sean stidston 🇵🇸 @seanstidston

Joined October 2012

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ME/CFS Science @mecfsskeptic

3 hours ago

1) There's a new German study on the short-term effects of Mestinon (Pyridostigmine). They found that it improved hand grip strength and reduced heart rate increases upon standing in 20 ME/CFS patients.

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sean stidston 🇵🇸 @seanstidston

a day ago

How do severe patients survive with minimal support? I’m being moved into temporary accommodation that is just a room no means to cook. I have to register with every single letting agent in my area, I’ve got to correspond regularly with a housing officer. With next to no support.

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sean stidston 🇵🇸 @seanstidston

a day ago

Does anyones Mcas if it is that. Reflect in big boils or lumps? Mainly for me on my back.

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Rhi @rhirhiarhii

2 days ago

paypal.com/paypalme/ivyem… Pls support she needs us 😭❤️ Surviving homeless and severe me/cfs and LC has decimated her ability to care for herself and has no proper support. #mecfs #LongCOVID

irredeemable crybaby 🇵🇸🇵🇸🇵🇸🇵🇸🇵🇸🇵🇸🇵🇸 @byowife

2 days ago

paypal.com/paypalme/ivyem… Pls support she needs us 😭❤️ Surviving homeless and severe me/cfs and LC has decimated her ability to care for herself and has no proper support. #mecfs #LongCOVID https://t.co/md70D8vJFa

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Alex☮︎ @Aelvidra

5 months ago

Every small donation and every share truly matters, Thank you so much ♡ gofund.me/4dd67546

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Michael Gordon @TeamKarenGordon

3 days ago

PICC line change, virus & Karen has hired a solicitor. We posted an update on our petition on 2 Sept. To read it scroll down our petition page to UPDATES. Save Karen Gordon from Dying (…) chng.it/CGMQTDVvRb Please share Thanks Photo: Aug 25-Karen’s bruised right arm K H & M

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Carmen Scheibenbogen @C_Scheibenbogen

5 days ago

Internationale Deklaration 64 führender MECFS & LongCOVID Wissenschaftler:innen: Wir fordern dringend mehr Forschung & Therapiestudien. Diese globale Gesundheitskrise hat enorme wirtschaftliche und gesellschaftliche Folgen. #TimeToAct is now! #CureMECFS declaration.mecfs-research.org/de/declaration

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sean stidston 🇵🇸 @seanstidston

4 days ago

My living situation has change and I don’t have my beta blockers or other meds. I had to take in food shopping at 6, it’s now 9.30 and my heart rate has been 130 Or more since.

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sean stidston 🇵🇸 @seanstidston

4 days ago

Having been with out beta blockers for weeks, today I had to take in some food shopping and climb some stairs. It’s now 3 hours later and my heart rate is still 130 and having bad chest pain.

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sean stidston 🇵🇸 @seanstidston

4 days ago

What electrolytes do people think are the best. Do you get sticks/ tub ?

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Mike Malaise @mike_malaise

4 days ago

I’m bedbound, extremely severe. My 73yo father is verbally abusive, denies my condition, & threatens to stop helping with basic needs like emptying my pee bottle. I’m worried he’s declining. No emergency contact or care plan. I’m terrified of where I may end up. #LongCOVID #MECFS

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sean stidston 🇵🇸 @seanstidston

4 days ago

Does anyone else get a severely sore throat when crashed or lowered baseline along with mucus issues.

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Carmen Scheibenbogen @C_Scheibenbogen

5 days ago

International Declaration by 64 leading ME/CFS & Long COVID scientists: We urgently call for more research & clinical trials. This global health crisis has massive societal & economic impact. #TimeToAct is now! #CureMECFS declaration.mecfs-research.org/en/declaration

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María Richardson @_diatoma

5 days ago

#VerySevereME emergency in México 🚨 @stefan_arce has asked we share his posts & asks if @JanetDafoe @LBatemanMD @OpenMedF @WorldMEAlliance can share his story & offer some support. We have NO #ME support or recognition in MX. #GreatestMEdicalScandal gofundme.com/f/stefan-arce-…

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TD #JFT97 🍉🏳️‍⚧️ @tdwbi95

6 days ago

His dad forced his sister to get a lobotomy (drilling a hole into the head) which left her permanently disabled.

Republicans against Trump @RpsAgainstTrump

a week ago

His dad forced his sister to get a lobotomy (drilling a hole into the head) which left her permanently disabled.

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sean stidston 🇵🇸 @seanstidston

6 days ago

If the imbalance with sympathetic and parasympathetic is a big factor. Has anyone found help through mestinon?

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sean stidston 🇵🇸 @seanstidston

6 days ago

I’m surprised their hasn’t been much studies on tissues in m.e and LC. Mainly connective tissue and muscle. The regeneration and efficiency of regeneration are defining factors in peoples functioning at least physically.

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2shoes (yt) Matches & Pitchforks_INCINERATE ytness @_Old2shoes

a week ago

A medically fragile pillar of the Disability and MA communities with severe ME is going without assistance for a long while now. Please follow @LadyLonghaul and assist in whatever capacity you have. Wifi shut off notice, wRent, $50 OTC meds, MCAS compounded Rxs, supplements!