N🤗VA ME-CFS/POTS/LC/FMS etc Support Group @CFSnova
For pw/caring4 long haulers: ME/CFS/FMS; Orthostatic Intolerance, POTS; Long Covid; Chronic Lyme. VDR immunopathy. MTHFR+. MCAS. By @NovaSupport Elly Brosius. groups.io/g/CFSupport Northern Virginia, VA Joined July 2013-
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Would you rather spend more money on interventions that can totally cure (but might take years to identify) or ones that might improve quality of life right away, but don't cure?
With the Labor Day sales today, please remember to help us fund research at by using our affiliate links if there are products you already use Link to the discounts in comment
Time codes for video about Coaching and Consulting for ME/CFS & LC & comorbidities (Complex, Multi-system, Chronic Illness) by the team offering the new program.
Time codes for video about Coaching and Consulting for ME/CFS & LC & comorbidities (Complex, Multi-system, Chronic Illness) by the team offering the new program.
Exciting study being run by @MayaLongCovid!
Exciting study being run by @MayaLongCovid!
Please check out our poster from the Keystone Long COVID conference on transient remission experiences (TREs) from antibiotics with the Remission Biome protocol. Thanks to @ThosVarley for his hard work presenting both the quantitative and qualitative results.
Please check out our poster from the Keystone Long COVID conference on transient remission experiences (TREs) from antibiotics with the Remission Biome protocol. Thanks to @ThosVarley for his hard work presenting both the quantitative and qualitative results.
Have you seen our New Medical Coaching and Consulting for patients with MECFS and long covid started by @RenegadeRe Watch the recording of the info session youtu.be/r_N9apL7k1E?si… Fill out the interest form forms.gle/AQx41Y7NYWvi9V… or send questions…
Thanks so much to all #pwME who have responded to my post asking for recommendations on what to take to the hospital...just in case I need to go. @MEActNet sent me their checklist! I don't recall ever seeing this before, so sharing in case anyone else may need it! ✳️Please share!
One of my biggest concerns as an anesthesiologist is my colleagues not recognizing some of the off label uses of medications physicians and clinicians have been using on their long COVID and as an extension, post COVID vaccine patients. While this list is not comprehensive, I…
One of my biggest concerns as an anesthesiologist is my colleagues not recognizing some of the off label uses of medications physicians and clinicians have been using on their long COVID and as an extension, post COVID vaccine patients. While this list is not comprehensive, I… https://t.co/3KjKHIbGHj
There is a need. THIS is what public health looks like 🙌
Jackson Laboratory: 'Gut microbiome may predict “invisible” chronic fatigue syndrome and long COVID' “Our study achieved 90% accuracy in distinguishing individuals with chronic fatigue syndrome, which is significant..." said study author Derya Unutmaz jax.org/news-and-insig…
Do you remember when Spain was having its largest known surge in transmission of the entire pandemic? I do. Because it's today. #MaskUp
Get the details. Starts in 1 hour. Not easy to find a good team who knows ME/CFS and Long Covid (& EDS/HSD, MCAS, Lyme, + co-morbitites) who will go through your history, tests, symptoms, meds, genes... and help you understand more about what to adjust to feel a bit better.
Get the details. Starts in 1 hour. Not easy to find a good team who knows ME/CFS and Long Covid (& EDS/HSD, MCAS, Lyme, + co-morbitites) who will go through your history, tests, symptoms, meds, genes... and help you understand more about what to adjust to feel a bit better.
In 2⃣days: A 30 min zoom about NEW program for ME/CFS and/or LC patients with some of the brilliant & experienced @RenegadeRes team members. See embedded thread or my next tweet for registration link. If u want help putting history & tests together, maybe this option is for you.
In 2⃣days: A 30 min zoom about NEW program for ME/CFS and/or LC patients with some of the brilliant & experienced @RenegadeRes team members. See embedded thread or my next tweet for registration link. If u want help putting history & tests together, maybe this option is for you.
5. Also, comprehensive reports and ongoing guidance related to your individual situation, based on the biochemical pathways and identified functional needs. We are accepting 10 clients!
Announcement!! 1. Clinics are shutting down, but patients w/ MECFS & Long Covid need to regain function. Resources are decreasing, while the need grows! We are thrilled to announce the launch of a full-service coaching and consulting program tailored for patients with ME/LC
Four Days Left to Submit Art for Severe ME Artists Project– deadline is July 24th! Details: meaction.net/2025/07/10/sev… We have had a wonderful response so far and can’t wait to see what comes in during these next few days! #SevereME #SevereMEDay #pwME #art
Infection with SARS-CoV-2 during the first year of the pandemic was associated with three to five times higher odds of cognitive impairment 2 years after infection. nature.com/articles/s4159…
#TheAcidTest2? People with Long COVID and ME/CFS, would you want to participate in a study using continuous lactate monitors? The monitor would be similar to the CGMs available now & would be provided free. It would require daily symptom tracking & wearing the sensor for 30…

Tom Kindlon @TomKindlon
15K Followers 622 Following With ME 36 years (31 yrs severe). 95% of posts on #MEcfs/#LongCovid/#chronicillness. 26 publications in peer-reviewed journals. @IrishMECFSAssoc trustee 28 yrs
John K @j_b_kennedy
17K Followers 6K Following I tasted chronic illness in the form of Long Covid. It tasted horrible. But I was lucky & improved over 4 years. Now I’m here for those still struggling
Tess Falor, Ph.D. | R... @tessfalor
9K Followers 6K Following Founder - Renegade Research @renegaderes - RemissionBiome @remissionbiome
#MEAction Network @MEActNet
19K Followers 3K Following A global network fighting for equality for Myalgic Encephalomyelitis. #MEAction #MillionsMissing https://t.co/JhhNZoFYJi
Open Medicine Foundat... @OpenMedF
14K Followers 1K Following OMF is fundraising to support open, collaborative research to find effective treatments and diagnostic markers for ME/CFS, Long COVID, and related diseases.
Sibylle Dahrendorf �... @sibylle_berlin
7K Followers 3K Following Ex- Filmmaker || Stop denial of #ComplexChronicIllness || #SmallFiber #POTS #MCAS #CCI #Lyme #FQToxicity #FlagylToxicity #hEDS #ME ||
Rivka @Rivkatweets
4K Followers 2K Following Activist/Organizer: ChronicIllness, disability, ME/CFS, Lyme, LongCovid, women | Writer: WashPost, MarieClaire, NPR, Ms, Newsweek | Playwright: Many productions
Bateman Horne Center @BatemanHorne
7K Followers 1K Following Bateman Horne Center is a non-profit medical, research, and education center devoted to eradicating ME/CFS, FM, Long COVID, and related conditions.
Martin @pausedME
8K Followers 494 Following #MECFS-activist⎮#Lawyer by profession: Legal consulting for digital creators and influencers | #Musician by passion
Cynthia Johnson @MineToDo
449 Followers 2K Following Storyteller. Advocate. Stand By ME/CFS! #StandByMEcfs #StillSickStillFighting #MEcfs since 2009
Carole Bruce @CaroleBruce17
7K Followers 5K Following 💙Art, Nature, Books, Some Music. Severe ME 32 years. Daughter severe 38 years. Furious about treatment of ME. https://t.co/gEIrl86Wim
Prof Doug Kell CBE #F... @dbkell
14K Followers 10K Following I tweet in a personal capacity. ENTJ. CBE. Against brexit/Govt lies. #FBPE https://t.co/Z2XFPIxkfi https://t.co/F5o0wIMw1H. Nothing I say is medical advice
Vijay Iyer PhD @vijayiyer312
4K Followers 2K Following Patient advocating science for #mecfs & #dysautonomia (incl via #longcovid & #postvac).👷🏾♂️Support #neuroscience users & use cases of @MATLAB. Tweets my own.
Sarah O'Connell @SarahOC_MECFS
4K Followers 5K Following #pwME patient 12 yrs & mum of 2 with ME, #LongCovid & PANS • ME & LC Advocate • Co-Founder LCAI • Women's Health; Endometriosis,PMDD • Sci-fi & movie lover
Sabrina Poirier (On H... @Sabrina_Poirier
6K Followers 6K Following Community Builder / Passionate Collaborator / Chair - #MedicalEducation Group / #ResearchPartner / #MECFS #LongCovid Advocate / #PwME / #MCAS / #POTS / #Fibro
Cynthia Adinig @CynthiaAdinig
2K Followers 700 Following Patient Advocate & Equity Policy Advisor Co-founder BIPOC Equity Agency #LongCovid #MECFS #MCAS #EDS #POTS
Jo @cfs_jo
4K Followers 2K Following CFS(!) & POTS diagnosis, ME symptoms - trying to accept. Still me. Sense of humour intact. Proud “Anti-Recovery Activist” On justjo@bskysocial if X goes tu
Jeffrey Lubell (EDS, ... @JeffLubell_C19
3K Followers 542 Following I am exploring treatments for my daughter's EDS & ME/CFS & implications for people with #EDS, #MECFS, and #LongCOVID. Not an MD or professional scientist.
Suzaku has Long Covid... @Suzaku_is_tired
1K Followers 2K Following Long Covid / MECFS patient since March 2021 • 🇪🇦🇨🇵🇬🇧 •
Sramej @Sramej5775568
25 Followers 748 Following
Fuidie @Fuidie6817637
12 Followers 1K Following
Rauuhlu @Rauuhlu86255
20 Followers 2K Following
Ogaxus @Ogaxus7732788
25 Followers 2K Following
Amberlee @Amberleywave
254 Followers 370 Following Human Mom. Reposts are my saves. Positive energy is contagious. God wins. 🌟
Lumia @wearlumia
1K Followers 462 Following What You Feel Is Real. Track Blood Flow to Your Head with the New Wearable for #POTS, #Syncope, #Dysautonomia, #OrthostaticHypotension and more
Ypeagu @Ypeagu9017445
21 Followers 1K Following
MysticWanderer @Awharroo935953
6 Followers 116 Following
Doretorn @Doretornk85y0c
63 Followers 2K Following
Cal @tweetercal
2K Followers 5K Following Post Epstein-Barr ME 41 years of rotting RA HD 3 Heart Attacks 5 Stent Post Lymes & Fibro Professional Flaneur of 30yrs.Medically Retired #TwitchAffiliate #Indy
Gesmeighsh @GesmeighshgGx
43 Followers 895 Following
Seth roshto @RoshtoSeth87714
50 Followers 188 Following
Vthough @VthoughIgFMx
48 Followers 4K Following
MignonBryce @9Re048RB6fmy7z
78 Followers 7K Following
Reetaret @ReetaretC35DC
43 Followers 4K Following
Thomas @t_rasegfar3101
27 Followers 845 Following Quit Smoking Aid: Nicotine pouches are an effective tool for quitting smoking, helping users gradually reduce their dependency on cigarettes.WhatsApp:852-905681
NilsKraabe @NKraabe
11 Followers 273 Following
TobeyPriestley @7dIs0N17OATD5B
60 Followers 7K Following
Text2MD @Text2MD
290 Followers 285 Following Telemedicine practice focused on personalized medical care with Evidence based medical treatments. Affordable consultations starting at $35
Sheighez @SheighezIHnvC
44 Followers 4K Following
Monique Muller @miekmuller
6 Followers 257 Following
Ursula Hehir @UrsulaHehir1
8 Followers 120 Following
Rita Greenway @GreenwayRita
128 Followers 1K Following
fhronesis @fhronesis
499 Followers 3K Following #ME #EM😶🌫️🐚🐌 #KeepMasksInHealthcare Sujet manquant EM = Encéphalomyélite Myalgique PEM/MPE= Malaise Post-effort #SevereME
@LongHaulerBear.bsky.... @LongHaulerBear
1K Followers 295 Following 50, Covid Long Hauler since 2020. I mostly post about Covid, Long Covid, ME/CFS, gut microbiome, scientific research.
Andrea Joliat @AndreaJoliat
1K Followers 1K Following Advocate for research and support for all who suffer from the neglected illness MEcfs. Including my son.
sid @swamp_goth
162 Followers 1K Following they/it / 30 / trans enby / disabled / ancom / swamp is the birthplace of life, tannic magic / 1312, terfs eat dirt, fash to ash, wear an n95
Jennifer Herrera @JenniferVotes
224 Followers 2K Following Passionate about women's history, GVP, musical theatre, and making the world a better, kinder place.
Freckled Ginger @raging__redhead
1K Followers 5K Following Fighter of chronic illness. Survivor. Working for a better life for all. My story is not yet finished ;
Bas Koelewijn @BasKoelewijn
2K Followers 5K Following Disability research, advocacy & inclusive education. Overly invested in sports and the dog 🐶. Chronically ill but definitely not lesser than. He/Him.
Lauren Ragle, PhD (Dr... @biochemliz
357 Followers 1K Following 35 . Christian . PhD Biochemist . Assist Prof @GWSMHS . Former @theNCI Postdoc . 3x Alumnae @UofMemphis . Nerd . Chronic Pain Warrior . EDS Zebra . (She/Her)
EDS Awareness @EDSawareness1
10K Followers 3K Following An online resource for the EDS and HSD community. We provide informative resources and education for patients, families and physicians.
TL Gibson @TLGibson5
351 Followers 3K Following Wife, mother, dog lover. Advocate/activist for those facing health challenges. Staunch supporter of our healthcare providers. Intolerant of intolerance.
Sarah Rice @ricecakes0913
447 Followers 3K Following My tendency to make up stories&lie compulsively for the sake of my own amusement takes up a good portion of my day -ChelseaHandler #ΦΜ #HTTR #teamrage #lacrosse
insurgent aesthetics @ProfKapadia
2K Followers 3K Following Author: INSURGENT AESTHETICS (@dukepress) | Writing: BREATHING IN THE BROWN QUEER COMMONS | Curator & Editor: @stlw2023 | art/abolition/war/empire/futurism
Pekka Puupää 🇺�... @Raichu_pokem0n
603 Followers 5K Following
BelleGrey @1lSE8WrvvvXQ7
73 Followers 6K Following
Gary Anderson @G_A_grandsong
2K Followers 7K Following #LongCovid #MECFS - Another Long Covidian pursuing science in service of the ‘heart.’ 🫶🏼🌹
Walk for M.E @Walk_4_ME
220 Followers 238 Following Official Walk for ME Twitter account. Email: [email protected] FB: https://t.co/USNrTIhlkf Instagram: @walk_for_me_
Martynas Bendorius @smtalkk
566 Followers 2K Following Co-owner of DirectAdmin, owner of MC2 Insight. NDPH and post-Lyme patient with #POTS 🦠
LongCovidPharmD @organichemusic
35K Followers 1K Following Doctor of Pharmacy. Long Covid, EBV & ME/CFS research. Here to share & learn. Tweets not medical advice. https://t.co/jqc4g8cFLa https://t.co/lKQezPwtQs
Hannah Davis @ahandvanish
56K Followers 4K Following Research, algorithmic music, machine learning, anti-bias in AI data. #LongCovid research & advocacy @patientled. DMs rarely checked
Janet Dafoe @JanetDafoe
16K Followers 225 Following Caregiver for very severe ME/CFS son, advocate and fundraiser for End ME/CFS PROJECT at OMF and CFSRC at Stanford. The rest of my life is on hold...
Bhupesh K Prusty @BhupeshPrusty
15K Followers 66 Following A passionate molecular virologist who believe in patient oriented scientific research. Using viruses to understand human existence. Science is for society.
Tom Kindlon @TomKindlon
15K Followers 622 Following With ME 36 years (31 yrs severe). 95% of posts on #MEcfs/#LongCovid/#chronicillness. 26 publications in peer-reviewed journals. @IrishMECFSAssoc trustee 28 yrs
Christoph Ströck @cstroeckw
8K Followers 603 Following Soon, people will look back in disbelief at what has happened to patients with ME/CFS | Godspeed 🙇🏼
Resia Pretorius @resiapretorius
28K Followers 259 Following Distinguished Prof: Physiological Sciences, Stellenbosch Univ, South Africa; Honorary prof: Univ of Liverpool Research: coagulation, inflammation
Wading through treacl... @kimisgubbed
3K Followers 3K Following Advocate & sharer of bio research for INFECTION ASSOCIATED CHRONIC DISEASES inc MECFS, Long COVID, MCAS, Dysautonomia, Vaccine injuries, FMS, Sjogrens & Lyme 🔬
Anil van der Zee © @AnilvanderZee
10K Followers 865 Following Former professional ballet dancer | Bed-bound M.E. patient | Using ✖️ to raise awareness for #MyalgicE | #IACI #art2cureME #pwme #millionsmissing
Tess Falor, Ph.D. | R... @tessfalor
9K Followers 6K Following Founder - Renegade Research @renegaderes - RemissionBiome @remissionbiome
Bea is Chronically Pe... @Be_Kinderr
10K Followers 3K Following Chronic Illness Researcher. Science of #MECFS #LongCovid #POTS #EDS #MCAS CCI SFN Lyme etc & How They Connect🕵🏻♀️Scientist/Advocate [email protected]
S Blitshteyn MD, FAAN... @dysclinic
21K Followers 2K Following Neurologist, Director of #Dysautonomia Clinic, Clinical Associate Professor @Jacobs_Med_UB. Trained @MayoClinic #LongCovid #POTS #EDS, tweets🚫med advice
#MEAction Network @MEActNet
19K Followers 3K Following A global network fighting for equality for Myalgic Encephalomyelitis. #MEAction #MillionsMissing https://t.co/JhhNZoFYJi
Lizzy H @hopefullizzy
7K Followers 3K Following 30y/o creative, with complex health issues🤞🏼ME/CFS biomedical research. Passion for the wild, for kindness, and helping all people have a voice. Co-author✨
Solve ME/CFS Initiati... @PlzSolveCFS
12K Followers 4K Following Making ME/CFS, Long Covid & associated conditions widely understood, diagnosable, & treatable. #SolveME #MECFS #LongCovid Donate @ https://t.co/P6umwzCRA4
ME/CFS News @MECFSNews
14K Followers 687 Following I used to post news and interesting information on ME/CFS but have retired to focus on other things.
davidtuller @davidtuller1
11K Followers 2K Following Senior Fellow in Public Health and Journalism, Center for Global Public Health, UC Berkeley. My academic position is largely funded by donations from patients.
Putrino Lab @PutrinoLab
36K Followers 399 Following We make people (and technology) better at Mount Sinai. Opinions are my own.
Whitney Dafoe @DafoeWhitney
11K Followers 72 Following Severe ME/CFS patient and advocate. Sick since 2004, bedridden since 2013. Never. Giving. Up. ✊ Useful info for ME/CFS and Long Covid patients in bio link.
RTHM @RTHM_Health
5K Followers 3K Following RTHM connects you with a digital care team specializing in Long COVID and ME/CFS that provides access to a range of therapies based on the latest research.
Suzaku has Long Covid... @Suzaku_is_tired
1K Followers 2K Following Long Covid / MECFS patient since March 2021 • 🇪🇦🇨🇵🇬🇧 •
Keystone Symposia @KeystoneSymp
15K Followers 916 Following A catalyst for accelerating life science discovery and connecting scientists within and across disciplines at symposia worldwide. RT does not imply endorsement.
Mark Cuban @mcuban
9.0M Followers 1K Following Dunking on the pharma industry with @costplusdrugs.com, the lowest prices on meds anywhere. check it out !
Harry Boby @HarryBoby4
3K Followers 30 Following Former GB Judo Athlete🇬🇧 Sharing what I learn as I recover from Long Covid/ MECFS👇
Adam 🇬🇧 ME/LC @AdamB92_
546 Followers 456 Following 33. 🏋️ turned very severe progressive LC ME/CFS + co from Covid in 2022 - 100% bedbound unable to sit, stand or walk. Bell score 0. *Rarely can reply*
Andrew Hemingway @AndrewHemingway
12K Followers 5K Following Building the DeSci Alliance for the founders, funders and friends of DeSci. Join us now! link in bio
DeSci Mic @DeSciMic
2K Followers 277 Following Doing science without permission 🧪🏴(fka banklessDeSci) A town square for scientists & builders interested in DeSci 📆 Every Wednesday 5pm UTC w/ @erinmagennis
Causality Network @CausalityNet
1K Followers 132 Following Unlocking the Creator Economy in Science with Verified Data #DeSci
Ξrin Magennis🌻 @erinmagennis
4K Followers 1K Following Don't trust, verify science @causalitynet ⋅ @MuseMatrix_ Research Institute ⋅ @DeSciMic Host • Farcaster @ erin
Lea Alhilali, MD @teachplaygrub
67K Followers 168 Following Neuroradiologist @HRInstitute_AZ. @BarrowNeuro. Striving to make learning neuroimaging and anatomy fun. If I can make you laugh, I can make you learn.
thetranscendedman @atranscendedman
7K Followers 591 Following Transparent to the transcendent. Wrote a book on Long Covid. - https://t.co/EulMyWl4cr Extraordinary claims require extraordinary evidence. - Sagan
Rebecca Ryan @DrRebeccaRyan
5K Followers 751 Following Gastroenterologist & Hepatologist. Disorders of the Gut Brain Axis. Treating Long Covid, POTS, MCAS, hEDS.
Tamara C @tamararivc
838 Followers 249 Following Published a Long Covid/ME/CFS hypothesis about Phosphatidylcholine, Insulin Signaling and Noradrenergic Dysfunction
Eidgenössische Sanit... @EidgSanPol
1K Followers 391 Following Steckt Dir den Finger in die Wunde. #Switzerlanded
Brain Inflammation Co... @BrainInflCollab
8K Followers 70 Following We are organizing a coordinated research effort to revolutionize the diagnosis and treatment of #neuroinflammation illnesses and #mentalhealth symptoms.
Brian Shuell @BShuell
611 Followers 705 Following Former software developer with myalgic encephalomyelitis, Living a limited life, missing from many places. https://t.co/XXMOOo00yd #pwme #mecfs
Kristina Osobka @ChronicallyTina
1K Followers 2K Following Founder of the ROCK ME Project. Wife, Cat mom, Author, Advocate, and medical DUMPSTER FIRE. Living life one SPOON at a time. ME is a DISEASE not a LIFESTYLE!
Andrea Joliat @AndreaJoliat
1K Followers 1K Following Advocate for research and support for all who suffer from the neglected illness MEcfs. Including my son.
Alice @Alice_mecfs
1K Followers 782 Following #MECFS for almost a decade now. Hoping to connect with others & find a way out.
Katie As @ka_ashy
1K Followers 2K Following arty activist spirit, chronically ill, lesbian, she/her. UK. #LwiththeT @pwME I still don’t feel safe with any healthcare professionals @[email protected]
Jessina Graham @PotsyNP
782 Followers 469 Following C-NP, FNP, Zoologist, EDS specialist. Right patient, right diagnosis. Dysautonomias, Endocrinology, IM, ICU, Hospice. All info is for education purposes only.
Washington Post Live @PostLive
34K Followers 862 Following Titans. Newsmakers. Game Changers. The conversations you won't hear anywhere else.
@JohnVsJonVsME @JohnVsJonVsME
534 Followers 78 Following #JohnVsJonVsME campaign to get Oliver and/or Stewart to bring the awful history of #MyalgicEncephalomyelitis #GreatestMEdicalScandal to light. Same on IG/BSky
Priya Mathew @pmathew814
3K Followers 2K Following Senior booker @nytimes | Formers: @axios @washingtonpost | Drop me a line: [email protected]
Freckled Ginger @raging__redhead
1K Followers 5K Following Fighter of chronic illness. Survivor. Working for a better life for all. My story is not yet finished ;
Virginia Department o... @VDEM
46K Followers 1K Following VDEM coordinates Virginia's emergency preparedness, response, and recovery. (Account not monitored 24/7. Please call 9-1-1 to report emergencies).
Nick #RespiratorsFilt... @NickAnderegg
7K Followers 892 Following #DevRel, Coder, Writer, Raconteur. #LongCovid ally/loudmouth. 🇺🇸in🇨🇦 he;cis;bi. Tweets: research analyses, public health, cognition, linguistics, ADHD, tech
Emmanuel @ejustin46
17K Followers 811 Following Passionate citizen of science. Living in Jakarta. More about our personal life in Indonesia on Instagram @emmanuel.0862
Erin Harten @erinheart10
111 Followers 142 Following Drexel University College of Medicine 2025 🩺, Gburg ‘20 Patient turned student doctor, pursuing career in autonomic medicine
Bas Koelewijn @BasKoelewijn
2K Followers 5K Following Disability research, advocacy & inclusive education. Overly invested in sports and the dog 🐶. Chronically ill but definitely not lesser than. He/Him.
Lauren Ragle, PhD (Dr... @biochemliz
357 Followers 1K Following 35 . Christian . PhD Biochemist . Assist Prof @GWSMHS . Former @theNCI Postdoc . 3x Alumnae @UofMemphis . Nerd . Chronic Pain Warrior . EDS Zebra . (She/Her)
EDS Awareness @EDSawareness1
10K Followers 3K Following An online resource for the EDS and HSD community. We provide informative resources and education for patients, families and physicians.
TL Gibson @TLGibson5
351 Followers 3K Following Wife, mother, dog lover. Advocate/activist for those facing health challenges. Staunch supporter of our healthcare providers. Intolerant of intolerance.
Post-Viral Trials New... @postviraltrials
4K Followers 158 Following No longer posting updates here – find me at https://t.co/jJvezA5luH
John Oliver @iamjohnoliver
5.1M Followers 142 Following Comedian. @LastWeekTonight, @TheDailyShow, The Bugle Podcast (@hellobuglers)
Jon Stewart @jonstewart
1.6M Followers 3 Following
Gary Anderson @G_A_grandsong
2K Followers 7K Following #LongCovid #MECFS - Another Long Covidian pursuing science in service of the ‘heart.’ 🫶🏼🌹
Meighan Stone | @meig... @meighanstone
7K Followers 4K Following Human rights at home & abroad ♿ Executive Director @LCCampaign. Past: President @MalalaFund, Senior Fellow @CFR_org, Fellow @Kennedy_School, @WFP & @ONECampaign
Martynas Bendorius @smtalkk
566 Followers 2K Following Co-owner of DirectAdmin, owner of MC2 Insight. NDPH and post-Lyme patient with #POTS 🦠
Simon Maechling @simonmaechling
23K Followers 2K Following PhD Organic Chemistry | Debunking myths | Science not ideology | Follow for facts! 🧪🧬 🌾 Opinions are my own.
destiny unknown @Wyndhamville
492 Followers 1K Following Held hostage by #ME 24 yrs. Very Severe, bedbound but clinging on. Aus needs updated ME Diagnostic & Treatment Guidelines now.
Madam Mitochondria @Madam_Mito
10K Followers 11K Following Obsessed with Mitochondria & Optogenetics/Anti-Aging Ringleader/Longevity Chaser/Aging is inflammation/Philosophy, Art, Music & Love make existence bearable
Andrea Fighting for #... @MECFSNanoneedle
1K Followers 3K Following Severe #MECFS Patient Bedridden. No energy to speak. #MECFSBiomarkers #RadicallyRestForMECFS The battle I choose is for ME/CFS Diagnostic Biomarkers
LongWaiter @LongWaitME
474 Followers 1K Following I'm entertained. Typos b/c of cognitive dysfunction. #MyalgicEncephalomyelitis & #POTS since 2009.
KimK ... one day at a... @TopazStudiosCOM
3K Followers 3K Following Retired 🪷 Grandmother • 3 chronic illnesses since early 2020 🥄 #longCOVID #ESKD #immunocompromised 💙 Volunteer at @renegaderes 🥩 animal-based keto