Cleo 🦓♿️💙 @SpoonieTrees

Cat mum 🐾 Nature lover 🌱 Be kind 🥄 I follow back to engage 🫱🏼‍🫲🏽 RTs turned off ♿️ MECFS Fibro hEDS LongCovid MCAS POTS bsky.app/profile/ozgib.… South East, England Joined August 2018

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Cleo 🦓♿️💙 @SpoonieTrees

3 days ago

Blood test to dx ME/CFS is looking positive and likely. "study found 116 “biomarkers” for ME in the blood of men and women with the condition" #pwME #MECFS #EDS #ChronicPain #ChronicIllness #BrainFog #Disability #Disabled web.archive.org/web/2025062002…

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Sarah Michelle Gellar today on Buffy set She prev had battle w- cvd: “it’s tough…those saying ‘it’s just a cold’...maybe 4 lucky people. But 4 this (relatively) young fit person who struggles w- asthma, it’s not my experience…I’ll 😷 in shower if it means I don’t get it again”

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Nele @NeleHelena

a week ago

People with severe chronic pain are experts in distracting themselves from it. Yet there's this idea that we only feel minor things in our body but just focus too much on it.

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Cleo 🦓♿️💙 @SpoonieTrees

2 weeks ago

#LongCovid #Fibromyalgia #pwME #MECFS #EDS #ChronicPain #ChronicIllness #BrainFog #Disability #Disabled

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Y0ur_Neighb0ur @Y0ur_Neighb0ur

3 weeks ago

It’s easy to love someone when they’re shining. The real test is when they’re breaking - when you have to hold them through storms & carry both their weight & yours. That’s love not just felt, but chosen. 💙 #MEcfs #severeME #pwME #Compassion #MentalHealth #UnconditionalLove

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Erin Ekins (she/her) @QueerlyAutistic

3 weeks ago

So much of societal ableism, and the way we culturally treat disabled people, comes from this fantasy abled people have that disability comes from failure and personal choice and they will never be disabled because they've done everything 'right'.

Simon @SimonHayes3196

3 weeks ago

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Le Bleu Garcon @LeBleuGarcon30

3 weeks ago

One of the wild things about having #MECFS is that I have friends who are well aware of my condition and have seen me degenerate over many years and still have no interest in the disease and don't ever want to hear about it from me

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Cleo 🦓♿️💙 @SpoonieTrees

a month ago

Not really Sophie's Choice, is it? 😂

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Alethea Bernard @Tush27J

a month ago

Parliamentary expenses surpass £15.5 million in just 14 MONTHS. Top of the leader board Kemi Badenoch. #BBCBreakfast #GMB #Expenses

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The Good Grief Trust @goodgrieftrust

2 months ago

I missed you quietly today. So quietly that no one noticed. I missed you as I climbed out of bed and as I brushed my teeth; when I waited at the lights on the drive into work and as I heard the rain outside my window. I missed you as I ordered lunch and as I kicked off my shoes…

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Cleo 🦓♿️💙 @SpoonieTrees

2 months ago

Omg... Maeve's mum was just on @BBCBreakfast talking and ADVOCATING for those of us with ME/CFS. She says all the right things & I'm bawling. 😭 Watch it on iPlayer catch up from 7.13am.

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Han 🖤 @spoonfulofhan

2 months ago

I wish able bodied people understood that being forced to rest and lay around because of sickness isn't the same as them getting to rest. It's not enjoyable.

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Stef Benstead @StefBenstead

2 months ago

I get that charities can provide emotional support. And some of them give practical support. But I want my expert medical advice to come from my doctor. And I expect the govt to ensure the NHS has enough funding for there to *be* expert doctors in my condition(s).

Department of Health and Social Care @DHSCgovuk

2 months ago

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Lucy 🐾 @WildlifeLucy

2 months ago

Me, lying in bed, fantasising about a little note I’d like to send my GP surgery & the NHS’s offensively named “Chronic Fatigue Team” 👇 #pwME #MECFS #MedTwitter

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Emma H 🖤🗿七七 @Emma_h_mua

2 months ago

My UC which I get bc I'm disabled & bedbound most days is about £9k a year. She's claimed over triple what I'm forced to live off through no fault of my own on TOP of her 90k a year salary. Beggars belief. Spending less on MP allowances would save a LOT more than cutting benefits

Land of Tope & Dory 🐀 @lookeyhere4

2 months ago

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Cleo 🦓♿️💙 @SpoonieTrees

2 months ago

Keir Starmer voodoo doll Because you're worth it 💅🏻🩸 #Labour #benefits #TakingThePIP #WelfareNotWarfare #LabourLiars #giftidea #etsysale spoonietrees.etsy.com/listing/432775…

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Erin Ekins (she/her) @QueerlyAutistic

2 months ago

My favourite thing about this country is that 'you can't take money from millionaires, they might leave' is considered a more valid and compelling argument than 'you can't take money from disabled people, they might die'.

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Cleo 🦓♿️💙 @SpoonieTrees

2 months ago

Wow. 18% of doctors with long covid can no longer work. They have also been abandoned by the healthcare system. If they can't get help, what hope is there for the rest of us?! bmj.com/content/382/bm…

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Maggie 🐝🎶🇪🇺 @Beesy1001

2 months ago

@ChasingGlimmers @leicesterliz It disturbs me to see so much bias aimed at pensioners, the sick and disabled. Yet I see nothing aimed at the wealthy who deprive the country with tax avoidance and tax havens. Every year an estimated £388 billion that should have been paid in tax disappears into tax havens.

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Cleo 🦓♿️💙 @SpoonieTrees

2 months ago

Read in the news about an ultra rare condition that went from discovery to cure in 12 years due to life expectancy being approx. 40. How can we gain attention about the life expectancy of some ME patients & poor quality of life? It seems our research isn't a priority. 🤔