ME|FM Society of BC @mefmbc
We advocate for patients living with Myalgic Encephalomyelitis, Long-COVID and Fibromyalgia. mefm.bc.ca Vancouver, British Columbia Joined November 2014-
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🔥Mount Sinai launched a clinical manual for treating Infection Associated Chronic Illnesses #LongCovid #MECFS #Lyme Patients can download as well. Great resource made by great people. Loving the transparency as always! @PutrinoLab @microbeminded2 @ravenscimaven
🔥Mount Sinai launched a clinical manual for treating Infection Associated Chronic Illnesses #LongCovid #MECFS #Lyme Patients can download as well. Great resource made by great people. Loving the transparency as always! @PutrinoLab @microbeminded2 @ravenscimaven
As Severe ME Day comes to a close, we light a candle to remember those we have lost. We send our love to all who are grieving. We hold each other in our hearts as we each have a list of names that goes through our minds as we light our candle. #SevereMEday #UnitedforME
What if your body couldn’t bear light, sound, movement — or even touch? Today, #SevereMEDay, we ask you to imagine living that way not just for a day… but for years. For people living with Very Severe ME, this isn’t a metaphor — it’s reality. 🧵
In honor of #SevereMEDay, we’re launching #UnitedForME, a shared hashtag to amplify stories, art & education from the Severe ME community. Join us in uplifting voices that need to be heard. 💙 #SevereME @OpenMedF @PlzSolveCFS @MEActNet
We are excited to share the initial findings from Decode ME that people's genes contribute to their chances of developing ME/CFS. Read more here: decodeme.org.uk/initial-dna-re… #DecodeME #MyalgicEncephalomyelitis #MEAwareness
PHASE 2 of #MEFMSummerTogether starts now! We've mastered heat management-now let's tackle social navigation.Summer brings increased social expectations when chronic illness symptoms may be most challenging.➡️4 wks: boundaries, gatherings, communication, workplace accommodations
For our community, navigating summer can be a struggle.Basic home modifications can drop your indoor temp by 5-10 degrees: Close curtains during peak🌞,10 AM-4 PM Strategic fan placement for cross-ventilation DIY swamp cooler = bowl of ice + fan #MEFMNavigatingSummer
#MECFS is a severely debilitating illness that leaves about 25% of the patients housebound. Did you know that the illness does not only affect the lives of the patients, but that the quality of life of partners and other family members also is severely impaired? #MEAwarenessHour
The Navigating Summer toolkit is LIVE! It includes strategies for surviving summer with chronic illness: ✅ Heat management & emergency protocols ✅ Energy conservation guides ✅ Social navigation scripts ✅ Travel planning worksheets Register 2 DL- mefm.bc.ca/toolkits
350,000 people currently live with Me/Fm and Long-COVID ME , they collectively represent a major public health burden in BC but have almost zero resources. @Josie_Osborne we look forward to speaking to the budget next week. (@DrKindyMLA )
For ME Awareness Week 2025, we shared infographics raising awareness about the debilitating nature of ME/CFS, but also about the research being conducted to tackle the symptoms associated with the disease. For ease of access, we have collated: bit.ly/mesymptomsandr…
Edited Clip from The Golden Girls (1989): Dorothy finally sees a doctor who diagnoses her with Chronic Fatigue Syndrome, he explains that some doctors aren’t aware or don’t believe in it so they tend to blame the victim. #MECFS Note: Some medical details are outdated
Edited Clip from The Golden Girls (1989): Dorothy finally sees a doctor who diagnoses her with Chronic Fatigue Syndrome, he explains that some doctors aren’t aware or don’t believe in it so they tend to blame the victim. #MECFS Note: Some medical details are outdated https://t.co/4gNff9M6C0
After recent and harmful policy directives targeting Vancouver’s unhoused, Council must support this motion as a signal that they actually do care about people living in poverty. Housing is a human right.
After recent and harmful policy directives targeting Vancouver’s unhoused, Council must support this motion as a signal that they actually do care about people living in poverty. Housing is a human right.
@mefmbc If you haven’t checked it out yet, don’t miss your chance to enter to win over $3k in prizes for a great cause! Head over to PrizeDraw.OperaMariposa.com today - then be sure to check out all the other music, art, merch and more in support of the chronic illness community!
Did you know? Our charitable partner @mefmbc is run by & for people with #MECFS, #Fibromyalgia, & now #LongCovid as well. Long Covid is an umbrella term for the complex suites of symptoms that can persist or develop after a Covid infection. Learn more: mefm.bc.ca/what-is-me-wha…
Thanks you so much for joining us for today's #BlueSunday2025 #TeaPartyForME2025. However you participated - whether you joined the Zoom, hung out in blue PJs, or treated yourself to a nice cuppa tea - we hope you've felt the strength &joy of being in community today 💙 @mefmbc
Today and throughout the month, we're particularly honoured to spotlight so many incredible #ChronicallyIll creatives. Discover their work through our #BAMonth2025 event hub at benefit.operamariposa.com, and find their artist profiles at operamariposa.com/artists/.
Did you know? During #BAMonth2025 we're raising funds & awareness for #fibromyalgia & related illnesses. Fibro is a common but often-misunderstood condition that affects many people (including members of our own team & community). Learn more from @mefmbc: mefm.bc.ca/what-is-fm
Another feature about #BAMonth2025! Read the story of our all-digital charity benefit for #MECFS, #LongCovid, and #Fibromyalgia from Still Coviding Canada at stillcoviding.ca/en/communities… - then follow the links to take part til June 1 in support of @mefmbc!
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