Chronic Illness Inclusion @chronicinclude
We are a voice for disabled people with energy limiting conditions and chronic pain. Join Us https://t.co/nUFz5xUJ0W chronicillnessinclusion.org.uk United Kingdom Joined April 2017-
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So true for our lives
Great to see this important report.
Great to see this important report.
Delighted to ask our followers @ their friends to take part in this important questionnaire
Delighted to ask our followers @ their friends to take part in this important questionnaire
In 2018 we conducted a survey about Accessibility and You. This year, we're going even bigger! Video Description: A purple background with a white search box, text appears as though typed reading "How can I change the future of accessibility?" 1/2
Yes, @JCeoltaSmith, we agree with you!
Yes, @JCeoltaSmith, we agree with you!
A team at KCL has developed a new online peer support platform in collaboration with people living with long-term physical health conditions. They are interested in finding out what people think about the new intervention. Want to get involved? bit.ly/commongroundre…
Solidarity with everyone protesting today #NoMoreBenefitDeaths
Solidarity with everyone protesting today #NoMoreBenefitDeaths
Stats #PIP : gbnews.com/money/pip-long… Seem low to me??? 12,841 claims =infectious disease as of October 2023 10,975 people awarded PIP for viral illness includes 5,808 claimants for #COVID19 October 2022 4,712 PIP recipients = #LongCovid #DWP captured LongCovid March 2021
Stats #PIP : gbnews.com/money/pip-long… Seem low to me??? 12,841 claims =infectious disease as of October 2023 10,975 people awarded PIP for viral illness includes 5,808 claimants for #COVID19 October 2022 4,712 PIP recipients = #LongCovid #DWP captured LongCovid March 2021
Please share this important survey on #Disabled #RemoteWorking
Please share this important survey on #Disabled #RemoteWorking
This is beyond punitive, deliberate targeting of the sick & vulnerable. Cruel and dehumanising. Created by people with no conscience or moral compass.
This is beyond punitive, deliberate targeting of the sick & vulnerable. Cruel and dehumanising. Created by people with no conscience or moral compass.
Such an important message 👇 for all healthcare professionals including #OccupationalTherapists @theRCOT @RCOT_Lauren @RCOT_Work @UKVRA @thewfot @chronicinclude @long_covid @mypossability @SupportingHH_UK #LongCovid #TreatLongCovid and #PreventReinfections
Such an important message 👇 for all healthcare professionals including #OccupationalTherapists @theRCOT @RCOT_Lauren @RCOT_Work @UKVRA @thewfot @chronicinclude @long_covid @mypossability @SupportingHH_UK #LongCovid #TreatLongCovid and #PreventReinfections
Launched today, a new report by @livunigeog, @LiverpoolHopeUK & @chronicinclude reveals the discrimination faced by people with Energy Limiting Conditions and makes a series of recommendations to address the issue and improve care. news.liverpool.ac.uk/2023/09/14/rep…
Now it's officially launched, we can share the animation from our @BritishAcademy_ project on energy limiting conditions. Huge thanks to @stacybias and @4foot11illo for the brilliant art work. Please do share: youtube.com/watch?v=Atdpgi… #NEISvoid #ChronicIllness @chronicinclude
It's not too late to register for our free webinar next week ⬇️ Come and hear from our brilliant research team of disabled women challenging Disbelief and Disregard in healthcare. And find out how to get involved in the next stage of the project. See you there!
It's not too late to register for our free webinar next week ⬇️ Come and hear from our brilliant research team of disabled women challenging Disbelief and Disregard in healthcare. And find out how to get involved in the next stage of the project. See you there!
🚨NEWS🚨Disability benefit assessment 'reform' will push more people with illnesses into work. Lowering the already dangerously low 'fit to work' threshold will see Disabled people hit by benefit sanctions if we are made to work when we're unable to inews.co.uk/news/politics/…
Sharing #Participant call out on behalf of an amazing PGR: Are you living with a long-term #Health condition and managing #Work while unwell? Would you be interested in sharing your experiences in an #Interview? See poster + get in touch with Hannah [email protected]
Interim report below 👇 on my reading list … Our work as @long_covid employment advocates was submitted to this call @somceo @UKVRA @chronicinclude @octoberpoppy @ScribblerPen @RCOT_Gen
Interim report below 👇 on my reading list … Our work as @long_covid employment advocates was submitted to this call @somceo @UKVRA @chronicinclude @octoberpoppy @ScribblerPen @RCOT_Gen
@useless_priest There was ( ongoing) work the @chronicinclude amongst others to look at the social model of disability & how it can better include chronically sick people, and be fit for purpose in today's world. Identifying as disabled is a very personal thing, regardless of impairment
1/ This U.K. consultation see link 2/ has considerable importance to #DisabledPeople, adults and children @long_covid @LongCovidKids @chronicinclude Pursglove publishes ‘action plan’ of working groups, reviews and awareness-raising disabilitynewsservice.com/pursglove-publ… via @johnpringdns
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1K Followers 5K Following IE with PAs.I💚Social Work & Care.360-degree journey in ASC. Care Leaver. Vice Chair Innovation Impact Board https://t.co/zfkzR3HvAm, Social Care Consultant and MBE
Karolina Kuberska @K_Kuberska
950 Followers 2K Following Medical anthropologist. Research Associate @THIS_Institute, @Cambridge_Uni. Currently: maternity safety, dementia care, children's surgery. Before: @dbb_project
Sydney Rose @dizzyneedsalt
3 Followers 17 Following Chronically ill warrior with autoimmune disease sharing relatable content & tips. Just launched my own chronic illness shop. #chronicillness #autoimmunedisease
Nic @LilNic000
466 Followers 3K Following #Disabled & 10x #ChronicIllness inc #pwME for 20 yrs + prob #AuDHD please #WearAMask whovian, history grad, Christian, grey/demi, #ClimateActionNow
Jayroop Ramesh @RameshJayroop
36 Followers 441 Following I try to think, therefore I maybe am. DPhil/PhD Candidate in OMNI Lab @CompSciOxford. Part of @ReubenCollege. Ex-RA @CSE_AUS. Creator @Udemy and @Skillshare.
G.A.D @DoyleGermaine
194 Followers 1K Following A #Daydreamer. Mother & Advocate to AS EUPD 🏳️⚧️ adult. #SickleCell & #KikuchiesDisease wage war in my blood. Fundraising for Mental Health. Link in bio
Jodie Hall @JodieHall_OT
263 Followers 559 Following Clinical Lead OT Mental Health & Physical Health Lead. Developing inclusive, accessible services with the aim of reducing health inequalities. view are my own
Jay @vaga_jay
208 Followers 305 Following I like writing, web design and short walks on the beach. Trying to heal from March 2020 #LongCovid #MCAS Creator: https://t.co/Nt0QIiQbZm
Julia @juliacottageco.. @TwElfWoman_86
1K Followers 2K Following Newly graduated podiatrist, socialist, geek, dogs, cricket, cottagecore, #hEDS, queer, bereaved & surviving. New Scot Opinions mine. Julia/ she/ they👇 from @WorkFoundation @UKVRA @somceo @CIPD @The_TUC @TUCEquality @RCOT_Work @Hybrid_Working @WorkingWithLC @tonywilsonIES @chronicinclude @acasorguk @gmlawcentre @BenClaimant #SecureFlexibleWorking
💥New report 💥 We've released new research on swapping zero-hour contracts for secure, flexible working. A record 1.1 million UK workers (16-64) are on zero-hour contracts in main employment – and only 6% have access to rights & predictable income(1/9) bit.ly/ZeroChoices
2/2 As well as helping to inform powerful research, anybody who takes part in the survey also has the chance of winning a prize! Your insights will help us to shape the future of accessibility information and the work we do. Take part today: surveymonkey.com/r/B2NYHJZ
In 2018 we conducted a survey about Accessibility and You. This year, we're going even bigger! Video Description: A purple background with a white search box, text appears as though typed reading "How can I change the future of accessibility?" 1/2
Do you agree with me 👇 @theRCOT @thecsp @theRCN @BMA_GP @rcgp @BDA_Dietitians @RCSLT @The_HCPC ? #CleanAir #MasksWork #DutyOfCare @SupportingHH_UK @LCD4A @LCNMUK @LongCOVIDPhysio #AHP #OT
📣 Words from our charity family: “Patients should not have to ask to be protected from SARS-CoV-2 infections…when accessing healthcare. All healthcare professionals have a duty of care to do no harm.” - @JCeoltaSmith #LongCovid #ConfrontLongCovid #LongCovidAwarenessDay
#NoMoreBenefitDeaths Cuts Kill In 2010 when austerity began, we were accused of scaremongering when we said the cuts would Kill. Sadly & tragically that’s become grim reality Banner says Cuts Kill Disabled People Against Cuts Today we yet again take to the streets
1/ @carolvorders please read & react to the posts today #NoMoreBenefitDeaths it’s a National Day of Protest @Dis_PPL_Protest @DisRightsUK @TheChronicColab @johnpringdns @CounsellingSam @DeathsByWelfare @long_covid @CommonsWorkPen @WorkingWithLC @LongCovidAdvoc #DWP
#NoMoreBenefitDeaths Cuts Kill In 2010 when austerity began, we were accused of scaremongering when we said the cuts would Kill. Sadly & tragically that’s become grim reality Banner says Cuts Kill Disabled People Against Cuts Today we yet again take to the streets
Stats #PIP : gbnews.com/money/pip-long… Seem low to me??? 12,841 claims =infectious disease as of October 2023 10,975 people awarded PIP for viral illness includes 5,808 claimants for #COVID19 October 2022 4,712 PIP recipients = #LongCovid #DWP captured LongCovid March 2021
@Dan_Wyke We need #DWP figures for all claims #ESA #UniversalCredit #PIP for #LongCovid #MECFS but query if primary diagnosis always recorded ? Think we need to dig deep this yr in data available and new survey if we have the spoons via @long_covid and in collaboration with others …
Please check out and share this U.K. survey 👇on #Disabled #RemoteWorking #HybridWorking It’s still open … @long_covid @DrBEvans @chronicinclude @UKVRA @somceo @WorkingWithLC @TUCEquality @RCOT_Work @octoberpoppy @ScribblerPen @crr7310 @JoD66 @alitwy #LongCovid
We're now into the last month of our survey of disabled workers' experiences of #RemoteWorking and #HybridWorking, so if you consider yourself disabled and/or have a long-term condition & would like your voice heard on these issues, do please get involved! lancasteruni.eu.qualtrics.com/jfe/form/SV_28…
Such an important message 👇 for all healthcare professionals including #OccupationalTherapists @theRCOT @RCOT_Lauren @RCOT_Work @UKVRA @thewfot @chronicinclude @long_covid @mypossability @SupportingHH_UK #LongCovid #TreatLongCovid and #PreventReinfections
With implications for #LongCovid care, @zalaly states: “Resist the urge to simplify it, it can be many different things. If you’ve seen 1 Long Covid patient, you’ve seen 1 Long Covid patient. That’s how heterogeneous it is.” #TreatLongCovid @long_covid
@CounsellingSam @drclairetaylor @trishgreenhalgh @LOCOMOTIONstudy @NikkiS_MCSFS I think this is will be a good example Sam 👇 of sharing research findings @DrBEvans @chronicinclude x.com/drbevans/statu…
Join us 14 Sept 2-3.30pm as we launch resources from @BritishAcademy_ project on gendered experiences of health & social care for people w Energy Limiting Conditions @chronicinclude @annalouruddock @anabeonline @alison_allam @octoberpoppy @thelrm tinyurl.com/msj6krt2 1/4
@HealthHubris @chronicinclude I just found our about the UK parliamentary report into #invisibledisabilities which received input from @chronicinclude. Good to see energy impairment and chronic illness conditions being mentioned in the report in relation to #education and #employment
@cjayanetti @TheHouseMag We know so many people within the #LongCovid community who have had to endure significant battles to be awarded #PIP and have evidence on this too. @long_covid @chronicinclude @ScribblerPen @The_TUC @TUCEquality #DWPFail
Sharing #Participant call out on behalf of an amazing PGR: Are you living with a long-term #Health condition and managing #Work while unwell? Would you be interested in sharing your experiences in an #Interview? See poster + get in touch with Hannah [email protected]
@MECFSNews The brilliant @chronicinclude have also been doing this by thinking across conditions in which energy impairment is a key symptom.
👇 @chronicinclude @long_covid @UKVRA @somceo @TUCEquality @ScribblerPen #Disabled
"Recent Work Foundation research shows that 1.3 million disabled workers are stuck in insecure employment as they sacrifice predictable income as well as key employment rights and protections in order to be able to manage their health condition. (3/6)
Important calls made to support workers with #LongCovid👇 piece by @johnpringdns @UKVRA @somceo @CIPD @tonywilsonIES @chronicinclude
Union activists have called for urgent action to secure the rights of disabled workers with long Covid. #LongCovid @long_covid @JCeoltaSmith @The_TUC disabilitynewsservice.com/union-key-work…
Delighted to be contributing to this new project! Working creatively in thinking about better future care for people with energy limiting conditions. #ELCI #pwME ME/CFS #LongCovid with @chronicinclude & @HJusticeLdn @LivUni & @LiverpoolHopeUK
Over the moon to have @ahrcpress funding for this work on energy limiting conditions with @anabeonline @thelrm @alison_allam @annalouruddock @chronicinclude @HJusticeLdn @chinatmills Aaliyah Shaikh, @LouiseKenward @MeeshECG & Julian Gray tinyurl.com/mwbazxb9 @livuninews
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