Ran by @JodieVolunteers // 22 // CRPS warrior since 14 years old // Affected in the right foot and internal organs // Wishing every warrior a low pain dayjustagirlinterrupted.com England, United KingdomJoined October 2012
If you are sitting in an accessible seat on public transport and are able to stand, PLEASE be extra aware of passengers that are less able to stand.
We are so often on autopilot that we donāt acknowledge those around us but it can make a huge difference to someone when we do.
"Pain is invisible, and that makes living with it even harder. You have to be a fighter."
This article by @Channel4 explores the difficulties of living with #CRPS: bit.ly/2CcEh4b#chronicpain
āCRPS is a monster. It shows no mercy. It doesnāt care if you have plans or deadlines. It doesnāt care that you are exhausted and just want to sleep. It comes out of nowhere like a figure hiding in the shadows of a dark alley. It is relentless.ā
themighty.com/2018/06/what-cā¦
We desperately need to tackle the idea that someone has to hit ārock bottomā in order to receive mental health support.
I cannot reiterate enough how vital early-intervention is.
You wouldnāt wait for every bone in a persons body to break before you treated their broken arm.
Summer weather is causing absolute havoc to my #CRPS this year, with the heatwave in the UK the burning pain is becoming more extreme with much more frequent flares. Anyone else whose pain levels are negatively impacted by heat have any tips on how to manage the summer heat?
In a world so switched on we can get caught up in believing that by resting, by doing ānothingā is wasting time. In reality it is so important for our mental health, productivity, and to our very existence that we stop, rest and sleep. We are not made to be switched on 24/7.
Please read, absorb and share this article. This beautifully puts into words the reality of living with chronic pain.
If you know someone living with chronic pain, please try to show empathy, take time to research and lend a listening ear. #CRPSthemighty.com/2017/12/what-tā¦
Are you a parent/carer for a young person aged 11-25 diagnosed with CRPS? We are interested in interviewing parents about resilience. To take part, and for more information, each member of the couple will need to follow this link: bathpsychology.eu.qualtrics.com/jfe/form/SV_6Eā¦
What is the most powerful thing that someone has said, or done to help you with your mental health? #MentalHealthAwarenessWeek
Some of mine:
⢠"How can I help, pal?"
⢠"I am thinking of you."
⢠"We will win this, together."
⢠"We will catch you."
⢠"Fancy a cuppa & a chat?"
#MentalHealthAwarenessWeek is for the 3 in 4 who don't experience mental health problems just as much as it is for the 1 in 4 who do. We talk about the importance of talking about our emotions but it is equally important to listen. If a loved one is acting differently, reach out.
āØGIVEAWAYāØFollow and RT for a chance to win this big bundle of Mental Health and Wellbeing books and show support for #MentalHealthAwarenessWeek
Including some of my favourite books from @MrJonnyBenjamin @bryony_gordon @bodyposipanda_ @matthaig1@Rubywax & more!
(Ends 20/05)
1 in 5 people experience suicidal thoughts, but suicide is not inevitable; it is preventable. The perception of suicide being a ātaboo subjectā results in silence and avoidance, however by talking openly we can end this stigma. One conversation can change a life. @stopsuicidecam
28K Followers 27K FollowingChronic Pain Healing Portal for everyone affected by severe #chronicpain & #chronicillnessāby a princess with full body #CRPS #Fibromyalgia #PainSupport #CPP
11K Followers 10K FollowingBurning Nights CRPS Support is a UK charity raising awareness & supporting all those affected by Complex Regional Pain Syndrome (CRPS). RT=Not Endorsement
14K Followers 2K FollowingDedicated to improving life for people with pain through advocacy, education & peer-led support. Visit https://t.co/0Cw426dTjY.. RTs ā endorsements.
10K Followers 2K FollowingFor Grace promotes better care and wellness for women in chronic pain. Catch the live stream of our groundbreaking 2023 Women In Pain Conference @ https://t.co/cuokTN2Hy4
22 Followers 174 Followingš§”š§”š§” Iām a CRPS warrior trying to raise awareness for this awful disease! come share your story in the Reddit community we created search r/CRPSwarriorsUNITE
37 Followers 246 FollowingBostonian in Paris, professional student
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big fan of bones, teeth, coffee, and books
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PhD candidate at Sorbonne U and UTC
20 Followers 69 FollowingDelivery of personal services including hair, make-up, mani-pedicures, specialty nails, facials,waxing, body and corporate chair massage. Henna art, tai chi..
36 Followers 107 FollowingA specialist personal injury law firm with expertise in chronic pain.
#CRPS #Fibromyalgia
Anne Felmingham & Paul Turner
Tweets/RTs are not medical advice
1K Followers 2K FollowingArtist. I am CPP. Life is beautiful, hard & painful. Loss is what we know, our son, fathers, best friends. Be in the moment, cause itās all we have. š¤«
161 Followers 627 FollowingWife, Mom, Coach, Parent Advocate, Girl Scout, Friend. Believes āLife loves to be taken by the lapel and told, 'I'm with you kid. Let's go!āā~Maya Angelou
679 Followers 932 Following3 Gorgeous daughters & son in law 2 Grandson.Soul mate Now Hubby.Paralysed R/leg.Disabled & Cruelly 24/7 ChronicPain#CRPS.Cruel journey of Existence.
200 Followers 483 FollowingTiny and wiry. Attorney. Powered in part by a spinal cord stimulator. Chronic pain warrior. Find me on the peloton: #NotAboveTheLaw
48 Followers 60 FollowingCreating the changes that we wish to see in the world of #CRPS
1 Day and 1 spoon at a time. #chronicpain #RSD #CRPSAwareness #spoonie #strongertogether
7K Followers 7K FollowingDJT is the greatest President in 200 years! Devoted wife & mom, married to my best friend. #1A #2A IFBP (delays by X) #MAGA #LifeWave
199 Followers 841 FollowingHolistic Centered Treatment created by a CRPS Survivor - Dr. Traci Patterson. Premiere program for CRPS. #CRPSexpert #CRPStreatment #CRPSremission #CRPSsurvivor
209 Followers 2K Followingdamaged but surviving ex angler cat lover ex sapper n otherš„· l disabled rsd panic attack ptsd bipolar comedian neurofibromatosis and h.s pal to everyone ā®ļø
17 Followers 356 Followingcrps bipolar disabled West ham forever.. abuse survivor ..fragile.. bit nutty miss kids ptsd
panic attacks agoraphobia.hopefulex soldier scared to go out
2K Followers 3K Followingjust little me with a lot of bull shit to tweet. life is too short so letās be kind & giggle too. enjoy gardening photography walking history.
3K Followers 5K FollowingChildhood Arsenal fan, probably thanks to Ian Wright. Born in Hertfordshire, I am now living in Norfolk with my fiancee #crpswarrior ##spinalcordinjury #COYG
11K Followers 10K FollowingBurning Nights CRPS Support is a UK charity raising awareness & supporting all those affected by Complex Regional Pain Syndrome (CRPS). RT=Not Endorsement
247 Followers 59 FollowingCRPS talk & support UK is a friendly place for those living with (or caring for someone with) CRPS to chat to others about the condition and exchange advice.
16K Followers 7K FollowingAdvocacy page for Comedian Chris Michael (@funnybaldchris) I live with RSD/CRPS a chronic pain disease. These are my therapeutic sonnets and other dumb thoughts
457 Followers 337 Following501(c)3 organization on a mission to unite researchers around the world to find more effective diagnostic + treatment options for #CRPS: https://t.co/cZrayZmFjk
4K Followers 4K FollowingCRPS UK is a registered charity run for and by people with Complex Regional Pain Syndrome. Charity number:1165597 admin@crps-uk RT does not = endorsement
3K Followers 4K FollowingCuddler. Beer Fanatic. Coffeeholic. Slayer of dragons, destroyer of worlds. All of my tweets and views are my own - DJSTTSJ š
50K Followers 2K FollowingMaking health about people: When we ask how youāre doing, we actually want to know! Download our free app to join a community that gets it āØ
147 Followers 92 FollowingPower Over Pain CRPS Foundation, Inc is a non profit organization created to advocate, educate and raise awareness in the community of CRPS/RSD
6K Followers 3K FollowingFollow us for pain tips and the latest news in pain research. Meet the caregivers and patients who make us experts in pain medicine.
571 Followers 186 FollowingNew UK support group for those with #CRPS aka #RSD. New members welcome, help welcome. More to come as group grows and time allows!
5K Followers 456 FollowingThe People in Pain Network believes that people living with pain can improve their quality of life by taking control of the management of their pain. #PSMES
1K Followers 2K FollowingPassionate about delivering the best NHS services for women & babies across the North East & North Cumbria #loveparkrun ā¤ļø#NHS1000miles
1K Followers 2K FollowingI suffer from RSD/crps nj pain ambassador for US pain foundation I'm obsessed with Broadway- Spoonie. music heals is and is my life #patientsnotaddicts
7K Followers 5K FollowingDocumentary series to educate & raise awareness on chronic pain prevention, effective management & recovery where possible https://t.co/CUXraJUb25