Exercise is not treatment for ME @MECFS5
ME sufferer for over 30 years as a result of guillain barre syndrome. #millionsmissing Joined October 2019-
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People also recovered from depression and other mental illnesses by having teeth pulled out 🙈 My God.
People also recovered from depression and other mental illnesses by having teeth pulled out 🙈 My God.
Mine were abnormal. But "nothing to worry about". 🙈
Mine were abnormal. But "nothing to worry about". 🙈
Bale needs to get a few games and goals. Looks off the pace and not giving enough movement off the ball. It's a shame that spurs as a team are playing so negatively, he needs a few games for a team that are high and flying to get his confidence back.
#MECFS #pwME share, fill in. Lets make this happen. gmc-uk.org/about/get-invo…
#MECFS #pwME share, fill in. Lets make this happen. gmc-uk.org/about/get-invo…
Exercise is not treatment for ME retweeted
Proponents of the #LightningProcess and positive thinking are starting to sound like prosperity theologians from the 1980s and 1990s. Only the deserving ones recover; and if you don’t recover, you are undeserving because you are not positive enough. #MECFS
Wading through treacl... @kimisgubbed
3K Followers 3K Following Advocate & sharer of bio research for INFECTION ASSOCIATED CHRONIC DISEASES inc MECFS, Long COVID, MCAS, Dysautonomia, Vaccine injuries, FMS, Sjogrens & Lyme 🔬
Anil van der Zee © @AnilvanderZee
10K Followers 865 Following Former professional ballet dancer | Bed-bound M.E. patient | Using ✖️ to raise awareness for #MyalgicE | #IACI #art2cureME #pwme #millionsmissing
Dan Wyke 🦠➡️�... @Dan_Wyke
13K Followers 5K Following M.E. inactivist; person-centred counsellor (currently not practicing); recovering poet (Rack & Waterloo Press)
Katy B @KatyBruce108
6K Followers 6K Following Myalgic Encephalomyelitis ME + POTS 39 yrs Donor to @mecfsbiobank for 10 years & @DecodeMEstudy Please watch https://t.co/pUUJO34e5k #pwME
Carole Bruce @CaroleBruce17
7K Followers 5K Following 💙Art, Nature, Books, Some Music. Severe ME 32 years. Daughter severe 38 years. Furious about treatment of ME. https://t.co/gEIrl86Wim
Martin @pausedME
8K Followers 494 Following #MECFS-activist⎮#Lawyer by profession: Legal consulting for digital creators and influencers | #Musician by passion
Daniel Moore @Talmandaniel
5K Followers 4K Following Curious & exhausted peace seeker, co-host of @pempodcast23, photographer and blogger. PwME, sidelined social worker, grief dealer, joy peddler, SAFC fan, He/Him
Sabrina Poirier (On H... @Sabrina_Poirier
6K Followers 6K Following Community Builder / Passionate Collaborator / Chair - #MedicalEducation Group / #ResearchPartner / #MECFS #LongCovid Advocate / #PwME / #MCAS / #POTS / #Fibro
Phoenix Rising @aboutmecfs
6K Followers 4K Following A community for people with Myalgic Encephalomyelitis & related conditions. Fibromyalgia, Long Covid, Dysautonomia, EDS & MCAS all welcome!
PolyBio @polybioRF
13K Followers 2K Following 501(c)3 transforming how #LongCovid, #ME/CFS & Lyme+ are studied, diagnosed, and treated. Leading the #LongCovid Research Consortium.
Illustrator Interrupt... @FranceyME
3K Followers 2K Following https://t.co/jrET531Men illustrator, writer, photographer. Career interrupted indefinitely by myalgic encephalomyelitis #MECFS @franceyme.bsky.social
Dr. Daniel Loy @loy_daniel_de
6K Followers 1K Following Ehemann, Jurist. #MECFS. Team #SIGNforMECFS. Team #GOfundMECFS. One of the #MillionsMissing.
John Peters @johnthejack
5K Followers 5K Following Unbeliever (political & relig), Wales rugby, #c4news, porridge, #MEcfs johnthejack.peters https://t.co/DO2RA0zRnE
KT King @KTKINGbooks
2K Followers 3K Following Author of Little Eden novels📚💎awakener🗝 🌏inspirational 😇🤗enlightenment 🌈💎higherconsciousness👽😇compassion 🌈🦄ME/CFS/Fibro🙁🙏💖 RTs 👍 millionsmissing
All of them snollygos... @OnlyEnnui
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Rachel ♿ 🌍 🇪�... @ChasingGlimmers
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Physical Activity Res... @PA_Researcher
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Peter Hope @IPeterHope
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Michael @steptoback
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Julie (30% Fullscript... @julie_stod4545
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KJ Cassells @lifeinacrash
713 Followers 1K Following Danced around the ME/CFS spectrum for 7 years. Here's me making sense of it - https://t.co/yrWFMjHDOF #MECFS
Claire Hirst @claire_hir24347
43 Followers 150 Following Raising awareness and charting my journey with ME/CFS
KK @KSannara
600 Followers 3K Following #ME #MECFS #LongCovid #BildungAberSicher #Petition #MECFS. ➡️https://t.co/EuFUEYyf9j ⬅️
Simmaron Research @RedefiningMECFS
4K Followers 412 Following Official Twitter account for Simmaron Research, a non-profit scientifically redefining ME/CFS. Visit our site to learn more.
holdingonME @JoannaWo4
645 Followers 880 Following 26/ i have long covid for 36 month, and now suffer from severe mecfs (bell 0-10) and pots. I prob have other issues as well but too fatigue to get tested #mecfs
ONG PEM @AsociacionPEM
2K Followers 1K Following Asociación de Personas con Encefalomielitis Miálgica (PEM) Spain #EncefalomielitisMiálgica #MyalgicEncephalomyelitis #TestimoniosPEM #pwME [email protected]
Pathize Health @pathizehealth
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CranioCervicalInstabi... @CranioUnstable
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Project DIYA @ProjectDIYAapp
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LongCOVID Patients Mi... @pwlcMichigan
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Reca @RecaRecaps
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Long Covid Advocacy I... @LCAIreland
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Steven Krivolavek @drstevek
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Justice is like air @JusticeIsAir
180 Followers 1K Following Justice is like air; without it we cannot survive; We’re suffocating from lack of Justice! #DisabilityJustice #pots #ptsd #depression #migraines #mecfs etc
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Long Covid ME/CFS @LCMECFS
2K Followers 2K Following Diagnosed with #MECFS, #POTS, #Dysautonomia and #Polyarteritisnodosa. #Apheresis #SteroidPulse #IVIG #Rituximab #Rozanolixizumab #BC007
RTHM @RTHM_Health
5K Followers 3K Following RTHM connects you with a digital care team specializing in Long COVID and ME/CFS that provides access to a range of therapies based on the latest research.
Jason Boyce @FatigueGone
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Emma, thechronicsurvi... @chronicsurv1vor
56K Followers 43K Following Aspiring Author ✍🏼📖 |Singer/Actress, Trainee Therapist on hold due to #MECFS ♿️ for 6 years | #POTS / #IST✨Spiritual Awakening. Lessons from the void. 💖
ME Awareness Australi... @MEAllianceAu
815 Followers 2K Following Why didn’t MECFS Vic/Emerge update 2002 Australian CFS guidelines recommending GET & CBT when they agreed to in 2014?
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Karl @karlander_
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#fundraisingBC007MEcf... @MECfsFundraiser
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57 Followers 279 Following A placeholder for when I’m feeling a little better. Essays and tweets about my experience with chronic illness. #MECFS #PwME
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Long Covid Advocacy �... @LongCovidAdvoc
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Sarah O'Connell @SarahOC_MECFS
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Jo Dixon @JoDixon05288381
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Jessica Abdo 🌻💙 @JessicaHAbdo
222 Followers 826 Following Once an active participant in life | Now I am one of the #MillionsMissing with #severeME since 2015 from #EBV
Bridie McKenna Baucum @BaucumBridie
25 Followers 183 Following Empathic savage more haunted than The Stanley wi as many varying https://t.co/Mux304d5OZ music,truecrime pods,horror & psych thrillers,anything water feeds my soul #ME #RSD
AmbrosineShitrit🇮�... @AmbrosineShitr2
3K Followers 6K Following Founder @antisemitismeye still in Music industry 1984-present,violinist,political speaker,#Zionist,#MEcfs,🐈,#Jewish,Likudnikit, #Pfizerinjured EM4965,
Chronic Illness Chann... @Chronic_Channel
1K Followers 5K Following Youtube channel covering Chronic Illness, Universal Basic Income and Air Pollution. @chronicchannel.bsky.social Threads: @chronic_channel
InjuredWorker43 @IWorker43
1K Followers 5K Following Severely injured at work my life destroyed by a corrupt system. Advocate for healthcare patients #IndividualizedCare #IPP #hEDS #CPP #EDS #IPS
Bhupesh K Prusty @BhupeshPrusty
15K Followers 66 Following A passionate molecular virologist who believe in patient oriented scientific research. Using viruses to understand human existence. Science is for society.
Wading through treacl... @kimisgubbed
3K Followers 3K Following Advocate & sharer of bio research for INFECTION ASSOCIATED CHRONIC DISEASES inc MECFS, Long COVID, MCAS, Dysautonomia, Vaccine injuries, FMS, Sjogrens & Lyme 🔬
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Tom Kindlon @TomKindlon
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Anil van der Zee © @AnilvanderZee
10K Followers 865 Following Former professional ballet dancer | Bed-bound M.E. patient | Using ✖️ to raise awareness for #MyalgicE | #IACI #art2cureME #pwme #millionsmissing
Dan Wyke 🦠➡️�... @Dan_Wyke
13K Followers 5K Following M.E. inactivist; person-centred counsellor (currently not practicing); recovering poet (Rack & Waterloo Press)
Katy B @KatyBruce108
6K Followers 6K Following Myalgic Encephalomyelitis ME + POTS 39 yrs Donor to @mecfsbiobank for 10 years & @DecodeMEstudy Please watch https://t.co/pUUJO34e5k #pwME
Adam @ABrokenBattery
8K Followers 1K Following Severe ME patient currently on a 10% battery, the gas goes out more than I do. I also compile ME/CFS Awareness videos.
Sten Helmfrid 🇺�... @StenHelmfrid
7K Followers 190 Following Ph.D. in physics, also interested in mathematics and science theory. Loves to apply general knowledge of science to other fields, for example ME/CFS.
S Blitshteyn MD, FAAN... @dysclinic
21K Followers 2K Following Neurologist, Director of #Dysautonomia Clinic, Clinical Associate Professor @Jacobs_Med_UB. Trained @MayoClinic #LongCovid #POTS #EDS, tweets🚫med advice
Whitney Dafoe @DafoeWhitney
11K Followers 72 Following Severe ME/CFS patient and advocate. Sick since 2004, bedridden since 2013. Never. Giving. Up. ✊ Useful info for ME/CFS and Long Covid patients in bio link.
Eric Topol @EricTopol
678K Followers 605 Following physician-scientist, author of SUPER AGERS https://t.co/ZEdooyyJpP and Ground Truths: https://t.co/YhatcBT0hA
Martin @pausedME
8K Followers 494 Following #MECFS-activist⎮#Lawyer by profession: Legal consulting for digital creators and influencers | #Musician by passion
Michael VanElzakker @MBVanElzakker
10K Followers 268 Following Neuroscience researcher @MGHMartinos / @HarvardMed and @PolyBioRF, researching #MEcfs, #LongCOVID, & #PTSD. (all opinions are my own)
Vlad Vexler @VladVexler
22K Followers 1K Following Philosopher - ethics, politics, music | Slowly writing a book on Isaiah Berlin | Grew up in USSR, Isr, UK. Home is London | Living with ME since 2003. | 🔗 🎥
Daniel Moore @Talmandaniel
5K Followers 4K Following Curious & exhausted peace seeker, co-host of @pempodcast23, photographer and blogger. PwME, sidelined social worker, grief dealer, joy peddler, SAFC fan, He/Him
Solve ME/CFS Initiati... @PlzSolveCFS
12K Followers 4K Following Making ME/CFS, Long Covid & associated conditions widely understood, diagnosable, & treatable. #SolveME #MECFS #LongCovid Donate @ https://t.co/P6umwzCRA4
Dr Keith Geraghty @keithgeraghty
9K Followers 507 Following Research Fellow | Primary Care, Medical & Health Psychology | People-focused, evidence-based researcher & chartered psychologist |@FBMH_UoM, @PrimaryCareMcr
Sabrina Poirier (On H... @Sabrina_Poirier
6K Followers 6K Following Community Builder / Passionate Collaborator / Chair - #MedicalEducation Group / #ResearchPartner / #MECFS #LongCovid Advocate / #PwME / #MCAS / #POTS / #Fibro
Bionic Man @fourstriper
248 Followers 3K Following Sufferer of iatrogenic Severe Myalgic Encephalomyelitis.Lover of Aviation/Aerospace.Civilian Pilot.Was chosen to be a 🇨🇦NASA Shuttle Astronaut! In bed 25 yrs!
John L Whiting @John_CFS
2K Followers 311 Following Physician, expertise in Myalgic Encephalomyelitis
Robert Saunders (aka ... @RobertHMcMullen
2K Followers 431 Following Now at @roberthmcmullen.bsky.social https://t.co/hdi3fMbIaf
Emily Chatelet Brossa... @EmilyCBrossard
310 Followers 161 Following Research Analyst, Patient Advocacy for ME/CFS and related Cluster Illnesses, Biochemistry Research, ME/CFS Protocols Project
Stegasauro Benedetti ... @StegasauroB
106 Followers 1K Following All-round nice guy. And Dinosaur. Mainly dinosaur, actually; not so much of the nice guy. Roar!
MosheArditiMD @ArditiMd
8K Followers 2K Following Prof of Pediatrics and Biomedical Sciences Cedars Sinai Medical Center. Los Angeles. Director, Division of Pediatric Infectious Diseases and Immunology
AllisonHaynesIsOnBlue... @AllisonDHaynes
815 Followers 380 Following Severe #MyalgicEncephalomyelitis since 1989. Advocate for #MyalgicE per #MEICC, Ramsay/Hyde. See https://t.co/spkz9AttU7 and/or https://t.co/2hHbNgW3ct #pwME.
Byron Hyde MD @ByronHyde6
385 Followers 16 Following
DecodeME the ME/CFS S... @DecodeMEstudy
8K Followers 674 Following The world's largest study ever into #MEcfs. #pwME #DecodeMEStudy #pwME #MillionsMissing
Darren Brown OBE @darrenabrown
9K Followers 5K Following Physiotherapist | OBE 2024 | @thecsp Fellow | @HIVandRehab Elisse Zack Award | @WorldPhysio1951 International Practice Award | @LongCOVIDPhysio past Chair | 🦋
Nicholas @Nicholas_pwme
659 Followers 1K Following 40s, Severe ME/CFS 18+yrs;95% bedbound. A dog, a yacht and a wide open space=🙂.🇬🇧♥️🇪🇺🌍🌌🦋https://t.co/yhmLaD7zU0
Frank T. Lofaro Jr. @queensnycfrank
1K Followers 3K Following QUEENS, NYC born, love music, nice weather, NYC, DC, SD & more. Big fan of Obama & the extremely BEAUTIFUL & TALENTED ♥❤Stephanie Mills❤♥! BLACK LIVES MATTER!
Athena Akrami @AthenaAkrami
8K Followers 663 Following No longer here. Follow me @athenaakrami.bsky.social on Bluesky Neuroscientist at The Sainsbury Wellcome Centre, UCL, in London.
Redfox @Redfox_indoors
202 Followers 282 Following mother of three; PhD (psychology), company leader, martial artist and musician; stopped by myalgic enzephalomyelitis
meryl griffith @meryl_mg
1K Followers 5K Following Biomedical Scientist... Transfusion Science, Haematology, Biochemistry, Microbiology. CFS patient. RRV 🦟 all things ME/CFS & Whole Genome Sequencing
Andrea Joliat @AndreaJoliat
1K Followers 1K Following Advocate for research and support for all who suffer from the neglected illness MEcfs. Including my son.
Janet Onalik 🍉 �... @Janet22onalik
334 Followers 1K Following Nunavut. Tootoo to 7 grandkids & 1 GGD 🌎 Want to see a kinder, greener, more just world for them & the upcoming generations. ME/CFS ♿️
Slaven Jabuka @SlavenJabuka
233 Followers 726 Following #NEISvoid #PwME since 2011. Live life with kindness. G93.32 @slavenjabuka.bsky.social
Sarah Miles #stillshi... @smileszee
2K Followers 2K Following #medretiredNurse💓my #Sons #dogs #DWC #survived #STEMI #cardiacarrest @38 in #heartfailure #Diabetes #RA #Fibro etc embracing my prognosis #makingmemories #FBPE
Eva-MaRiaLa @EvaMaRiaLa1
110 Followers 216 Following house & bedbound 🛌 since my Covid19 Infection in february 2020
Dr Ellena Dee @leggyjelly
1K Followers 4K Following AHRC-funded PhD @UniofExeter on conjoined twins in literature and film. Disability studies, embodiment. Chronically ill. Poet. Nerd. Views own.
Paul McGarrigle @Future24177
1K Followers 5K Following Married dad of one. Massive Celtic and Pink Floyd fan. Fighting hard everyday against ME and depression
Happymum @Pepe74857378
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Valeska Tietze @val_140137
492 Followers 1K Following
Esther Monzó @EstherMonz2
45 Followers 190 Following Patient & investigator: ME, Fibromyalgia and MCS. Activist, interested in improving quatity of live and social help. Follower of good doctors and investigators.
Caroline Wright @caraswrong
734 Followers 2K Following #pwME, disability rights campaigner, climate crisis campaigner
Berenike van Manen @BerenikeVM
224 Followers 169 Following Used to be an actress. Now battling ME/CFS fulltime. This account is fully dedicated to raise awareness of ME/CFS and to connect with its community.
PolyBio @polybioRF
13K Followers 2K Following 501(c)3 transforming how #LongCovid, #ME/CFS & Lyme+ are studied, diagnosed, and treated. Leading the #LongCovid Research Consortium.
eliorebeyr @michelerebeyro1
214 Followers 2K Following
ᴇɴᴛᴇʀᴏᴠɪ... @MECFSisCFSnotME
569 Followers 491 Following 'EPIDEMIC M.E.' is a 'POST-INFECTIOUS ENCEPHALOMYELITIS' caused by an 'ENTEROVIRUS'. 'MYALGIC ENCEPHALOMYELITIS' causes a NEUROMUSCULAR DISEASE + MOTOR DISORDER
Helen @Helenmefibro
123 Followers 168 Following Living with ME, Fibromyalgia and Hashimtotos. Still trying to love life the best I can from my bed 😊
Pablo J. Sáez / now ... @pj_saez
3K Followers 727 Following Husband - Dad of 2 - Scientist 🇨🇱 Chilean expat / @cellcommlab / I love how cells walk & talk #CellMigration #CellComm #calciumsignaling #organelles
Daniel Irimia @D__Irimia
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Dr C @inspire_medic
69 Followers 254 Following Neuroscientist/ Next Gen GP with a passion for compassion
Mady Hornig, MA, MD @mhornig
3K Followers 3K Following Translational MD-scientist, mom, 🎶 | microbe-host interactions + 🧠 | gut-immune-🧠 axis | #ASD #ADHD #PANS MDD/bipolar MCI/AD #MECFS #LongCOVID | views mine
Emma-Louise @RumEloise
467 Followers 1K Following Bi, atheist, suffered from M.E for 20yrs now. Interested in raising awareness of the injustices surrounding M.E.
postersandme @postersandme
2K Followers 273 Following Advocacy, Art, Inspiration, reflection #MyalgicEncephalomyelitis #pwme
Anna (needs a SAFE HO... @halcionandon
3K Followers 8K Following 👉NEED SAFE HOME 🏡Inquiring mind derailed by health in hell mode #SevereME #LongCovid #Migraine #POTS #ChronicPain & more Beem: halcionandon #SaveAnna
Disability Rights @RiotMeme_GE2017
1K Followers 1K Following Tweets about Disability Rights, Ableism, Chronic Illness and Healthcare Injustice. Just an angry but informed disabled person. ✊
Lilian @Lilian47882254
311 Followers 1K Following
ME/CFS Is Valid @mecfsisvalid
64 Followers 83 Following Supporting and fighting for fair treatment towards people with ME/CFS 💙 #MECFSIsValid #MEIsValid | @taylorlillyb | Chronically ill since 2015 🌻
geoffrey keith brown @Millerswharf1
202 Followers 395 Following I have had M.E since 1988 sudden onset initially very serious for 6 months life-threatening according to Drs , improved for a while now back to severe
Michelle McParlin @MAC4U25
1K Followers 1K Following “People Problems call for People Solutions” Recovering the long tail #longcovid #countlongcovid #pwlc now also interested #MECFS #PoTs Mother, Dog lover #FBLC
Martin Arber CQSW; BA... @thearbers
78 Followers 461 Following social worker in East London for 15 years, then moved into Training and Lecturing. In 1987 had to retire due to health problems. Eventually diagnosed with ME,
Lisa 💙 @Luckylisa1978
158 Followers 548 Following
Heather @spoonie_strong7
1K Followers 3K Following Resist Facism. Support Kindness. Spread Hope. #resistance #dontobey #thinkforyourself
allyann @me_allyann
2K Followers 5K Following Living with & advocating for ME, POTS & FM, ex IT. Homebound & at times bedridden. I regularly delete tweets. @allyann.bsky.social #mecfs #pots #fm #endoTrends for United States
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