LongCOVID in Academia @longcovacademia
A place to connect grad students, ECRs & faculty w/ #LongCovid, & discuss the many challenges of being a #LongHauler in the Ivory Tower. Run by @leticiasaurus. forms.gle/RJiGQxRhs92Y8e… Joined January 2021-
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Pour notre amie #apresJ20 @MartaEsperti . 😘🌺💝 #LongCovid
Pour notre amie #apresJ20 @MartaEsperti . 😘🌺💝 #LongCovid
Where’s policy change in response to a mass disabling event within #HigherEd? We need to think of the consequences of #longCovid to the educational system with depth and breadth. We CAN do so much better for disabled people in general. #AcademicTwitter #AcademicChatter
Just to share: My two closest girlfriends from grad school both have long covid. Both healthy, fit, no other issues, early 40s. One got covid early pre vaccines, the other this summer from her kids. Both will likely have lifelong health problems. Long covid=MAJOR disability.
Please invite disabled people to tell their own stories. They will do a much better job
Going to say it one more time- invite people w/ lived experience to be on panels. A person speaking ABOUT lived experience of person with #longcovid and/or #mecfs is in NO WAY the same as having a person w/ the disease. Invite community to the table. Nothing about us, without us.
Something that professional societies could be doing. #AcademicChatter #AcademicTwitter #phdchat #DisabledinSTEM
#AcademicTwitter plz listen to #pwLC & disability activists. We cannot keep leaving post infect illness out of convos about diversity and inclusion in our fields. This is a mass disabling event, how many people in #HigherEd will be left out by continuing to ignore #longCovid?
I just discovered that there is a petition being circulated to guarantee that my alma mater @cwru will allow remote learning for disabled students. This should be a priority for any institution doing more than mere lip service for diversity and access. chng.it/p6Rb6vRCVQ
Policies like this will increase the prevalence of #longCovid in #higherEd communities. Prevent transmission AND development of severe illness and disability by allowing people rest after an infection. #longCovid
Policies like this will increase the prevalence of #longCovid in #higherEd communities. Prevent transmission AND development of severe illness and disability by allowing people rest after an infection. #longCovid
Please, please have upfront and explicitly reasonable, flexible, and compassionate attendance policies in your syllabus. Remind your students of these policies OFTEN. Include questions about these policies in your student assessment. Teach students to learn their rights.
Please, please have upfront and explicitly reasonable, flexible, and compassionate attendance policies in your syllabus. Remind your students of these policies OFTEN. Include questions about these policies in your student assessment. Teach students to learn their rights.
Hannah Davis @ahandvanish
60K Followers 4K Following Research, algorithmic music, machine learning/AI, anti-bias in AI data. #LongCovid research & advocacy @patientled. they/them. DMs rarely checked
Dr Elisa Perego @elisaperego78
34K Followers 2K Following #LongCovid | Covid || researcher || inequality, health, disability in present | past || patient-led research || medicine history || MA PhD | ≠ MD || views own
Dr Asad Khan FRCP FRA.. @doctorasadkhan
28K Followers 3K Following Lung Dr on pause since Nov 20 #LongCovid #POTS #MCAS #HSD #pwME #Aotearoa Views my own; Retweets≠endorsements #freepalestine #TeamClots ZIONISTS WILL BE BLOCKED
Dr. Deepti Gurdasani @dgurdasani1
143K Followers 6K Following Clinical epidemiology, machine learning, NLP, global health. Intersectional feminist. she/her. Also on @[email protected] @dgurdasani1.bsky.social
Myra Batchelder @myrabatchelder
19K Followers 11K Following Health Policy & Advocacy. @COVIDAdvocacyNY @COVID_Advocacy. #SRHRJ #VaxPlus #KeepMasksInHealthcare. @Harvard @SarahLawrence alum. She/her
Long Covid SOS @LongCovidSOS
27K Followers 942 Following UK based charity advocating for those impacted by #LongCovid Recognition - Research - Rehabilitation Email [email protected]
It'sME(Jaime) @exceedhergrasp1
20K Followers 5K Following Director of Sci & Med Outreach, #MEAction Stanford Med TIME100 Health 2024 #ME, #EDS, #POTS, #LongCOVID Views my own [email protected]
Covid Solidarity @CovidSolidarit1
13K Followers 4K Following We are people, not numbers. Across the world 🌎 “Alarm bells only ring in the ears of the powerless.”. “Normalisation is the disguise of complacency.”
Lisa McCorkell @LisaAMcCorkell
6K Followers 2K Following @patientled cofounder | #longcovid patient-researcher/advocate | disability justice policy nerd | MPP | she/her | natures 10 2022
Long Covid Support �.. @long_covid
32K Followers 2K Following UK Charity • Support • Advocacy • Research Involvement • Awareness • Education • Keeping people with #LongCovid at the centre. #CureLongCovid
Long COVID Physio @LongCOVIDPhysio
27K Followers 1K Following #LongCOVIDPhysio is an international peer support, education and advocacy, patient-led association of Physiotherapists living with #LongCOVID & allies
Long Covid Advocacy �.. @LongCovidAdvoc
14K Followers 13K Following 📘Legislate ⚕️Investigate 🌬️Ventilate 👥Educate Advocacy4 #LongCovid #MECFS #COVIDisAirborne
Ippokratis @IpLongCovid
7K Followers 1K Following Physical education and sport science BSc #LongCovid
Pam Bishop, PhD @pamelarbishop
10K Followers 3K Following Was research professor, now disabled by #LongCOVID (12/5/20) & subsequent #POTS #MECFS #MCAS #SFN #cSVD Patient advocate when able. Tell your story if you can.
Prof Doug Kell CBE #F.. @dbkell
14K Followers 10K Following Liv Uni. ENTJ. CBE. Against brexit and Govt lies. #FBPE https://t.co/Z2XFPIxkfi https://t.co/F5o0wIMw1H. Nothing I say is medical advice @[email protected]
COVID-19 Longhauler A.. @C19LH_Advocacy
9K Followers 9K Following A U.S. based grassroots, patient-led, all-volunteer 501(c)(3) nonprofit organization advancing the understanding of & expediting solutions for #LongCOVID. #FBLC
Turnto Long Covid @turntolongcovid
0 Followers 10 Following
Dave Satterlee @dsatt5
71 Followers 280 Following
Rete Long Covid Press @ReteLongCovid
154 Followers 1K Following Benvenuti nella Rete Long Covid Italia 💙 https://t.co/T6NThQfoQL
Andy @AndyBayo_
358 Followers 2K Following Chronic Fatigue. Orthostatic Hypotension. Heat Intolerance. Impaired Cognition. Possible CCI. Possible brainstem compression. #mecfs #mespine #severeme
LongHallWarrior @LongHallWarrior
11 Followers 76 Following New account for Long Covid Awareness 2024. Looking for advice and support for myself and my granddaughter. Long Covid sufferers since March 2020.
Sofalicious @sofalicious_
52 Followers 139 Following
HIV & Respi-DART 2024 @IHE_Conferences
129 Followers 363 Following https://t.co/2IAWwYKQgw HIV-DART, Respi-DART, HEP-DART
JesusIsComing @JesusIs91940818
96 Followers 392 Following Mat 24:7 For nation shall rise against nation, and kingdom against kingdom: and there shall be famines, and pestilences, and earthquakes, in divers places.
ADHDgradstudent @LongCovidJenniB
545 Followers 2K Following Another detour. Long Covid. Struggling. Fighting. Career Switch. Grad School. CashApp $JenniBruns Venmo Jennifer-Bruns-5 PayPal is JenniBruns1
Kate Feld @katefeld
6K Followers 3K Following Writer, journalism lecturer, ex-Vermonster. Mostly elsewhere. Poetry and photography pamphlet DEERYARD published 23 May @of_whilst
Barbara McDonald @BarbaraMcD27160
14 Followers 322 Following
N L @EmotivesNow
259 Followers 4K Following
Chris Rolfs @RolfsChris3298
47 Followers 81 Following
E @E0154421787565
0 Followers 13 Following
Junior @nolimitjuni0r
2K Followers 825 Following 22 year old long hauler fighting for his life back. Former CC/T&F athlete. @miamiheat fan. #longcovid #notrecovered.
Frau𝕏ausNRW @FrauXausNRW
2K Followers 2K Following MomOf2 mit #LongCovid #MECFS #POTS #SFN - Werde 2024 (vielleicht) gesund ! #UniteToFight2024
Cassie Schermbeck, MA @CassieJoS
419 Followers 2K Following I love Jesus. commissioned minister, wife, mother, child of God, friend, daughter, being, freckled, Christian public speaker
xh @BH5170835825574
75 Followers 150 Following
Idoia Mujika Altuna @MujikaAltuna
218 Followers 3K Following
יוסי פרס @Yosiperes
183 Followers 2K Following
Bond Turner Covid Tea.. @bondturnersols
179 Followers 372 Following We are a team of Lawyers representing Health Care Workers in England and Wales who have contracted Covid-19 during their employment.
Prof. Bethan Evans @DrBEvans
2K Followers 1K Following Prof. Human Geography at Uni of Liverpool, Feminist, Fat Activist, Spoonie, Friend, Sister, Daughter, Person. SF, cats. she/her or they/their... opinions my own
CleanTheAir @CleanTheAir2024
310 Followers 5K Following
Dr. Stephanie Trudeau @TrudeauPhd
3K Followers 5K Following Status quo disruptor | Systems thinker | MomX3 | I tell stories with data | UXR | Mixed-methods | Shutterbug
Alejandro Ibarra Psyc.. @aiki29
162 Followers 1K Following #CellResearch #Molecular #MitochondrialBiology #mitochondria #MELAS #Psychiatry #Dysautonomia #variant #Endothelium #covid19 #LongCovid #Tcell #ViralImmunology
carlos perez @Carlosfreedom10
67 Followers 2K Following
CLCH West Herts Long .. @CLCHLongCOVID
43 Followers 149 Following Welcome to the West Hertfordshire Long Covid rehabilitation service's page. Our aim is to support people and raise awareness of the condition. #LongCovid
Niamh Moore @rawfeminism
2K Followers 5K Following sustaining ecofeminism, food & archives; U of Edinburgh; tweeting under the influence of vegetables; she/her
Fish Out Of Water | L.. @fowusorg
23 Followers 115 Following Non-Profit 501c3 supporting effective treatment for C-Injured & LongHaulers | Bringing hope and healing to those with Long COVID. Msg @ Telegram @fowus_org
MercyIsToday @ZhengPeace
44 Followers 504 Following Romans 6:18 says “You have been set free from sin and have become slaves to righteousness.” Don't be a slave to sin, be free and sinless.
Josh Fox ✡️ 🤌�.. @joshfoxfilm
56K Followers 4K Following Oscar-nominee. Emmy winner. director of GASLAND, THE TRUTH HAS CHANGED, HOW TO LET GO OF THE WORLD,AWAKE. also @joshfoxfilm on Instagram . #banfracking!
Royce @Tetoten18563
171 Followers 632 Following
Suseaub @suseaub49637
63 Followers 1K Following
public Public Health .. @Intro2PH
544 Followers 833 Following b/c PH is offline! b/c loads of HCWs lost their moral 🧭! b/c it’s the age of narcism! b/c it’s an era of embracing Pandemics! b/c it’s Pandemicene!
Long Covid Breathing @LCBreathing
61 Followers 221 Following Breathing coaches with lived experience of #LongCovid. Join our courses to learn the best breathing exercises & how to do them.
Dr. Amaia Lujambio @AmaiaLujambio
2K Followers 3K Following Studying liver cancer. Associate Professor at Icahn School of Medicine at Mount Sinai. Opinions are my own. She/Her 🏳️🌈 From Goizueta (Navarra).
Katie McDonough @khetiwe24
2K Followers 3K Following History + DH @LancasterUni & @turinginst. Part of the @LivingwMachines, @readingmaps & GEODE teams. Writing a book about people & highways in France.
Debora Leonhardt @DeboraLeonhardt
36 Followers 781 Following Mujer, Feminista, Acomp.Terapéutica Ptes Crónicos-Lic. en Psicología.Gestión Adm. en Salud/Abogacía Derechos del Paciente/ Salud Comunitaria Covid Persistente
BeNourishedUK @BeNourisheduk
310 Followers 947 Following MSc | Researcher | Natural Health Practitioner | Complex Chronic Health Conditions | Long Covid Specialist |
The Sick Times @thesicktimes
3K Followers 282 Following Non-profit news site chronicling the #LongCovid crisis. Founded by @betsyladyzhets and @mileswgriffis. Donate: https://t.co/YBFRSWzcJx
Vital Reaction® @h2vitalreaction
792 Followers 5K Following Full Body Rejuvenation! Vital Reaction® is a #health and #wellness company specializing in molecular #hydrogen. #LongCovid #MECFS #CKD #Fatigue #millionsmissing
Elena Louazon @ElenaLouazon
462 Followers 893 Following Doctorante @LaPIJ_ULB / Correspondante en Belgique @RTLFrance
siguiendo@Kocher @talcomoKocher
0 Followers 56 Following
Harriët Bergman @HarrietmBergman
2K Followers 3K Following Reports from meetings, papers &barricades🌻 #feminism 🌻#kozp🌻#climatejustice 🌻PhD @uantwerpen on climate breakdown, privilege, activism, emotion🌻 #longcovid
valentina cariati @valemaxlavi
3 Followers 41 Following
LongCovidSpain @LongCovid_Spain
1K Followers 2K Following Dando voz a los pacientes e investigadores de #CovidPersistente #longcovid Encuentra tu asociacion mas cercana ⬇️
Hannah Davis @ahandvanish
60K Followers 4K Following Research, algorithmic music, machine learning/AI, anti-bias in AI data. #LongCovid research & advocacy @patientled. they/them. DMs rarely checked
Eric Topol @EricTopol
694K Followers 590 Following physician-scientist, author, editor. Ground Truths: https://t.co/YhatcBT0hA
Dr Elisa Perego @elisaperego78
34K Followers 2K Following #LongCovid | Covid || researcher || inequality, health, disability in present | past || patient-led research || medicine history || MA PhD | ≠ MD || views own
Dr. Lucky Tran @luckytran
70K Followers 4K Following 📢 Public Health, Climate Justice, and Science Communication 🎓 Columbia, Cornell, Cambridge, Adelaide ➡️ Find me on other websites: https://t.co/yvBIYKMcGF
Patient-Led Research .. @patientled
27K Followers 616 Following Patient-led research and advocacy for #LongCovid and infection-associated chronic conditions!
Gez Medinger @gezmedinger
20K Followers 722 Following Author of The Long Covid Handbook with @daltmann10, published by @penguinUKBooks (see link). Represented by the Blair Partnership @TBP_agency
Long Covid SOS @LongCovidSOS
27K Followers 942 Following UK based charity advocating for those impacted by #LongCovid Recognition - Research - Rehabilitation Email [email protected]
Trisha Greenhalgh @trishgreenhalgh
181K Followers 5K Following Professor of Primary Health Care, Oxford. Independent SAGE. Views my own. Gravitating to BlueSky - find me https://t.co/kLX18DAWAa
Lisa McCorkell @LisaAMcCorkell
6K Followers 2K Following @patientled cofounder | #longcovid patient-researcher/advocate | disability justice policy nerd | MPP | she/her | natures 10 2022
Long Covid Support �.. @long_covid
32K Followers 2K Following UK Charity • Support • Advocacy • Research Involvement • Awareness • Education • Keeping people with #LongCovid at the centre. #CureLongCovid
COVID-19 Longhauler A.. @C19LH_Advocacy
9K Followers 9K Following A U.S. based grassroots, patient-led, all-volunteer 501(c)(3) nonprofit organization advancing the understanding of & expediting solutions for #LongCOVID. #FBLC
Chimére L. Sweeney @chiluvs1
3K Followers 579 Following Black Woman #LongCovid Filmmaker. DONATE to my FILM! Disabled and Destined.
Charis Hill | they/th.. @BeingCharisBlog
39K Followers 3K Following Writer, speaker, cat theydy, gardener. Punny. Extremely exhausted by everything.
Janet Dafoe @JanetDafoe
15K Followers 220 Following Caregiver for very severe ME/CFS son, advocate and fundraiser for End ME/CFS PROJECT at OMF and CFSRC at Stanford. The rest of my life is on hold...
Dialogues ME/CFS @DialoguesMECFS
2K Followers 1K Following Website with videos created by Natalie Boulton & Josh Biggs. Wellcome Public Engagement Fund Award. Professionals and patients explain key aspects of ME/CFS.
Phoenix Rising @aboutmecfs
7K Followers 4K Following A community for people with Myalgic Encephalomyelitis & related conditions. Fibromyalgia, Long Covid, Dysautonomia, EDS & MCAS all welcome!
Long Covid and Chroni.. @covidwellness
965 Followers 2K Following While our study is on pause we encourage chronic pain sufferers to sign up on Kinnected for peer support and to exchange stories of sickness and healing.
angela mv/p 💁🏻�.. @ItsAngInLA
4K Followers 3K Following 🦠 personal #LongCOVID clinical research social acct | she.he.ella.èl| Los Angeles 🐦🙋🏻♀️ #NEISvoid #MCAS #hEDS #HyperPots #MECFS #UCTD #MigraineChat
Dr. Jessie Male 🍉 @ProfJMale
4K Followers 5K Following Nonfiction writer, disability studies/memoir scholar, educator and access consultant. Rescue dog mama and vintage clothing seller. Wearer of many hats. She/her.
Heather Hogan @theheatherhogan
52K Followers 963 Following your friendly neighborhood soft butch | @laikaspacedog’s wifey | she/her | writer + editor | #LongCovid | https://t.co/97DeXdfvhU
Anil van der Zee © @AnilvanderZee
9K Followers 824 Following Former professional ballet dancer | Bed/sofa-bound M.E. patient | Using Twitter to raise awareness for #MyalgicE | #art2cureME #pwme #millionsmissing
Invisible Disabilitie.. @InvDisabilities
7K Followers 2K Following IDA is Encouraging, Educating and Connecting People and Organizations Touched by Illness, Pain and Disability Around the Globe. 🌍
DisabilityInclusiveSc.. @DisabilityIncl1
460 Followers 604 Following Disability Inclusive Science Careers (DISC) an #EPSRCInclusionMatters project supporting disability inclusive careers in HE. Heriot Watt University.
Ableism In Academia @AcademicAbleism
2K Followers 121 Following Highlighting #ableism in #academia and the barriers #research #teaching and #academic staff face in an academic career.
BlackBritAcademics @BLACKBAcademics
3K Followers 1K Following We are a global community established in 2013, working to enhance equity and social justice in higher education and society.
Abraham @olubabzy
288 Followers 627 Following PhD Student at Heriot-Watt University, focusing on Disability Inclusion for disabled academics living with Chronic fatigue ill-health in the UK #OpinionsAreMine
Pandemics Are Chronic.. @TheCrankyQueer
2K Followers 2K Following Cranky Queer Guide to Chronic Illness. #Illder. #LongCOVIDJustice @LongCOVIDNatl @StratHighImpact ❤️T4T❤️ #FBLC https://t.co/cbMJkm6reR
Dr Jenny Ceolta-Smith.. @JCeoltaSmith
3K Followers 3K Following Not always X active & #NotWorkingWithLongCovid #OT PhD activist & advocate on health, well-being, welfare and work #LongCovid #FBLC #DWP +at:@WorkingWithLC
Long COVID Alliance @LongCOVIDAllian
4K Followers 90 Following Research. Advocacy. Education. https://t.co/yE6W9ul1Yd
Karina Bénazech Wend.. @karina_wendling
719 Followers 839 Following Historian Assoc. Professor (MCF; Q° 11 & 22) @Univ_Lorraine @IDEA_UL Religion&Politics Assoc. LEM-CNRS https://t.co/mxgJz6NXp2
Well-aHead @DrSuePeacock
2K Followers 3K Following Well aHead -‘providing psychological health solutions’ Special interests- chronic pain, cancer, preparing for surgery, IBS, sleep, dental anxiety
Sabrina Poirier (On H.. @Sabrina_Poirier
6K Followers 6K Following Community Builder / Passionate Collaborator / Chair - #MedicalEducation Group / #ResearchPartner / #MECFS #LongCovid Advocate / #PwME / #MCAS / #POTS / #Fibro
Lydia X. Z. Brown @autistichoya
30K Followers 887 Following Kind reminder: You are worth more than your accomplishments, your work, your productivity, and your ability to put your trauma on display. You are worthy.
Mekusa Matata @melissanpj
258 Followers 755 Following PhD ABD @uwaterloo. chronically ill/disabled. I study the gaslighting of women with invisible illnesses. firstgen. ❤️ cats . this is a vent space. she/her.
PhDStudent @PhDStudents
59K Followers 4K Following PhDStudent offers free resources to help you survive and thrive in grad school - See more at: http://t.co/VbswzKkjmv
OpenAcademics @OpenAcademics
132K Followers 9K Following Twitter community to support academics across all disciplines. @OpenAcademics for RT. #DiversityAndInclusion #MentalHealth #AcademicTwitter
Long Covid Venezuela @Liberat82286893
79 Followers 529 Following Espacio creado para unir todas las personas que hemos padecido Covid19 y aún presentamos síntomas sean neurológicos, motores, articulares, digestivos ...
Covid19LongHaulers @Covid19Long
4K Followers 2K Following Raising awareness #COVID19 and #LongCovid Supporting fellow COVID-19 longhaulers. Join our group for support! (Human curated) Media: [email protected]
Vicky van der Togt @Vickyvdtogt
7K Followers 1K Following Director of development at @ResearchAidNet 🌐 | Facilitator @PandemicAid_Net | Long Covid research | Spread hope, it's infectious
Brie @BrieBleu
57 Followers 266 Following Every pizza is a personal pizza if you believe in yourself
Soo Youn @lalasoo
7K Followers 4K Following @washingtonpost @guardian @teenvogue @popsugar contributor. Fmr @ABC @reuters. Thoughts expressed may or may not be mine.
Still ill: Corona Dia.. @stillillcorona1
835 Followers 854 Following Monique Jackson (she/her ) Artist & Long Covid Advocate Still Ill: Corona Diary https://t.co/4MXC4xI1Zf?…
Chronic Illness Inclu.. @chronicinclude
4K Followers 4K Following We are a voice for disabled people with energy limiting conditions and chronic pain. Join Us https://t.co/nUFz5xUJ0W
Black In STEM Educati.. @BlackinSTEMEd
6K Followers 58 Following Thank you to all who joined us in celebrating Black STEM educators & education researchers from 9/27-10/3/20. Stay connected with us to learn of future events.
Dr. Hannah Zaves-Gree.. @hannahgreene916
729 Followers 3K Following PhD | American Jewish history @nyuhebrewjudaic. Professor @sarahlawrence. Studying the intersection of disability, gender, and migration. Married to @NoahZaves.
The IAGD @AccessibleGEO
2K Followers 385 Following The Int. Assoc. for Geoscience Diversity is a 501c3 non-profit working to make the geosciences more accessible and inclusive for people with disabilities.
DISABILITY PRIDE EVER.. @DisInAcademia
967 Followers 1K Following DEI Advocates for equity in education w/academia insights: Phys/Soc/Life Sciences | #DisabledAcademics | Views Our Own | Group Account |
Dr. Kira Banks @drkirabanks
5K Followers 1K Following DEI CONSULTANT & PSYCHOLOGIST | I help adults & orgs raise equity from Hollywood ➡️ Broadway. Raising Equity Podcast - Principal, @Mouse_elephant
Raising Equity @RaisingEquity
499 Followers 31 Following #RaisingEquity Podcast: https://t.co/d7wWayuPLj. Workshops: https://t.co/zCCmq6ndoC. Consulting By: @KiraBanks Produced By: @AaronWBanks
Dr. Erlanger "Earl" T.. @DrEarlTurner
7K Followers 4K Following Tenured Associate Professor @ Pepperdine|Psychologist & Creator @therapy4BlkKids| Former President @division37ofapa|📲 IG: DrEarlTurner #YourTrustedPsychologist
Nkemka Anyiwo @NkemkaA
2K Followers 1K Following Mission driven, spirit guided, lover of the people 💜 Alum @UMjointPhD| Ass Prof @ColumbiaSSW |Dir of @BlkYouthImpact |1913🔺 | Naija 🇳🇬 |
@DisMHMatters @dismhmatters
576 Followers 563 Following The mind & body connection is seen mental illness as #disability or disability's effect on #MentalHealth. Coexist here. Safe. Inclusive. #AcademicMentalHealth.
Becoming Incurable @IncurableFilm
483 Followers 134 Following Becoming Incurable is a film that explores the transformation of 3 individuals diagnosed with chronic illnesses. https://t.co/dCbhUFi7UD
Tania Melnyczuk @ekverstania
13K Followers 8K Following Disability rights activist, artist & lifelong learner. Mostly at https://t.co/jlCNiy321g My handle is @alphabetania on Bluesky and Post. 😷
Smina Akhtar PhD 🇵.. @SminaAkhtar
2K Followers 3K Following Anti-racist Socialist, Researches relationship between state racism & collective anti-racist resistance . https://t.co/jeiaainSom…
DisabilityStatistics @disabilitystats
7K Followers 501 Following Rehabilitation Research and Training Centers located at the Institute on Disability at the University of New Hampshire. http://t.co/vVxO1F4E
Institute on Disabili.. @UNHIOD
7K Followers 399 Following Promoting full access, equal opportunities, and participation for all.
nationalpostdoc @nationalpostdoc
17K Followers 2K Following National Postdoctoral Association: providing a national voice for #postdoctoral scholars.
Center for Global Dev.. @CGDev
734K Followers 3K Following The leading think-and-do tank for #globaldev 🌍 Celebrating 20 yrs of independent research & ideas for global prosperity. #CGDtalks [email protected]Pour notre amie #apresJ20 @MartaEsperti . 😘🌺💝 #LongCovid
@MartaEsperti is a grad student living with #longcovid. She’s been such an important voice in our community! If you have the means to contribute, please donate to her GoFundMe. RT plz! gofundme.com/f/call-for-sol…
One of the reasons I dread a Covid-infection: After a severe case of mononucleosis in 2013 that took me out for weeks, the virus flared up every other month with swollen lymph nodes, fever, fatigue etc, making my first two years of grad school even more stressful. #LongCovid
I looked into the recent studies on possible factors predisposing one to #LongCovid, and I do identify with one--the potential reactivation of Epstein-Barr Virus (EBV), aka Mono, which I had a severe symptomatic form of in 2017. ncbi.nlm.nih.gov/pmc/articles/P… 10/x
@JoeBiden @ejreeder3 Please arrange free treatment for those suffering from long COVID. My daughter is only 31 - fully vaccinated & boosted (Pfizer). She is now in her 2nd & worse round of COVID & can’t go to grad school. She needs treatment - it’s too late for prevention.
I hope covid is the global wakeup call we've all needed to open our eyes to what the disabled community has been telling us for decades.
Like a lot of disabilities, long covid is largely invisible. They are lucky (they told me)- both can function+ work+ are not bedridden. However, major impairments to their activity levels. Both get sick very easily now+ more severely than before.
Just to share: My two closest girlfriends from grad school both have long covid. Both healthy, fit, no other issues, early 40s. One got covid early pre vaccines, the other this summer from her kids. Both will likely have lifelong health problems. Long covid=MAJOR disability.
@WesElyMD @longcovacademia I will never thank you enough for your support and solidarity. You are not just an extraordinary doctor but a sensitive, genuine, human and generous person. Thanks for everything you do, cause your help is very concrete. Every MD and Medical researcher should be like you.
@MartaEsperti @longcovacademia Your bravery @MartaEsperti is immense. Thank you for sharing all of this. I am so very sorry. You are so much more than a #LongCOVID advocacy expert, and I hope for you that you’re able to return to finish your PhD. #Honor #Respect
It upsets me when people say I’m high functioning or don’t appear autistic. They don’t see the 4 hour morning routine helping me prepare for the day ahead, hiding when overwhelmed, the meltdowns when I get home, the exhaustion from masking and recovery each day. #ActuallyAutistic
@longcovacademia Disclose it is very hard, but might be the way I will follow myself. I am trying to finish the PhD and I am teaching only 2hours a week. I am on an unemployement salary for the moment, do you know if there are solidarity funds for academics with LC?
@longcovacademia yes me too, I hope the academic colleagues will follow see me that way!
The large majority of population is still not very informed about it. About how much it is serious. There are only lies about herd immunity and people wanna end the pandemic nightmare. Everybody wants that. But so we need PREVENTION, COMMUNICATION, RESEARCH & CARE. #LongCovid
doing this, accepting this new me fully. Maybe this thread is the first step. I should not hide or feel ashamed of this. On the contrary. But we really need society and politicians to understand and possibly take care of people suffering #LongCovid. 👇
in the public sphere. But I am not only that anymore. Is it good or not? I feel bad about it. But I also think that my research and advocacy about #LongCovid is important, is noble, it helped me & other people, and should be accepted as a part of myself. I should start myself 👇
on transnational activism concerning migrants in Europe. And he knew about my Long Covid. It's not possible to dissociate this from me anymore. I hate the disease for doing this to me. I'm not only a sick person I'm also so many other persons. I wanna be the migrations scholar👇
For years I was the expert about search and rescue in the Central Mediterranean, and now my name, also merely searching for my name on Google, is associated to #LongCovid. Today I had a call with a senior Italian researcher who was looking for some help from me in his research👇
consequences that obliged me to take strong anti-coagulants and many different drugs in order to save my life. I also basically engaged in #LongCovid advocacy because I've always had this activist side in my personal and professional life and it was very natural for me. 👇
in order to try to avoid an almost complete disability for life. Long Covid for me meant coagulopathy, myo-pericarditis, post-viral auto-immunity, cognitive impairement, problem of visions, massive micro-vascular damage in my lungs, neuro-inflammation, and many other serious 👇
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