the first wave. 4 year anniversary 3/24/2024 'I Create The Space For Good Things To Happen'

blumenfee und kräuterhexe , kompostfan und heilkräutersammlerin, fan von orthomolekular- und mitochondrienmedizin,esp. von cistus incanus und artemisia annua

Dagmar Schneider @DagmarSusanna

39 Followers 440 Following blumenfee und kräuterhexe , kompostfan und heilkräutersammlerin, fan von orthomolekular- und mitochondrienmedizin,esp. von cistus incanus und artemisia annua

Author of the romance novel

Dagmar Bleasdale @DagmarBleasdale

30K Followers 31K Following Author of the romance novel "Loving Emelyn" out now on Amazon, link below. Read the first chapters for free! RTs not endorsements. https://t.co/X6MI7wfJnk

disabled with me/cfs. thinking a lot about many things. amateur cruciverbalist. knitter. lover of stories & writing letters & exploring the world. || ✞

sophia ✧ @teastainedadv

171 Followers 670 Following disabled with me/cfs. thinking a lot about many things. amateur cruciverbalist. knitter. lover of stories & writing letters & exploring the world. || ✞

My best friend was born in a manger. Married to a Gorgeous Woman.
Caught Covid in Oct. 2021 survived the ventilator now fighting #LongCovid

Donny Monsie @DonnyMonsibais

636 Followers 3K Following My best friend was born in a manger. Married to a Gorgeous Woman. Caught Covid in Oct. 2021 survived the ventilator now fighting #LongCovid

Friday @Friday53724753

1 Followers 19 Following

Thomas Birkett @ThomasBirkett4

228 Followers 2K Following statistician

‘I wish to hear the silence of the night, for the silence is something positive and to be heard’.
H.D. Thoreau

Repelsteeltje @Ballennet

418 Followers 1K Following ‘I wish to hear the silence of the night, for the silence is something positive and to be heard’. H.D. Thoreau

Muhammad Hamid Ali @Muhamma51185658

0 Followers 70 Following Cricket 💪💪

Mike Kopec @MikeKopec6

30 Followers 330 Following

Economist, entrepreneur, mother, wife + sister. #slavaukrainia #AmYisraelChai 🇺🇸🇺🇦🇺🇸🇮🇱 🇺🇸🇨🇦#HamasIsISIS 🇺🇸 #fellatraveler #fuckputin

Dr. Menace @Ermengrabby

2K Followers 5K Following Economist, entrepreneur, mother, wife + sister. #slavaukrainia #AmYisraelChai 🇺🇸🇺🇦🇺🇸🇮🇱 🇺🇸🇨🇦#HamasIsISIS 🇺🇸 #fellatraveler #fuckputin

I love animals. Love my grandchildren even more. Love reading I’m a bookworm. Hunting fishing God’s country. I don’t accept DM’s.

Pam Banks(Country gir... @pamandrob25

28 Followers 126 Following I love animals. Love my grandchildren even more. Love reading I’m a bookworm. Hunting fishing God’s country. I don’t accept DM’s.

Reclaiming Our Health @figuringitout97

682 Followers 3K Following

Founder and CEO of RESET TMJ® and Kinergetics Kinesiology®. Established since 1991.

Philip Rafferty @PhilipRafferty5

6K Followers 7K Following Founder and CEO of RESET TMJ® and Kinergetics Kinesiology®. Established since 1991.

Caregiver for very severe ME/CFS son, advocate and fundraiser for End ME/CFS PROJECT at OMF and CFSRC at Stanford. The rest of my life is on hold...

Janet Dafoe @JanetDafoe

16K Followers 225 Following Caregiver for very severe ME/CFS son, advocate and fundraiser for End ME/CFS PROJECT at OMF and CFSRC at Stanford. The rest of my life is on hold...

M.E. inactivist; person-centred counsellor (currently not practicing); recovering poet (Rack & Waterloo Press)

Dan Wyke 🦠➡️�... @Dan_Wyke

13K Followers 5K Following M.E. inactivist; person-centred counsellor (currently not practicing); recovering poet (Rack & Waterloo Press)

30y/o creative, with complex health issues🤞🏼ME/CFS biomedical research. Passion for the wild, for kindness, and helping all people have a voice. Co-author✨

Lizzy H @hopefullizzy

7K Followers 3K Following 30y/o creative, with complex health issues🤞🏼ME/CFS biomedical research. Passion for the wild, for kindness, and helping all people have a voice. Co-author✨

With ME 36 years (31 yrs severe). 95% of posts on #MEcfs/#LongCovid/#chronicillness. 26 publications in peer-reviewed journals. @IrishMECFSAssoc trustee 28 yrs

Tom Kindlon @TomKindlon

15K Followers 622 Following With ME 36 years (31 yrs severe). 95% of posts on #MEcfs/#LongCovid/#chronicillness. 26 publications in peer-reviewed journals. @IrishMECFSAssoc trustee 28 yrs

I used to post news and interesting information on ME/CFS but have retired to focus on other things.

ME/CFS News @MECFSNews

14K Followers 687 Following I used to post news and interesting information on ME/CFS but have retired to focus on other things.

Severe ME patient currently on a 10% battery, the gas goes out more than I do. I also compile ME/CFS Awareness videos.

Adam @ABrokenBattery

8K Followers 1K Following Severe ME patient currently on a 10% battery, the gas goes out more than I do. I also compile ME/CFS Awareness videos.

I tasted chronic illness in the form of Long Covid. It tasted horrible. But I was lucky & improved over 4 years. Now I’m here for those still struggling

John K @j_b_kennedy

17K Followers 6K Following I tasted chronic illness in the form of Long Covid. It tasted horrible. But I was lucky & improved over 4 years. Now I’m here for those still struggling

Advocate & sharer of bio research for INFECTION ASSOCIATED CHRONIC DISEASES inc MECFS, Long COVID, MCAS, Dysautonomia, Vaccine injuries, FMS, Sjogrens & Lyme 🔬

Wading through treacl... @kimisgubbed

3K Followers 3K Following Advocate & sharer of bio research for INFECTION ASSOCIATED CHRONIC DISEASES inc MECFS, Long COVID, MCAS, Dysautonomia, Vaccine injuries, FMS, Sjogrens & Lyme 🔬

#MECFS-activist⎮#Lawyer by profession: Legal consulting for digital creators and influencers | #Musician by passion

Martin @pausedME

8K Followers 494 Following #MECFS-activist⎮#Lawyer by profession: Legal consulting for digital creators and influencers | #Musician by passion

Former professional ballet dancer | Bed-bound M.E. patient | Using ✖️ to raise awareness for #MyalgicE | #IACI

#art2cureME #pwme #millionsmissing

Anil van der Zee © @AnilvanderZee

10K Followers 865 Following Former professional ballet dancer | Bed-bound M.E. patient | Using ✖️ to raise awareness for #MyalgicE | #IACI #art2cureME #pwme #millionsmissing

CFS(!) & POTS diagnosis, ME symptoms - trying to accept. Still me. Sense of humour intact. Proud “Anti-Recovery Activist” On justjo@bskysocial if X goes tu

Jo @cfs_jo

4K Followers 2K Following CFS(!) & POTS diagnosis, ME symptoms - trying to accept. Still me. Sense of humour intact. Proud “Anti-Recovery Activist” On justjo@bskysocial if X goes tu

Myalgic Encephalomyelitis ME + POTS 39 yrs
Donor to @mecfsbiobank for 10 years & @DecodeMEstudy
Please watch https://t.co/pUUJO34e5k
#pwME

Katy B @KatyBruce108

6K Followers 6K Following Myalgic Encephalomyelitis ME + POTS 39 yrs Donor to @mecfsbiobank for 10 years & @DecodeMEstudy Please watch https://t.co/pUUJO34e5k #pwME

💙Art, Nature, Books, Some Music. Severe ME 32 years. Daughter severe 38 years. Furious about treatment of ME. https://t.co/gEIrl86Wim

Carole Bruce @CaroleBruce17

7K Followers 5K Following 💙Art, Nature, Books, Some Music. Severe ME 32 years. Daughter severe 38 years. Furious about treatment of ME. https://t.co/gEIrl86Wim

Lung Dr on pause since Nov 20 #LongCovid #POTS #MCAS #HSD #pwME #Aotearoa Views my own; Retweets≠endorsements #freepalestine #TeamClots ZIONISTS WILL BE BLOCKED

Dr Asad Khan FRCP FRA... @doctorasadkhan

27K Followers 3K Following Lung Dr on pause since Nov 20 #LongCovid #POTS #MCAS #HSD #pwME #Aotearoa Views my own; Retweets≠endorsements #freepalestine #TeamClots ZIONISTS WILL BE BLOCKED

Curious & exhausted peace seeker, co-host of @pempodcast23, photographer and blogger. PwME, sidelined social worker, grief dealer, joy peddler, SAFC fan, He/Him

Daniel Moore @Talmandaniel

5K Followers 4K Following Curious & exhausted peace seeker, co-host of @pempodcast23, photographer and blogger. PwME, sidelined social worker, grief dealer, joy peddler, SAFC fan, He/Him

Wife. Mother. Dog mom. Chronic illness advocate. 🥄♥️ #hEDS, #MCAS, #POTS, #foodallergies, #cornallergy, etc.

Candace D. @DiaryofaSickGrl

16K Followers 2K Following Wife. Mother. Dog mom. Chronic illness advocate. 🥄♥️ #hEDS, #MCAS, #POTS, #foodallergies, #cornallergy, etc.

I'm Beth, embroidery, craft & art are my buzz. Politically adrift #pwme #disabled insta: thecraftymissb

Crafty Miss @CraftyMissB

6K Followers 3K Following I'm Beth, embroidery, craft & art are my buzz. Politically adrift #pwme #disabled insta: thecraftymissb

Ph.D. in physics, also interested in mathematics and science theory. Loves to apply general knowledge of science to other fields, for example ME/CFS.

Sten Helmfrid 🇺�... @StenHelmfrid

7K Followers 190 Following Ph.D. in physics, also interested in mathematics and science theory. Loves to apply general knowledge of science to other fields, for example ME/CFS.

Founder - Renegade Research @renegaderes - RemissionBiome @remissionbiome

Tess Falor, Ph.D. | R... @tessfalor

9K Followers 6K Following Founder - Renegade Research @renegaderes - RemissionBiome @remissionbiome

Chronic Illness Researcher. Science of #MECFS #LongCovid #POTS #EDS #MCAS CCI SFN Lyme etc & How They Connect🕵🏻‍♀️Scientist/Advocate Be_Kinder@disabled.social

Bea is Chronically Pe... @Be_Kinderr

10K Followers 3K Following Chronic Illness Researcher. Science of #MECFS #LongCovid #POTS #EDS #MCAS CCI SFN Lyme etc & How They Connect🕵🏻‍♀️Scientist/Advocate [email protected]

Mum to a trans daughter 🏳️‍⚧️ who loves the natural world.🌿Degrees in Hist/Phil & Counselling/Psychotherapy. Unwell since 2007, worse 2016/17. Improved.🌼

Tracey Burgess @TraceyABurgess

3K Followers 4K Following Mum to a trans daughter 🏳️‍⚧️ who loves the natural world.🌿Degrees in Hist/Phil & Counselling/Psychotherapy. Unwell since 2007, worse 2016/17. Improved.🌼

Creating a team of a million people who are willing to fight for the NHS and its staff at this challenging time. Here to highlight key issues and boost morale.

NHS Million @NHSMillion

754K Followers 13K Following Creating a team of a million people who are willing to fight for the NHS and its staff at this challenging time. Here to highlight key issues and boost morale.

Rt Hon Sir Sajid Javid | Partner, Centricus Partners | Chair, Holocaust Memorial Day Trust | Former Chancellor of the Exchequer

Sajid Javid @sajidjavid

295K Followers 1K Following Rt Hon Sir Sajid Javid | Partner, Centricus Partners | Chair, Holocaust Memorial Day Trust | Former Chancellor of the Exchequer

Battling chronic Lyme & Co, POTS, Gastroparesis, full body Small Fibre Neuropathy, MCAS and more...
currently bedbound 🛌 🙏🏻🌊

Spoonie Sophia 🌈 @spooniesophia

2K Followers 502 Following Battling chronic Lyme & Co, POTS, Gastroparesis, full body Small Fibre Neuropathy, MCAS and more... currently bedbound 🛌 🙏🏻🌊

Led by patients, carers & clinicians, the ME/CFS Priority Setting Partnership will identify the top 10 research priorities to influence future research funding.

ME/CFS Priority Setti... @PSPforMECFS

990 Followers 78 Following Led by patients, carers & clinicians, the ME/CFS Priority Setting Partnership will identify the top 10 research priorities to influence future research funding.

Robert Keller @findcommground

1K Followers 1K Following

step into the daylight and let it go // safe and sound stan • Rep room 09.11.18 Auckland ♡

Amy @Bellepetitemoi

2K Followers 2K Following step into the daylight and let it go // safe and sound stan • Rep room 09.11.18 Auckland ♡

Kindred is an interactive Long COVID community offering support and research opportunities. We do care. We do listen. We are here for you.

Kindred Long COVID Su... @kindred_health

2K Followers 464 Following Kindred is an interactive Long COVID community offering support and research opportunities. We do care. We do listen. We are here for you.

https://t.co/Vyrf7yGws7
🌱#Vegan 💙Photography💙Birds💙Animals 🌱Gardening 💙#MECFS LongCovid #POTS #MCAS💙BLM💙Resist💙Equal rights💙Gun Control IFollow

ME Action Now @MEActNOW

4K Followers 6K Following https://t.co/Vyrf7yGws7 🌱#Vegan 💙Photography💙Birds💙Animals 🌱Gardening 💙#MECFS LongCovid #POTS #MCAS💙BLM💙Resist💙Equal rights💙Gun Control IFollow

If the only way the ME/CFS community can prosper is through the murder of science and truth, then I say with all my heart: let it be destroyed

Erik Johnson @erikmoldwarrior

2K Followers 625 Following If the only way the ME/CFS community can prosper is through the murder of science and truth, then I say with all my heart: let it be destroyed

Founder of About M.E. on a good day I fly my drone.➡️🧠 FND. Using Tech/Digital to help make invisible illnesses visible.

Views are my own.

Shehla Ali @ali_shehla

2K Followers 367 Following Founder of About M.E. on a good day I fly my drone.➡️🧠 FND. Using Tech/Digital to help make invisible illnesses visible. Views are my own.

ME support 15 #CFS #ME :)

Evie @supportME

78 Followers 41 Following ME support 15 #CFS #ME :)

Chronic pain patient. Multiple autoimmune diseases. Patient Advocate. Fighting the fight of my life everyday.

Angie B @quinky_dink

5K Followers 3K Following Chronic pain patient. Multiple autoimmune diseases. Patient Advocate. Fighting the fight of my life everyday.

Developer of Emerge Pacing Free App for ME/CFS and Long Covid #pwme

MattBlake27 @matt_blake27

207 Followers 781 Following Developer of Emerge Pacing Free App for ME/CFS and Long Covid #pwme

Jackson O'Neill @Jackson79594478

1 Followers 5 Following

#MECFS Seeker of silver linings. Animal & nature lover. Articles published by @themightysite @YahooNews @MSN @MetroUK. Author at @Sally_writes

Sally Clare R 🌻 @SallyClareR

2K Followers 1K Following #MECFS Seeker of silver linings. Animal & nature lover. Articles published by @themightysite @YahooNews @MSN @MetroUK. Author at @Sally_writes

#pwME (and on-hold Phd student) fighting for #MECFS awareness. Creates funny videos for #spoonies on her good days 😊 https://t.co/6oiUClnHna

🇺🇦Yules with ME... @FunWithCFS

2K Followers 730 Following #pwME (and on-hold Phd student) fighting for #MECFS awareness. Creates funny videos for #spoonies on her good days 😊 https://t.co/6oiUClnHna

Advocate with @WorldMEAlliance & @DecodeMEstudy. ME since 2013. Lover of birds, spreadsheets, and graphic design. || She/her

Sian L @SianGotME

870 Followers 823 Following Advocate with @WorldMEAlliance & @DecodeMEstudy. ME since 2013. Lover of birds, spreadsheets, and graphic design. || She/her

born in ’06 🧸
18 | 🌸
psych ☆
I only reply in dm's ...

Leonia nyxz @r_prior

5K Followers 831 Following born in ’06 🧸 18 | 🌸 psych ☆ I only reply in dm's ...

Occupational Therapist (neurorehab) on pause due to
#LongCOVID #POTS etc (March 2020). @LongCovidPhysio AHP committee
#FBLC

@OT_Skiff/Helen @OT_Skiff

3K Followers 4K Following Occupational Therapist (neurorehab) on pause due to #LongCOVID #POTS etc (March 2020). @LongCovidPhysio AHP committee #FBLC

Physician determined to mainstream ME/CFS and FM into modern science and medicine

Lucinda Bateman @LBatemanMD

6K Followers 745 Following Physician determined to mainstream ME/CFS and FM into modern science and medicine

♿️ #pwme Dying very slowly from progressive #SevereME, so mostly reposts. Positive thinking didn't heal me! Can't live til there's a cure. #MillionsMissing

ClairME @ClairME_

874 Followers 381 Following ♿️ #pwme Dying very slowly from progressive #SevereME, so mostly reposts. Positive thinking didn't heal me! Can't live til there's a cure. #MillionsMissing

I show my perspective with ME as a former artist. Disabled. Bedridden. Lost without medical help for 20 years.

Rarely active here, all energy goes to @SGME_CH

ME perspective @me_perspective

1K Followers 788 Following I show my perspective with ME as a former artist. Disabled. Bedridden. Lost without medical help for 20 years. Rarely active here, all energy goes to @SGME_CH

Neuroscience researcher @MGHMartinos / @HarvardMed and @PolyBioRF, researching #MEcfs, #LongCOVID, & #PTSD. (all opinions are my own)

Michael VanElzakker @MBVanElzakker

10K Followers 268 Following Neuroscience researcher @MGHMartinos / @HarvardMed and @PolyBioRF, researching #MEcfs, #LongCOVID, & #PTSD. (all opinions are my own)

Still suffering from #MECFS. Life still on hold.

she/her

💙 = ME/CFS solidarity

#noAfD

Petit Feu @feu_petit

1K Followers 2K Following Still suffering from #MECFS. Life still on hold. she/her 💙 = ME/CFS solidarity #noAfD

ME, FM, OH, MCAS, TMJ, OSA, DDD, TOS, hypothyroid stole too much from me. Doing everything I can to take back what's mine💪 I will do what i can to help others

Claire 🧠🔥 #pwME... @Naylor007

2K Followers 5K Following ME, FM, OH, MCAS, TMJ, OSA, DDD, TOS, hypothyroid stole too much from me. Doing everything I can to take back what's mine💪 I will do what i can to help others

Seit 2008 an #MECFS erkrankt | Team #MillionsMissing Deutschland @mmissinggermany | Team #SIGNforMECFS | @oeg_mecfs

Cʟᴀᴜᴅɪᴀ S. @claudespu

2K Followers 3K Following Seit 2008 an #MECFS erkrankt | Team #MillionsMissing Deutschland @mmissinggermany | Team #SIGNforMECFS | @oeg_mecfs

Making ME/CFS, Long Covid & associated conditions widely understood, diagnosable, & treatable. #SolveME #MECFS #LongCovid Donate @ https://t.co/P6umwzCRA4

Solve ME/CFS Initiati... @PlzSolveCFS

12K Followers 4K Following Making ME/CFS, Long Covid & associated conditions widely understood, diagnosable, & treatable. #SolveME #MECFS #LongCovid Donate @ https://t.co/P6umwzCRA4

My daughter got so ill after Glandular fever (a viral illness) she was 8 years old and very healthy and happy before. Now left with ME and POTS.

Hal Pop @HalleeTucker

517 Followers 1K Following My daughter got so ill after Glandular fever (a viral illness) she was 8 years old and very healthy and happy before. Now left with ME and POTS.

I am a Professor in the Molecular Biology and Genetics Department at Cornell University in Ithaca, NY.

Maureen Hanson @DrMaureenHanson

6K Followers 146 Following I am a Professor in the Molecular Biology and Genetics Department at Cornell University in Ithaca, NY.

The American ME and CFS Society is a national non-profit serving the needs of patients and caregivers through support, advocacy, and education. #MECFS

AMMES @AmmesAdmin

2K Followers 42 Following The American ME and CFS Society is a national non-profit serving the needs of patients and caregivers through support, advocacy, and education. #MECFS

The MEAction encyclopedia, crowd-sourcing the history, policy & science of the disease. Edit and improve an article today! @MEActNet

MEpedia @MEencyclopedia

3K Followers 717 Following The MEAction encyclopedia, crowd-sourcing the history, policy & science of the disease. Edit and improve an article today! @MEActNet

Establishing and developing the foundations of the UK/European Centre of Excellence for ME which would bring discovery, knowledge, & effective treatments for ME

UK/European Centre of... @CofEforME

638 Followers 193 Following Establishing and developing the foundations of the UK/European Centre of Excellence for ME which would bring discovery, knowledge, & effective treatments for ME

Jo Moss. #MECFS, #Fibromyalgia and #MentalHealth campaigner. Loves #music & playing #guitar. https://t.co/EYGdMlzvSM. Blog; A Journey Through the Fog.

A Journey Through the... @JourneyFog

4K Followers 2K Following Jo Moss. #MECFS, #Fibromyalgia and #MentalHealth campaigner. Loves #music & playing #guitar. https://t.co/EYGdMlzvSM. Blog; A Journey Through the Fog.

Cognitive Neurologist/Neuroscientist @MayoClinic. @AANMember. Grad @IUMedSchool/@NotreDame. Go @UNC_Basketball/@RogerFederer. Tweets my own.

Vijay Ramanan, MD PhD @vijaykramanan

752 Followers 681 Following Cognitive Neurologist/Neuroscientist @MayoClinic. @AANMember. Grad @IUMedSchool/@NotreDame. Go @UNC_Basketball/@RogerFederer. Tweets my own.

Autoimmune Neurologist at Mayo Clinic| Personal account

ANASTASIA ZEKERIDOU @ANASTASIA_ZEK

767 Followers 319 Following Autoimmune Neurologist at Mayo Clinic| Personal account

Assistant Professor of Neurology, University of Udine @uniud. Former Research Fellow @LyonPNS_AE and @Stanford_Neuro. Autoimmune Neurology and Epilepsy.

Alberto Vogrig @Vogrig_Alberto

1K Followers 830 Following Assistant Professor of Neurology, University of Udine @uniud. Former Research Fellow @LyonPNS_AE and @Stanford_Neuro. Autoimmune Neurology and Epilepsy.

I wish I could find a good book to live in. She/her

Angie Glaser @winedarkme

4K Followers 4K Following I wish I could find a good book to live in. She/her

Al (she/her) • Disabled & Chronically Ill • Creator, Writer, Advocate • All Tweets are my own • Chatting about my experiences as a disabled person • Links ⤵️

Al | A Spoonful of Pa... @aspoonfulofpain

1K Followers 249 Following Al (she/her) • Disabled & Chronically Ill • Creator, Writer, Advocate • All Tweets are my own • Chatting about my experiences as a disabled person • Links ⤵️

A mixture of stuff
#MECFS #LongCovid #frailty #mtb #cycling

#feelthefearanddoitanyway
co-founder @PhysiosForME
Views are all my own

Dr Michelle Bull 💙 @MichelleBull4

3K Followers 3K Following A mixture of stuff #MECFS #LongCovid #frailty #mtb #cycling #feelthefearanddoitanyway co-founder @PhysiosForME Views are all my own

Neurological physiotherapist with https://t.co/3BfNtxTDCW / Co-founder @PhysiosForME / Research Assistant and PHD student at Liverpool University

KarenLesliePhysio @karenphysiocouk

5K Followers 1K Following Neurological physiotherapist with https://t.co/3BfNtxTDCW / Co-founder @PhysiosForME / Research Assistant and PHD student at Liverpool University

Fundraising for @Invest_in_ME charity Centre of Excellence @CofEforME programme of biomedical research and medical education for M.E. #MyalgicEncephalomyelitis

Let's Do It for ME! @LetsDoIt4ME

5K Followers 3K Following Fundraising for @Invest_in_ME charity Centre of Excellence @CofEforME programme of biomedical research and medical education for M.E. #MyalgicEncephalomyelitis

Sick and Sad but trying my best. Secret nerd. Pop Punk lover. ✨🤘🏻#FoodAllergies | #EoE | #ChronicMono. She/Her

Kristina @WanderingBurd

148 Followers 26 Following Sick and Sad but trying my best. Secret nerd. Pop Punk lover. ✨🤘🏻#FoodAllergies | #EoE | #ChronicMono. She/Her

CFS/ME since 1991. Bedbound 14 years. Now walking and talking again. Website on healing within and beyond illness #CFSME #healing

HealingCFSME @HealingCFSME

3K Followers 3K Following CFS/ME since 1991. Bedbound 14 years. Now walking and talking again. Website on healing within and beyond illness #CFSME #healing

Autoimmune Encephalitis Family-Patient Centered support/education focused 501(c)3 Non-profit. Assists from accurate Dx ,Tx for best outcomes to recovery

International Autoimm... @ae_society

2K Followers 3K Following Autoimmune Encephalitis Family-Patient Centered support/education focused 501(c)3 Non-profit. Assists from accurate Dx ,Tx for best outcomes to recovery

Ex researcher (PhD) & artist, very severe #MECFS. Co-founder of https://t.co/VPjgomJIFA #CSFleak #MCAS #PostVAC #queer https://t.co/LWMqGMe7L9

Judith @judyintheskynet

2K Followers 923 Following Ex researcher (PhD) & artist, very severe #MECFS. Co-founder of https://t.co/VPjgomJIFA #CSFleak #MCAS #PostVAC #queer https://t.co/LWMqGMe7L9

A global resource for people affected directly or indirectly by encephalitis, an inflammation of the brain. e: comms@encephalitis.info t: +44(0)1653 692583

Encephalitis Internat... @encephalitis

7K Followers 3K Following A global resource for people affected directly or indirectly by encephalitis, an inflammation of the brain. e: [email protected] t: +44(0)1653 692583

A website on severe ME, created by Naomi Whittingham

A Life Hidden @ALifeHidden

484 Followers 105 Following A website on severe ME, created by Naomi Whittingham

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