Notts IPF Support @IpfNotts
This Support Group is for patients diagnosed with IPF, including family and friends. Joined January 2015-
Tweets76
-
Followers187
-
Following105
-
Likes12
Notts IPF Support retweeted
We ❤ our new #IPF #supportgroup flyers! Encouraging our patients to attend and benefit from the group @ActionPFcharity @IpfNotts @NUH_Respiratory @TeamNUH @BeverleyBrady10
4
4
14
0
0
Download Image
Notts IPF Support retweeted
Latest delivery of IPF support group flyers have arrived! (Added on @lunguk details) Please message if you’d like some in your area... @NHSNottingham @NHSNNE @NottmWestCCG @NHSRushcliffe @ActionPFcharity @IpfNotts @IPFdoc
Notts IPF Support retweeted
Promoting IPF diagnosis, care and our support group on the respiratory wards @TeamNUH @NUH_Respiratory @ild_inn @ActionPFcharity #IPF #ILDNurses
Looking forward to seeing all @EdwaltonGolf for ##NottsIPFSupportGroup tomorrow at @12. See you there.
Looking forward to next Notts IPF support Group @EdwaltonGolf centre. Tuesday 16 August @1215. Hope to see you there
Second post of pictures from Support Group. ...
A little late, fab singing at Support Group on 21 June. Thanks everyone for attending and lovely to see you all.
Next Support Group...Tuesday 2 February at Edwalton Golf Club, 1-3 pm. See you there?
#happychristmas from your Nottingham IPF Support Group. 🎄🎄🎉. May you have a holiday filled with love. - from us all on The IPF Team. ☺️🎄😊
Last pictures from the day. Thank you all.
Wonderful food at the buffet ....
Photos 5-8 from the Support Group.
Another successful Support Group with amazing food. Thank you all ..... Photos 1-4
Looking forward to the next IPF Support Group @IPFdoc @WendyDickinson5 ... No talks this time but Xmas buffet. Edwalton , 12 pm, Tues 8 Dec.
Congratulations to @NewtonJane8 @IPFdoc @ActionPFcharity with the opening of the new side rooms on Fleming. #proud m.nottinghampost.com/Good-Deeds-Not…
Good luck @NewtonJane8 and @IPFdoc on the official opening of the first IPF Palliative care side rooms .. 🍀. Congratulations. 😊
IPF Models Consortium @IpfModels
122 Followers 187 Following NIH Funded UO1 Consortium to Discover & Validate Pre-Clinical Models of Idiopathic Pulmonary Fibrosis
Clare (Hodkinson) Bec... @weeClareB
99 Followers 304 Following Research Funding & Impact Manager @ActionPFcharity, wife, Mum, lover of Zombie shows, Sci-fi, knitting/crochet, living my best life with #pulmonaryfibrosis.
Pilar Rivera-Ortega @PilarRiveraOrt1
3K Followers 5K Following Respiratory Consultant, sub-specialty in Interstitial Lung Disease #ILD 🫁 Royal Devon and Exeter Hospital. Tweets=my own 🇵🇪🇪🇸🇬🇧 #RWE #RCTs #Genetics🧬🌎
Laura Fabbri @Istamina
1K Followers 1K Following Respiratory physician, clinical research fellow, ERS early career representative for Assembly 12. human being, Italian heart. she/her. #curePF #ILD #PPIE
Joanna Ruck @RuckJoanna
77 Followers 127 Following
BioBoyScout @BioBoyScout
4K Followers 844 Following Independent Biotech Analyst & Patent Atty. Robert Toczycki, JD, MBA. Developer of online biotech valuation calculators. Chicago native. Opinions my own. RNAi
Vanessa holmes @vanessaholmes29
562 Followers 1K Following Highly Specialist Respiratory Physiotherapist - NNE @Nottshealthcare. Elite MTB racer -team jakrabbitt
Oxford Pulmonary Fibr... @OxfordSupport
34 Followers 31 Following I am an Interstitial Lung Disease Specialist Nurse. All views are my own.
Lucy thow @ThowLucy
27 Followers 94 Following
NIHR Nottingham BRC @NottmBRC
2K Followers 815 Following Nottingham Biomedical Research Centre is changing health by translating world-leading research into breakthrough treatments. Funded by @NIHRresearch
Three Lakes Foundatio... @ThreeLakes_TLF
540 Followers 402 Following We serve as a catalyst for uniting research, industries, and philanthropy in pulmonary fibrosis to improve time to diagnosis and accelerate new therapies.
Steve Jones @ActionPFsteve
2K Followers 373 Following Trustee of @ActionPFcharity, a patient organisation committed to supporting people living with pulmonary fibrosis. Board member of @EU_IPFF
Colin Edwards @ColinEdwards767
472 Followers 916 Following Founder Merlin Consulting optimising #digital #healthcare. Co-founder & ex-Chief Scientific Officer @patientMpower.
Chronic Respiratory D... @CRD_Journal
2K Followers 930 Following Chronic Respiratory Disease is a peer-reviewed, open access journal, created in response to the rising incidence of chronic respiratory diseases worldwide
Kevin E FitzGerald @IPFAdvocate
17K Followers 12K Following Pulmonary Fibrosis (IPF) Patient Advocate - Raising Awareness of #IPF #PulmonaryFibrosis #RareDisease #CureIPF #IPFAdvocate • Inspirational Speaker • Ambassador
leelee @SandyLA34167842
2 Followers 32 Following looking for your help ! Idiopathic pulmonary fibrosis patient
Pulmonary Wellness Fo... @PulmWellness
2K Followers 2K Following Cardiovascular, Pulmonary, Complex Medical Rehabilitation, Education and Research
INJUSTIS Study @INJUSTIS_Study
125 Followers 173 Following The It's Not JUST Idiopathic pulmonary fibrosis Study - a multicentre study identifying biomarkers of progressive fibrotic lung disease.
IPF Awareness @IPFawareness
926 Followers 441 Following Aiming to increase awareness of Pulmonary Fibrosis, support charities in helping improve the outcomes and quality of life for patients with this disease
Katharina Knoll @KnollKa
1K Followers 2K Following Manager & researcher | Speaker, Trainer, Consultant | Board member @dnwe #FFM | #nachhaltige100 | former vzbv/EUKOM | myviews
Dr.Raed Alsultan @alsultan_raed
887 Followers 5K Following Philosophy Ph.D. student in Forensic Medicine and Toxicology
cheryl salazar @cherylsalazar17
8 Followers 140 Following
Sarah Lines 💙 @ILD_Sarah
814 Followers 564 Following Wife, Mum of 4, Grandma,Lead Interstitial Lung Disease (ILD) Clinical Nurse Specialist @Exeter_ILD @RoyalDevon. Apiarist. Views my own
Pat @teachermum2
168 Followers 766 Following Wife, teacher, Catholic, interested in politics, social justice, womens' issues, education
Marjukka Myllärniemi @myllarni
8K Followers 4K Following Prof/pulmonary medicine, U of Helsinki and at the Heart and Lung Center, HUS, comics at https://t.co/vxSdFVj5od
Susan Mary Henson @henson7710
2 Followers 35 Following
MorganHyland/Stephen @smorganhyland
552 Followers 2K Following In a good moment. Owner@ Sevo, Manchester based progressive placemaking planning consultancy. Trustee @ActionPFCharity. Mancunian. Personal Tweets
Crookese10 @crookese10
43 Followers 142 Following Respiratory and Sleep Physiologist and super proud mummy of 2.
justin wyatt @justinw19249337
966 Followers 2K Following Senior nurse. Father and Grandfather. Loves R&B. Passionate about improving care for patients with LD and complex needs. Undergoing treatment for Cancer
Keeley Chambers 💙 @keeleychambers
67 Followers 555 Following kissed a few frogs finally married my prince
tom mooney @tvd218
7 Followers 149 Following
monARCbio @monARCbio
194 Followers 365 Following Transforming health data into evidence that accelerates research and improves care.
Idiopathic pulmonary ... @IpfRm
1K Followers 159 Following Helping you better understand, manage and talk about idiopathic pulmonary fibrosis (IPF). Join us at https://t.co/gSi1wts8u6
Pulmonary Associates ... @SleepPulmonary
357 Followers 383 Following Pulmonary Associates of Brandon delivers the highest quality of healthcare for patients with pulmonary diseases, critical care illness and sleep disorders.
COPD Nursing Team @COPDNurses_UHL
2K Followers 2K Following We are the #COPD nursing team for @Leic_hospital. We provide patient centred care for those with Chronic Obstructive Pulmonary Disease 🫁
Helen Gregory @helengregory5
983 Followers 2K Following @SheffieldHosp #PROUD #TeamMAPS #BrilliantPlaceToWork All views are my own.
Lucy Howard @lucyjhoward
194 Followers 288 Following Research professional currently working for Adelphi Real World
NASciences @NASciencesTeam
315 Followers 1K Following We are a clinical-stage bioscience company focused on the research and development of therapies for #RheumatoidArthritis , #MultipleSclerosis and #Influenza
Leanne Marshall @_marshallleanne
380 Followers 348 Following DREEAM lead for Education and Research Governance
Susan Ganey @GaneySusan
1K Followers 5K Following
Pulmonary Therapy @Pulmonary_Ther
916 Followers 1K Following Rapid publication, peer reviewed, inclusive, #openaccess journal indexed on PubMed. Impact Factor 3.0, CiteScore 5.2. Part of @AdisJournals @springernature
Louise Doran @FoxyLady0811
630 Followers 2K Following Fundraising and trying to improve awareness of Pulmonary Fibrosis. Animal lover, technology lover. Love architecture and history
Prof. Anne-Marie Russ... @anmari_russell
2K Followers 740 Following Clinical Academic: #ILD person-centred research; supported self-management & patient reported measures. Value women in academia. @anne-marie-russell.bsky.social
Pulmonary Disease Awa... @PulmonaryDiseas
212 Followers 362 Following
Claire Curtis @claireanne67
79 Followers 38 Following ILD Specialist nurse at Nottingham University Hospitals. Passionate about patient care and quality of life.
NUH ILD Team @ILDNUH
235 Followers 219 Following Tweets by Claire, Lise-Anne & Hollie from the Interstitial Lung Disease & LAM Team at Nottingham University Hospitals @nottmhospitals #TeamNUH
The RCN @theRCN
172K Followers 3K Following This account has been archived. Follow us on other social media channels.
NUH EOLC @NUHEOLC
998 Followers 347 Following Nottingham University Hospitals striving to deliver quality End of Life Care
Helen Gregory @helengregory5
983 Followers 2K Following @SheffieldHosp #PROUD #TeamMAPS #BrilliantPlaceToWork All views are my own.
rachael deane @DeaneRachael
328 Followers 168 Following Clinical nurse educator for respiratory at Nottingham University Hospitals. Passionate about staff recruitment, development and retention 😊
Beverley Brady @BeverleyBrady10
443 Followers 382 Following Lead Nurse for Clinical Service Development Ambulatory Care Division NUH
Nursing and Midwifery... @nmcnews
132K Followers 899 Following Independent regulator of 853,707 nursing and midwifery professionals. We cannot take referrals via social media, please see our website: https://t.co/mE0L4QanhC
ILD-IN @ild_inn
3K Followers 323 Following A group of ILD health care professionals aiming to provide support, education and influence for the interdisciplinary team & for those in their care with ILD.
EU-PFF @EU_IPFF
3K Followers 860 Following The European Pulmonary Fibrosis Federation (EU-PFF) is a European Federation of national #IPF & #PF/#Pulmonaryfibrosis patient associations.
NUHRespiratory @NUH_Respiratory
1K Followers 327 Following Representing the exciting things being achieved within respiratory #NUH. views are our own.
Tony Morris @Antwan235
72 Followers 294 Following
Yihui Flaux @YihuiFlaux
40 Followers 225 Following International sales @srett_sas in #health #iot, #telemedicine, #chronic respiratory diseases, #interoperability platform, #connected #home care
Charlotte Hogben @CHogbenILD
108 Followers 89 Following
St George's ILD Suppo... @StG_ILDSuppGr
303 Followers 162 Following We are an ILD Support group based in Tooting, SouthWest London. We currently meet 'virtually' on 'Zoom' once a month. More details -https://t.co/GS3igzjcVJ
Dr Phyllis Murphie @murphieRNC
3K Followers 4K Following RN, PhD, Clinical Affairs and Business Development Manager Sefam -Medical UK
NUH Nursing @NUHNursing
5K Followers 1K Following Offical Twitter account for Nurses at Nottingham University Hospitals. Promoting best practice, research and educational opportunities. #proudtonurse
Liam Galvin @IPFthurles
980 Followers 599 Following Board Member - Irish Lung Fibrosis Association (@ILFA_Ireland) and European Pulmonary Fibrosis Federation (@EU_IPFF), Patient Co-Chair @ErnLung,
Barnburgh Surgery @BarnburghSurg
568 Followers 1K Following Barnburgh Surgery has around 2850 patients. We welcome patients from most local areas and carry out various services - please see our website for more details.
Andy Fisher @andyf1sher
15 Followers 105 Following
Renata Riha @sleepresearcher
610 Followers 1K Following
Pulmonary Fibrosis Wa... @PFWarrior
3K Followers 3K Following PF Warriors, a support network that provides education, inspiration, & hope to those living with pulmonary fibrosis.❤💙
Claire Ellis @RehabClaire
564 Followers 510 Following Pulmonary and Heart Failure Rehab physiotherapist. Views are my own.
exerciseCOPD 💙 @exerciseCOPD
4K Followers 2K Following Exercise & Activity 4 chronic #breathlessness Nurse ,physiotherapy or Doctor can refer #pulmonaryrehab Education & Exercise #ILD #hospice @prwukee My own views
Anne Dimmock @adimmock4
234 Followers 246 Following Researcher, medical student @PennStHershey. Focused on #pulmonaryfibrosis. She/Her/Hers.
Lisa White @Lisa_White86
246 Followers 456 Following Our prime purpose in this life is to help others. And if you can't help them, at least don't hurt them.- Dalai Lama
ILFA Ireland @ILFA_Ireland
2K Followers 1K Following Irish Lung Fibrosis Association provides research, education and support for patients and families of Lung Fibrosis - a serious and life-limiting condition.
Rachel Braithwaite @rubymum1_rachel
96 Followers 593 Following Love my family, my job and my life #blessed
LarryR @r7_larry
9 Followers 90 Following
The Pulmonary Hyperte... @PHAssociation
7K Followers 3K Following Our mission is to extend and improve the lives of those affected by pulmonary hypertension.
NW IPF Support @northwestipf
8 Followers 8 Following The North West Idiopathic Pulmonary Fibrosis Support group has been set up to provide support for people who suffer from IPF as well as other ILD
Martijn A. Spruit @pulmonary_rehab
3K Followers 136 Following Daily updates on physical (in)activity and rehab of chronic organ failure patients. PhD, MBA, Executive Board Member @cirohorn, Professor @MaastrichtU
Eve Elliott @ElliottEve
66 Followers 75 Following Respiratory Nurse Specialist. Committed to delivering excellent patient care. Loves running & gardening (though not at the same time)
Prabhu Prasad N.C @docprasadprabhu
1K Followers 5K Following Head,Interventional Pulmonology,@ManipalHealth,Goa Founder @interpneuma Intervene-Transplant-Palliate
Lost Sheep @foundalostsheep
52 Followers 157 Following Promoting and supporting organ donation. You could be the answer to someone's prayer. Found one of our sheep? Let us know!
Breathcountcom @Breathcountcom
573 Followers 1K Following Lung health monitoring system for #asthma and #COPD patients. News and info about managing asthma. #HealthIT #PatientSafety #AsthmaAwareness #AsthmaPrevention
MiracleCoach @brighton_liz
27K Followers 26K Following After 18 years of working in therapy & healing professions I have created a bespoke method to enable you to heal yourself & thrive! Allow me to show you how!
Pulmonary Fibrosis Ne... @pulmonaryfibros
3K Followers 249 Following We are dedicated to sharing the latest news, research, and pulmonary fibrosis patient perspectives.
Laura Watson-Adams @Adams89Laura
118 Followers 213 Following Specialist Paediatric Physiotherapist. Views are my own.
Dr Louise Sewell @LouiseSewell_OT
2K Followers 1K Following Assistant Professor in Occupational Therapy, Coventry University. Interested in pulmonary rehabilitation & respiratory disease. Views are my own. Retweets not.
SoeMac @SoeMac_
1K Followers 4K Following SoeMac is a wellness product that increases blood flow & tissue oxygenation for people with CFS, ME, Long Covid, COPD, Asthma, and many other conditions
Zara Pogson @zarapogson
32 Followers 97 Following
AFEFPI @AFEFPI
1K Followers 1K Following Intentamos recoger las necesidades de familiares y afectados por la Fibrosis Pulmonar Idiopática para que puedan ser atendidas.
Elizabeth Bray @ebcloud
14 Followers 64 FollowingTrends for United States
9.534 posts
23,7 B posts
28,4 B posts
15,1 B posts
1.584 posts
29,7 B posts
7.467 posts
282 B posts
1.895 posts
19,8 B posts
51,1 B posts
5.109 posts
5.905 posts
13,5 B posts
332 B posts
4.206 posts
178 B posts
87,6 B posts
13,6 B posts
7.573 posts
You might like
IPF Manchester
@ipf_manchester
811 Followers
IPF Awareness
@IPFawareness
926 Followers
Liam Galvin
@IPFthurles
980 Followers
Ian Jarrold
@IanJarroldALUK
1K Followers
ILD-IN
@ild_inn
3K Followers
Louise Doran
@FoxyLady0811
630 Followers
Teresa Burgoyne
@golfingal15
583 Followers
Tameside Pulmonary Fi...
@TamesideGroup
622 Followers
Colin Edwards
@ColinEdwards767
472 Followers