PANS PANDAS UK @PandasPans
PANS/PANDAS UK provides support to families of children with PANS/PANDAS. We aim to raise awareness of an easily treated, often misdiagnosed condition in kids. panspandasuk.org United Kingdom Joined November 2016-
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🌟 Thanks to everyone who attended yesterday's Teacher Training session! Reserve your spot now for our next sessions: eventbrite.co.uk/o/pans-pandas-… #PANS #PANDAS #PANSPANDAS #EducationMatters #EduTwitter #SEND #SEMH #ASL #ASN #ALN #ALNWA
💚Unfortunately this is behind a paywall but can be read with a 'free trial'. Doctors are uniting to find a cure for Pandas, a disorder that arrives ‘like the flick of a switch’ and torments children as young as three. thetimes.co.uk/article/he-scr… #pandas
🔊TOMORROW! 🎙️ Prof. Craig Shimasaki, PHD, MBA 📚The Autoimmune Brain Panel™ & Neurological Symptoms; CaMKII in Neurodevelopmental Disorders 📅 DATE: Wed 8th May 20 ⏰ 19:00 BST 20:00 CEST (CEST), 14:00 ET (ET) 📋REGISTER: aonm.org/AutoimmuneBrai… 🧬 #panspandas
I want to express my gratitude to Vicky Burford, co founder & chair of @PandasPans Charity. She works exceptionally hard behind the scenes & it’s a pleasure & privilege to work alongside her as a Trustee. Some big announcements coming soon, so watch this space. #PANS #PANDAS
Good piece by the Times on the struggle of sufferers and those who care for them to get this terrible condition recognised.
Good piece by the Times on the struggle of sufferers and those who care for them to get this terrible condition recognised.
“Like a switch had been flipped” - it’s taken too long for PANS/PANDAS to be properly diagnosed & treated; @PandasPans have been working with MPs to raise this with Govt & NICE thetimes.co.uk/article/d2c071…
🎨 Join the Challenge for PANS PANDAS UK this July! 🌟 🔗 Submit your artwork and make a difference - panspandasuk.org/challenge-art-… #ArtForACause #PANSPANDASUK #ChildrensArtCompetition #ExpressYourself #ChallengeforPANSPANDASUK
📢 Join us for an enlightening teacher training session on "Supporting Children with PANS or PANDAS in Educational Settings". 🗓️ Date: TODAY, 7 May 🎟️ Register here: eventbrite.co.uk/e/supporting-c… #TeacherTraining #Education #SupportChildren #MentalHealthAwareness #EducatorSupport
🎉 Congratulations Dewi on Your Incredible Success! 🏃♂️💨 Read the full story here: linkedin.com/feed/update/ur… #PANSPANDASUK #LondonMarathon #SuccessStory #CommunitySupport #ChallengeforPANSPANDASUK
🌟 An inspiring story from Simon who will be doing his Challenge for PANS PANDAS UK this July 🏃♂️🚶♀️ Read the full story here: linkedin.com/feed/update/ur… #ChallengeforPANSPANDASUK #RaiseAwareness #MakeADifference 🌟✨
🕒 Only Two Working Days to Go! Don't Miss Out on Our Teacher Training on 7th May 🕒 👉 Register now for FREE while spots last: eventbrite.co.uk/e/supporting-c… CPD Accredited! #PANSPANDAS #EducationMatters #EduTwitter #SEND #SEMH #ASL #ASN #ALN #ALNWA
🏆 Reminder: Nominate Us for the @ndawards🏆 📣 How to Nominate Us: Visit National Diversity Awards Nomination Page and nominate our charity. It only takes a few minutes but can make a lasting difference - nationaldiversityawards.co.uk/awards-2024/no… #NationalDiversityAwards
🌟 Reflecting on an Incredible Weekend at the PANS PANDAS UK Conference! 🌈✨ There's a major update on the horizon, and we can't wait to reveal it to our community. Stay tuned for an announcement coming very soon. 💙 #PANSPANDASUK #ConferenceHighlights #ExcitingUpdates 🎉📢
🌟 Exciting News! PANS and PANDAS Featured in Contact's A-Z of Medical Conditions! 🎉 🔗 Explore the entry on @contactfamilies website: contact.org.uk/conditions/pan… #PANSPANDAS #Awareness #Support #ContactUK 🧠✨
Great to see University College Dublin and the Mater Hospital supporting this conference for patients with post-infectious conditions. Long Covid, ME/CFS, Lyme and PANS will all be discussed @LCAIreland @LongCovidKids
Great to see University College Dublin and the Mater Hospital supporting this conference for patients with post-infectious conditions. Long Covid, ME/CFS, Lyme and PANS will all be discussed @LCAIreland @LongCovidKids
📢 One Week to Go! Don't Miss Our Teacher Training on 7th May 📢 👉 Register now to secure your spot for FREE. CPD Accredited Teacher Training: eventbrite.co.uk/e/supporting-c… #PANS #PANDAS #PANSPANDAS #EducationMatters #EduTwitter #SEND #SEMH #ASL #ASN #ALN #ALNWA
🌟 Join Us for our Monthly Support Group in Aberdeen! 💙 📅 Dates: 1st Friday of Every Month | Next event is Friday 3 May 🕒 Time: 6:30 pm - 8:30 pm 📍 Location: The Bothie, Allandale Gardens, Kintore, Aberdeenshire, AB51 0UT #PANSPANDASSupport #CommunityStrong #TogetherWeHeal
Hopeful @Hopesaxons
2K Followers 2K Following Raising awareness of Pans Pandas - brain inflammation triggered by a Virus or infection
Jane Bird @LindaLaHughes9
956 Followers 1K Following Raising awareness of the paediatric conditions PANS and PANDAS
Dr Claire Taylor @drclairetaylor
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Notes to my boy ✉�.. @notestomyboy
4K Followers 2K Following Hi, please see pinned tweet. My beautiful boy fell ill with #PANS #PANDAS when he was 9. I love you Son more than anyone can know and I am proud of you ❤️
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NB @np9000
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PANDAS PHYSICIANS NET.. @PANDASPPN
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2K Followers 2K Following Raising awareness of Pans Pandas - brain inflammation triggered by a Virus or infection
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956 Followers 1K Following Raising awareness of the paediatric conditions PANS and PANDAS
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NB @np9000
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💚Unfortunately this is behind a paywall but can be read with a 'free trial'. Doctors are uniting to find a cure for Pandas, a disorder that arrives ‘like the flick of a switch’ and torments children as young as three. thetimes.co.uk/article/he-scr… #pandas
🔊TOMORROW! 🎙️ Prof. Craig Shimasaki, PHD, MBA 📚The Autoimmune Brain Panel™ & Neurological Symptoms; CaMKII in Neurodevelopmental Disorders 📅 DATE: Wed 8th May 20 ⏰ 19:00 BST 20:00 CEST (CEST), 14:00 ET (ET) 📋REGISTER: aonm.org/AutoimmuneBrai… 🧬 #panspandas
@PandasPans Places going fast on todays training on supporting children with PANS and PANDAS in education settings... book NOW to avoid disappointment x.com/PandasPans/sta…
📢 Join us for an enlightening teacher training session on "Supporting Children with PANS or PANDAS in Educational Settings". 🗓️ Date: TODAY, 7 May 🎟️ Register here: eventbrite.co.uk/e/supporting-c… #TeacherTraining #Education #SupportChildren #MentalHealthAwareness #EducatorSupport
Our family has also been devastated by this awful condition. Our journey began with #panspandas began on Sunday 6.2.22, here is our story dailymail.co.uk/health/article… #pans #pandas @PandasPans
Shining a light on this horrific condition that has brought our family to its knees. More research, education for doctors, & treatment is crucial to save lives #PANDAS #PANS @panspandasuk @MedTweetMYHQ @NHSEngland @MorecambeBayNHS @simonfell
So good to see that @thetimes are supporting @PandasPans in continuing to spread awareness of these conditions. #PANS #PANDAS
My Sons story published by @thetimes today. Thx to @louise_eccles and @PandasPans for making this happen. Awareness & early intervention are critical, PLS SHARE❤️ ‘Let me die’: the mysterious syndrome changing children overnight thetimes.co.uk/article/d2c071…
@PandasPans Great to see @thetimes covering PANS PANDAS again. Here is an article they did 6 years ago. I'm pleased to see dr's are working on UK guidlines that will hopefully finally get these conditions recognised! thetimes.co.uk/article/doctor…
@claudiahammond @SussexUni thetimes.co.uk/article/d2c071… @claudiahammond would be great to see the work of the new working group for @PandasPans included in discussions 👀 👀 x
thetimes.co.uk/article/d2c071… If you read one article today make it this one. #cpd #edutwitter Month free accredited cpd is available via @PandasPans
@RuthCadbury @CharmingAngelCo @PandasPans Thank you so much for posting @RuthCadbury. Our world fell apart when our daughter had the acute onset. @PandasPans have been a life saver. We are desperate for more MPs to push for our children @simonfell @CatSmithMP @mariacaulfield
thetimes.co.uk/article/d2c071… #Edutwitter invest 5 minutes this weekend reading this article. It could save a child. @PandasPans run monthly CPD @TeachFirst @chrisdysonHT @75ThunderRoad @JonReidOBU @DrNighatArif @DrRanj @CAMHSNetwork @Headteacherchat @BeccaBarry @aaroncumminsNHS
I want to express my gratitude to Vicky Burford, co founder & chair of @PandasPans Charity. She works exceptionally hard behind the scenes & it’s a pleasure & privilege to work alongside her as a Trustee. Some big announcements coming soon, so watch this space. #PANS #PANDAS
@mctavishgal @notestomyboy @louise_eccles @PandasPans Yes, great job @louise_eccles - a thoughtful and insightful summary.
Thank you to @notestomyboy @louise_eccles @PandasPans for this article highlighting #PANSPANDAS and the immense suffering it causes. So easy to treat but rarely diagnosed leading to years of needless unbelievable trauma and distress.
“Like a switch had been flipped” - it’s taken too long for PANS/PANDAS to be properly diagnosed & treated; @PandasPans have been working with MPs to raise this with Govt & NICE thetimes.co.uk/article/d2c071…
#Pans #Pandas #mentalhealthAwarenessMonth #misdiagnosis #strep #covid #lostchildren @fiannafailparty @FineGael @sinnfeinireland @allianceparty @uuponline @SocDems @greenparty_ie @duponline No more "lost" children #ocd #mentalhealth #eatingdisorders #arfid #nhs #hse
Five minutes of your day could change the course of a child or young person’s life. Please read and share. Brilliant to see The Sunday Times covering PANDAS today, showcasing the reasons why increased awareness of these devastating post-infectious conditions is critical.
Thank you to @notestomyboy @louise_eccles @PandasPans for this article highlighting #PANSPANDAS and the immense suffering it causes. So easy to treat but rarely diagnosed leading to years of needless unbelievable trauma and distress.
thetimes.co.uk/article/he-scr… Discover the inspiring work of PansPandasUK. Three years ago, I was contacted by them due to my work on OCD. Since then, they have been an incredible source of motivation&inspiration for my research on a new treatment #immunomoodulin #affectiveimmunology.
Thank you to @notestomyboy @louise_eccles @PandasPans for this article highlighting #PANSPANDAS and the immense suffering it causes. So easy to treat but rarely diagnosed leading to years of needless unbelievable trauma and distress.
Brilliant article today @thetimes about #Pans #Pandas Thank you @louise_eccles 4 highlighting these truly debilitating horrific conditions.Change is long overdue!Please read & RP 2 raise awareness & help end the unnecessary suffering that currently exists thetimes.co.uk/article/d2c071…
Good piece by the Times on the struggle of sufferers and those who care for them to get this terrible condition recognised.
Five minutes of your day could change the course of a child or young person’s life. Please read and share. Brilliant to see The Sunday Times covering PANDAS today, showcasing the reasons why increased awareness of these devastating post-infectious conditions is critical.
@FulvioDAcquisto @louise_eccles @PandasPans Thank you for what you are doing Fulvio, I know how important and much needed it is 🙏
@FulvioDAcquisto @louise_eccles @PandasPans Thank you for your ongoing support for the families affected by #Pans #Pandas
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