Me: Dares to go out for a meal & the theatre to see wizard of oz on Friday..been in a massive pain flare up ever since. Its so fkn exhausting 😴 can't take a step without my splint on now,even in the house 😩 not that I can venture anywhere else right now. #CRPS#ChronicPainSucks
#crps is a journey of
EXCRUCIATING PAIN…
and behind every corner is someone ( usually the med community) trying to minimize.
Honestly, I wouldn’t believe this condition is even ‘real’ either if I didn’t have to live w/ it. #crps
#crps is a journey of
EXCRUCIATING PAIN…
and behind every corner is someone ( usually the med community) trying to minimize.
Honestly, I wouldn’t believe this condition is even ‘real’ either if I didn’t have to live w/ it. #crps
The Burning Nights CRPS in Children & Teenagers Information Leaflet is a useful resource for parents, guardians and others who may know children and young people living with Complex Regional Pain Syndrome (CRPS). #CRPSbuff.ly/40mK2Cd
“I spend everyday in excruciating #pain… I’m sensitive to light/noise, simple tasks are hard… My short term memory is bad… #CRPS is a horrid disease… Don’t allow someone else to minimize your journey—every warrior is a warrior.” buff.ly/4cx6hNk@RSDSA#RareDisease
Burning Nights Zentangle with Dawn starts tomorrow and will run every Wednesday 4pm- 6pm BST for 10 weeks. Everyone is welcome to join just sign up via the link below. #CRPS#zentanglebuff.ly/4aYvcYM
Imagine raging tooth ache then you fill your mouth with ice. That is my leg and foot today, raging bone pain and ice cold.
I need to pack, work, sort the house ready for our journey tomorrow instead I am rocking back and fore on my bed sobbing. One hour at a time, breath.
#CRPS
Don’t forget to apply to join The Patient Voice Committee if you’re someone with lived experience of pain & interested in working with healthcare professionals
@Sahara88uk just in case you hadn’t seen this👇🏼Just 11 days left to apply!
#ChronicPain#CRPS
Don’t forget to apply to join The Patient Voice Committee if you’re someone with lived experience of pain & interested in working with healthcare professionals
@Sahara88uk just in case you hadn’t seen this👇🏼Just 11 days left to apply!
#ChronicPain#CRPS
346 Followers 0 FollowingRSDCRPSLifesavers is a nonprofit organization committed to raising awareness of the disabling and progressive sympathetic nervous system disorder.
4K Followers 96 FollowingNews & information for and about people with RSD Reflex Sympathetic Dystrophy Syndrome - CRPS Complex Regional Pain Syndrome - [email protected]
3K Followers 23 FollowingWe are a Support,Awareness,& Research Organization dealing with the horrid disease that is RSD/CRPS. We don't want to give up and neither should you!
2K Followers 29 FollowingRan by @JodieVolunteers // 22 // CRPS warrior since 14 years old // Affected in the right foot and internal organs // Wishing every warrior a low pain day
2K Followers 367 FollowingWhy do the doctors still say they don't know what it is? It's manageable with help! Making a Documentary about #CRPS and #RSD. [email protected]
2K Followers 1K FollowingColor The World Orange™ is an annual event held the first Monday of November to spread awareness of CRPS/RSD. Retweets aren't endorsements. #CRPSORANGEDAY™
11K Followers 11K FollowingBurning Nights CRPS Support is a UK charity raising awareness & supporting all those affected by Complex Regional Pain Syndrome (CRPS). Charity No 1166522
249 Followers 64 FollowingCRPS talk & support UK is a friendly place for those living with (or caring for someone with) CRPS to chat to others about the condition and exchange advice.
2K Followers 2K FollowingFemale, 21, I have had Complex Regional Pain Syndrome(CRPS) since I was 11. I am trying to raise awareness for this incurable disease.
717 Followers 116 FollowingI'm 31y/o mom of a beautiful 10y/o girl! I was an EMT/vol firefighter before my 3rd back injury (in Maui) that resulted in CRPS. I am newly single following dx.
458 Followers 70 FollowingCRPS Trans. serves 1219 riders travelling 356,720 km/year to seven schools within the Bow Valley. Our drivers are skillful and caring.
(403)678-5545
329 Followers 58 FollowingWe are a Non-Profit Foundation dedicated to the care and well being of Complex Regional Pain Syndrome patients and their families.
1K Followers 2K FollowingI am a chronic pain patient I suffer with RSD/CRPS and migraines. I advocate for chronic pain patients. I am also a Pampered Chef Consultant.
476 Followers 201 FollowingWe are the Home Away From Home for those receiving treatment for CRPS/RSD in Sacramento or suffering worldwide. Come, learn, support at https://t.co/wGJHLaUngd
2K Followers 2K FollowingA nonprofit public charter school network, operating 26 high-performing, tuition-free middle and high schools in LA serving nearly 13,000 scholars.
5K Followers 5K FollowingCRPS UK is a registered charity run for and by people with Complex Regional Pain Syndrome. Charity number:1165597 admin@crps-uk RT does not = endorsement
232 Followers 100 FollowingWe are a fully registered Australian Charity working to support all those who are affected by #CRPS #ComplexRegionalPainSyndrome
(#RSD)
599 Followers 193 FollowingNew UK support group for those with #CRPS aka #RSD. New members welcome, help welcome. More to come as group grows and time allows!
41K Followers 1K FollowingThe most overly confident disabled woman in America. ♿️ CRPS. The righteous hand of a god with a mean sense of humor.
Men: $10 to DM, Venmo @ Cooperstreaming
278 Followers 41 FollowingComplex Regional Pain Syndrome network of health professionals and researchers promoting awareness, education and research for patients and clinicans
422 Followers 164 FollowingOfficial Lampung Corpse Grinder (LCG) .Sebuah Komunitas Metal di Lampung yg Menangani Event Organizer, Merchandising & jg yg Berhubungan dg Musik ..
205 Followers 34 FollowingWe are going to plan a CRPS retreat to get together CRPS sufferers and have a place for a weekend where we can all support each other. More details to come!
267 Followers 288 FollowingSpecial interest group of @IASPpain advancing research and knowledge translation for Complex Regional Pain Syndrome. #Interdisciplinary #Collaboration
2K Followers 2K FollowingRSD-CRPS Lifesavers is a nonprofit organization committed to raising awareness of the disabling and progressive sympathetic nervous system disorder.
180 Followers 0 FollowingI am a 22 year old suffering from CRPS (Complex Regional Pain Syndrome). I hope that by sharing my experiences, it will help others affected by chronic pain.
1K Followers 788 FollowingOfficial tweets from @BSCSD Office of Community Relations and Program Support - submit photos/info to us at [email protected] #BSCSD
187 Followers 37 FollowingDedicated to sharing information and helping others suffering from RSD/CRPS. Lets get together and share our stories and information for others
857 Followers 1K FollowingCRPS WARRIOR. google it.
human most of the time.
sarcasm.
disabled. chronic pain warrior. hospital frequent flyer.
a sense of humour is a must in this world.
188 Followers 45 FollowingCommitted to giving a voice to those who suffer from Complex Regional Pain Syndrome by increasing better awareness in the community & medical professionals
148 Followers 64 FollowingFinancial Advisor, Perrone Wealth Management Group at Morgan Stanley, responsible for investment strategies. Visit my website for more info. NMLS#: 1297950
471 Followers 347 Following501(c)3 organization on a mission to unite researchers around the world to find more effective diagnostic + treatment options for #CRPS: https://t.co/cZrayZmFjk
138 Followers 198 FollowingCanadian Rockies Outdoor Learning Centre is a program within Canadian Rockies Public Schools. We offer 3 to 5 credit Locally Developed Courses for high school.
133 Followers 123 FollowingMedical Tourism Italy's CRPS Treatment Division, bringing international Patients to Remission with the Neridronate Treatment for #CRPS
832 Followers 699 FollowingMom, Wife, #CRPS fighter, Music lover, Confident that one day there will be a cure for #CRPS / #RSD #FightTheFlame-CRPS/RSDSUPPORT #FightTheFlame5K #Invisible
282 Followers 826 FollowingFinancial Advisor, Bitcoiner, Learner. Sharing insights from the books I’m reading & the subjects I’m studying in my free time Tweets =/= Financial Advice
532 Followers 600 Following#art #illustration #words & #pictures. Fighting #CRPS #TBI #ptsd #intractablepain for redemption. Party to one of the first Twitter storms 🐝
248 Followers 159 FollowingDedicated to putting out the FIRE of RSD/CRPS The Worlds Most Painful Disease.
The 2017 RSD/CRPS Pain Tour will be driving across the USA spreading the word
121 Followers 181 FollowingCRPS, also known as RSD or causalgia. It is an incurable disease of the nervous that causes its sufferers extreme pain, lack of mobility, among other symptoms
37K Followers 5K Following“Mother mother, there’s too many of you crying”#Fresh #BLM #CRPS #LGBTQ Mom #SuicideAwareness #ProChoice Watch what they do - not what they say
369 Followers 2K FollowingSet upto help raise awareness 4 a debilitating Condition Complex regional pain syndrome (crps). We are using the power of motorsports 2 promote Awareness for it
11 Followers 7 FollowingNew Closed Agency Less-OOC, only for K-Pop Idols. TG allowed. Wanna join? Check and read our link-favos! Let's have fun with us. Enjoy:^)
170 Followers 178 FollowingWe provide financial assistance to those with CRPS/RSD to get medication & treatments. Please donate so we can end the needless suffering
269 Followers 371 FollowingI'm a 15 year old girl that has had CRPS for a year now and I have made this account to make others be aware. Follow my other account @emily_jackson12