UNINVISIBLE POD @uninvisiblepod
Best In Show: Podcast - @wegohealth awards 2019. A podcast about invisible conditions & chronic invisible illness. @lyfebulb Ambassador. wegohealth.com/UninvisiblePod… Los Angeles, CA Joined August 2018-
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Latest on the podcast & upcoming offerings, by @uninvisiblepod open.substack.com/pub/uninvisibl…
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I’m honored to announce that I’m a #SocialHealthAwards nominee! Please take a minute to add your own nomination if I’ve ever helped or supported you! wegohealth.com/UninvisiblePod…
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UNINVISIBLE POD retweeted
Perhaps there’s something wrong with a system that allows a 35-year-old, unelected, Trump-nominated judge — whom the American Bar Association deemed unqualified — to strike down the travel mask mandate for the entire country?
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A Chronic Voice @AChVoice
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Cheryl Crow, Arthriti... @realcc
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Nia | The Chronic Not... @chronicnotebook
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Beth Steckler (she/he... @purplemamabear
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Suzan Jackson @livewithmecfs
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Laura Sweet 🌊🏳�... @laurasweetjane
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4K Followers 3K Following International Foundation for Autoimmune & Autoinflammatory Arthritis “We don’t represent the patient voice, we ARE the patient voice.”
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Massively Disabled Po... @massdisabledpod
101 Followers 98 Following A #longCOVID research podcast. Mask up and join us, fellow apocalypse dweller. By @ElainaGMamaril with support from @biomedselfsoc https://t.co/t3h4QTbosA
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Sarah Clark @sarah_clark_84
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Rebecca Genin @RebeccaGenin
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Dr. Nae :) @heynaehey_
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Peach Corps @nyendoville
102 Followers 88 Following We’re creating a world where individuals with illnesses such as PCOS, endometriosis, and adenomyosis CAN live with dignity, resilience, and renewed hope.
Carlotta @ChucklesMerk
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Iris Lorena @Irislorenapg
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Gregg Beratan @GreggBeratan
21K Followers 19K Following Disabled Activist, Husband, Father, Pained Writer. #Disability rights/justice/studies, #RacialJustice & #Education Co-Founder/Organizer #CripTheVote
Chronius Health @chroniushealth
317 Followers 2K Following One place for your health data. One personalized plan to navigate your care journey. One advocate ensuring you get care you deserve.
Children's Airway Fir... @AirwayChildren
339 Followers 2K Following 501(c)(3) nonprofit raising awareness about pediatric airway disorders #breathingissues #airwaymanagement #kidshealth #kidssleeping https://t.co/sCmcTZhTB8
maryvosk @maryvosk
57 Followers 702 Following
Tilly Rose @tillyroseauthor
655 Followers 1K Following Writing my memoir about 18 years of life as the #patient - Tuberculosis & AI 🩺 Rep’d by @ASaunders7 @thesohoagencyuk
Bezzy @BezzyCommunity
416 Followers 211 Following Communities for people living with a chronic condition. Find support and resources. #BelongWithBezzy
Sean Albright @jg2490
714 Followers 3K Following driver of the United Porphyrias Association Chevrolet , public speaker. Daytona Tortuga's supporter, retired scareactor
Jamie Jones @77jamiebeth
100 Followers 701 Following Mama of Reese and Bradley and currently fighting breast cancer. Ehlers Danlos, Chiari, Hashimotos, Thoracic Outlet, Tethered Chord and Scoliosis warrior!
Orkney Fibromyalgia S... @OSufferer
4K Followers 5K Following Writer, aspiring speaker, blogger, Advocate for Fibromyalgia & Invisible Disabilities. Fibromyalgia, FND & MECFS sufferer for over a decade.
Kendall Rayburn @KendallRayburn
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The Mickey Mouse Trap... @BackOnTopWI
180 Followers 3K Following
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13 Followers 366 Following Mindfulness,resilience & forever student of life.Spirituality, mentor, life coach, collegiate recovery, lupus,rescue dogs,diversity,&cushing. #ItsAMaggieMaeLife
OffScrip Health @OffScripHealth
926 Followers 2K Following 🎙 Making podcasts solely focused on #consumerhealth and #patientengagement. Building community & empowering people to become advocates for their own health.
_ellen_murphy @_ellen_murphy
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429 Followers 828 Following Spoonies! Making empowering Adaptive Clothing for ♿Disabilities & Chronic Illnesses: Diabetes, Ostomy, Tubie, Post-Surgery Care. Limitations? So not our style!
Susan Masterson, Ph.D... @DoctorStrive
870 Followers 455 Following Because it isn't in your head. #Sjogren's patient w/ Ph.D. in Health Psych empowering others with a body they didn't expect to have. #autoimmune #chronicillness
ConsoliDoc @ConsoliDoc
14 Followers 44 Following One dashboard for your complete medical history. - We do the work ✍️ - We pay the fees 💰 - You get your records 💻
A Chronic Voice @AChVoice
18K Followers 15K Following I share #ChronicIllness, #ChronicPain & #disability info fr VARIOUS #perspectives. #Lupus #Sjogrens #AntiphospholipidSyndrome #epilepsy #MentalHealth
𝐓𝐢𝐟𝐟𝐚�... @TiffanyKairos
7K Followers 4K Following Founder @tenofficial | Epilepsy Advocate | Blogger | Content Creator | All views are my own
Princess, The Tower @APainPrincess
28K Followers 27K Following Chronic Pain Healing Portal for everyone affected by severe #chronicpain & #chronicillness—by a princess with full body #CRPS #Fibromyalgia #PainSupport #CPP
@ImaniBarbarin@disabl... @Imani_Barbarin
216K Followers 1K Following she/her Black girl magic+disabled pride |MA Global Comms | my thoughts | #DisTheOscars + #AbledsAreWeird #ThingsDisabledPeopleKnow | ✉️ imani.barbarin gmail
Nia | The Chronic Not... @chronicnotebook
10K Followers 848 Following Here to smash societal stigmas about #chronicillness & #disability💊 Life with #ibd #eds #migraine #fibro #dysautonomia & more 🦓 IG 49K📷 Join Discord⬇ she/her
Ru 🌸♿️ (she/th... @RollWithRu
26K Followers 600 Following queer disabled activist who is a lover of all thinks pink 🩷🌸🧚♀️🎀 ♡ cosplayer | streamer | activist ♡ 🌸for collabs/enquiries: [email protected]
Patients Rising @patientsrising
6K Followers 3K Following Patients Rising was formed to provide the support, training, and tools #patients and caregivers need to access the treatment they deserve.
International Pain Fo... @iPainOfficial
24K Followers 14K Following International Pain Fnd (iPain) #ChronicPain community resources since Nov 2006 @NERVEmberProj @iPainLivingMag #MyPainIsLike #HopeIsTrue #NERVEmber #OurPain
Sick Lessons @sicklessons
489 Followers 416 Following #LifeLessons from living with #ChronicIllness, #MentalIllness & #disability - Check the #podcast out! #SelfImprovement #PersonalGrowth #PersonalDevelopment
Fibromyalgia National... @teamfibro
4K Followers 4K Following We educate, advocate, research & empower. No one fights fibromyalgia alone! Taking action!💜 501(c)(3) organization for the fibromyalgia community.
The Ehlers-Danlos Soc... @TheEDSociety
24K Followers 5K Following The global nonprofit organization dedicated to change and progress in the world of Ehlers-Danlos syndromes (EDS) and hypermobility spectrum disorders (HSD).
Fibro Bloggers @FibroBloggers
18K Followers 8K Following Connecting fibro bloggers, inspired by all the #fibro bloggers and their stories at Fibro Blogger Directory #FibromyalgiaAwareness #FunnyFibro #FibroFriday
Dysautonomia Intl. @Dysautonomia
26K Followers 351 Following Dysautonomia International is a 501(c)(3) non-profit that raises funds for research and promotes awareness of disorders of the autonomic nervous system.
Substack @SubstackInc
135K Followers 3K Following The home for great culture. Get the app: https://t.co/acZVN0MYVm
Robert Reich @RBReich
1.5M Followers 1K Following Berkeley professor, former Secretary of Labor. Co-founder, @InequalityMedia. Preorder my new book below:
Annie Segarra @annieelainey
24K Followers 736 Following Content Creator, Activist— Queer, Disabled (Ehlers-Danlos & co), Latina/x (She/They) 🏳️🌈♿✊🏾 #TheFutureIsAccessible
Stephanie Woodward @IStepFunny
6K Followers 886 Following Proud crip. She/her. Disability rights activist. Co-Founder of Disability EmpowHer Network. Lawyer, but not your lawyer.
Gregg Beratan @GreggBeratan
21K Followers 19K Following Disabled Activist, Husband, Father, Pained Writer. #Disability rights/justice/studies, #RacialJustice & #Education Co-Founder/Organizer #CripTheVote
Chronic Sex - grayson... @ChronicSexChat
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Anita Cameron @adaptanita
7K Followers 1K Following I'm a fierce Black #BlackAutistic lesbian, writer, #CERT, and cat lover. Emerging Historian. Activism is my life!
Made WITH Patients @PFMDwithPatient
3K Followers 1K Following We partner WITH patients to develop new solutions and co-create methods for them to achieve their health goals. #MadeWithPatients #PatientEngagement
Bezzy @BezzyCommunity
416 Followers 211 Following Communities for people living with a chronic condition. Find support and resources. #BelongWithBezzy
Peach Corps @nyendoville
102 Followers 88 Following We’re creating a world where individuals with illnesses such as PCOS, endometriosis, and adenomyosis CAN live with dignity, resilience, and renewed hope.
Jessica McCabe @HowtoADHD
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The Valuable 500 @thevaluable500
5K Followers 310 Following The global organisation of 500 Partners and Companies working together to end disability exclusion.
Susan Blum @SusanBlumMD
2K Followers 470 Following Dr. Susan Blum is a pioneer in Functional Medicine, author of the popular book, The Immune System Recovery Plan, and founder of Blum Health MD.
The Institute for Fun... @fxmed
18K Followers 924 Following Advancing the Transformation of Healthcare for Patients and Practitioners Worldwide
Re:Set | Employee Wel... @ReSet_Everyday
8K Followers 45 Following The A-Z of well-being and everything in between. Build happier & resilient teams with scientifically-developed, end-to-end employee well-being programs.
Aakanksha A Tangri @AakankshaT
7K Followers 901 Following Founder, @ReSet_Everyday — helping you build resilient and productive teams• Forbes 30 Under 30• YLC, @MilkenInstitute •@VICE, @CNN, @Columbia alum
Fighting For AS @EricaSpondyLevi
815 Followers 1K Following Fighting For Ankylosing Spondylitis is a 501(c)3 charitable organization. We advocate for AS patients with a focus on women and Awareness of AS in women.
CA Chronic Care Coali... @CAChronicCare
815 Followers 755 Following Unique alliance of more than 30 leading consumer health organizations, physicians and provider groups representing Californians living with chronic condition.
Maggie (they/he) @maggiebow98
895 Followers 2K Following chronic poet • author of ALLERGIES, WHEN I BLEED, etc • Words: @sodakreview, @capsulestories, @chjiaiamfacw, @wishbonewords etc• [email protected]
Christopher Oveis @chrisoveis
2K Followers 2K Following Associate Professor, @UCSanDiego @RadySchool. Director, UCSD Empathy & Emotion Lab. Social/Personality Psychologist.
Sundeep Rao @soapyrao
5K Followers 18 Following
Patients Getting Paid @PaidPatients
44 Followers 85 Following A membership community for ppl with chronic illness to learn to find and create work that both accommodates their health and generates an income.
sleepapnea_hu @Sleep_apnea_HU
267 Followers 91 Following A community for people affected by sleep apnea. Learn, share, and connect with peers and healthcare professionals
[email protected] @BCPAPACB
34 Followers 0 Following Board Certified Patient Advocate - Championing patient well-being through a universally recognized certification for patient and health advocates
NPAF @NPAF_tweets
5K Followers 4K Following National Patient Advocate Foundation is a national non-profit organization amplifying the patient voice in support of access to quality, affordable health care.
Good Days @MyGoodDays
2K Followers 2K Following Good Days is a non-profit advocacy organization that provides resources for life-saving and life-extending treatments to people in need of access to care.
THINK UNBROKEN @ThinkUnbroken
41 Followers 7 Following Though trauma may be our foundation it is not our future. #thinkunbroken
Psychology Today @PsychToday
1.2M Followers 849 Following Insight about everybody's favorite subject: Ourselves.
Katie Willard Virant,... @4Reader
80 Followers 284 Following Psychotherapist, writer, learner, human being
Dr. Akilah Cadet, MPH @changecadet
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Molly 📰 Stark 🤓... @mollystarkdean
2K Followers 2K Following #NewsNerd Now: @WikimediaNYC, @womendonews; Then: @CNN @Reuters @CBSNews @FoxNews @CoinDesk & @mediabistro. Posts follow @apstylebook
Myelin & Melanin: Rai... @myelinmelanin
862 Followers 434 Following Myelin & Melanin: Raising The Temp | Hosted by @retrosoul__ & @caballonegrito • #BecauseMS
MS Views and News @MSViewsandNews
12K Followers 3K Following MS Views and News is MAKING a Significant positive IMPACT on individuals affected by #MultipleSclerosis (#MS) @StuartSchlossman @msviewsandnews
Damian Washington @deedubs57
2K Followers 4K Following actor | rapper | nerd https://t.co/kIv1GakczP
Karin Hehenberger MD ... @KarinLyfebulb
9K Followers 4K Following President and founder of @Lyfebulb. Living life to its fullest.
Brandon A. Denson @brandonT1Denson
15 Followers 8 Following
@JessicaGimeno.bsky.s... @JessicaGimeno
5K Followers 6K Following Currently transitioning to that other place, bluer skies -same handle, same picture. Let's stay connected! https://t.co/asSRmea5Z9 #Fashionablyill #DavosSafe
This Thing They Call ... @ThisThingBlog
1K Followers 368 Following Hi, I’m Jenny! (She/Her) I’m an autistic and chronically sick graphic designer focusing on health and disability. For when ‘Get Well Soon’ is just a bit shit.
Tiffany Yu (she/her) @ImTiffanyYu
7K Followers 2K Following OUT NOW #AntiAbleistBook (Hachette Go, 2024) • CEO @diversability • Creator, #AntiAbleism Series • 💸 @awesome_dis • Ex-@GoldmanSachs @Georgetown
Diversability® @Diversability
5K Followers 164 Following Elevating disability pride, together. Featured on @wef @forbes. WOC & disability-owned. Est. 2009.
Special Needs Sibling... @SNSiblings
146 Followers 153 Following Our Mission is to support, give hope, and inspire the families with special needs siblings - Atlanta, Georgia
Double Baggin' It @DoubleBagginIt
892 Followers 1K Following Danielle and Joe are #Crohns & #Colitis warriors, #ostomates, #comedians, #speakers, #advocates and Two Best Friends without Buttholes!
Jennifer Msumba @JenniferMsumba
367 Followers 56 Following Autistic Musician, Author and Filmmaker. Fav color is orange! 🧡 #stoptheshock author of Shouting At Leaves 📕
HealthCentral @healthcentral
15K Followers 5K Following Helping you make informed decisions about your chronic illness w/confidence—not fear. Coming to you with the patient POV, backed by medical pros.
Teresa WrightJohnson @ReesiesAllHeart
338 Followers 584 Following PublicSpeaker/Author/Columnist/Poet/ScarletKnight/Zeta/Jersey girl/Heart Survivor/MS Warrior/HeroOfHope/Advocate/PrivilegeofPurpose
Sean Albright @jg2490
714 Followers 3K Following driver of the United Porphyrias Association Chevrolet , public speaker. Daytona Tortuga's supporter, retired scareactor
Jenny Lelwica Buttacc... @JennyButtaccio
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