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Walker Storz retweeted
In memory of Walker Storz #RIP 🖤 "In February of this year, a doctor concluded that Walker's #CCI and #ME were so severe that he was referred to hospice and diagnosed as terminal. Despite years of relentless pursuit of treatments, he elected to do Medical Aid in Dying." At age…
In memory of Walker Storz #RIP 🖤 "In February of this year, a doctor concluded that Walker's #CCI and #ME were so severe that he was referred to hospice and diagnosed as terminal. Despite years of relentless pursuit of treatments, he elected to do Medical Aid in Dying." At age… https://t.co/emgNAbcZGw
Walker Storz retweeted
devargastaos.com/obituaries/wal… It is with a heavy heart that we share the passing of Walker Storz. He created this podcast shortly after his ME/CFS diagnosis and used it to provide contemplative and meaningful discussions on chronic illness as well as so much more.
auctria.com/auction/storz We are hosting an auction in support of Walker. The auction includes some art, photography, books and other things from both Walker and friends. Funds raised will go to supporting Walker’s medical and housing expenses.
Walker Storz retweeted
Walker Storz retweeted
I am urgently seeking help for my partner who is in a downward spiral. Severe MCAS and leaky gut, ME/CFS Bell 5, he can hardly tolerate food anymore, hardly any medication or additives. We currently don't know how we should feed him.
gofund.me/55ecacd9 Walker is in a deep crash and we are trying to raise funds for IV treatments. Please donate if you are able to. You can read the update for more details here.
gofund.me/55ecacd9 We are halfway to our goal. Thank you to everyone who has donated. Please contribute if you can.
We recently posted an update on how Walker is doing, please read and share! 💟 gofund.me/55ecacd9
Walker Storz retweeted
new work on site in Ecophony//Dawn by Walker Storz andataexpress.neocities.org/dawn "I pick three words a millenium. There’s a rhythm—a waltz, a swing on this rough circular path...."
Louise @rq75yHKOI72w1
12 Followers 524 Following Success isn’t about being the best. It’s about always getting better.
Awpacac @Awpacac721
37 Followers 371 Following
🌱🍋 💡 PaulaPa... @PaulaPsychlo
1K Followers 3K Following Psychologin in Pause, früher mit Power, jetzt Pacing-Azubi, 339 ppm #feminist #cleanair #longcovid #mecfs
Nordi @nordsee1
204 Followers 708 Following Dipl.-Vw, Dipl.-Kauffr., + noch was anderes (verrat ich aber nicht) #PostCovid :-(( Allergie gegen #FCKNZS Ich will ans Meer! #WirSindSarah
Malheur Maloer @malheurmaloer
23 Followers 804 Following
Scott Simpson -- Reme... @RemediesPodcast
4K Followers 5K Following Counselor to plw chronic illnesses: disease-informed, medical trauma-informed, lived experience YT: https://t.co/Cptrzt8xCu #MEcfs #longCOVID #Lyme etc
🔴Katinka Fallermit... @das_pea
1K Followers 5K Following Es gibt keine einfachen Antworten auf schwierige Fragen. Mensch 🤷🏽♀️ Lehrerin SoPäd 👩🏽🏫 linksgrünversifft 💪🏽 & Studentin & Mum of twins 07/2022
Hanna @hannapea121
1K Followers 352 Following 🛌 🌳 🌑 📚 🌊 🐕 seeking for support from bed for lifesaving spine surgery at Centro Médico Teknon Barcelona - #mecfs #eds #mcas
Hannah Rebekah Rice @HannahRRice
1K Followers 8K Following Sewing the fragments of my life together. Disabled. Philosophy. Loves to learn. Curiousity & wonder. Mom. #MECFS #LongCovid #ExFundy #POTS #hEDS #Dysautonomia
McThore @McThoreC0X
31 Followers 3K Following
ME Foggy Dog @MEFoggyDog
7K Followers 4K Following Working to improve the quality of life of M.E. patients using every available means and opportunity #SocialEnterprise #pwME Linktree - https://t.co/TNEwofcNnm
Annie Rose @Annie84468028
211 Followers 948 Following Disability Advocate| BOT; BPsySc| Dm me what you wish people knew about a specific disability, chronic illness or medical condition. I’ll post it anonymously.
jessi 😒 @jejesjesijessi
3K Followers 1K Following You should move your body, and feel it in your spirit / Just listen!
Irish ME/CFS Associat... @IrishMECFSAssoc
3K Followers 2K Following Irish Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Assoc. NB: Posts should not be considered advice. RCN 20100254 CHY 22039. Some #LongCovid items also.
goingtoflorida @goingtoflorida1
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Heather Lindsaychen @oceana1009
1K Followers 879 Following a cloud that drifts over the far mountain @oceana1009.bsky.social
andata express @andata_express
825 Followers 1K Following borne on the wind of a publishing press, 'Andata/outer journey' begins. HOLOHAUS10 out now WAREHOUSE ︱ https://t.co/DmqyiM1BDq
Parker 🍻📘 @centristmarxist
6K Followers 3K Following @MarxistUnityDSA @Cosmonautmag & @Weekly_Worker gardener & organist by trade. democratic socialist hardliner. https://t.co/NGFw84zhaY
N Rog @Nc_Rog
1K Followers 2K Following Once highly active. Now mostly housebound due to Long Covid and resulting ME/CFS and POTS. First waver March 2020. Yes BEFORE the vaccine.
Jack cane @Frankscott__34
14 Followers 188 Following
Margie @margie_james57
314 Followers 3K Following
Stephanie Grach MD MS @GrachStephanie
1K Followers 834 Following @MayoClinicGIM Physician specializing in ME/CFS, Long COVID, & associated complex disease | Assistant Professor of Medicine | She/Her/Hers
Kristin 💚💙 🌊 @KJKrathwohl
601 Followers 5K Following pissed-off no-spoons lady of perpetual rest #ReproRights Infection Assoc Chronic Illness 20y+ #ME #FM #Lyme & Co #LongCovid #FQToxicity at sky place
Nat Veness @NatalieVeness
133 Followers 1K Following :^) nattie fattie #ulcerativecolitis #IBD 🐰 ♥️💚
DG @dawngarlandabq
44 Followers 468 Following
Brandon William @BrandonWil958
17 Followers 289 Following
Julie Rehmeyer @julierehmeyer
8K Followers 1K Following Author of Through the Shadowlands: A Science Writer's Odyssey into an Illness Science Doesn't Understand. NYT; WashPost; Discover; Slate; Stat News… She/her.
Scott Daniska @scott_scientist
3K Followers 539 Following Former ME/CFS researcher and current patient advocating for how environmental factors are driving these Complex Chronic Illnesses
Thomas F. Varley @ThosVarley
4K Followers 949 Following Dual PhD: Complex Systems & Neuroscience. Postdoc @ the University of Vermont. Writes at: https://t.co/AIpNhy7Jef. Connoisseur of collapse phenomena.
MEAction GA @meactionga
531 Followers 357 Following MEAction GA is an online statewide grassroots community for people living with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, their caregivers and allies.
jessi 😒 @jejesjesijessi
3K Followers 1K Following You should move your body, and feel it in your spirit / Just listen!
cold 🥑 @coldhealing
83K Followers 3K Following TikTok anthropologist, midwesterner in exile, feminist, loneliness epidemic superspreader, dark statistician
Sean Padraig McCarthy @SeanMcCarthyCom
65K Followers 13K Following Co-host of Rocinante podcast with Angela Nagle. No war with Iran.
Headless Youth Podcas... @Brainstemlet
241 Followers 288 Following Podcast about chronic illness and systemic poisoning of our population. Edited/often cohosted by @newvideosurface tweets by intern
Jeffrey Lubell (EDS, ... @JeffLubell_C19
3K Followers 542 Following I am exploring treatments for my daughter's EDS & ME/CFS & implications for people with #EDS, #MECFS, and #LongCOVID. Not an MD or professional scientist.
Kenny_LC @Kenny_LCbio
362 Followers 919 Following 🧠👩🔬 Long hauler (2020) w faith in🔬🧪 Pandemic Theme: Save, Save, Save M.E. (Queen 🎼) MCAS, SFN, endoth damage + hyperact platelets. Here to 💬 on Sx & Tx
lyndseysendobattle @lyndseysendoba1
307 Followers 1K Following defying medical science every day,walking medical journal,disability&MH advocate,retired athlete,socially awkward;in it for the chicken nuggets@thewhole115yards
Sibylle Dahrendorf �... @sibylle_berlin
7K Followers 3K Following Ex- Filmmaker || Stop denial of #ComplexChronicIllness || #SmallFiber #POTS #MCAS #CCI #Lyme #FQToxicity #FlagylToxicity #hEDS #ME ||
Carole Bruce @CaroleBruce17
7K Followers 5K Following 💙Art, Nature, Books, Some Music. Severe ME 32 years. Daughter severe 38 years. Furious about treatment of ME. https://t.co/gEIrl86Wim
ME Association @MEAssociation
19K Followers 2K Following We raise funds for medical research into ME/CFS and provide support, information & campaign for people in the UK. RPs do not necessarily mean endorsement.
Lizzy H @hopefullizzy
7K Followers 3K Following 30y/o creative, with complex health issues🤞🏼ME/CFS biomedical research. Passion for the wild, for kindness, and helping all people have a voice. Co-author✨
Whitney Dafoe @DafoeWhitney
11K Followers 72 Following Severe ME/CFS patient and advocate. Sick since 2004, bedridden since 2013. Never. Giving. Up. ✊ Useful info for ME/CFS and Long Covid patients in bio link.
Janet Dafoe @JanetDafoe
16K Followers 225 Following Caregiver for very severe ME/CFS son, advocate and fundraiser for End ME/CFS PROJECT at OMF and CFSRC at Stanford. The rest of my life is on hold...
davidtuller @davidtuller1
11K Followers 2K Following Senior Fellow in Public Health and Journalism, Center for Global Public Health, UC Berkeley. My academic position is largely funded by donations from patients.
Dianna Cowern @thephysicsgirl
212K Followers 2K Following Science Video Creator, Tweeting about #LongCOVID as @diannahaze, MIT Physics, Forbes 30u30 https://t.co/BT5fDLf0LO
Mike Recine @mikerecine
46K Followers 3K Following The Tom T. Hall of standup comedy. Pottstown and Denver next. Tickets here: https://t.co/sj12nxS7Se
ME Foggy Dog @MEFoggyDog
7K Followers 4K Following Working to improve the quality of life of M.E. patients using every available means and opportunity #SocialEnterprise #pwME Linktree - https://t.co/TNEwofcNnm
Fran Haddock @franhaddock_
986 Followers 465 Following Spoonie 🥄 Activist ✊ Vet 🩺 (she/her) Currently bedbound with severe ME + Long Covid (more active on IG)
Bridget O'Shea @Bridget_OShea
3K Followers 2K Following Certified medical #writer, enthusiastic #journalist, cat mom, @UChicagoProEd, ME/CFS patient. Freelance journalist. Available for medical writing and editing.
Jo @cfs_jo
4K Followers 2K Following CFS(!) & POTS diagnosis, ME symptoms - trying to accept. Still me. Sense of humour intact. Proud “Anti-Recovery Activist” On justjo@bskysocial if X goes tu
still butch, still in... @chronic_dyke
3K Followers 4K Following chronically ill, mostly white jew for Palestine • may I disappoint my ancestors and make Leslie Feinberg proud
Amy @alexandrite113
8K Followers 881 Following Tweeting into the void. ME is the "living death disease"
Josh @ProperChels34
3K Followers 268 Following #LongCovid+ ME/CFS since Feb 2021. #POTS #AdrenalInsufficiency #CCI
Emma 🦋✝️ @Emma40025133
3K Followers 1K Following Long Covid since my first infection in 2021. Caused POTS, MCAS & extreme fatigue. I just never recovered from my acute infection. I feel acutely unwell daily
Jason Roy @mrjasonroy
1K Followers 769 Following CTO at CompareNetworks, music freak, basketball lover and cat weirdo. Working on building things that help scientists. #LongCovid headaches… always
Irish ME/CFS Associat... @IrishMECFSAssoc
3K Followers 2K Following Irish Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Assoc. NB: Posts should not be considered advice. RCN 20100254 CHY 22039. Some #LongCovid items also.
R.Сам 🦋🐏 @Logo_Daedalus
55K Followers 372 Following Content I live, this is my stay-- I seek no more than may suffice-- I press to bear no haughty sway-- Look-- what I lack my mind supplies!
Sean P. McCarthy @seanmccarthyceo
843 Followers 308 Following CEO of Sean P. McCarthy enterprises. @SmokesPod
andata express @andata_express
825 Followers 1K Following borne on the wind of a publishing press, 'Andata/outer journey' begins. HOLOHAUS10 out now WAREHOUSE ︱ https://t.co/DmqyiM1BDq
goingtoflorida @goingtoflorida1
829 Followers 378 Following
@bennessb.bsky.social @bennessb
24K Followers 597 Following currently: haunted / unwell & host of No End In Sight, creator of #NEISVoid, a keeper of @RTsFromTheVoid. she/her.
Parker 🍻📘 @centristmarxist
6K Followers 3K Following @MarxistUnityDSA @Cosmonautmag & @Weekly_Worker gardener & organist by trade. democratic socialist hardliner. https://t.co/NGFw84zhaY
Heather Lindsaychen @oceana1009
1K Followers 879 Following a cloud that drifts over the far mountain @oceana1009.bsky.social
Ross Douthat @DouthatNYT
208K Followers 412 Following NYT columnist, author of Believe, https://t.co/knRQn31ehz, host of Interesting Times, https://t.co/lHQ9JJT1Iv
#MEActionMaryland @MEActMaryland
616 Followers 1K Following Maryland Chapter of #MEAction Network: advocacy, education & support for people with Myalgic Encephalomyelitis #MECFS & complex chronic illnesses in the DMV/MD
Dan Wyke 🦠➡️�... @Dan_Wyke
13K Followers 5K Following M.E. inactivist; person-centred counsellor (currently not practicing); recovering poet (Rack & Waterloo Press)
Olenka Sayko @coco_chatel
3K Followers 1K Following Ukrainian-American. Theater/film/music/book lover. Former arts finance girlie. Left-ish Libertarian-ish. Life on pause due to disabling #LongCOVID.
eIisa @mildTin
2K Followers 616 Following Looking forward to a nearish future without disease, acute or chronic. Millions with Long Covid and ME/CFS working and waiting to get our lives back
DG @dawngarlandabq
44 Followers 468 Following
Claudia Carrera @claudiamcarrera
749 Followers 354 Following #pwME on med leave from PhD in music/sound, media, & performance studies and American studies. #MEcfs & grad worker union activist. Writer, director, curator.
Erik Johnson @erikmoldwarrior
2K Followers 625 Following If the only way the ME/CFS community can prosper is through the murder of science and truth, then I say with all my heart: let it be destroyedTrends for United States
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