Mindy McHardy @McHardyMindy
Letting things get personal is how we make them matter. Patient Partnership, Pediatric Palliative Care, Rare Disease. Express Your Gratitude Ottawa, Ontario Joined May 2016-
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Great thread on a complex and emotionally charged issue. There is no black and white here. The school issue is complex and schools will never be “Safe” vs “Unsafe”- it’s not absolute. We CAN vaccinate kids 5+, their teachers, wear high quality masks, optimize ventilation.
Great thread on a complex and emotionally charged issue. There is no black and white here. The school issue is complex and schools will never be “Safe” vs “Unsafe”- it’s not absolute. We CAN vaccinate kids 5+, their teachers, wear high quality masks, optimize ventilation.
So amazing for Ottawa and Canada! @RNeilsonHouse @CHEO @AlexMunter Grateful you are passing on your expertise & excellence to the next generation of Canadian physicians with a pediatric palliative care residency program @PedPalASCNet @PPCC_PA
So amazing for Ottawa and Canada! @RNeilsonHouse @CHEO @AlexMunter Grateful you are passing on your expertise & excellence to the next generation of Canadian physicians with a pediatric palliative care residency program @PedPalASCNet @PPCC_PA
Canada's first pediatric palliative care residency program housed at CHEO ottawa.citynews.ca/local-news/can… via @CityNewsOttawa
Can you spot the nurse in this photo? ❤️🩺 This is homecare…And it should be celebrated, appropriately funded & supported. It’s not the last resort job when you can’t find work elsewhere. It’s my home and my kids. #nurses #caregiving #homecare
Grateful to @AlexMunter for your reach in advocating for children & youth in Ottawa and across Ontario. Many partnerships made always lots to get done! Congratulations!
Grateful to @AlexMunter for your reach in advocating for children & youth in Ottawa and across Ontario. Many partnerships made always lots to get done! Congratulations!
Join us Oct 8th for Canadian National Children's Hospice Palliative Care Day 2021! chpca.ca/hpcforchildren
“She would be full of praise when things worked well,” he added, “and very direct about how things could be improved when they weren’t working well.” -@AlexMunter That's what advocates do, and @GrandmaKim did it best. She was truly radiant. ottawacitizen.com/news/local-new…
OK, everybody, let's go and have an ordinary day! I've watched this 3 times already this morning, it's the best thing you'll find on @twitter today. Thank you @shallawaynl youth choir and @alanthomasdoyle for this burst of hope and joy. youtu.be/nXvU2awjyvs
”They did it!” This article gives me all the feels @GrandmaKim recognized for being the caring, compassionate person she was -always doing for others -a selfless agent of change -always there with a warm hug &chocolate 😉💔 HT @SolidFooting apple.news/A4ndE0ECfR3C5c…
I can’t recall being asked if I had any health concerns nor was it suggested I work my sons needs w/in my own needs. Not in terms of scheduling or well being. It was assumed we could do all that was expected of us (&we did at all costs) We all know what happens when you assume…
I can’t recall being asked if I had any health concerns nor was it suggested I work my sons needs w/in my own needs. Not in terms of scheduling or well being. It was assumed we could do all that was expected of us (&we did at all costs) We all know what happens when you assume…
HT @DaveLysecki health of the caregiver is vital. I had a hard time fitting in my own appts (#Fibromyalgia) w/my sons needs. Insert a hospital stay &it was worse+++ Healthy food choices; parent tested sleep chairs at a minimum (on-site RMT service would help too) :-)
HT @DaveLysecki health of the caregiver is vital. I had a hard time fitting in my own appts (#Fibromyalgia) w/my sons needs. Insert a hospital stay &it was worse+++ Healthy food choices; parent tested sleep chairs at a minimum (on-site RMT service would help too) :-)
I have suffered from chronic pain for 25 years, my nonverbal son suffered too. This is a must read. Grateful to @seastarbatita @RaeofSunshine79 @katebirnie for publishing this. Read, learn, listen & trust the experience of those who know #fibromialgia #ChronicPain @KidsInPain
I have suffered from chronic pain for 25 years, my nonverbal son suffered too. This is a must read. Grateful to @seastarbatita @RaeofSunshine79 @katebirnie for publishing this. Read, learn, listen & trust the experience of those who know #fibromialgia #ChronicPain @KidsInPain
Remote Learning to Continue across Ontario for the Remainder of School Year news.ontario.ca/en/release/100…
“All I know is I can’t deny the impact my son had on my life.” Thank you @RaeofSunshine79 you have both impacted many while you danced, through your writing and connections you’ve made I’m grateful for both of you cbc.ca/parents/learni…
Children | Free Full-Text | Quality Indicators in Pediatric Palliative Care: Considerations for Latin America mdpi.com/2227-9067/8/3/…
School closures in Ontario "are having a major immediate effect on the emotional functioning and physical health of children and families." We stand with @PedsOntario in calling for the safe reopening of schools in the province. @Sflecce @fordnation @MaritStiles @celliottability
School closures in Ontario "are having a major immediate effect on the emotional functioning and physical health of children and families." We stand with @PedsOntario in calling for the safe reopening of schools in the province. @Sflecce @fordnation @MaritStiles @celliottability
Your statements @TheCurrentCBC are akin to what we are told as parents of children with complex medical needs - we are told we are resilient but that misses the point - we all need help when we struggle and denying our struggle with placating statements is beyond damaging
Your statements @TheCurrentCBC are akin to what we are told as parents of children with complex medical needs - we are told we are resilient but that misses the point - we all need help when we struggle and denying our struggle with placating statements is beyond damaging
❤️this quote heard on the radio this morning: “Hinde sight is 20-20 but remember 2020 sucked”. Do your part #WearAMask #COVID19 follow local restrictions/ health rules @OttawaHealth
We know you have incredible networks so please share the survey through your networks one last time before the survey closes. If you’re a patient partner & you haven’t completed the survey, it’s available in English bit.ly/CPPS_ECPP & French bit.ly/ECPP_CPPS. /4
Alex Munter @AlexMunter
37K Followers 9K Following President and CEO of @CHEO - the pediatric health and research centre of the national capital region. Every day matters in the life of a child.Rachel Martens ♿️.. @RaeofSunshine79
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9K Followers 1K Following Your Queen's Park source for the latest Ontario political news, legislative affairs, analysis and commentary. #onpoliHuntley Chicks 2020 @Huntleychicks
39 Followers 7 Following Since we are away from school during this time it doesn’t mean we can’t still hatch baby chicks. I was able to bring home all I need to hatch chicks from home🐣PedPallCarePA @PPCC_PA
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836 Followers 0 Following This account is no longer active. Follow @GovCanHealth for relevant and practical information to help you and your family stay healthy.Huge thanks to Adam Smith @WestCarletonSS for sharing their amazing drama productions for us today. We love seeing our former students and the outstanding talent! #community @OCDSB
Happy Two’s Day… 2/22/2022. Toonie Tuesday Too! @OCDSB
Kindness is… A superpower, The key, Love. Thanks for the reminder Gr 2s. Happy Friday! @OCDSB
A standing ovation for #KevinKeohane at #CASCO #Hero4CHEO gala. @CHEO @CHEOFoundation @Telfer_uOttawa
"Realizing the rights, agency and leadership of persons with disabilities will advance our common future." -- @antonioguterres on Friday's Day of People with Disabilities. bit.ly/36tlqiA #IDPD
Dream Job 👇🏻❤️🔥
'Executive Director of Lived Experience'. Real role in Australia. Time for Canada to follow? @SolidFooting @DMcK20 @Amy_Lang @HE_ES_Canada premier.vic.gov.au/new-mental-hea…
@PatientCommando @DMcK20 @Amy_Lang @HE_ES_Canada Dream job
Can you spot the nurse in this photo? ❤️🩺 This is homecare…And it should be celebrated, appropriately funded & supported. It’s not the last resort job when you can’t find work elsewhere. It’s my home and my kids. #nurses #caregiving #homecare
#HALLOWEEN is a high holiday at every children's hospital! And @CHEO's people are in a league of their own.
Some of our favourite bulletin boards after our first few days. Love the expression and creativity. @OCDSB
@AlexMunter @CHEO Rest in peace Kim. I had no idea. What a huge loss to our city xo
Thread: Someone sent me a pic of my son's schools yearbook that just came out and they did a tribute place to my son. "This past summer, the school lost a very bright spirit in Luke. All of the smiling faces in this yearbook are dedicated to you bud. We miss you.". Shout out to/1
Those who knew Kim McLeod will miss her terribly. This beautiful article will help you understand why. ottawacitizen.com/news/local-new… #ottnews
@McHardyMindy This is one reason I shared this the other day. I’ve lost count how many conversations I’ve had with parents about putting off appointments, etc.
Thread: Pandemic PSA Been putting off seeing your doctor? A lot of people have been guilty of it since 2020. Just wanted to encourage you to call and make that appointment you've been putting off. Went in for a mammogram which was optional for a patient my age. Given my /1
The division of healthcare between children and the families around them is problematic. We need structured integration between pediatrics and family health.
This article examined the physical health of caregivers of children with life-limiting conditions. Results indicate that caregiver health was negatively impacted in 84% of included studies. Pain and sleep disturbance were the most common problems. #pedpc ow.ly/HVZ750FVd5C
@dreyalcohen @DrJFriedman @julia_orkin @claramoore14 @Sherri_Inthesix @marconma @SKComplexCare Oh gosh I love to see this! I still remember the early movements on this subject with families! Lots of work ahead to do here in regards to messaging as it’s a concept privy to some misinformation about food science. (Visions for the future anyway..) Great work team!
Lived experience of parents of children with medical complexity with blenderized tube feeds. bit.ly/3dCEwWu. Kudos to NP leader extraordinaire Joanna Soscia for spearheading this work. @DrJFriedman @julia_orkin @claramoore14 @Sherri_Inthesix @marconma @SKComplexCare
Wish me luck - Look out @sickboypodcast here I come! Let's get going! #caregiver #storytelling #healthcare #Advocacy