Nathan Cope @destroypattern

#longcovid since January 2023 #millionsmissing #disabled #findacure #autoimmune #research nathancope.com Boston Joined March 2012

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Nathan Cope @destroypattern

10 months ago

Hey @AskRobinhood , your automated support is atrocious. And not having a legit phone number to call in for support is even more ridiculous. Answer my goddamn requests.

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Hey @mercari_app, your ui interface for shipping orders on your website leaves much to be desired. No packing slips available to print, and the seller "dashboard" is useless. Make the "ship this item" indicator an actual button to start the shipping process!

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charlos @loscharlos

2 years ago

Until we have treatment for #LongCovid — until we are start supporting those disabled — Every single person is one infection away from losing their career, house, savings, & relationships. If you think this is hyperbole, literally talk to anybody living with this condition.

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charlos @loscharlos

2 years ago

“The response to #LongCovid has been muted. In the rush to declare the pandemic over, the low quality of life experienced by millions with long COVID has apparently been deemed acceptable.” “It is not acceptable.” — @julialmv latimes.com/opinion/story/…

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charlos @loscharlos

2 years ago

New highly anticipated #LongCovid study from @UCSF now out 👇 “Overall, these observations challenge the paradigm that COVID-19 is a transient acute viral infection & provide evidence for T cell activation & viral persistence in tissues well beyond the initial illness.”

Hannah Davis @ahandvanish

2 years ago

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CBS Evening News @CBSEveningNews

2 years ago

Covid-19 may increase risk of the heart condition POTS, Postural Orthostatic Tachycardia Syndrome, which is more common among women between 15 and 50 years old and in people with certain autoimmune conditions.

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Edward Dowd @DowdEdward

2 years ago

Employed men with disability

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Edward Dowd @DowdEdward

2 years ago

Employed women with disability

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Edward Dowd @DowdEdward

2 years ago

🚨🚨Bad news…real time Disability Data from US Bureau of Labor Statistics (BLS) rose 857k in June to a new all time high of 34.15 million. The rate of change is accelerating again. If this was a stock it’s a break out chart and reacceleration of trend. Both employed women & men…

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Aftab Khan, MD @aftab_usa

2 years ago

My patient before #Covid; walked 10,000 steps daily, biked 20 miles on weekends. My patient after #LongCovid uses a cane to pick up mail from the front porch. #Covid is still here #LongCovid is still raging.

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Shaney Wright @ShaneyWright

2 years ago

3 and a half years on, with millions chronically ill due to Covid, we should legitimately and reasonably expect to be seeing doctors / researchers throwing the kitchen sink and more at #LongCovid by way of treatments. Literally every single immunotherapy in the cabinet...

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Laura Miers @LauraMiers

2 years ago

This tracks with UK data too, where disability claims doubled for all ages and tripled for teenagers last year.

Hannah Davis @ahandvanish

2 years ago

This tracks with UK data too, where disability claims doubled for all ages and tripled for teenagers last year.

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charlos @loscharlos

2 years ago

“Lyle often thinks back on his life before he initially caught COVID.. He worked as a personal trainer and a nutrition coach, but now his energy levels wane so easily that just having coffee with friends.. can induce chronic fatigue for up to a week.” #LongCovid

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Hannah Davis @ahandvanish

2 years ago

75-90% of #LongCovid cases happen after “mild”/non-hospitalized acute infections.

Brian Fog @useless_priest

2 years ago

75-90% of #LongCovid cases happen after “mild”/non-hospitalized acute infections.

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Nathan Cope @destroypattern

2 years ago

How do we get this moving? #research #longcovid #millionsmissing #teamclots #bill congress.gov/bill/118th-con…

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Nathan Cope @destroypattern

2 years ago

Probably why ice water plunges help so much with symptoms. forbes.com/sites/williamh…

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Shaney Wright @ShaneyWright

2 years ago

Do any #LongCovid treatment trials or biomedical studies in the UK even once mention Dysautonomia or chronic mast cell activation? If not, they're missing some of the most if not the most significant elements of the disease.

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Nathan Cope @destroypattern

2 years ago

#NewProfilePic #longcovid #millionsmissing #awareness #covid #research

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Nathan Cope @destroypattern

2 years ago

Hey @netflix I want a “you’ve watched this x number of times” stat. I want to know how many hundreds of times I’ve watched all of Seinfeld. 😁

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charlos @loscharlos

2 years ago

“Looking at proteins circulating in the blood, the scientists found a set of molecules associated with inflammation that were present only in a subset of patients with #LongCovid & were not seen in those who recovered from their disease.”alleninstitute.org/news/many-long…