And yet, the world never stops turning. We're still expected to pay bills, feed ourselves, deal with gruelling disability benefit applications/assessments, get to the doctors, make up meds boxes. But with what energy?!
#CFSME #MECFS #MyalgicEncephalomyelitis#CFS#ME#Spoonie
After being ill for so many years, I'm struggling to hold onto hope that I'll recover (or at least improve in some way). I've tried almost *everything*. Endless tests, research, supplements. But I'm not getting better. In fact I've declined 😔
#CFSME #MECFS #CFS#ME#Spoonie
I'm really struggling to feel festive this year. I normally love the run-up to Christmas (the actual few days around it not so much, as I always over-exert & end up broken). But I'm just sad & frustrated this year.
#CFSME #MECFS #MyalgicEncephalomyelitis#CFS#ME#Spoonie
I have two people I can rely on for help, as I'm mostly bedbound. One is getting older, and the other is often unwell & struggling more to take care of me. It's terrifying! I really worry about the future...
#CFSME #MECFS #ME#CFS#MyalgicE#Spoonie#ChronicIllness
My usual cycle is that I cope with #CFSME really well for 3 months or so, then everything gets too much and I reach mental & physical breaking point. I won't end my life, but I won't lie, I'm sometimes suicidal. There's only so much a human can take!
#ME#CFS#MyalgicE#spoonie
I'm feeling pretty depressed, but I'm safe. I just need an outlet for my pain. I've had a year of counselling, which was great but I'm not currently well enough to go back to it. #CFSME irony: not well enough to access the help we need!
#MECFS #ME#CFS#Spoonie
I started this account to give me an outlet. I'm really fucking ill with #CFSME & various other chronic illnesses, and sometimes I reach breaking point. I don't want to keep burdening loved ones, but I need an outlet. Welcome to my outlet!
#MyalgicEncephalomyelitis#CFS#ME
3K Followers 4K FollowingThe voice for Long Covid in Ireland. An advocacy group comprised of Long Covid patients fighting for awareness of LC & adequate services in Ire for all patients
1K Followers 1K FollowingLife stolen by Myalgic Encephalomyelitis. Waiting to be rescued by science. Science waiting to be funded by governments. #MECFS
3K Followers 3K FollowingCFS/ME since 1991. Bedbound 14 years. Now walking and talking again. Website on healing within and beyond illness #CFSME #healing
1K Followers 1K FollowingFocuses on Irish news on #MyalgicE/#ChronicFatigueSyndrome, #LongCovid or related (+ some personal news). #MEcfs #LC. Main (international) account: @TomKindlon
396 Followers 640 Following15 years criminally neglected post-viral MEcfs like Long Covid. 🤕 $998 SSI/mo, only after 9 years unable to work! Denied SSDI 3X!
310K Followers 7K Following#SophieFromRomania book out now! https://t.co/UPEvwIY2rx Movers and Shakers podcast Ruskin Park out in paperback https://t.co/Voo7uXA2IM
3K Followers 4K FollowingThe voice for Long Covid in Ireland. An advocacy group comprised of Long Covid patients fighting for awareness of LC & adequate services in Ire for all patients
1K Followers 1K FollowingFocuses on Irish news on #MyalgicE/#ChronicFatigueSyndrome, #LongCovid or related (+ some personal news). #MEcfs #LC. Main (international) account: @TomKindlon
3K Followers 3K FollowingCFS/ME since 1991. Bedbound 14 years. Now walking and talking again. Website on healing within and beyond illness #CFSME #healing
141 Followers 51 FollowingME is mystery to medical science yet.Living life full is an unachievable dream. I tweet to share my exp. & to urge for honest research to find cure for ME.
1K Followers 298 Following26, world champion gymnast turned sick person w/ #MyalgicEncephalomyelitis. The account where I accept it + vent, thank you for listening 😇 #mecfs #pwme
1K Followers 1K FollowingI have had Myalgic Encephalomyelitis since 1995. I'm kind-hearted and witty. I have a serious and understanding nature. Studied Anatomy/Physiology/Medicine.
7K Followers 7K FollowingUK artist listed in Who's Who In Art. Disabled with #MyalgicEncephalomyelitis Missing from my life since 2001 #MillionsMissing #NativeAmericanCivilRights #MMIW
738 Followers 914 FollowingMyalgic Encephalomyelitis advocate @meactnet| Violet on #RatQueens on @hyper_rpg|Performer @RipleyImprov and @Wishbonetheatre| generally happy to be here
797 Followers 415 FollowingSevere Myalgic Encephalomyelitis | Dysautonomia | MCAS | Trying to navigate chronic illness with perseverance, an open heart, and a dose of humor 🐳
795 Followers 596 FollowingLife With Severe Myalgic Encephalomyelitis: A bed-lyin', pill-poppin', muscle-wastin' good time. #pwME #ADHD #neurospicy #POTS #MCS #MCAS
1K Followers 1K FollowingLife stolen by Myalgic Encephalomyelitis. Waiting to be rescued by science. Science waiting to be funded by governments. #MECFS
831 Followers 603 FollowingDisabled Artist. You can find me on IG, FB, BSky & TT (all @serensketches). Art is available to buy on Redbubble & Etsy. (she/her)
2K Followers 1K FollowingJust a girl raising awareness for the neuro-immune disease Myalgic Encephalomyelitis. ME is not fatigue, it's Post Exertional Malaise!
3K Followers 785 FollowingIndependent researcher living with myalgic encephalomyelitis (ME) since 1981. Barrister (ret'd) #TMTlaw Visiting scholar @QMUL Blog https://t.co/HWItDyrb9H
1K Followers 290 FollowingBeen blogging on ME (myalgic encephalomyelitis), aka CFS (chronic fatigue syndrome). Now here’s #Longcovid . Best to sort your problems before another arrives.
6K Followers 4K FollowingA community for people with Myalgic Encephalomyelitis & related conditions. Fibromyalgia, Long Covid, Dysautonomia, EDS & MCAS all welcome!
84 Followers 99 Following10 years after diagnosis, 🤹♀️ busy life successfully, last year my life came to a🛑 I had to give up work study and more, and now I live with this new normal.
603 Followers 617 FollowingDie Diagnose die nicht genannt werden darf #MECFS #wirsindmehr #wirsindbunt #fckNZS #niewiederunsichtbar #wirfordernforschung
65 Followers 24 FollowingThrough my tweets I aim to inform people around the world about the devestating physiological symptoms of M.E. (Myalgic Encephalomyelitis).
396 Followers 640 Following15 years criminally neglected post-viral MEcfs like Long Covid. 🤕 $998 SSI/mo, only after 9 years unable to work! Denied SSDI 3X!
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