ME/CFS Research Network @TheMECFSNet

@NIH-funded network that fosters collaborative research in partnership with individuals and advocacy groups to improve the diagnosis and treatment of #MECFS. mecfs.rti.org Joined April 2022

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ME/CFS Research Network @TheMECFSNet

3 weeks ago

✨Exciting news! New research highlights AI tool that detects #MECFS with 90% accuracy. Congrats to our legacy partners at @jacksonlab! nature.com/articles/s4159…

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ME/CFS Research Network @TheMECFSNet

3 weeks ago

🗓️ Happening today, in one hour! Don't forget to register! ow.ly/G4L550WFrO5

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ME/CFS Research Network @TheMECFSNet

3 weeks ago

Heard the news? DecodeME #MECFS Study released initial genetic results! Discover what it means for ME/CFS. Summary of findings: ow.ly/n7Hz50WFrwL Preprint publication: ow.ly/MS1W50WFrwN FAQs: ow.ly/gjqa50WFrwM

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ME/CFS Research Network @TheMECFSNet

3 weeks ago

🗓️Don't forget to register for tomorrow's DecodeME - Genetic Results Webinar! Link: us02web.zoom.us/webinar/regist…

DecodeME the ME/CFS Study @DecodeMEstudy

3 weeks ago

🗓️Don't forget to register for tomorrow's DecodeME - Genetic Results Webinar! Link: us02web.zoom.us/webinar/regist…

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DecodeME the ME/CFS Study @DecodeMEstudy

3 weeks ago

Join us TOMORROW for our genetic results webinar! Register here: shorturl.at/fnB67 There are limited spots to join on Zoom (registering does not guarantee a spot). Don’t worry though, we will be recording it and we will also be sharing it live on Facebook at the time.

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ME/CFS Research Network @TheMECFSNet

3 weeks ago

📢Research news! The #MECFS Research Network Investigator Meeting convened @NIH leaders and network members @CfSforMECFS, @CornellMECFS, @ICanCMEResearch, and @RTI_Intl's DMCC for study updates on August 4. Collaboration fuels discovery! #MECFSnet #PwME #LongCOVID

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ME/CFS Research Network @TheMECFSNet

2 months ago

🔎Looking for accurate summaries of published #MECFS research? Check out the ME/CFS Research Chatbot! It relies solely on PubMed abstracts. Also access data table with abstracts. S/O to Tracy Duvall for creating this new tool!

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ME/CFS Research Network @TheMECFSNet

2 months ago

📢Research news! New study from #MECFSnet partners @CornellMECFS. Post-exercise changes in extracellular vesicles reveal biological disruptions in men with #MECFS. Read full study! ow.ly/WK6150Ws3Ex

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ME/CFS Research Network @TheMECFSNet

2 months ago

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ME/CFS Research Network @TheMECFSNet

3 months ago

🇺🇲Today we honor and remember the brave men and women who made the ultimate sacrifice for our country.

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Solve ME/CFS Initiative @PlzSolveCFS

4 months ago

🎥 The recording of "Investigating Immune Dysfunction & T-Cell Exhaustion via Single Cell Immune Profiling in #MECFS & #LongCOVID," w/panelists from @selin Lab, @hifibio, & patient reps @Rivkatweets & Dr. Megan L. Fitzgerald, is online now. Watch here: youtu.be/2DQZp48fyek

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Open Medicine Foundation @OpenMedF

5 months ago

🤝 Accelerate Research: OMF StudyME is a free global participant registry bridging the gap between individuals living with #MECFS, #LongCOVID and related diseases, and the researchers working tirelessly to uncover effective treatments. 👉Sign up today: omf.ngo/studyme/.

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ME/CFS Research Network @TheMECFSNet

5 months ago

🗓️Mark your calendars for these important #MECFS events!

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ME/CFS Research Network @TheMECFSNet

5 months ago

✨Friday Fact for Researchers! Data matters. Biospecimens matter. Explore both, thanks to the MCAM dataset on searchMECFS.org. Explore the data: plasma, serum, DNA, RNA, and saliva on over 800 participants. #MCAM #MECFS Apply for access: ow.ly/JQ5I50UmvBJ

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ME/CFS Research Network @TheMECFSNet

5 months ago

✨Data drives discovery! CDEs are making #MECFS research stronger by improving data consistency & sharing. Learn how CDEs are transforming ME/CFS research. openaccessgovernment.org/article/common…

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ME/CFS Research Network @TheMECFSNet

5 months ago

📢Attention researchers! Data from @CornellMECFS's study on autoantibody immune profiling in #MECFS is available now on #mapMECFS. #MECFSnet Apply for access today! ow.ly/aYha50VuV4v

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ME/CFS Research Network @TheMECFSNet

5 months ago

📢Research news! New study from #MECFSnet partners @CornellMECFS explores the role of autoantibodies in #MECFS. Learn what they found. mdpi.com/1422-0067/26/6…

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ME/CFS Research Network @TheMECFSNet

6 months ago

✨New article! Better data means better treatments. DYK CDEs help researchers work together? More collaboration = more progress. Learn how! #MECFS #DataForDiscovery #MECFSnet openaccessgovernment.org/article/common…

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ME/CFS Research Network @TheMECFSNet

6 months ago

Today we raise awareness, but every day we work toward a future with better treatments, understanding, and hope. Together, we can make a difference. 💙 #LongCOVID #MECFS #MECFSnet

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ME/CFS Research Network @TheMECFSNet

6 months ago

✨🌙Sleep disturbances like insomnia, hypersomnia, and fragmented sleep are common in #MECFS. This #WorldSleepDay, let’s do our part to support better research and understanding.