thewibble @thewibble2
Carer for my son with Myalgic Encephalomyelitis. Believer in social justice. Living on Oryang-Ora land of the Dharug Nation. Wear a mask please. Blue Mountains, New South Wale Joined May 2011-
Tweets5K
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Join Australian GP Dr. Richard Schloeffel for a lecture series on ME/CFS & Long COVID: diagnosis, treatment, and prevention via vaccination. Not a GP? Share with your healthcare professional. Sign up now: vist.ly/34ury. Sponsored by Moderna.
C'mon Victorians! Now's your chance to help local researchers crack the disease enigma that sidelines millions of ppl worldwide. No effective treatments, no cure. We need our lives back 🙂 #mecfs #medtwitter @PaigeCockburn @sciencebelinda @donnadlu @_jessicabahr…
C'mon Victorians! Now's your chance to help local researchers crack the disease enigma that sidelines millions of ppl worldwide. No effective treatments, no cure. We need our lives back 🙂 #mecfs #medtwitter @PaigeCockburn @sciencebelinda @donnadlu @_jessicabahr…
Ok. One last time: #LongCOVID, #PEM and exercise. Let's talk and I'll try to be REAL clear and REAL simple. If someone has PEM, exercise is contraindicated. Not only do you not prescribe/suggest exercise, you recommend avoiding exercise. That's it. Simple. No gray area. Why? 1/
Yes! #COVIDIsAirborne
Bernie Sanders is seeking stakeholder input for his $10 billion "moonshot" proposal for Long Covid. It is critical that ME and ME/CFS stakeholders also make their voices heard. Includes a letter from @sunsopeningband virology.ws/2024/04/14/tri…
Tell me, fellow academics. Why is it permissible to advocate for the rights of disadvantaged and marginalised minority groups in our workplace (which I fully agree with) - but not for those affected by C19 (which is literally all of us)? Why is this issue met with silence?
Where are the flowers laid by our leaders and the condolence books for the thousands of Aussies who've died and continue to die needlessly of #Covid19? Why do we value some lives over others? #CovidIsNotOver @pmc_gov_au
No, #longcovid and #MECFS are not modern phenomena fostered by internet groups. This Swiss review shows that post-infectious illness after outbreaks of influenza is well documented in the medical literature. ssph-journal.org/articles/10.33…
It's always worth it to pay attention to everything @ValeriEliotSmit writes--in this case about a horrible ongoing case.
It's always worth it to pay attention to everything @ValeriEliotSmit writes--in this case about a horrible ongoing case.
In the UK by 2030 LC will have the following impacts per year: - £1.5 bn impact on GDP - £1.3 bn impact on household income + £4.2 bn health expenditure - 138,000 employed There is no reason to think Australia won't be impacted. Stop the spread! @AlboMP @Mark_Butler_MP
In the UK by 2030 LC will have the following impacts per year: - £1.5 bn impact on GDP - £1.3 bn impact on household income + £4.2 bn health expenditure - 138,000 employed There is no reason to think Australia won't be impacted. Stop the spread! @AlboMP @Mark_Butler_MP
Dad died 39 years ago today His life, like so many, were destroyed by severe #MyalgicEncephalomyelitis and by the UK medical and psychiatric institutions who continue to invalidate and traumatise them and their families and now those with #longCovid today. It has to end.
Dad died 39 years ago today His life, like so many, were destroyed by severe #MyalgicEncephalomyelitis and by the UK medical and psychiatric institutions who continue to invalidate and traumatise them and their families and now those with #longCovid today. It has to end.
@9NewsQueensland @AbbeyGeran Queensland Health didn’t apologise for the comments, they apologised for, according to your reporter, “the distress caused by the research”. In other words, more gaslighting. Apologising not for ignorant comments, but for upset caused by research which hasn’t been peer reviewed
Us too
Yesterday @EmergeAus brought together an extraordinary group of people in Parliament House Canberra. The aim was to highlight Recommendation 8 of the Long COVID report and secure funding for those who live with post-infection conditions. More about it here:…
The government knows #CleanAir is the way to avoid #COVID19 and other airborn pathogens, from the recommendations of their #LongCovid enquiry. Time to bring in indoor air quality standards now.
The government knows #CleanAir is the way to avoid #COVID19 and other airborn pathogens, from the recommendations of their #LongCovid enquiry. Time to bring in indoor air quality standards now.
Apologetics for a psychogenic view on #MECFS often dismiss critical voices from patients as a nuisance, as people who should have no say about their own health and accept what “authorities” say—even if the evidence is flawed. They forget the terrible price some voices must pay.
The Chief Scientist says nuclear is very expensive and the former Chief Scientist says it will cause carbon emissions to skyrocket. Once again on climate change, the Coalition is one side and the science is on the other. I'll go with the science.
When I heard about Alem Matthees, a brave Australian whose relentless pursuit of truth & justice brought about the improvement of health guidelines for his community of patients in the UK, I felt compelled to write his story… #MyalgicEncephalomyelitis amandafrancey.medium.com/australians-ab…
It'sME(Jaime) @exceedhergrasp1
20K Followers 5K Following Director of Sci & Med Outreach, #MEAction Stanford Med #ME, #EDS, #POTS, #LongCOVID Views my own [email protected]
Katy B @KatyBruce108
5K Followers 5K Following Myalgic Encephalomyelitis - M.E + POTS 38 years Donor to the @mecfsbiobank & @DecodeMEstudy Please watch https://t.co/rPfzhZQ6po #pwME
Wading through treacl.. @kimisgubbed
3K Followers 3K Following Advocate & sharer of bio research for INFECTION ASSOCIATED CHRONIC DISEASES inc MECFS, Long COVID, MCAS, Dysautonomia, Vaccine injuries, FMS, Sjogrens & Lyme 🔬
Natalia @NataliaHodgins
7K Followers 1K Following Disabled writer with words in @Refinery29AU, @ABCNews, @PublicHerald | Activist | Feminist | MECFS | Follow on IG - same handle
davidtuller @davidtuller1
10K Followers 2K Following Senior Fellow in Public Health and Journalism, Center for Global Public Health, UC Berkeley. My academic position is largely funded by donations from patients.
Lizzy H @hopefullizzy
6K Followers 3K Following 29y/o creative, with complex health issues🤞🏼ME/CFS biomedical research. Passion for the wild, for kindness, and helping all people have a voice. Co-author✨
Dan Wyke 🦠➡️�.. @Dan_Wyke
13K Followers 6K Following M.E. patient, advocate, person-centred counsellor (see link), recovering poet
Eliza Charley | Actre.. @ElizaCharley
6K Followers 2K Following 🎥 ✨Australian Actress in Italy. Care about #mecfs #longcovid #climate #dv #auspol 🎭co-founder Mi Casa Theatre 📚Words in SoulTread & RoutledgePress She/her
Billy Hanlon @bhanlon15
12K Followers 11K Following Director of Advocacy & Outreach, Minnesota ME/CFS Alliance | Long COVID Ally
All of them snollygos.. @OnlyEnnui
3K Followers 2K Following @onlyennui.bsky.social Ex philosopher. #MEcfs activist #hEDS. spinal injury, prescribed benzo withdrawal = hell Expect swearing & sarcasm
Sue J @SMpwrgr
5K Followers 3K Following Our challenge: accept reality, then never stop working to change it
Tracey Burgess @TraceyABurgess
2K Followers 3K Following Mum to a trans daughter 🏳️⚧️ who loves the natural world.🌿Degrees in Hist/Phil & Counselling/Psychotherapy. Unwell since 2007, worse 2016/17. Improved.🌼
Long Covid Advocacy �.. @LongCovidAdvoc
14K Followers 13K Following 📘Legislate ⚕️Investigate 🌬️Ventilate 👥Educate Advocacy4 #LongCovid #MECFS #COVIDisAirborne
Carole Bruce @CaroleBruce17
6K Followers 5K Following Severe #ME for 32+ years. Ex- psychotherapist. Daughter, severe ME 38 years. Eldest son, MS. Apart from that ❤️Art, people,nature, books, some music.
Claire 🧠🔥 #pwME.. @Naylor007
2K Followers 5K Following ME, FM, OH, MCAS, TMJ, OSA, DDD, TOS, hypothyroid stole too much from me. Doing everything I can to take back what's mine💪 I will do what i can to help others
tern @1goodtern
70K Followers 8K Following It's better to be cautious and kind than foolhardy and mean.
Steve Chalmers @FStevenChalmers
1K Followers 3K Following Let's tear down silo walls in the data center. Spent a decade each in servers and storage, then networking. Consultant to Daedaelus Corp. Retired from HPE.
Illustrator Interrupt.. @FranceyME
3K Followers 2K Following Illustration career interrupted by #ChronicIllness advocating for #MyalgicEncephalomyelitis #LongCovid #GWI #POTS #EDS @franceyme.bsky.social
Rivka @Rivkatweets
4K Followers 2K Following Activist/Organizer: ChronicIllness, disability, ME/CFS, Lyme, LongCovid, women | Writer: WashPost, MarieClaire, NPR, Ms, Newsweek | Playwright: Many productions
Carmon Ruck @CarmonRuck22716
80 Followers 5K Following
Cerys Schemm @CerysSchem19121
77 Followers 5K Following
Lou @loulabelleHK
207 Followers 2K Following #pwME since 2020 | stuck in a venlafaxine tapering hell haze | lover of cats/animal/funny videos or anything else that makes me belly laugh
Nic McPaul @NicMcpaul
201 Followers 453 Following Life on pause since 2012. PWME PASC MCAS POTS HEDS CSU. Raising Awareness & advocating when health allows 🏴
Debbie Filippaki, BSW.. @filippakid
817 Followers 2K Following Teacher & social worker: environmental & health humanities, community development, linguistics, queer & disability pride. Workplace violence survivor.
Elonmusk @Elonmusk297842
177 Followers 2K Following I’m on a quest to bag AOC on Mars.(Parody Account)
Patty Smith @Solutions2Work
3K Followers 5K Following US two-party oligarchy is guilty of genocide. The people must unite and help one another. Plant gardens, assist your neighbors, support small local business.
Lady of The Lake @soloqtme
920 Followers 2K Following Retired RN, Argyll & Clyde Health Board NHS Scotland. #YesScot likes & retweets not endorsements all views/opinions my own
Matthew Dalby @MatthewJDalby
7K Followers 5K Following
Melissa Challenor @urbanmel
2K Followers 2K Following International trade & investment. #Thailand #BOI 🇹🇭 business expert. Currently no capacity. #PASC #LongCOVID #CRPS #ME
Bee 🐝🌼✨ @elbecp
1K Followers 4K Following Public Health student 🇦🇺 🇫🇮 Plant person. AuDHD. Chronically curious. Alphabet soup connoisseur. ♐⬆️ | ♃ in ♉ @elbecp.bsky.social
Go Lucky @TreeFanForever
308 Followers 4K Following
Nth Cornish Convert @SaraGraybow
60 Followers 565 Following Mother of daughter 19 with severe ME/CFS MCAS. Bedbound in the dark all year.
zedsrigil @sunsweptforest
435 Followers 862 Following forest.haven they/them autistic me/cfs and more nature music outer space
Lucibee 🌻 @_Lucibee
2K Followers 2K Following Science defender (MSc) and eco-worrier. Might be locked occasionally (for reasons). (she/her)
colette behind curtai.. @colette42781309
60 Followers 265 Following visual poetry about chronic illness, severely ill, forced early retirement. #millionsmissing #mecfs #bedbound instagram: @hey.illness
C W @retrochristine
407 Followers 614 Following Mainly on twitter to raise awareness of ME and for political tweets.
Joanna Baxter @jobax69
25 Followers 161 Following
T @Yrrepmot
342 Followers 1K Following Gardener 🌱weather fanatic ❄️ lefty+ ✊🏼 gay🔺MUFC mad 🇾🇪, ADHD, co-morbid 💀: ME, HIV+, hEDS, Fibro, complex mental health 🙃
Jo Greer @DrJoGreer
886 Followers 2K Following Educational Psychologist. Personal account. All views my own.
Michael Alexander @Michaeltikus
957 Followers 2K Following I like animals 🐙 Zoology/Psych PG interested in nature connections, diving and tapirs. Member @Long_Covid / @RenegadeRes Lead contributor @wecrunchme LC-PLAN
Chanty @Chanty37748606
228 Followers 1K Following
Andrew Green @AndrewG76201347
1K Followers 720 Following ME/CFS, POTS, MCAS. Female (ignore name). I post anonymously because I share medical details of my child too young to consent to public sharing.
AndPeggySky @AndPeggySkyler
0 Followers 1K Following
Meder Omuraliev @meder_o
1K Followers 5K Following Software Engineer into Medicine, Sports, History, Anime, Immunology, Microbiome/Health, Movement/Posture, Weightlifting, Clean Air
Fiona Wood ♿️💙.. @fionangreg
415 Followers 807 Following Wife, mum, Christian pwSME/CFS, FND, ME & FND Advocate. Observe small things, don't rush, love & forgive ❤️ #chronicillnesswarrior #loveyourself #loveothers
MEinSEATTLE @emmydugas
979 Followers 2K Following
miriam @mmavv
92 Followers 387 Following gleder meg til dagen hele norge later som de aldri støttet lightning process
Laura Boné @2laurabone
308 Followers 935 Following Electric Vehicle Industry /Fighting ME/CFS & Long Covid
Alex @alexiaustin1969
649 Followers 1K Following Trying to stay positive for my sons as we navigate our life with ME/CFS
Micah Sarbacher @mi_sarbach
52 Followers 5K Following
Lucila Kawaa @KawaaLucil
80 Followers 5K Following
Jeanna Deary @DearyJeann17634
47 Followers 5K Following
Pauline boyd @princesspenny62
421 Followers 4K Following Busy trying to save my life from a Fatal disease from Toxic mold in my Rental home. Owner fatally poisondd me and Retailiaton horroibly for the last 5 years
O. Johnstoni @einfach_machen3
4K Followers 3K Following Psychology, Health, Research, Mother, fighting for husband with #LongCovid #MECFS #maskup #ParentsForFuture, #gegenrechts Content in English & German
Roza Yurkanin @RozaYurkan21003
74 Followers 5K Following
Meg Battisto @battis_m
7 Followers 3K Following
Jordan Crane @JordanCrane2
2K Followers 4K Following https://t.co/TUHOWkANkU https://t.co/9AWu1BzUnp https://t.co/kNugF1ewBu https://t.co/XS6z8TduwO
Keith @keetmuise
27K Followers 20K Following Mental Health & Covid19 Safety Advocate. 80s Kid, Teacher, and don’t forget… YerAweSum!
Apollo @thearthurnguyen
48 Followers 95 Following Superposition of thoughts and actions trains the Quantum mind. Resolve paradoxes and contradictions to truly exercise freedom of thought. 🗝 = doublespeak
Glennmcdonald @Glennmcdon21264
28 Followers 2K Following I help pay credit card debts and any other bills, this is the one way I could pay back to my country from the money I won
Alice @4886684Alice
151 Followers 378 Following Statistician with an interest in health research, pwME
Bhupesh K Prusty @BhupeshPrusty
15K Followers 68 Following A passionate molecular virologist who believe in patient oriented scientific research. Using viruses to understand human existence. Science is for society.
Anil van der Zee © @AnilvanderZee
9K Followers 824 Following Former professional ballet dancer | Bed/sofa-bound M.E. patient | Using Twitter to raise awareness for #MyalgicE | #art2cureME #pwme #millionsmissing
Natalia @NataliaHodgins
7K Followers 1K Following Disabled writer with words in @Refinery29AU, @ABCNews, @PublicHerald | Activist | Feminist | MECFS | Follow on IG - same handle
davidtuller @davidtuller1
10K Followers 2K Following Senior Fellow in Public Health and Journalism, Center for Global Public Health, UC Berkeley. My academic position is largely funded by donations from patients.
Dan Wyke 🦠➡️�.. @Dan_Wyke
13K Followers 6K Following M.E. patient, advocate, person-centred counsellor (see link), recovering poet
Eliza Charley | Actre.. @ElizaCharley
6K Followers 2K Following 🎥 ✨Australian Actress in Italy. Care about #mecfs #longcovid #climate #dv #auspol 🎭co-founder Mi Casa Theatre 📚Words in SoulTread & RoutledgePress She/her
Todd Davenport @sunsopeningband
11K Followers 5K Following Non nobis solum nati sumus. Husband. Dad x3. Upstreamist. Pracademic. Storyteller involving data. “That brand of person.” Full prof. DPT PhD MPH OCS.
All of them snollygos.. @OnlyEnnui
3K Followers 2K Following @onlyennui.bsky.social Ex philosopher. #MEcfs activist #hEDS. spinal injury, prescribed benzo withdrawal = hell Expect swearing & sarcasm
FionaPWME (fiona.me@b.. @FionaPWME
2K Followers 3K Following Was a journo/writer/editor. #MECFS has crushed my life for 13+ years. (Profile pic: excerpt of cartoon by @KorneliaPaulson.)
tern @1goodtern
70K Followers 8K Following It's better to be cautious and kind than foolhardy and mean.
Rivka @Rivkatweets
4K Followers 2K Following Activist/Organizer: ChronicIllness, disability, ME/CFS, Lyme, LongCovid, women | Writer: WashPost, MarieClaire, NPR, Ms, Newsweek | Playwright: Many productions
Mike Honey @Mike_Honey_
16K Followers 35 Following Data Visualisation and Data Integration specialist - Melbourne, Australia 🦣 https://t.co/hTTQENGW1m 🟦 mikehoney 🪡 mike_honey__ https://t.co/2glkTu9f2u
Plum Jam #righttosafe.. @plumskyjam
3K Followers 5K Following Health policy wonk. Diversity & inclusion principles must include safe air for people who are immunocompromised. LSHTM alumni. Long covid. She/her. Views my own
Jordan Crane @JordanCrane2
2K Followers 4K Following https://t.co/TUHOWkANkU https://t.co/9AWu1BzUnp https://t.co/kNugF1ewBu https://t.co/XS6z8TduwO
Keith @keetmuise
27K Followers 20K Following Mental Health & Covid19 Safety Advocate. 80s Kid, Teacher, and don’t forget… YerAweSum!
allyann @me_allyann
2K Followers 5K Following Living with & advocating for ME, POTS & FM, ex IT. Homebound & at times bedridden. I regularly delete tweets. @allyann.bsky.social #mecfs #pots #fm #endo
Hayley Gleeson @Hayley_Gleeson
4K Followers 2K Following journalist at @ABCNews. cat lady. likes words, food, bikes, books. https://t.co/hlxgMhSF9k
Misty M. ⛰🌻🌳�.. @Suzanne43554675
2K Followers 3K Following Woodland gardener, Permaculture & Sustainable Living, Bookworm. Wear A Damn 😷 , open windows & ventilate 💨. [email protected] @mistym.bsky.social
dewsofquietness @wheatbeltqueen
51 Followers 162 Following Brit born sandgroper. Love the peace and stillness of the bush, but I do miss Tottenham cake.
The John Snow Project @JohnSnowProject
17K Followers 274 Following Reliable, honest information on COVID-19 from public health, clinical, and research experts. https://t.co/KVTMhCT9ct
(((Emanuel Miller))) .. @emanumiller
18K Followers 7K Following Media analyst. Words in @Jerusalem_Post, @TimesOfIsrael, @Forward. Loves nuance, balanced conversation, and a nice cup of tea. (Jew/Israeli) ✡️🇮🇱
Faithless @FaithOxenbridge
2K Followers 3K Following Tired of defending my reality. Vax induced ME (still pro Vax) Bedbound. Not tired; sick. Used to write & teach. Here for the research and outrage.
Madeleine @maddotsu
847 Followers 2K Following Don’t gaslight me! Keep your virtue signalling at the door.
bethereificould @bethereificould
606 Followers 1K Following A mirrorbox and map taking messages from people with ME/CFS or long COVID to places they love but can no longer get to #ACEsupported #socialart #missingmillions
Patrick Dodson @SenatorDodson
20K Followers 579 Following Labor Senator for WA. Special Envoy for Reconciliation and Implementation of the Uluṟu Statement. Authorised by P. Dodson, ALP, Broome.
RTHM @RTHM_Health
4K Followers 3K Following RTHM connects you with a digital care team specializing in Long COVID and ME/CFS that provides access to a range of therapies based on the latest research.
Tim Stephens @ProfTimStephens
10K Followers 10K Following Professor of International Law @SydneyLawSchool | Fellow Australian Academy of Law | Councillor @IWCouncil | https://t.co/6BFO6JUmQm
Ann Jones @jones_ann
8K Followers 4K Following on insta @ _annjones_ What the Duck?! (@RadioNational), Noisy by Nature (@ABCaustralia Kids), How Deadly (@ABCScience) and sometimes Catalyst (@ABCTV)
Yes23 @yes23au
18K Followers 802 Following #Yes23 is the campaign for Indigenous constitutional recognition. Authorised by Dean Parkin, Australians for Indigenous Constitutional Recognition Ltd, Sydney
Alice Rumble @alice__rumble
589 Followers 998 Following Disabled writer and advocate living with ME/CFS. She/her. E: [email protected]
Anna Wood @Annakwood
3K Followers 2K Following STEM Ed researcher @UniEdinburgh (part-time). Physicist, digital education, bird photographer, #mecfs Author of 25 Birds: https://t.co/DcN0WiZVAy
Erik Johnson @erikmoldwarrior
1K Followers 525 Following Original prototype for Chronic Fatigue Syndrome The syndrome NO ONE ever looked into. Not a single CFS doctor asked how it started.
COVID Live 🌏 @covidliveau
40K Followers 14 Following 📊 Tracking #COVID19Aus cases, tests, vaccinations 🌐 Official @Twitter for https://t.co/stI1yTCdsr ⌨️ Founder @migga ❓ FAQs https://t.co/z1sy4eGpv3
Prof Cynthia Doença .. @DoencaProf
7K Followers 0 Following Minimizologist & Infectologist. Parody but seemingly edging closer to reality.
Moira Rayner @MoiraR
5K Followers 3K Following “If I am not for myself, who will be for me? If I am only for myself, then what am I?” Advocate, author, writer, lawyer: Giver of Ignatius’ Spiritual Exercises.
Anthony Albanese @AlboMP
745K Followers 3K Following Prime Minister of Australia. Member for Grayndler. Authorised by Anthony Albanese, ALP, Canberra.
Terry Field @AlongsideME
291 Followers 213 Following Interested in evidence-based science, ME/CFS awareness & research. One of #MillionsMissing, 33 yrs, #pwME bed/housebound. Love of nature & wildlife.
Out Of Context Moomin.. @OOCMoominComics
79K Followers 6 Following Submissions open! For YOUR OWN fanart and official comics.
Physios For ME @PhysiosForME
7K Followers 604 Following A group of physiotherapists with a special interest in Myalgic Encephalomyelitis (ME) with the aim to improve physiotherapy management for people with ME
Denis - The COVID inf.. @BigBadDenis
15K Followers 3K Following Sharing info on COVID since the start of the pandemic 💻 IT Sys Admin 💪GYMaHOLIC (Pandemic forced me to invest in a home gym)
Dr Melanie @MelanieWeckert
10K Followers 10K Following ME/CFS MCAS, POTS. Microbiology (environmental) PhD. Living on Yuin land. Writer poetry, mystery thriller ‘Eagle Bluff.’
Department of the Pri.. @pmc_gov_au
19K Followers 682 Following Australian Government Department of the Prime Minister and Cabinet or PM&C for short. Policies: https://t.co/SmeU8OKyrZ & https://t.co/4bKFMUCnS1
Janelle Miles @janellehmiles
4K Followers 7K Following Science and medical journalist. Keen photographer. Be kind. #wethe15
Neenyah Ostrom @neenyahostrom
565 Followers 2K Following Editor, ghostwriter, author--America's Biggest Cover-Up: 50 More Things Everyone Should Know About the CFS Epidemic & Its Link to AIDS, 2nd Edition on Amazon
Prof. Peter Doherty @ProfPCDoherty
116K Followers 807 Following Immunologist, Nobel laureate and author of THE BEGINNERS GUIDE TO WINNING THE NOBEL PRIZE, THE KNOWLEDGE WARS & AN INSIDER'S PLAGUE YEAR
Laura Tingle @latingle
261K Followers 3K Following Is this thing working? What? Yes of course they are my own opinions, or others that might be interesting or diverting @quarterly_essay:The High Road
Buchanan27 @Buchanan272
222 Followers 173 Following
Kristel Bluebelle �.. @Kristel_Bbelle
454 Followers 2K Following Artist/illustrator interrupted by the full time job of being multiply chronically ill. Mostly housebound, immunocompromised. Disabled and proudish #ME/CFS #HSD+
ME CFS FOUNDATION SOU.. @mecfs_sa
2K Followers 3K Following We aim to raise awareness, dispel the myths and misconceptions surrounding #MECFS. Comprehensively support affected #pwme and form alliances with 3rd parties.
David C. Simon @davidcsimon
7K Followers 553 Following Dungeon Master, (human) Artist, bird-nerd and photographer. he/him
RochelleRochelle @RochellRochelle
515 Followers 920 Following Never journeyed from Milan to Minsk. #auspol junkie with optimistic tendencies. Views are my own. She/her. Mastodon: [email protected]
@thewibble2 @TIME Thank you! I really appreciate that <3
@TIME I work for a nonprofit where the majority of our staff lives with #MECFS and other infection-associated chronic illnesses. If you'd like to celebrate this accomplishment with me, I hope you will consider donating to fuel #MEAction's work: meaction.net/donate.
Deeply honored to have been named one of @TIME's TIME100 Health honorees for my work with #MEAction in infection-associated chronic illnesses like #MECFS and #LongCOVID. Thanks, as ever, to the remarkable Jamie Ducharme, who wrote this wonderful piece. time.com/6967257/jaime-…
I'm really sorry - I can only see the first 250 replies. 😭 If you're still wearing a respirator to avoid catching and spreading covid, I want to follow you - if I'm not already, reply and I'll hit that follow button. ❤️👇🖱️
If you're still wearing a respirator to avoid catching and spreading covid, I want to follow you - if I'm not already, reply and I'll hit that button. ❤️👇
@MakisMD @Bluesmachine100 @keetmuise Got any evidence at all for this claim? NO.
@keetmuise @MakisMD Long Covid is definitely a thing, as my dad’s funeral tomorrow will attest to.
One thought that really bothers me is that there are millions of kids out there suffering from Long Covid, and no one knows because it’s being swept under the rug to make adults feel like it’s 2019 again. Imagine how many little kids are suffering from extreme fatigue, brain fog…
@pzneedsrest It’s laughable that he accuses NICE of conflicts of interests and ideology when this is exactly the case with the BPS cult Paul’s been suckered into.
Join Australian GP Dr. Richard Schloeffel for a lecture series on ME/CFS & Long COVID: diagnosis, treatment, and prevention via vaccination. Not a GP? Share with your healthcare professional. Sign up now: vist.ly/34ury. Sponsored by Moderna.
Hey, AUSTRALIA 🇦🇺 The delay in acquiring Novavax XBB vaccines has gone on too long. @Mark_Butler_MP this is your wheelhouse and it needs to be prioritised above all else. Leaving Aussies without vaccines is criminal. You’ve already got 🩸 on your hands. Don’t make it worse.
Dear @Mark_Butler_MP, health minister for Australia This is your daily reminder that your citizens are waiting with bated breath to hear when you're going to permit access to the Novavax XBB 1.5 covid vaccine. Signed: Your ever increasingly pissed off fans Please RT
C'mon Victorians! Now's your chance to help local researchers crack the disease enigma that sidelines millions of ppl worldwide. No effective treatments, no cure. We need our lives back 🙂 #mecfs #medtwitter @PaigeCockburn @sciencebelinda @donnadlu @_jessicabahr…
Recruitment for our recent Mason-funded ME/CFS biomedical study in VIC, Australia is LIVE! Please get in touch if interested or have questions. Some more info: docs.google.com/document/d/1-2… #MECFS #LongCovid #Victoria #Science
@1goodtern Easier to say which part you might be able to tolerate? Or not. Don’t want heart attack, stroke, brain damage, accelerated dementia, diabetes, kidney/liver damage, turbo cancer, PEM, lost teeth, hair, sight or hearing, POTS. Mostly don’t want to be gaslit and denied medical help.
@1goodtern POST EXERTIONAL MALAISE!!!!!! & I’ve had over 200 symptoms in the last 3 years.
@1goodtern All of them
Covid isn’t Seasonal, and Neither is Safety. Masks in Healthcare Now! #Covid19 #NotMild #Maskup #LongCovid #CovidIsntover #Measles #CleanAirNow #H5N1
So it's OK to mask when I'm sanding something? Right?? #CovidIsNotOver
Today is international day of dance. Because of ME I can't physically really dance anymore but I'm still moving freely in my head. This is me as a ballet teacher in Cinderella by Stijn Celis. I'm not too sure about the hairdo. My assistant is mighty attractive though!!! 😉
In a sea of depressing Tory posts, here’s a cute SmorkyFace. #CatsOfTwitter #CatsOnTwitter #Smorky #SmorkiesAgainstTories
If I’m infected with cvd in next few mths & die (not hyperbolic, if I’m infected unprotected, odds 👎) Can someone pls reach out to journalists & ask them to investigate/report on why gov withheld Novavax, only vaccine I can medically tolerate which would’ve saved my life? 🙏
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