DoYouRlyWantToKnow? @Huntingtons_Doc
The award-winning documentary by Oscar-winning director John Zaritsky about three families who must decide whether or not to be tested for Huntington's Disease. DoYouReallyWantToKnowFilm.com Vancouver, Toronto, Cleveland Joined August 2012-
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A great presentation by of one of the stars of our film, the always lovely @jcarroll42, in which he shares his “origin story”:
A great presentation by of one of the stars of our film, the always lovely @jcarroll42, in which he shares his “origin story”:
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Our producer @Kevin_Eastwood has a new documentary on the rise of #PTSD amongst paramedics/EMS. It airs this Sunday, April 8 on @cbcdocs. Check it out!
Our producer @Kevin_Eastwood has a new documentary on the rise of #PTSD amongst paramedics/EMS. It airs this Sunday, April 8 on @cbcdocs. Check it out!
DoYouRlyWantToKnow? retweeted
First Clinical Trial of a Genetic Therapy for Huntington’s Disease Nears Completion fb.me/8kts8k1Es
DoYouRlyWantToKnow? retweeted
Evolving CRISPR-Cas9 techniques can now be used to edit the HD gene in a living mouse brain. en.hdbuzz.net/244
DoYouRlyWantToKnow? retweeted
It's the Jeff and Ed "Ask the Scientist - anything" session at #hdsaconvention starting now #WaveLifeSciences
DoYouRlyWantToKnow? retweeted
When you some how control your inner fangirl long enough to chat and get a photo taken! Sharing, listening and learning, @HDBuzzFeed.
Great piece on one of the stars of our film, the remarkable Jeff Carroll (@jcarroll42) - via @seattletimes: seattletimes.com/seattle-news/h…
One of the stars of our film @jcarroll42 has been awarded a new $800k grant to research #Huntingtons. Congrats Jeff! westerntoday.wwu.edu/news/releases/…
DoYouRlyWantToKnow? retweeted
“I hope for the best and prepare for the worst,” “I act like it’s going to kill me, but I hope and I believe that it won’t.” @jcarroll42
DoYouRlyWantToKnow? retweeted
“Within the HD community, Jeff is pretty much everyone’s hero" @dredwild on @jcarroll42 This feature explains why: windowmagazine.org/window/index.p……
If you're in Canada, catch this new film from one of our producers about physician-assisted dying:
If you're in Canada, catch this new film from one of our producers about physician-assisted dying:
DoYouRlyWantToKnow? retweeted
Did u know @HDSA was founded by Marjorie Guthrie-wife of THE Woody Guthrie?:) so inspirational..see #TLMO June 1 #HBO bit.ly/1FAz140
DoYouRlyWantToKnow? retweeted
A DIFFERENT DRUMMER: CELEBRATING ECCENTRICS plays @TIFF_NET 2:15 PM Apr 28 @HotDocs #HotDocs15 #EyeonCanada buzz.mw/bqs2c_f
DoYouRlyWantToKnow? retweeted
#ADifferentDrummer @HotDocs #JohnZaritsky celebrating eccentrics including Vancouver's #ducklady -DanLyon
DoYouRlyWantToKnow? retweeted
John Zaritsky's latest, A DIFFERENT DRUMMER, screens tonight! 8:45pm at TIFF Bell Lightbox. ow.ly/M4dqj #HotDocs15
Stars Jeffrey and Meghan Carroll at the Q&A after our screening tonight at the @pickfordfilm center in Bellingham.
Wow - great turnout tonight at the @pickfordfilm center! Thanks everyone who came out and filled the house!
Reminder we are screening tonight at 6:30 at the @pickfordfilm center in #BellinghamWa. Tickets: prod3.agileticketing.net/websales/mobil… #huntingtonsdisease
DoYouRlyWantToKnow? retweeted
Bestselling author Lisa Genova's book on Huntington's disease is out. #huntingtonsdisease @HuntingtonsHelp @HuntingtonSC @Huntingtons_Doc
"Do you really want to know? A life and death decision" - via @CascadiaWeekly: cascadiaweekly.com/currents/a_lif… #huntingtonsdisease
HDBuzz @HDBuzzFeed
6K Followers 2K Following Huntington’s disease research news. In plain language. Written by scientists. Editors @labscribbles @rungenado
Huntington's Disease ... @HDA_tweeting
4K Followers 2K Following Huntington's Disease Association is a registered charity that supports people affected by #HuntingtonsDisease (HD) in England and Wales. #MindfulOfHuntingtons
Therese Crutcher-Mari... @crutchertherese
607 Followers 400 Following I'm a Huntington's Disease advocate, President for HDSA SF Bay Area Chapter, a blogger & author of Watching Their Dance.
HDYO @HDYOFeed
2K Followers 725 Following An international non-profit organisation supporting, educating & empowering young people, up to 35 years, impacted by Huntington’s Disease around the world.
@huntingtonsc @HuntingtonSC
3K Followers 854 Following A national network of volunteers and professionals working together to find a meaningful treatment for Huntington disease.
Dr Lauren Byrne @LaurenByrne7337
1K Followers 401 Following Huntington's disease researcher (@houseofbyrne) and family member. Tweets are my own. Passionate about dogs, wine, cheese and curing HD.
Emily Bryant @Miss_Emily61121
0 Followers 13 Following
Phosmoo @phosmoo35917
4 Followers 516 Following Be bought by the good scenery, and the rest is all a good mood.
Rasmus Damgaard @RasmusKontraer
39 Followers 532 Following
Hannah Seaton-Faulkne... @HSeatonFaulkner
675 Followers 2K Following Speech&Language therapist Dysphagia🍕 Communication🗣 Altered Airways🫁 Neuro Rehab🧠 Palliative care🕊 MentalCapacity🧐 I❤️🐕⛱️🚶♀️➡️ All views my own
Anne-Marie Ungerer @AMUngerer
86 Followers 868 Following I love cooking , reading , drinking wine , and I run a Huntington's Disease support group#letstalkaboutHD#livingwithhuntingtonsdisease
Therese Alting @theresealting
265 Followers 851 Following Hmm…work: neuropsychologist and Huntington’s disease. Fun: birding, chatting about ideas while drinking Shiraz.
Moving Images @MovingImagesDS
187 Followers 359 Following We are a nonprofit Canadian distributor connecting audiences with strong, compelling independent film and screen-based media. -- film for thought --
Molly Gracey 👩🏼... @MollyFGracey
117 Followers 196 Following @MIBTP1 PhD student | @unibirmingham | @BBSRC funded | Interested in research into neurodegenerative diseases | https://t.co/jzxrbE4iJH
Ruetheday @BuckNkd
43 Followers 1K Following
HDSA San Francisco Ba... @HDSA_SF
271 Followers 537 Following Updates and news from the Huntington's Disease Society of America San Francisco Bay Area Chapter. #LetsTalkAboutHD. Recommendations? email [email protected]
jonny @JonnyJonto
200 Followers 2K Following speedway nerd. olympics mega fan. all around geek. gaining a new live for tattoos, creator of cheesecake 🏳️🌈🏳️🌈
Maheen David @maheendavid
269 Followers 817 Following writer, producer / @netflix preview club. Formerly film & comms @ionispharma @nflnetwork @sanmarcoscity. Proud @LCCMavs mom: @aidendavidfr 4.14 gpa athlete
Kevin Jess @DJKevinJess
575 Followers 2K Following Writer, foodie and Port Pub marketing guy. Also raising awareness of Huntingtons Disease. Host of WeHaveAVoice Radio
Hero Film @Hero_Film
543 Followers 1K Following INSPIRED BY the life & times of Mr. Ulric Cross, a young Trinidadian. A decorated navigator in the RAF, who became a jurist & part of the Panafrican movement.
Journal of Huntington... @journal_hd
1K Followers 249 Following Journal of Huntington’s Disease | Dedicated to expediting our understanding & improving treatments of HD | Editors: Blair R. Leavitt & Leslie M. Thompson
Carol Mae Kennedy @WeHaveAFaceUK
54 Followers 205 Following I am the Vice President of WeHaveAFace England and Wales. I am a Registered Nurse and an educational trainer. We work diligently for Huntington's disease.
Daniel Mejia @DanielM28129688
198 Followers 4K Following
HDExchange @HDExchange
28 Followers 57 Following Delivering a hand-picked selection of Huntington's Disease research, fundraising, and awareness content from across the web bi-weekly!
Lisa Smart’s Huntin... @lisasmarthst
144 Followers 293 Following Help, support and advice for Huntington's Disease sufferers and their families, plus a place to talk :)
Master Your Life with... @MYLEmporium
1K Followers 2K Following Thought Coach, Author, HD Gene+ & Radio Host @ukhealthradio. Follow me to create the health and confidence you desire.
Nicola Sacco @NicSaccoOrganic
4K Followers 4K Following
mohamed hameed aslam @aslamindian
50 Followers 335 Following
David Bird @daveb2773
0 Followers 23 Following
Peter Forbes @heliconiuscydno
2K Followers 2K Following Science, art and what's happening. Teach Narrative Non-fiction at City University.
Teva Pharmaceuticals @TevaUSA
11K Followers 1K Following We’re a leading innovative biopharmaceutical company, enabled by a world-class generics business. Guidelines: https://t.co/sOC1rpJ9tr
Londen Tabor @londen_tabor
155 Followers 442 Following My daughter is a JHD Warrior and I am her biggest advocate. Together we raise awareness for our Juvenile Huntington's Disease Community 💜💙
ALESKA GONZALEZ @ALESKAGONZALEZ
63 Followers 125 Following
clarisse mcclellan �... @deathscort
156 Followers 917 Following a book is a loaded gun // burned out health care worker, clinic escort, public health enthusiast with a lot of autoimmune funkiness 🌄🏒🌈🐱
Museum of Anthropolog... @MOA_UBC
14K Followers 8K Following This account is no longer active. You can continue to find MOA on Instagram, Facebook, Threads, TikTok, YouTube and LinkedIn at @moa_ubc.
Parkinson & Movement ... @PMDAlliance
2K Followers 442 Following PMD Alliance provides opportunities for people impacted by PD, HD and other movement disorders to learn, live, and connect.
Shanni Collins @shannicollins1
312 Followers 768 Following Published Illustrator and author and artist with a commitment to equalities and diversity and a love of the wilderness
mrz thompson1 @lorririchardson
25 Followers 237 Following
FTDtalk @FTDtalk
3K Followers 2K Following We are the @jonrohrer lab @UCLIoN - our work aims to help people with frontotemporal dementia and associated disorders - we run the @GENFI1 FPI @EDoFTD studies
Lisa Ashworth @lisaashworth1
6 Followers 92 Following
Marilyn Lightfoot @MarilynLightfo1
131 Followers 901 Following
HD-YAS @UCLHD_YAS
241 Followers 176 Following Huntington's Disease Young Adult Study (HD-YAS). A research study specifically for healthy young adults who carry the HD gene and control participants who don't
tired!susan 🧁 @VegansRock
129 Followers 165 Following queer af. she/they. professional shipper. lover of musical theatre+theatre. cozy games. fuck terfs. in my #mafin🧁 depression era.
Huntingtons Warrior @huntingtonsgir
344 Followers 4K Following I have been diagnosed with a terminal illness. I would love to become an advocate for the HD community! I was diagnosed in August and I'm fighting everyday.
HD Laura @HuntingonsD
79 Followers 307 Following 50/50 chance of having HD, mum diagnosed with Huntington's 4 years ago
Mike McCormick 🇨�... @CanuckinGA
547 Followers 3K Following Canadian/American, living in Atlanta. Interested in hockey, baseball, poker, bacon, and investing. Member of Civitan (past Jr. Civitan Int'l President).
Peter McColgan @Peter_Mc_Colgan
729 Followers 606 Following Neurologist and Neuroscientist. Clinical director @Roche | Senior Research Fellow @UCLHD | Honorary Consultant Neurologist NHNN
Susie Antonia @SusieRialp
124 Followers 561 Following Canadian. Author. Educator. Artist. Photographer
Frances-Anne Solomon @FrancesAnne
2K Followers 1K Following Filmmaker || Producer || Activist she/her/elle https://t.co/9WsJe3kI7A
HDSA - Tennessee @hdsa_tennessee
185 Followers 72 Following
HDBuzz @HDBuzzFeed
6K Followers 2K Following Huntington’s disease research news. In plain language. Written by scientists. Editors @labscribbles @rungenado
Huntington's Disease ... @HDA_tweeting
4K Followers 2K Following Huntington's Disease Association is a registered charity that supports people affected by #HuntingtonsDisease (HD) in England and Wales. #MindfulOfHuntingtons
HDYO @HDYOFeed
2K Followers 725 Following An international non-profit organisation supporting, educating & empowering young people, up to 35 years, impacted by Huntington’s Disease around the world.
@huntingtonsc @HuntingtonSC
3K Followers 854 Following A national network of volunteers and professionals working together to find a meaningful treatment for Huntington disease.
HDSA @HDSA
6K Followers 1K Following The Huntington’s Disease Society of America is the premier nonprofit organization dedicated to improving the lives of everyone affected by Huntington’s disease.
Scottish Huntington's... @ScottishHD
2K Followers 419 Following The only charity in the country exclusively dedicated to providing expert and personalised support for those impacted by Huntington’s disease.
The Canadian Academy @TheCdnAcademy
37K Followers 4K Following Official tweets from the Academy of Canadian Cinema & Television and the #CdnScreenAwards.
Ben's Friends @bensfriends
4K Followers 2K Following #BensFriends is a network of #patientcommunities for people with #raredisease and #chronicillness. 501c3 Nonprofit: https://t.co/X2Pip2rsIz
Cascadia Weekly @CascadiaWeekly
2K Followers 218 Following The Cascadia Weekly was northwest Washington's arts & entertainment newsweekly from 2006-2021. Cascadia Daily News launches January 24, 2022.
Kerry Gold @GoldinYVR
5K Followers 3K Following Journalist & Globe & Mail housing columnist for 16 years. Author, former music critic at a daily paper.
Katie Uhlmann Chats @KatieChats
7K Followers 6K Following Let's connect! https://t.co/RJgkLeKLmq https://t.co/ywFE8fH79E https://t.co/lNRSrNt7yG… https://t.co/FNSqkptmS1…
The ALS Association @alsassociation
32K Followers 859 Following Fighting ALS on every front through research, care services, and advocacy. Community guidelines: https://t.co/Af1fOXXTLG
Davie Nicol @davienicol1
155 Followers 351 Following
HD Reach @HDReach
1K Followers 80 Following HD Reach is a nonprofit organization dedicated to providing access to healthcare, education, and social assistance for those affected by Huntington’s disease.
debbie nicol @debnicol
215 Followers 510 Following
Eirinn @indigolantern
101 Followers 104 Following Old soul. Young at heart. Open mind. Ever the informed idealist, the perpetual goofball, & the champion of causes. Outspoken Gryffindor. Too wordy to use Twitte
AMEH_HUNTINGTON @AMEH_HUNTINGTON
216 Followers 319 Following Somos asociación Mexicana de la enfermedad de Huntington, la única organización en México que brinda atención integral a las personas con EH y sus familiares.
tonia black @toniahays1974
884 Followers 4K Following howdy everyone I've got Huntingtons disease that's what the web sites about.
DeAnna @veneziagirl65
53 Followers 56 Following Organic-vegan living lover-Huntingtons disease warrior-fab-n-fifty-travel the world-kind a girl.
Amelia C. Valvano @ladymet17
251 Followers 396 Following Mom of James Valvano at #WeHaveAFace advocating for Huntington's disease!
HOPES @hopes_stanford
329 Followers 557 Following HOPES aims to make information on Huntington's disease research accessible for patients and the public. Visit our website to check out our articles!
Joe Giuliano @jdgiuliano
251 Followers 287 Following Healthcare professional, treatments for rare diseases, dad, husband, amateur poet, love Italy. Retweets are not endorsements. All views expressed are my own.
Jeanine van de Groep @Hoopoptoekomst
66 Followers 150 Following Schoonzus / ziek / Huntington / Dam-tot-Damloop 2013 / Hoop op toekomst / Onderzoek / Zeldzame Ziekten Fonds
Shelby Thompson @Shelbinator7117
279 Followers 886 Following A voice for my generation of Sheeples! -World issues, World Peace-Huntingtons Disease Awareness- Spiritual Wellness- IG: shelbinator7117
Loiner_nick77 @Loiner_nick77
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Adam Smith @BetterResearch
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Genesis Cinema @GenesisCinema
18K Followers 4K Following Family owned & Independent cinema continuing the tradition of entertaining East London since 1848. https://t.co/PbaAfQS3Fd
Dr. Jan Nolta @jan_nolta
12K Followers 8K Following Director, Univ. California Davis Health Stem Cell Program & Gene Therapy Center. Editor, Stem Cells. #firstgen https://t.co/UYKJpKOqGz
Camrose HD Society @HSCcamrosechapt
285 Followers 111 Following The Camrose Chapter of the Huntington Society of Canada is a group of people and families that are affected by Huntington Disease in Camrose AB area.
DIGNITY SOUTH AFRICA @DignitySAfrica
12K Followers 12K Following https://t.co/Dg1yEcD8V6 - an NPO committed to legalising #AssistedDying in SA. To making humanity humane.#HumanRights
Lucy Walker @lucywalkerfilm
17K Followers 4K Following twice Oscar-nominated director of Mountain Queen, How To Change Your Mind, Bring Your Own Brigade, The Crash Reel, Waste Land, Blindsight, Devil's Playground
Iowa_Genetics @IIHG_Genetics
989 Followers 980 Following The Iowa Institute of Human Genetics (IIHG) is a statewide resource to promote clinical care, research, & education on advances around the human genome.
Michelle Muller @zizellezuller
198 Followers 781 Following Artist, MSc Neuroscience (UBC), Bachelor in applied Biotechnology + Gyrokinesis® & Gyrotonic® trainer
Chris N @Cherriblssm67
268 Followers 27 Following
Help4HD @Help4HDI
1K Followers 501 Following Help4HD-International, is a non profit organization serving the #Huntingtonsdisease and #JuvenileHuntingtonsdisease community.
Sherry Dempsey Byram @SherryLByram
110 Followers 153 Following I am spreading Huntington Disease Awareness for my sons. I am a Regional Advocate for http://t.co/fEktimdlbf My son has HD & my other one had JHD
Deb Madden @Deb_Madden
388 Followers 602 Following Advocate for https://t.co/fr2JpLpsaO for Huntington's and Juvenile Huntington's disease.
Emma Hughes @Em_L_Hughes
327 Followers 364 Following Policy & Engagement Manager for Wales @GeneticAll_UK and @rarediseaseuk , Trustee @CHWchildren, PPI Lead @WalesGenePark
TotalGiving™ @Total_Giving
15K Followers 13K Following TotalGiving is 100% Free and we take zero commission, 1 hour support response. Over 13,000 UK Charities already use us.
Project Alive @Projectalive
1K Followers 361 Following 501c3 funding first gene therapy clinical trial for Hunter Syndrome with your help. Save kids from a rare, terminal disease that steals them by their teens.
Unique @Unique_charity
8K Followers 2K Following Unique supports and informs anyone born w/a rare chromosome or gene disorder, their families and carers. Eurordis Patient Organisation Award winner.
Jeans for Genes UK @jeansforgenes
16K Followers 9K Following Wear your jeans, donate & transform the lives of people living with genetic disorders. Find out more about us and all the ways to get involved!
Gene People @GenePeopleUK
5K Followers 2K Following Charity supporting families affected by genetic conditions providing the UKs only free Genetic Counsellor-Led Helpline 0800 987 8985 | [email protected]
Barbara Coombs Lee @BCoombsLee
7K Followers 6K Following Founder and president emerita of Compassion & Choices, and author of FINISH STRONG: Putting Your Priorities First at Life’s End https://t.co/4Pmi3bZEEn
RareDiseaseFdn @rarediseasefdn
8K Followers 495 Following Changing the lives of patients affected by rare & undiagnosed diseases through social support, advocacy & treatment-focused research. https://t.co/qWTTVoKeyL
Paul van de Groep @PaulvandeGroep
232 Followers 334 Following Pensionado, volunteer at the Heemhof Apeldoorn, supporter of @CTeamHuntington, granddad of 6 grandchildren, 2 at risk of Huntington's Disease
HDLutece @HDLutece
106 Followers 198 Following HD patient positive (5 years Unversity postgraduate, bilingualhad to quit my job, and helped my mother to take care of my father for 17 years English, frenchTrends for United States
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