Center for Solutions for ME/CFS @CfSforMECFS
@NIH funded ME/CFS Collaborative Research Center, committed to understanding the pathogenesis of #MECFS cfsformecfs.org New York, NY Joined April 2017-
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Issue #051: He’s stopped outbreaks on 3 continents. He called out @theranos to Elizabeth Holmes' face. Now @Columbia ’s top virus hunter says: “We are weeks, not months, from collapse.” Unmissable interview with Dr. Ian Lipkin of @ColumbiaMSPH standcolumbia.org/2025/06/07/iss…
Multicenter Study on Chronic Fatigue Syndrome/Myalgic Encephalomyelitis youtube.com/watch?v=90nBAh…
Hi everyone, You're warmly invited to join us for a special Film & Wine Pairing evening at City Winery NYC! 🍷🎬 Come enjoy a thoughtfully selected movie paired with delicious wines in a cozy, relaxed atmosphere. citywinery.com/new-york-city/…
New-ish fundraising page to support Ian Lipkin's "ME/CFS Research - Center for Infection and Immunity" @CfSforMECFS @Columbia_CII whose federal funding has sadly been decimated joinus.cuimc.columbia.edu/index.cfm?fuse… More information on the program at the link #MEcfs #CFS
A visionary leader. A lasting legacy. Columbia Mailman honors Dean Linda P. Fried with: 🔹 First-ever endowed scholarship fund 🔹 New endowed chair 🔹 $1M+ Research Response Fund Celebrating 17 years of transformative impact. ow.ly/qyIV50W2Mw0
💡Millions suffer from ME/CFS, yet funding has been cut. Our NIH-backed Center for Solutions for ME/CFSmade breakthroughs in immunity, metabolism, and diagnostics . Help us continue this critical research. 🔗 joinus.cuimc.columbia.edu/index.cfm?fuse… 📢 Please share and help us spread the word!
Join RECOVER for the next R3 seminar, Effectiveness of Paxlovid in Protecting Against #LongCOVID: EHR Insights, to be held Tuesday, April 8, 2025, at 12:00-1:30 pm ET. Sign up here: rtiorg.zoom.us/webinar/regist…
We are celebrating the women in our community for Women’s History Month! This week, we are focusing on a woman we admire and how they are powerful. We have some lovely shares for you in writing and in videos! meaction.net/2025/03/05/mea… #WomensHistoryMonth
Columbia University faces federal deadline to make changes or lose $400 million in funds cbsnews.com/newyork/news/c…

ME/CFS News @MECFSNews
14K Followers 687 Following I used to post news and interesting information on ME/CFS but have retired to focus on other things.
Christoph Ströck @cstroeckw
8K Followers 603 Following Soon, people will look back in disbelief at what has happened to patients with ME/CFS | Godspeed 🙇🏼
Tom Kindlon @TomKindlon
15K Followers 622 Following With ME 36 years (31 yrs severe). 95% of posts on #MEcfs/#LongCovid/#chronicillness. 26 publications in peer-reviewed journals. @IrishMECFSAssoc trustee 28 yrs
Anil van der Zee © @AnilvanderZee
10K Followers 865 Following Former professional ballet dancer | Bed-bound M.E. patient | Using ✖️ to raise awareness for #MyalgicE | #IACI #art2cureME #pwme #millionsmissing
Solve ME/CFS Initiati... @PlzSolveCFS
12K Followers 4K Following Making ME/CFS, Long Covid & associated conditions widely understood, diagnosable, & treatable. #SolveME #MECFS #LongCovid Donate @ https://t.co/P6umwzCRA4
davidtuller @davidtuller1
11K Followers 2K Following Senior Fellow in Public Health and Journalism, Center for Global Public Health, UC Berkeley. My academic position is largely funded by donations from patients.
Open Medicine Foundat... @OpenMedF
14K Followers 1K Following OMF is fundraising to support open, collaborative research to find effective treatments and diagnostic markers for ME/CFS, Long COVID, and related diseases.
Bea is Chronically Pe... @Be_Kinderr
10K Followers 3K Following Chronic Illness Researcher. Science of #MECFS #LongCovid #POTS #EDS #MCAS CCI SFN Lyme etc & How They Connect🕵🏻♀️Scientist/Advocate [email protected]
#MEAction Network @MEActNet
19K Followers 3K Following A global network fighting for equality for Myalgic Encephalomyelitis. #MEAction #MillionsMissing https://t.co/JhhNZoFYJi
Dan Wyke 🦠➡️�... @Dan_Wyke
13K Followers 5K Following M.E. inactivist; person-centred counsellor (currently not practicing); recovering poet (Rack & Waterloo Press)
Naomi Harvey PhD #Wea... @Naomi_D_Harvey
16K Followers 4K Following Zoologist. She/her. ME/CFS since 2002, now Severe. Pro-vax but vaccine injured. Life on pause (views my own - unemployed) ♿️ https://t.co/YeMrEWwEg5
Wading through treacl... @kimisgubbed
3K Followers 3K Following Advocate & sharer of bio research for INFECTION ASSOCIATED CHRONIC DISEASES inc MECFS, Long COVID, MCAS, Dysautonomia, Vaccine injuries, FMS, Sjogrens & Lyme 🔬
PwME 4 bioMEdical res... @ValeBodi
4K Followers 3K Following Surviving #MyalgicE #AAG to tell the story, patient&advocate w/ a JD, into: MEdicine, Social justice & the Arts, Human neutrino/MEdical apolide/gnarled Pacer
Patient-Led Research ... @patientled
26K Followers 660 Following Patient-led research and advocacy for #LongCovid and infection-associated chronic conditions!
Rivka @Rivkatweets
4K Followers 2K Following Activist/Organizer: ChronicIllness, disability, ME/CFS, Lyme, LongCovid, women | Writer: WashPost, MarieClaire, NPR, Ms, Newsweek | Playwright: Many productions
Cort Johnson @CortJohnson
11K Followers 1K Following Founder of Health Rising /Phoenix Rising - Chronic Fatigue Syndrome (ME/CFS)/Fibromyalgia/Long COVID journalist/blogger - ME/CFS/FM patient for 40 plus years
Katy B @KatyBruce108
6K Followers 6K Following Myalgic Encephalomyelitis ME + POTS 39 yrs Donor to @mecfsbiobank for 10 years & @DecodeMEstudy Please watch https://t.co/pUUJO34e5k #pwME
Winston Blick @winstoncb
3K Followers 822 Following
Science for ME online... @s4me_info
6K Followers 266 Following We are an independent, patient-led, international forum for people with ME/CFS and the carers, clinicians, scientists and advocates who support us.
Cblove @ccbarn
834 Followers 6K Following IG @courtneybcaptures Medill. Writer. POTS ally. Photographer. Advocate. Ally. Asthmatic. Allergic. ADHD. Migraines. Raynaud’s. Previvor. Etc.
Veranderland @Veranderlant
523 Followers 2K Following If I ask you to name all the things you love. How long would it take, before you name yourself? Always busy curing myself of ME/CFS, cause nobody else will.
jleigh @jleighs7478
0 Followers 2K Following
Mary Frampton @mary_frampton
1 Followers 211 Following
ChickenLips @chickenlips1010
3 Followers 20 Following
Hamada Al shaer @hamadalshaer200
173 Followers 4K Following I am Hamada from Gaza, I am 8 years old. I need your help, please😭💔
Jacqui #climateJustic... @AFairerFuture
1K Followers 6K Following Born @ 319.65 ppm. @jas4afairerfuture.bsky.social @[email protected]
Pam Rosling @RoslingPam70479
71 Followers 679 Following
Verónica Athié BSc,... @VeronicaAthie
5K Followers 2K Following QFB @quimica_unam, Inmunóloga @TheCrick. #VacunemosConEvidencia. @ConCiencia_ECAI: Investigación, sensibilización, prevención #LongCOVID #MECFS #CalidadDelAire
Cathy @CpfcGal08
1K Followers 5K Following South London and Proud! ❤💙 Winners of the 2025 F.A Cup & 2025 Community Shield 🏆🏆 Lover of science and data. MSc Public Health. Early ret NHS 25 years.
primrose @Primrose576
2 Followers 123 Following
Ror Preston @RorPreston
3K Followers 807 Following Founder @wecrunchme | Data-informed advocacy to accelerate research on infection-associated chronic illnesses (IACIs) 💙 | #MECFS #LongCovid
SYSTEM.E FAILURE @systeme_failure
0 Followers 20 Following Conversations about ME/CFS and related conditions, with a focus on aetiology, research, and research funding.
Julie Hardman @JulieHardm12620
1 Followers 28 Following
Megan Kitts Cremeans @MeganCremeans
337 Followers 3K Following Christian, wife, mama, WVU EER, resident of Tega Cay SC. Fragile X advocate.
Maja.John.And.Family @MajaJohnFamily
1 Followers 5 Following We are a Family from the UK, living with disabilities (ME/CFS, Autism, Birth Defects). We have dreamt for years of visiting friends abroad. Now we are doing it!
BlueDiamond @BlueDia84446137
65 Followers 269 Following (she/her) polyam and pan; Infancy CP & childhood Shingles; in 40s daily migraine for 5yrs; now disabling POTS + MECFS #COVIDisNOTOver protect #LongCOVIDkids
seef khan @chiefseif4327
792 Followers 7K Following @minorityprogram #LongCovid #MECFS #POTS #MCAS patient and researcher
AHZ @az47118
4 Followers 188 Following A sinner saved by God’s grace through faith in Jesus the Christ
Chris “Groggy” Cr... @tiredchris2
30 Followers 207 Following
Kim Todd @kimetodd
49 Followers 250 Following
H. Bolds @BoldsHeidi
3K Followers 3K Following B.S. Evolutionary Biol, M.S. Soc. 30 yr retired lab tech. Love: family, horses & animals💉+, vote 🌊💙🌊💙 no lists
Care Not COVID Chicag... @CareNotCOVIDChi
613 Followers 319 Following #KeepMasksInHealthcare / #COVIDisAirborne: Advocacy for Illinois. Retweets are not endorsements.
Taking a hike somewhe... @trubludodgerfan
557 Followers 2K Following Dad, husband, aspiring smart-ass, reggae aficionado, Bx Analyst, and bad fisherman. Opinions all mine ⚾️🤙🏽🍻
Caro Díaz 💥 (masq... @Carohache13
9K Followers 4K Following Periodista, escritora y activista. Salud mental, discapacidad y DDHH. #Actuallyautistic🍒 #RedLATAM 9na generación. Editora General @_somosatipico
healthconscious @healthyappy
52 Followers 4K Following
Julie Farrell @Julesofthwood
6K Followers 4K Following Unique... resonant/remote viewer...crazy about Disclosure...Sacred Cannabis....love for all beings... spiritual life
2covet 🌻🌻🌻 @2covet
3K Followers 5K Following NZ museums and heritage aficionado, shoe fancier, curator baiter, demure chocoholic, and all-round-caffeine fiend. Personal views; Not those of my employer.
Penny Bonds @pbonds747
1K Followers 782 Following I am a Christian, Conservative Southern Lady; 26+ yrs married. I Love Nature. ME/CFS & LC Any tweets are of my opinion and are not intended as medical advice.
Jackson Riso @JacksonRiso
120 Followers 290 Following Turning chaotic businesses into automated digital factories. #LongCovid
Minghao Gong @MinghaoGongD960
429 Followers 1K Following Musically-inspired Postdoc @ Jackson laboratory for Genomic Medicine - Pains sharpen the mind and channel the spirit to the utmost heights!
Cindy M @CmgNyy
77 Followers 5K Following
lizzel tired @DocPots007
16 Followers 228 Following
Kyle Benz @97JerryFletcher
49 Followers 478 Following USMC. 🇺🇸 Former SA w/ DOS/DS. Whistleblower. ✝️. ME/CFS Since 2016 & being Gaslight by the VA / Innocent but powerless to prove it.
Paul Tatton @PaulTatton3
7 Followers 67 Following
Laura Arensdorf @lkarens
463 Followers 8K Following
KellyBotnet @kkelly120_kim
5K Followers 4K Following Loves #Resistance , dogs and the mountains. #Resist!!
[email protected] @fsoltyshawca1
0 Followers 79 Following
Bat Researcher - A.Pr... @BatResearch
3K Followers 2K Following Understanding bats through research. Host-Pathogen responses/Comparative Biology. opinions my own. A. Prof @ZJE_institute @ZJU_China @[email protected]
livingmentalhealth @LWMHhelp
1K Followers 2K Following Hi I’m John and I'm going to talk about my experiences of living with mental health issues Wanting to hear your views on all mental health. #livedexperience
PF (Patricia/Pat) And... @pfatech
609 Followers 2K Following This was the livetweeting account for @pfanderson. Have been locked out & am unable to access help from @TwitterSupport Librarian, LongCOVID March 2020
✨EdGy✨ @7DivineLove7
502 Followers 2K Following XXMother, Numinous Creature, Natural Health Enthusiast, Caregiver, Anti Gov, ExVaxxer, Survivor on a healing journey, Medical Freedom, Apolitical, Anti-Lockdown
Martin W. Angler @martinangler
2K Followers 3K Following Science journalist. Bylines @aeon @nzz @nzzas @sz @derspiegel @geomagazin @bdwredaktion & others. 2024 @ABSW awards finalist. Here to provide #LongCovid context
madame george @madamegeorge3
7 Followers 341 Following
Bhupesh K Prusty @BhupeshPrusty
15K Followers 66 Following A passionate molecular virologist who believe in patient oriented scientific research. Using viruses to understand human existence. Science is for society.
Janet Dafoe @JanetDafoe
16K Followers 225 Following Caregiver for very severe ME/CFS son, advocate and fundraiser for End ME/CFS PROJECT at OMF and CFSRC at Stanford. The rest of my life is on hold...
ME/CFS News @MECFSNews
14K Followers 687 Following I used to post news and interesting information on ME/CFS but have retired to focus on other things.
Prof. Akiko Iwasaki @VirusesImmunity
213K Followers 2K Following We study antiviral immunity and viral disease pathogenesis. #COVID19 #longCOVID #vaccines @HHMINEWS @YaleIBIO @YaleMed @YaleCII
Solve ME/CFS Initiati... @PlzSolveCFS
12K Followers 4K Following Making ME/CFS, Long Covid & associated conditions widely understood, diagnosable, & treatable. #SolveME #MECFS #LongCovid Donate @ https://t.co/P6umwzCRA4
Open Medicine Foundat... @OpenMedF
14K Followers 1K Following OMF is fundraising to support open, collaborative research to find effective treatments and diagnostic markers for ME/CFS, Long COVID, and related diseases.
#MEAction Network @MEActNet
19K Followers 3K Following A global network fighting for equality for Myalgic Encephalomyelitis. #MEAction #MillionsMissing https://t.co/JhhNZoFYJi
PwME 4 bioMEdical res... @ValeBodi
4K Followers 3K Following Surviving #MyalgicE #AAG to tell the story, patient&advocate w/ a JD, into: MEdicine, Social justice & the Arts, Human neutrino/MEdical apolide/gnarled Pacer
Patient-Led Research ... @patientled
26K Followers 660 Following Patient-led research and advocacy for #LongCovid and infection-associated chronic conditions!
Rivka @Rivkatweets
4K Followers 2K Following Activist/Organizer: ChronicIllness, disability, ME/CFS, Lyme, LongCovid, women | Writer: WashPost, MarieClaire, NPR, Ms, Newsweek | Playwright: Many productions
Cort Johnson @CortJohnson
11K Followers 1K Following Founder of Health Rising /Phoenix Rising - Chronic Fatigue Syndrome (ME/CFS)/Fibromyalgia/Long COVID journalist/blogger - ME/CFS/FM patient for 40 plus years
Science for ME online... @s4me_info
6K Followers 266 Following We are an independent, patient-led, international forum for people with ME/CFS and the carers, clinicians, scientists and advocates who support us.
Bateman Horne Center @BatemanHorne
7K Followers 1K Following Bateman Horne Center is a non-profit medical, research, and education center devoted to eradicating ME/CFS, FM, Long COVID, and related conditions.
Sabrina Poirier (On H... @Sabrina_Poirier
6K Followers 6K Following Community Builder / Passionate Collaborator / Chair - #MedicalEducation Group / #ResearchPartner / #MECFS #LongCovid Advocate / #PwME / #MCAS / #POTS / #Fibro
ME Association @MEAssociation
19K Followers 2K Following We raise funds for medical research into ME/CFS and provide support, information & campaign for people in the UK. RPs do not necessarily mean endorsement.
Jennifer Brea🦒 @jenbrea
37K Followers 2K Following Filmmaker @4mmfilm @unrestfilm @longroadhomedoc. @MEActNet co-founder. Dropped out Harvard Poli Sci/Stats Ph.D after virus. #MECFS, #longCOVID
Kerry Newnham @Squashedhedgi
1K Followers 1K Following Tube-fed, bedbound, a very severe M.E veteran, injured in this battle. Unlikely to come through intact or alive. UK harmed pwME & then neglected us. LW-green
Jan Choutka @jan_choutka
2K Followers 615 Following Interested in 1) medicinal chemistry 2) ME/CFS research.
Jarbas Barbosa @DirOPSPAHO
11K Followers 877 Following Director de la @opsoms | Director of @pahowho | #SaludParaTodos #HealthForAll #SaúdeParaTodos
Bas Koelewijn @BasKoelewijn
2K Followers 5K Following Disability research, advocacy & inclusive education. Overly invested in sports and the dog 🐶. Chronically ill but definitely not lesser than. He/Him.
Workwell Foundation @4Workwell
3K Followers 1K Following #Nonprofit #research laboratory providing #disability evaluations, #education, and #resources for #MECFS, #LongCOVID, and other #fatigue related illnesses.
Massachusetts ME/CFS ... @MassMECFS
2K Followers 727 Following To improve the lives of all people affected by ME/CFS and Fibromyalgia through advancing awareness, care, treatment and research.
RUSH Medical College @rushumedcollege
1K Followers 575 Following News from RUSH Medical College at @RushUniversity. Developing future physicians dedicated to excellence in clinical practice, education, research and service.
Sarah Lawrence Colleg... @SLCAlums
820 Followers 521 Following Stay connected to Sarah Lawrence College with the Office of Alumnae/i Relations.
J. Kenneth Wickiser @JKenW
62 Followers 97 Following Director, Global Alliance for Preventing Pandemics, Clinical Biochemist, Synthetic Biologist, Husband, Father, Cyclist, Guitarist, Veteran, Son of an Immigrant
Meet the Press @MeetThePress
627K Followers 501 Following Meet the Press is the longest-running show in TV history. Join @kwelkernbc for in-depth political discussions and interviews on NBC News and NBC News NOW.
ME/CFS Research Netwo... @TheMECFSNet
772 Followers 27 Following @NIH-funded network that fosters collaborative research in partnership with individuals and advocacy groups to improve the diagnosis and treatment of #MECFS.
Yale Center for Infec... @YaleCII
2K Followers 87 Following We are the Yale Center for Infection and Immunity, dedicated to understanding how infections cause diseases and to the developing better vaccines.
NICE @NICEComms
242K Followers 1K Following Official feed of NICE - National Institute for Health and Care Excellence. We produce evidence-based health and social care guidance. Tweets by the comms team.
ME/CFS Quotes @mecfsquotes
1K Followers 103 Following Spotlighting ideas, news, and research related to the debilitating disease ME/CFS (Myalgic Encephalomyelitis/Chronic Fatigue Syndrome) #MECFS | by @winstoncb
Doctors with M.E. @DoctorsWithME
5K Followers 303 Following The global professional association for medical practitioners, scientists and researchers in the field of #MECFS, #LongCovid and related postviral disease
Ashanti Daniel,BSN, R... @AshantiRN
753 Followers 402 Following 👩🏾⚕️ Disabled Registered Nurse | 🦄 Chronic illness warrior 💪🏾 | 🗣 Chronic illness advocate | Instagram & TikTok: @AshantiRN
Ed Yong is not here @edyong209
338K Followers 2K Following Science writer. Author of AN IMMENSE WORLD. Not on Twitter any more. Find me on Bluesky or through my newsletter: https://t.co/sUMoqFWZWg.
BODY POLITIC @itsbodypolitic
21K Followers 368 Following Grassroots health justice org at the forefront of the patient-led #LongCovid movement. Home of Body Politic COVID-19 Support Group. [email protected]
Long COVID Alliance @LongCOVIDAllian
4K Followers 90 Following Research. Advocacy. Education. https://t.co/yE6W9ul1Yd
Sicksplaining Podcast @Sicksplaining
773 Followers 1K Following Video #podcast focused on #chronic and #invisible #illnesses - on YouTube! Hosted by @Sabrina_Poirier
Leonard Jason @CenterRes
2K Followers 33 Following Leonard Jason is a Professor of Clinical and Community Psychology at DePaul University. He is also Director of the Center for Community Research
PolyBio @polybioRF
13K Followers 2K Following 501(c)3 transforming how #LongCovid, #ME/CFS & Lyme+ are studied, diagnosed, and treated. Leading the #LongCovid Research Consortium.
CIHR-IMHA Community @CIHR_IMHA
1K Followers 1K Following The CIHR-Institute of Musculoskeletal Health & Arthritis (IMHA) mandate is research that enhances active living, mobility, MSK health, oral health & skin health
The Patient-Centered ... @PCORI
21K Followers 1K Following PCORI funds patient-centered comparative clinical effectiveness research (CER). Links, RTs, favorite ≠ endorsements/advice.
RTI International @RTI_Intl
19K Followers 476 Following Official X account for RTI International- an independent scientific research institute dedicated to improving the human condition.
President Biden Archi... @POTUS46Archive
36.4M Followers 5 Following This is an archive of a Biden administration account, maintained by the National Archives and Records Administration.
Vice President Kamala... @VP46Archive
14.6M Followers 6 Following This is an archive of a Biden administration account, maintained by the National Archives and Records Administration.
Andrew Kantor @AndrewMKantor
192 Followers 526 Following Attorney who exclusively sues insurance companies on behalf of wronged insureds. Trying to raise awareness about ME/CFS and the resulting insurance misconduct.
COVID19 Experts Infor... @covid19_experts
991 Followers 903 Following Latest COVID-19 info directly from relevant scientific experts. Updated regularly.
Craig Spencer MD MPH @Craig_A_Spencer
224K Followers 778 Following ER Doctor | Ebola Survivor | Public Health & Humanitarian Response | Historical Determinants of Public Health @Brown_SPH | Member @CFR_org | Emmy Award Winner🏆
Society for Mucosal I... @socmucimm
5K Followers 453 Following The Society for Mucosal Immunology (SMI) promotes excellence in research and education in mucosal immunology and fosters communication among immunologists
Wilhelmina Jenkins @minadjenkins
2K Followers 1K Following
Alison Sbrana @AlisonSbrana
1K Followers 763 Following she/hers. ♿️Disabled by viral-triggered #MECFS & #Dysautonomia and related 9+years
NYSDOH @HealthNYGov
31K Followers 581 Following Our Mission: To protect and promote health and well-being for all, building on a foundation of health equity.
Survivor Corps @Survivor_Corps
16K Followers 706 Following Largest grassroots COVID and long COVID advocacy group working for survivors, research & public policy. Founder: @dianaberrent
blkwomenshealth @blkwomenshealth
33K Followers 5K Following We are the only national nonprofit dedicated solely to the health & wellness of Black women & girls. #BlkWomensHealth https://t.co/U9NLcnAQ4f
Black Health Alliance @BlackHealthCAN
4K Followers 2K Following Black Health Alliance is a community based charity working to improve the health and well-being of the 1.2 million Black people in Canada
Chimére L. Sweeney @chiluvs1
4K Followers 608 Following Complicity in AntiBlackness as we Fight #LongCovid is an Admission of Racism and Discrimination Everywhere.
Juliet Morrison, PhD @JumoDr
2K Followers 1K Following Virologist | Assistant Professor | Innate immunity Stan | Urban farmer | #FirstGen | 🇯🇲 in 🇺🇸 | she/ra
NCATS @ncats_nih_gov
16K Followers 657 Following Official account. https://t.co/E0jyoPAqWA https://t.co/5jpXb0jIER engagement ≠ endorsement
OluWonton Siôn Casti... @InflammaSean
1K Followers 2K Following Was mainly #MECFS, #PASC, chronic illness & science account. Any kind of nonsense now; just trying it out. Don't cry, laugh my sweet children 💔😅
Avi Nath @nathavindra
465 Followers 16 Following