BODY POLITIC @itsbodypolitic
Grassroots health justice org at the forefront of the patient-led #LongCovid movement. Home of Body Politic COVID-19 Support Group. [email protected] linktr.ee/wearebodypolit… Joined March 2018-
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A sincere thank you @SenMarkey for your longstanding support for this community, and for your informed comments & questions in today's hearing to our former president @AngelaMSWinCA about infection-triggered chronic illnesses
A sincere thank you @SenMarkey for your longstanding support for this community, and for your informed comments & questions in today's hearing to our former president @AngelaMSWinCA about infection-triggered chronic illnesses
Good morning! This is @betsyladyzhets, getting started with livetweeting today's hearing at the Senate HELP committee about #LongCovid. Follow along in this thread for updates throughout the event.
"There is the sense that something is going on in America that we're not addressing...to all those who are dealing with #LongCovid: we hear what you're experiencing, we take it seriously" @BernieSanders
Hannah Davis @ahandvanish
60K Followers 4K Following Research, algorithmic music, machine learning/AI, anti-bias in AI data. #LongCovid research & advocacy @patientled. they/them. DMs rarely checkedLongCovidPharmD @organichemusic
37K Followers 1K Following Doctor of Pharmacy. Long Covid, EBV & ME/CFS research. Here to share & learn. Tweets not medical advice. https://t.co/jqc4g8cFLa https://t.co/lKQezPwtQsDr Elisa Perego @elisaperego78
33K Followers 2K Following #LongCovid | Covid || researcher || inequality, health, disability in present | past || patient-led research || medicine history || MA PhD | ≠ MD || views ownPutrino Lab @PutrinoLab
34K Followers 382 Following We make people (and technology) better at Mount Sinai. Opinions are my own.Prof. Akiko Iwasaki @VirusesImmunity
220K Followers 2K Following We study antiviral immunity and viral disease pathogenesis. #COVID19 #longCOVID #vaccines @HHMINEWS @YaleIBIO @YaleMed @YaleCII President of @ImmunologyAAIResia Pretorius @resiapretorius
27K Followers 218 Following Distinguished Prof: Physiological Sciences, Stellenbosch Univ, South Africa; Honorary prof: Univ of Liverpool Research: coagulation, inflammationIt'sME(Jaime) @exceedhergrasp1
20K Followers 5K Following Director of Sci & Med Outreach, #MEAction Stanford Med #ME, #EDS, #POTS, #LongCOVID Views my own [email protected]Myra Batchelder @myrabatchelder
19K Followers 11K Following Health Policy & Advocacy. @COVIDAdvocacyNY @COVID_Advocacy. #SRHRJ #VaxPlus #KeepMasksInHealthcare. @Harvard @SarahLawrence alum. She/herShaney Wright @ShaneyWright
15K Followers 493 Following @WestHam Fan ⚒ | Accidental Centrist; Pro-Pragmatism/Science; Anti-Dogma. Fighting for Biomedical Research into, and Awareness of, #LongCovid. #FBLCGez Medinger @gezmedinger
20K Followers 719 Following Author of The Long Covid Handbook with @daltmann10, published by @penguinUKBooks (see link). Represented by the Blair Partnership @TBP_agencyDr Asad Khan FRCP FRA.. @doctorasadkhan
28K Followers 3K Following Lung Dr on pause since Nov 20 #LongCovid #POTS #MCAS #HSD #pwME #Aotearoa Views my own; Retweets≠endorsements #freepalestine #TeamClots ZIONISTS WILL BE BLOCKEDJonas R. Kunst (@kuns.. @KunstJonas
17K Followers 724 Following Professor of Psychology @UniOslo. Past @Yale @Harvard @UiB. Founder @Advances1n. Father. Views are my own. @kunstjonas.bsky.social @[email protected]S Blitshteyn MD, FAAN.. @dysclinic
20K Followers 1K Following Neurologist, Director of #Dysautonomia Clinic, Clinical Associate Professor @Jacobs_Med_UB. Trained @MayoClinic #LongCovid #POTS #EDS, tweets🚫med advicePatient-Led Research .. @patientled
27K Followers 615 Following Patient-led research and advocacy for #LongCovid and infection-associated chronic conditions!Morgan Stephens @morganstephensa
14K Followers 2K Following around the White House @business, poet TILT (Aldrich Press 2024), previously @cnn, #LongCovidBilly Hanlon @bhanlon15
12K Followers 11K Following Director of Advocacy & Outreach, Minnesota ME/CFS Alliance | Long COVID AllyDaniel Brittain Dugge.. @dbdugger
15K Followers 6K Following HIV+ #LongCovid Advocate. Software Development. CJR Reform. SAND Scan.allison @allisonaallen1
27 Followers 641 FollowingD S @DSonenine
0 Followers 7 FollowingFOR Nature @JacquelynHedden
300 Followers 1K Following I've got questions about this thing we call life. Neurobohemian.Lindsey Knowles, PhD @LMajorK
140 Followers 287 Following Assistant Professor in the Department of Rehabilitation Medicine, University of Washington. Views & opinions are my own.we'll see @kellywashburn
320 Followers 1K FollowingSiouxsieloveshurts @VosperSioux
3K Followers 5K Following I lost my Dad to COVID-19 💛#loveforthelost 💛#covidinquirynow @CovidJusticeUK @CovidActionUK #Toriesout #vegan Proud Mum of Trans , LGBTQ , ADHD , ASD , EDSRee @Reeakh
44 Followers 952 FollowingHeather (she/her) @hrasunflower
497 Followers 3K Following wife, aunt, DNP APRN, ally, rural med, pro-science, pro-vaccine. Tweets/RTs do not represent any agency and are not medical advice.🏩🩺💊💉🧬♥️#medtwitterIsabel Ramirez-Burnet.. @IsabelRamirezRD
3K Followers 1K Following NBC-HWC CEO @renegaderes & Todologa @remissionbiome patient-led, decentralized, human-centered research. #MECFS #longcovid #postinfectious #chronicillnessMatt Lazell-Fairman @mfairma
962 Followers 1K Following ME patient. Spouse with LC & ME. Fund marginalized diseases. Plow under suburbia. Build walkable, accessible towns and cities.FLL @FLL10R
2 Followers 977 FollowingRev. Dr. Pamela M.S. .. @PamelaMSHolmes
442 Followers 1K Following Critical theologian and creative syfy fan.Ry @ry60003333
495 Followers 2K Following 🍎 engineer (opinions are my own). Former game dev student @RITtigers and startup co-founder at Venture Creations. Frozen fan 💙 Pfp credits to @frostharmonic!Rete Long Covid Press @ReteLongCovid
150 Followers 1K Following Benvenuti nella Rete Long Covid Italia 💙 https://t.co/T6NThQfoQLClare Anderson @cecarr628
58 Followers 917 FollowingDiana Taylor @dianataylorabz
59 Followers 409 FollowingRose H. Miller @rosehmiller
479 Followers 2K Following Clinical Psychology PhD Student @usouthflorida Ask me about NYC, astrology, or my dog.🌹🏳️⚧️r.. @cripwriter
602 Followers 2K Following 26, ey/they ⚧️ ♍♌♌ queer 🏳️🌈 autistic anarchist 🌈🏴 plural @elysiancollctve ✌💊🧪🏹🌻 sick/mad/fat/crip 🦓♿ emerging writer ✒️ #CeasefireNOW #FreePalestinediddydoop @diddydoop1
11 Followers 34 FollowingEL @earthworm200
3 Followers 42 FollowingNoPursuitToday @NoPursuitToday
58 Followers 123 Followingjusza @juliaszajd
3 Followers 57 Followingmoony 🌙🍉 mask u.. @TheServiceWitch
31 Followers 234 Following 22 (any/all) • queer audhd leftist puerto rican • polytheist witch • aspiring service dog trainer for those with Long Covid + ME/CFS etc • #FreePalestine 🇵🇸McCrudden J @JohnMcCrudden9
447 Followers 3K FollowingViveka Rydell-Anderso.. @RydellViveka
661 Followers 5K Following Stanford 🩺DAYA FemTech💃🏽HIMSS Nor Cal President🧩Lawyer⚖️Healthcare Leader❤️connector🗣ideas💡technology🧑🏾🦼@eyeequity👁Trust🍎🌍 🇸🇪🇺🇸 Podcast 🎙️👇🏽KayJayPee @kari_paulson
369 Followers 2K Following library lover, tending toward geeky, global wanderer, somewhat sporty, always curious. aussie/american now northern californian by way of MN-EU-AU-UK-FRJulie Sullivan @CureLongCovid
193 Followers 718 Following Program Manager of The Covid Recovery Center at Brigham and Women’s Hospital in Boston MA. Opinions are my own. Here to advocate and educate, not argue 💕babaamando @babaama39058274
26 Followers 181 FollowingErin Godwin @ErinAPN1
3K Followers 3K Following Mam to daughter battling severe Long Covid. Grasping at answers blowing in the wind. Journo who left media frypan to jump into the law world fire.Andy Moss @AndyMoss86458
1 Followers 19 FollowingShonso @SDotHoward2
96 Followers 266 Following Life Like A Chess Move, You gotta make ya next move ya best move. Keepit P' ya understand.Mila @Mila44865910573
20 Followers 123 Followingship toasting @creakyjorts
197 Followers 403 Following pie tasting by Anita Bryant [email protected] [email protected]Dr. Andrea Wallace @AndeeWallace
2K Followers 530 Following Associate Professor, University of Exeter Law School, CREATe alumna, IP and digital heritage nerd, viva la public domain, she/her https://t.co/sSjnMCCNRZShifrah Gadamsetti @GettinShifDone
3K Followers 2K Following Strat Comms ABNDP Caucus (on leave) | former Speechwriter for @RachelNotley | @RiddellMPM @mountroyal4u alum | Dir. @ywca_canada | words are my own | she/her.Rabbi Minster @socialupheaval
621 Followers 2K Following Rabbi, Temple Israel of Alameda. Feminist mom & wife of Chinese Jews. Progressive Jew at the intersection of Jewish ethics & mysticism. IG: RabbiMinsterSandy Green @SandyGr35252405
18 Followers 183 Followingchloee weiner @_chloeew
885 Followers 1K FollowingChris Murphy 🇺🇦.. @murphy5_chris
867 Followers 449 Following CIA- Catholic Irish American, from Upstate NY. Unjustified longevity. Georgian by choice, Yankee by an Act of God. Friend of Bill, '94ᗴᐯᗩ ᗩᑎᗪ �.. @flowinchange
402 Followers 231 FollowingNedHead @NheddieGetsFit
194 Followers 446 Following Cheerful doomer: facing reality is always the best plan.Maggie Hoffman @maggiejhoffman
11K Followers 7K Following Editor, strategist, writer. Previously: Digital director @epicurious. Author, BATCH COCKTAILS and THE ONE-BOTTLE COCKTAIL.Alexa Leonard @WriterLexi
2 Followers 800 Followingnot sure @OiBitcoin
40 Followers 2K FollowingLouise Davy @LouiseDavy9
142 Followers 293 FollowingLisa Brown @LisaM_Brown
249 Followers 993 Following Copywriter | @newmarkjschool alum | BK native & never tweeter | Prev @SELFmagazine @StandardInsider @TimeOutNewYork @billboard @1010wins @GeniusHannah Davis @ahandvanish
60K Followers 4K Following Research, algorithmic music, machine learning/AI, anti-bias in AI data. #LongCovid research & advocacy @patientled. they/them. DMs rarely checkedDr Elisa Perego @elisaperego78
33K Followers 2K Following #LongCovid | Covid || researcher || inequality, health, disability in present | past || patient-led research || medicine history || MA PhD | ≠ MD || views ownPutrino Lab @PutrinoLab
34K Followers 382 Following We make people (and technology) better at Mount Sinai. Opinions are my own.It'sME(Jaime) @exceedhergrasp1
20K Followers 5K Following Director of Sci & Med Outreach, #MEAction Stanford Med #ME, #EDS, #POTS, #LongCOVID Views my own [email protected]Myra Batchelder @myrabatchelder
19K Followers 11K Following Health Policy & Advocacy. @COVIDAdvocacyNY @COVID_Advocacy. #SRHRJ #VaxPlus #KeepMasksInHealthcare. @Harvard @SarahLawrence alum. She/herDr Asad Khan FRCP FRA.. @doctorasadkhan
28K Followers 3K Following Lung Dr on pause since Nov 20 #LongCovid #POTS #MCAS #HSD #pwME #Aotearoa Views my own; Retweets≠endorsements #freepalestine #TeamClots ZIONISTS WILL BE BLOCKEDS Blitshteyn MD, FAAN.. @dysclinic
20K Followers 1K Following Neurologist, Director of #Dysautonomia Clinic, Clinical Associate Professor @Jacobs_Med_UB. Trained @MayoClinic #LongCovid #POTS #EDS, tweets🚫med advicePatient-Led Research .. @patientled
27K Followers 615 Following Patient-led research and advocacy for #LongCovid and infection-associated chronic conditions!Morgan Stephens @morganstephensa
14K Followers 2K Following around the White House @business, poet TILT (Aldrich Press 2024), previously @cnn, #LongCovidDysautonomia Intl. @Dysautonomia
26K Followers 344 Following Dysautonomia International is a 501(c)(3) non-profit that raises funds for research and promotes awareness of disorders of the autonomic nervous system.Long Covid SOS @LongCovidSOS
27K Followers 941 Following UK based charity advocating for those impacted by #LongCovid Recognition - Research - Rehabilitation Email [email protected]Bea is Chronically Pe.. @Be_Kinderr
11K Followers 3K Following Chronic Illness Researcher. Science of #MECFS #LongCovid #POTS #EDS #MCAS CCI SFN Lyme etc & How They Connect🕵🏻♀️Scientist/Advocate [email protected]Monica Verduzco-Gutie.. @MVGutierrezMD
26K Followers 8K Following Professor & Chair of Rehabilitation Medicine @uthsa_rehabmed @UTHealthSA | #Physiatry #LongCOVID | mom, runner, #LatinasInMedicine | my ideasLong Covid Support �.. @long_covid
32K Followers 2K Following UK Charity • Support • Advocacy • Research Involvement • Awareness • Education • Keeping people with #LongCovid at the centre. #CureLongCovidLong COVID Physio @LongCOVIDPhysio
27K Followers 1K Following #LongCOVIDPhysio is an international peer support, education and advocacy, patient-led association of Physiotherapists living with #LongCOVID & alliesTodd Davenport @sunsopeningband
11K Followers 5K Following Non nobis solum nati sumus. Husband. Dad x3. Upstreamist. Pracademic. Storyteller involving data. “That brand of person.” Full prof. DPT PhD MPH OCS.Lisa McCorkell @LisaAMcCorkell
6K Followers 2K Following @patientled cofounder | #longcovid patient-researcher/advocate | disability justice policy nerd | MPP | she/her | natures 10 2022#MEAction Network @MEActNet
20K Followers 3K Following A global network fighting for equality for Myalgic Encephalomyelitis. #MEAction #MillionsMissing https://t.co/JhhNZoFYJiErin C. Sanders, MSN,.. @ErinSandersNP
19K Followers 9K Following Proud Mama & Wife | Nurse Practitioner & Clinical Scientist | Prev MIT, Stanford | #Disabled ♿️ | #WomxnsHealth 🧠 | Catalyst | Connector | #JusticeAccompliceZiyad Al-Aly, MD @zalaly
29K Followers 941 Following Physician-Scientist | Studying Long Covid #LongCovid Profile: https://t.co/ywweQn5DHA…HELP Committee Dems @HELPCmteDems
9K Followers 151 Following U.S. Senate Committee on Health, Education, Labor, and Pensions (HELP). Follow us for updates from Chair @SenSanders and HELP Democrats.Cali Wilson @rcalwilson
145 Followers 257 Following 🇵🇸 🍉 She/Her | Medical Anthropologist | Disability and Long COVID advocacy |#POTS #MCAS #longcovid #ME/CFSKarla Monterroso @karlitaliliana
16K Followers 4K Following “There is no normal. Just us, what we’ve been given, and what we do with it.”- Kamala Khan #WiseLatina 🇬🇹🇲🇽 PN: she/her/ellaErin Kissane, but gon.. @kissane
29K Followers 892 Following Data cicada. Prev. @covid19tracking @opennews @contents, tech/culture orgs. Not here anymore. @[email protected] + @kissane.bsky.social + my website.TaylorLorenz.Substack.. @TaylorLorenz
342K Followers 10K Following Tech reporter, host of Power User podcast on Vox Media. Buy my book EXTREMELY ONLINE (out now!) Subscribe to my YouTube 👇🏻👇🏻👇🏻The Arc of the United.. @TheArcUS
25K Followers 2K Following Working towards respect, dignity, and inclusion for all people with intellectual and developmental disabilities and their families.Dr. Theresa Chapple @Theresa_Chapple
43K Followers 4K Following Public health geek, maternal and child health advocate, social justice seeker, mother of three. Motto- "In God we trust, everyone else must show data"TransgenderLawCenter @TransLawCenter
72K Followers 1K Following TLC keeps trans & gender nonconforming people alive, thriving, & fighting for liberation. Celebrate our 20th birthday by donating: https://t.co/zNSC9BcEJ8Angela M. Vázquez is.. @AngelaMSWinCA
4K Followers 2K Following Public Policy acct | #MentalHealth @kidspartnership | Comm @wedrawthelines ✊🏽✊🏾✊🏿 Chicanx #LongCOVID #MECFS disabled 🐦🙋🏽♀️she/he | #ActuallyAutisticDr. Lucky Tran @luckytran
70K Followers 4K Following 📢 Public Health, Climate Justice, and Science Communication 🎓 Columbia, Cornell, Cambridge, Adelaide ➡️ Find me on other websites: https://t.co/yvBIYKMcGFProtect Their Future .. @PTF_org
6K Followers 7K Following Grassroots org of parents & pediatricians advocating for protection for ALL children. 1000s more on FB & Insta & Mastodon! Created #ImmunizeUnder5sLong COVID Justice (L.. @LongCOVIDnetwk
4K Followers 859 Following - Join our action list: https://t.co/YLjoRYca61… - All our links: https://t.co/jr8VGK7KyR… - Find us @longcovidjustice where skies are blue!Project ECHO @ProjectECHO
8K Followers 3K Following Project ECHO makes expertise accessible, getting the right knowledge to the right place at the right time. #AllTeachAllLearn #20YearsOfECHOThe Daily Disability @the_dailydis
1K Followers 2K Following The Daily Dis(ability) is a news stream and resource blog focusing on expertise, work and activism of disabled people.Leah McElrath @leahmcelrath
136K Followers 3K Following Psychology, geopolitics, marginalia • Making sense of a world that doesn’t • @smithcollege BA, MSW • @LSEalumni • #ActuallyAutistic #MECFS #LongCOVIDrasha abdulhadi @rashaabdulhadi
8K Followers 2K Following poet, cultural organizer, fiber arts || social media for an analog world || mastodon: @[email protected] || NO LISTS(expect RT delays) th.. @RTsFromTheVoid
4K Followers 3 Following delayed daily retweets from #NEISVoid | kept up by @bennessb & @fibrofuckboy | illness / neurodivergence / disability / no dx required / all dx welcomestable finally, getti.. @bennessb
27K Followers 693 Following currently: haunted / unwell & host of No End In Sight, creator of #NEISVoid, a keeper of @RTsFromTheVoid. find me on 🦣: @[email protected] she/her.Slack @SlackHQ
456K Followers 132K Following On a mission to make your working life simpler, more pleasant and more productive. Need help? Send us a tweet!Covid19PersistentePer.. @peru_covid
138 Followers 150 Following Comunidad para personas con Covid Persistente en PeruAmali Lokugamage @DocAmali
3K Followers 1K Following Obstetrician & Gynaecologist, Honorary Associate Professor, Medical Educator, MSc Epidemiology & Author. (Views are my own)FC @felicitycallard
7K Followers 2K FollowingMarta Esperti ⛵️�.. @MartaEsperti
3K Followers 5K Following #PhD candidate @univ_spn fellow @ICMigrations |Former lecturer @sciencespo &visiting academic @UniofOxford |Alumna @EHESS_fr cum laude #LongCOVID advocateLong Covid Italia @LongCovidItalia
4K Followers 2K Following Patient-led support group & association for research + care of #LongCovid in Italy - [email protected]C19 Persistente @CPersistente
134 Followers 216 Following Persistente de C19 Persistente. Buscando ser la persona que era.Mimil28 @Ra2myl
1K Followers 2K Following #apresJ20 #LongCovid Co-founder of @apresJ20 association #CovidLong France🔎Dr Pauline Oustri.. @Food_reward
3K Followers 3K Following Co-founder President @ApresJ20 ▫️chercheur @CLCCLeonBerard▫️PhD in Psychobiology @aceb_leeds▪️Interests #health #scicomm #participativeResearch #networkingPadma Priya D @priyakamal
10K Followers 4K Following Co-founder & Editor-in-Chief @sunoindia_in. Founder, @longcovidindia. Consultant @patientled Find me on @[email protected]Apua koronaan @apuakoronaan
773 Followers 1K Following Tili edustaa Suomalaisia long-haulereita joilla on #LongCovid = pitkittynyt koronavirustauti! Tsekkaa meidän sivuilta lisätietoja. #pitkäcovid #ApuakoronaanLong Covid Canada @LongCovidCanada
4K Followers 5K Following Canada’s 1st #LongCovid advocacy group /// BIPOC-led // founded June 11 2020 // #FBLC // email: [email protected]Long Covid Kids - #Lo.. @LongCovidKids
30K Followers 4K Following UK-based, international charity supporting and advocating for families and children living with Long Covid & related illnesses. https://t.co/QjkCJVG3tIClaire Hastie 💙 @ClaireHastie1
5K Followers 627 Following Seeking rehab, research and recognition for people with #LongCovid | https://t.co/gsQHjeF7gB | @long_covid | https://t.co/ZE5JbihOKW | #FBLCStill ill: Corona Dia.. @stillillcorona1
834 Followers 854 Following Monique Jackson (she/her ) Artist & Long Covid Advocate Still Ill: Corona Diary https://t.co/4MXC4xI1Zf?…World Health Organiza.. @WHO
12.3M Followers 2K Following We are the #UnitedNations’ health agency - #HealthForAll. ▶️ Always check our latest tweets on #COVID19 for updated advice/information.LongCOVID in Academia @longcovacademia
1K Followers 159 Following A place to connect grad students, ECRs & faculty w/ #LongCovid, & discuss the many challenges of being a #LongHauler in the Ivory Tower. Run by @leticiasaurus.Letícia Soares, PhD @leticiasaurus
2K Followers 2K Following 1st wave #LongCovid fighter and #pwME. Patient researcher @patientled. She/Her/Ela⭐Juno⭐ @jtuvanyx
7K Followers 364 Following Proud Warrior. Longhauler. Founder @CovidSurvivorID . Randomly talk about gender diversity issues, marginalized people, health equalityWilhelmina Jenkins @minadjenkins
2K Followers 1K FollowingCOVIDBlack @COVIDBLK
6K Followers 3K Following Redefining Health Data for Action and Accountabilty. We Connect Black Communities to their Data.Kate @katemeredithp
6K Followers 2K Following Photography. Genealogy. Digital Marketing. 🏳️🌈 Unintentional #LongCovid awareness advocate and #LongHauler - @c19recoveryDr. Monica M. Bertagn.. @NIHDirector
183K Followers 122 Following Official account of the @NIH Director Posts prior to 11/9/23 were from former NIH Directors Engagement ≠ endorsement Privacy: https://t.co/GijpA0bFOxKristin Urquiza #Mark.. @kdurquiza
32K Followers 5K Following Climate & Health justice advocate. @MarkedByCOVID co-founder, @CovidCrisisGrp co-author, @TheCOVIDCollab member, @Ckeeves ride-or-die, daughter of Mark Urquiza.💙#MarkedByCovid #F.. @MarkedByCovid
28K Followers 6K Following Covid justice and remembrance, by & for those most harmed. - IG, FB, Threads, LinkedIn, Bluesky: @MarkedByCovid - Email updates: https://t.co/q5P5uZrNzYAimee Weiss @aimeeweiss
1K Followers 941 FollowingJen Bokoff @jenbo1
8K Followers 4K Following Movement builder @DisabRightsFund. Connector. Game lover. Traveller. Laughs readily. Values authenticity. Tufts! Thoughts=mine. (she/her)Association for Women.. @AWISNational
11K Followers 3K Following For over 50 years, AWIS has advocated for #WomenInScience and #WomenInSTEM thanks to our members, board, donors, and allies. Tweets/RTs ≠ endorsement.Beth #MillionsMissing @rndNumGen
2K Followers 714 Following #pwME and science/data nerd. co-founder @meactnet. Mostly post about #millionsmissing, #ME, #LongCovid, #microbiome, #MCAS, #POTS, and #healthequality. CS @MITShare masked selfies because representation matters!
One of the best interactions of the day — between @AngelaMSWinCA & @SenMarkey
Long COVID is real, it is disabling, and it is affecting millions. That's why we must fund long COVID and ME/CFS research to better understand and treat these conditions. To all those struggling and suffering—we see you, we hear you, and we will take action for you.
Ok, Y’all, I’ve been on my Twitter reporter game tuhday! Lol. My hands are tired and I gotta back to working on the doc! It’s been real. #mecfs #longcovid #HELPLongCovid #longcovidMoonshot
Holy 🤯 — never seen it this high! #LongCovid
As historic and promising as the @GOPHELP @HELPCmteDems meeting was today, it’s the next step in the many that have brought us to this point. Ball’s in your court to maintain the momentum, @SenSanders. The well-being of millions of people depends on what this committee *does*.
Today I testified before the U.S. Senate Committee on Health, Education, Labor & Pensions I called for the establishment of a new multidisciplinary research institute to address Infection Associated Chronic Conditions Solving these requires a long-term coordinated approach
@AngelaMSWinCA @AngelaMSWinCA speaks of the challenges for marginalized patients who don't easily receive access to treatments like antivirals that are less frequently offered to people of color.
@SenSanders @SenBillCassidy @SenSanders introduces @AngelaMSWinCA who is a former athlete and former president of @itsbodypolitic, and Long COVID patient.
“There needs to be a stronger, louder government campaign around #LongCovid” @AngelaMSWinCA at #HELPLongCovid. Imagine the power of clear & consistent public health messaging about respirators, clean air & debilitating effects of LC. It can be done!
"The burden of disease and disability from Long COVID is on par with the burden of cancer and heart disease. The best way to prevent Long COVID is to prevent COVID in the first place. There is no Long COVID without COVID." Brilliant testimony by @zalaly! #HELPLongCovid
"We proof buildings for earthquakes that happen once every 50 or 100 years. We invest millions. Why can't we do the same thing to make sure that our buildings are proofed against natural hazards like airborne pathogens?" @zalaly on the urgent need for clean air #HELPLongCovid
@coco_chatel @SenBillCassidy And for @AngelaMSWinCA on pushing back on the gradual exercise question earlier in the hearing! That probably made him curious to dig further! I cheered at my screen for her reply on that!
@betsyladyzhets Highlights from Sen. Sanders' opening remarks: - “Today, we’re talking about an issue that has not gotten the attention that it deserves... and that is the issue of Long Covid." - There's a "full house" in the Senate with an overflow room and many watching online.
Former Body Politic President @AngelaMSWinCA testified today at the U.S. Senate Committee on Health, Education, Labor & Pensions hearing. The full recording is available now. It is a 3 hour hearing, so below are some quick video clips: #HELPLongCovid help.senate.gov/hearings/addre…
Good morning! We’re live tweeting today’s hearing on Long Covid from the Senate Health, Education, Labor & Pensions Committee. Follow this thread – or watch the live stream here: help.senate.gov/hearings/addre… #LongCovid 1/
“The need for Long COVID investment is critical & time-sensitive for millions living with Long COVID – especially for marginalized communities who are more likely to get COVID-19, but have the least access to healthcare & benefit support during & after infection." @AngelaMSWinCA
“The best time to invest in research for infection-associated chronic illness was 40 years ago. The 2nd best time is today. The senate has the opportunity to transform the field by providing consistent annual support for research..." Jaime Seltzer @exceedhergrasp1
@zalaly Thank you for recognizing the issue is larger than long COVID alone. ALL infection-associated illnesses need an institute that addresses these problems. The 67 million people world-wide with pre-2020 ME are also waiting for help, many for decades.
#pwME - I hope you feel I held space for us, and all of our collective suffering and neglect, including and especially those who are undiagnosed and/or disconnected from healthcare.
It was an honor to channel your heartache and hope today #LongCovid fam. In solidarity ✊🏽✊🏾✊🏿