chronic illness org @ypci_blog
Group of young people supporting others with chronic illnesses & sharing journeys to raise awareness. #spoonie #eds #epilepsy #ibd #mals #nmo #cancer #cf #cp Instagram.com/youngpeople_ch… United Kingdom Joined May 2016-
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sciencedaily.com/releases/2018/… not use a damn human
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A day in the life with dyspraxia psyche.media/a-day-in-the-l…
This young disabled person is homeless at the moment and really struggling. Need a a power chair and medical care but has no supportive family. Please could you help out by sharing or donating! gofundme.com/leos-sick
I wrote about where my mind goes during a bad few days on my blog. You may relate. morethanaspoonie.wordpress.com/2018/08/19/bro…
Summers podcast has taught me so much abiyt. Liking myself. summerinnanen.com/frr/
My Hardening Skin Is Turning Me Into A Doll | SHAKE MY BEAUTY youtu.be/UTSXPs6ECXg via @YouTube
Beautifully relatable itunes.apple.com/gb/podcast/mod…
Look it’s me and me omna podcast itunes.apple.com/gb/podcast/inv…
Life is Fun - Ft. Boyinaband (Official Music Video) youtu.be/CAb_bCtKuXg via @YouTube
Learnt a lot about Tourette’s and related mental illnesses in this podcast # notjusttics itunes.apple.com/gb/podcast/sic…
Hey I just heard about this site which is to do home testing may be good for some of you with difficult doctors Everlywell.com 15% off promo code jbn
Princess, The Tower @APainPrincess
28K Followers 27K Following Chronic Pain Healing Portal for everyone affected by severe #chronicpain & #chronicillness—by a princess with full body #CRPS #Fibromyalgia #PainSupport #CPP
Cynthia Covert, The D.. @TheDisabledDiva
17K Followers 13K Following 🤕My chronic life, 💡lifestyle tools, 🛍 product reviews, & 🏰 Disneyland accessibility ♿️ 💜 Fibromyalgia 💙 Psoriatic Arthritis 💛 Endometriosis
A Chronic Voice @AChVoice
18K Followers 14K Following I aim to share #chronicillness & #chronicpain news & stories fr VARIOUS perspectives. #Lupus #Sjogrens #AntiphospholipidSyndrome #epilepsy #anxiety #depression
Henry Anderson @macanders
2K Followers 2K Following Like painting, literature and stuff | Author | M.E. | English grad | Cancer survivor |
Mikes Recovering @mikes_recovery
2K Followers 1K Following @[email protected] BLM, Indigenous Lives Matter. Survived Cancer, PTSD, Osteoarthritis, OIH, MH, Depression & more. He/him
Aly Sweat @SweatAly36695
34 Followers 5K Following
Blossom Schenfeld @SchenfBloss
40 Followers 5K Following
Meghan Steckley @steckley56871
82 Followers 5K Following
Harley Darbonne @HDarbonne22153
44 Followers 5K Following
Elle Lauzon @ell_lau
45 Followers 5K Following
Marisha Coswell @maris_coswe
53 Followers 5K Following
kidsnurturingnook @kidsnurturenook
114 Followers 332 Following For teachers by a teacher💚 https://t.co/H0ndKQNSN1
Sinesi @Sinesi277125
49 Followers 2K Following
Alexis Ratzlaff @ARatzlaff79138
21 Followers 2K Following 🌐Alexis ~ 24 ~ Biggest crypto casino presale👇🚀
Rahma Keniry @RKeniry14373
59 Followers 5K Following
Wren Haq @HaqWren4614
40 Followers 5K Following
Noemi Sylvester @no_sylves
44 Followers 5K Following
Mary Darlene @MaryMoon007
1K Followers 4K Following Crohn's Warrior 😷💩🎶 It Could Be Worse Blog💻📰💪💜USN Veteran 🇺🇸 Vampire💉MUAH Model ✂#marywiththegreenhair #ibdambassador 💚🖤
lynne disabled @DisabledLynne
92 Followers 4K Following Never give up always smile share positivity all the time living with a disability
KT @sick_but_trying
63 Followers 83 Following Trying to spread awareness about rare diseases & the struggles patients face through my own experience.
Dan Kinsey @DanKinsey8
221 Followers 440 Following Former nurse now TAVI guy for Biosensors. Long suffering Leeds fan. Sufferer,Podcaster on life with chronic illness (link below)
Beat NCDs Zimbabwe @BeatNCDsZim
1K Followers 4K Following Amplifying the voices of people living with NCDs(PLWNCDs), seeking to create an enabling enviroment that puts them in the centre of NCDs response
Fibro and Chronic Pai.. @FibroBeGone
596 Followers 463 Following Visit our Chronic Pain FB page: https://t.co/fl5MoUibrl or Visit Instagram: FibroAndChronicPainSupport #Fibromyalgia #FibroBeGone
slinkymahlinky🏳️.. @slinkymahlinky
150 Followers 601 Following Caregiver, driver of the chronically ill, a fixture in waiting rooms throughout the nation. Part time fell omen. The pharmacists know me on sight
Catina | Nurse Loves .. @catinamorrison_
251 Followers 488 Following The 1st Chronic Illness Health, Career & Business Support Network where Inflamed Sisters stop hiding and start thriving together 🔥💜 Collab Liaison📍FL
Thomashilfen North Am.. @thomashilfen
949 Followers 3K Following We are Your Expert for Special Needs Strollers, Car Seats & Mattresses tailored to the Needs of Wheelchair users & People with #Parkinsons #Alzheimers #Pain
Mariana Lewis @Mariana_Lewis1
257 Followers 271 Following Educational Psychologist. Pronouns: She/Her
Cifnuk @cifnuk
11 Followers 47 Following A friendship/support group for adults with a chronic illness in the U.K.
DINET @DINETorg
1K Followers 465 Following The Dysautonomia Information Network is a volunteer run nonprofit organization dedicated to promoting dysautonomia awareness, education, support and networking.
claire.camara @clairecamara1
123 Followers 451 Following Children's nurse, Researcher and Children's Nursing Lecturer at Northumbria University. Mam, plant killer, reader and wild swimmer when not at work!
Orkney Fibromyalgia S.. @OSufferer
4K Followers 5K Following Writer, aspiring speaker, blogger, Advocate for Fibromyalgia & Invisible Disabilities. Fibromyalgia, FND & MECFS sufferer for over a decade.
The Mickey Mouse Trap.. @BackOnTopWI
216 Followers 3K Following
Bethany @ChronicallyBeth
14 Followers 64 Following • blogging my life, sharing experiences and raising awareness for chronic illnesses • 🎗
Zoe Elliott @BobbleHeadZoe
112 Followers 328 Following Hi, first & foremost I started this to help my current gofundme - I also wish to tell my story of EDS & comorbidites, along with CCI & AAI, ending in surgery. X
living with hidden pa.. @JacobTh57518506
22 Followers 14 Following Simply a chronic illness blogger sharing experiences and tips I’ve learned battling with my body since birth. #chronicillness, #EDS, #SLE, #MDA
AmIdisabled? @AIdisabled
6 Followers 58 Following
Cathy Board @cathyboard
240 Followers 91 Following lucky lady to be mum to the most awesome daughter and wife to best hubby you could wish for. So they tell me
Harebell 🩷🐰🩷 @tinnershares
3K Followers 3K Following Ordinary person. Mother. Loves art, history, wildlife plus my doggies. Nature is comfort and therapy. Still learning. Keeping going for now.
Sick Girl Probsss | A.. @SickGirlProbsss
608 Followers 556 Following 👽I'll be your disabled alien today🛸 •Coping with lifelong chronic illness & pain Co™• |🦓 MALRO • EDS • IC • POTS • IBD • C-PTSD • FIBRO • MCAS • && more fun.
DaisyHannah @DaisyHannah14
14 Followers 75 Following Founder of https://t.co/TbnVawanm0 Finding a quality of life with M.E One of Millions Missing 🌼
Jessica Tye Shroyer @JessTyeShroyer
166 Followers 3K Following
Onyx Support @OnyxStudents
371 Followers 988 Following Supporting You to Overcome The Barriers of Education Through Mental and Physical Health Support
❤️🔥 Kandi �.. @kandirankin
731 Followers 5K Following An educator, mom of Kriss. Working towards becoming a state national to break free from this US Corporation!
Phoenix Rising @aboutmecfs
7K Followers 4K Following A community for people with Myalgic Encephalomyelitis & related conditions. Fibromyalgia, Long Covid, Dysautonomia, EDS & MCAS all welcome!
Jane Murphy @JaneMurphy_1
449 Followers 453 Following Research Officer, Health Research Board (Evidence Centre) @hrbireland
Salus Fatigue Foundat.. @Salus101
507 Followers 2K Following Salus Fatigue Foundation is a not for profit organisation that provides support, education and help to inspire people living with fatigue related conditions.
ChronicallyFullySick @ChronicFullSick
2K Followers 3K Following A rude & silly chronic illness podcast, with two sick Aussie trashbags. Chloe @chlosarge & Jo @joannajnilson. We also kill Instagram @chronicallyfullysick
NewFrame @NewFrameThePain
980 Followers 3K Following NewFrame is a digital health platform that supports physical therapist's care for patients with chronic pain 🔬 🧘♀️💤🥑🏃♀️🩺
Journey @mindfuljourney7
13 Followers 181 Following
Georgiana @mybeautifulTr
828 Followers 2K Following Author, Speaker, Educator https://t.co/NiTrfvdS6Z purplemaynz-instagram
Princess, The Tower @APainPrincess
28K Followers 27K Following Chronic Pain Healing Portal for everyone affected by severe #chronicpain & #chronicillness—by a princess with full body #CRPS #Fibromyalgia #PainSupport #CPP
Tom Kindlon @TomKindlon
14K Followers 578 Following With ME 35 years (29 yrs severe). 95% of posts on #MEcfs/#LongCovid/#chronicillness. 26 publications in peer-reviewed journals. @IrishMECFSAssoc trustee 27 yrs
Cynthia Covert, The D.. @TheDisabledDiva
17K Followers 13K Following 🤕My chronic life, 💡lifestyle tools, 🛍 product reviews, & 🏰 Disneyland accessibility ♿️ 💜 Fibromyalgia 💙 Psoriatic Arthritis 💛 Endometriosis
A Chronic Voice @AChVoice
18K Followers 14K Following I aim to share #chronicillness & #chronicpain news & stories fr VARIOUS perspectives. #Lupus #Sjogrens #AntiphospholipidSyndrome #epilepsy #anxiety #depression
Sara Luterman @slooterman
31K Followers 6K Following Caregiving reporter @19thnews. Opinions are my own. Send tips to: [email protected]
Frances Ryan @DrFrancesRyan
54K Followers 694 Following Guardian columnist and journalist. Author of Who Wants Normal? (2025) and Crippled (out now) E: [email protected]
Poppy Field @p0ppyfield
12K Followers 3K Following ♿️ Comms & Accessibility. Adaptive fashion/games 🎙️@CallMeDisabled Podcast w @acast. Community @ @OpenStyleLab & @AdaptFashionUK She/Her [email protected]
Henry Anderson @macanders
2K Followers 2K Following Like painting, literature and stuff | Author | M.E. | English grad | Cancer survivor |
Mikes Recovering @mikes_recovery
2K Followers 1K Following @[email protected] BLM, Indigenous Lives Matter. Survived Cancer, PTSD, Osteoarthritis, OIH, MH, Depression & more. He/him
#MEAction Network @MEActNet
20K Followers 3K Following A global network fighting for equality for Myalgic Encephalomyelitis. #MEAction #MillionsMissing https://t.co/JhhNZoFYJi
Fibro Bloggers @FibroBloggers
18K Followers 9K Following Connecting fibro bloggers, inspired by all the #fibro bloggers and their stories at Fibro Blogger Directory #FibromyalgiaAwareness #FunnyFibro #FibroFriday
Jesse Zook Mann @zookmann
46K Followers 5K Following Couple and Family therapy student. Emmy-winning documentary maker. Tweeting on mental health recovery and hope ✌️✡🗽 #pma #nevergiveup
Rare Disease UK @rarediseaseuk
22K Followers 2K Following National campaign run by @GeneticAll_UK to improve the lives of those affected by rare conditions and all who support them. #RareDisease.
❤️🔥 Kandi �.. @kandirankin
731 Followers 5K Following An educator, mom of Kriss. Working towards becoming a state national to break free from this US Corporation!
Liessa likes to read .. @Liessa_foo
184 Followers 867 Following Keeping up with scientific & other developments regarding ME, Dysautonomia, and other conditions which overlap.
Trace Evidence @TraceEvPod
14K Followers 6K Following Weekly True Crime Podcast focused on unsolved murders and disappearances. Contact: [email protected] Hosted by Steven Pacheco.
Luned-Mair Barratt �.. @LunedMair1
428 Followers 2K Following They/Them, Nonbinary, Queer, Asexual, @plaidifanc Co-Chair, @PlaidIfancAber Co-Chair, Student, Views and opinions are my own
Shruti @morethanmylupus
2K Followers 817 Following disabled. books are life. daily fight vs. lupus & fibromyalgia. 37yo. tea addict. rescue pup Ollie🐶 - mostly on IG & TT @morethanmylupus she/her📚🦋💜 ☕️
Lisa @LisaSmithTX
2K Followers 2K Following In LOVE w/my Hubby💋Mom to 3💘Thankful for MERCY&GRACE❤️God⚓️People💎 #Spoonie So on & so forth🙄 #ASUMom #TSUMom #bleedpurple *NO DMs PLEASE, thanks!
St. Augustine @CabbagesHusband
606 Followers 508 Following Lover of #Christ, Love my Wife, #Catholic, Pup Dad #Rheum #Spoonie #F1
Shari Mimms @sharimimms
2K Followers 238 Following Ret. RRT supv.; Wife to a wonderful man for 39 years; Mom to 4 terrific kids; Nana to 4; Daughter to the Most High King! Fibro/ME/EE/Arthritis fighter
Tina Zed @FoggyTT
1K Followers 2K Following Passionate about nature! survivor of abuse living with a chronic illness. Loving life, friends, family, walking and smiling! #Fibro # Birds #Outdoors #Beach
MellyBean 💙 @MellJennings_
3K Followers 2K Following #ProudMum of2 Fantabulous girls. 2 gorgeous furbabies, Devoted 2 raising #ChronicPainAwareness, #Fibro #HMS #CFS #Lupus etc.
My Fibro Funk Life @FibroFunk
977 Followers 885 Following #FibroWarrior for the past 20+ years. Battling daily for more #spoons, & less #migraines, #chronic back pain, #depression, #anxiety, #chronicpain, #Insomnia
Fibro Warriors @Fibro__Warriors
3K Followers 2K Following Support Group/Family & Inspiration for Fibro Warriors
Arun Dahiya @dahiya_anu
5K Followers 3K Following (she /her) .Eternal Sunshine in this void,feminist,always reading, teacher,pixie soul, chronic illness and disability activist
Sumaira Flower 🍉 @SumairaFlower
1K Followers 249 Following 🌏 Global citizen 🌺 Founder of @thesumairafdn 👸🏽 Miss Bangladesh-USA 2015 🇧🇩 views are my own
The Sumaira Foundatio.. @TheSumairaFDN
1K Followers 481 Following Raising global awareness of #NMOSD & #MOGAD, building community, supporting research, advocating for rare disease patients/caregivers.
Cindy Fincham @cinfin63
72 Followers 166 Following Advocate for #NeuromyelitisOptica, aka #NMO, #NMOSD, #DevicsDisease.
Aidan Bizony ♿️ �.. @AidanBizony
1K Followers 3K Following #DisabilityRights #Blogger, #English #Graduate, & current #Law #student. #Bisexual 🏳️🌈, #disabled ♿️ #Wheelchair-user. Views are my own. He/him
City of New York @nycgov
1.4M Followers 256 Following Official New York City government Twitter. Join us for #NYC #news 🗞️, #photos 📸, #free events 🎊, real-time #notifications 🚨, and more. We ❤️ NYC.
Lupus Group Ireland @lupusgroup
2K Followers 2K Following @LupusGroup is a support + awareness network for lupus in Ireland. The Group is run entirely on a voluntary basis by people with lupus.
Asthma Council Aus @asthmacouncilau
2K Followers 1K Following Australia's lead national authority on asthma, working to improve health outcomes for people with asthma. RT ≠ endorsement
Sound Asthma @AsthmaSense
1K Followers 2K Following Tweeting, listening and connecting about asthma-related concerns. Comments and opinions should not be considered medical advice.
Asthma + Lung UK Rese.. @aluk_research
5K Followers 958 Following Dedicated to furthering our understanding of lung health. We fund research to prevent, treat and cure lung conditions. Part of @asthmalunguk.
AsthmaFndation @AsthmaFndation
2K Followers 456 Following Asthma and Respiratory Foundation NZ is a registered charity that has helped New Zealanders breathe easier for over 50 years.
Asthma New Zealand @asthmanz
616 Followers 432 Following Asthma NZ provides services and information to help people with Asthma. One on one consultations with registered nurses keeps Asthma and triggers under control.
Allergy & Asthma Netw.. @AllergyAsthmaHQ
10K Followers 4K Following 🌟 Allergy & Asthma Network unites and advocates on behalf of 60 million Americans with #asthma 😷, #allergies 🤧 and related conditions. Learn more ⬇️
Asthma Australia VIC @AsthmaVic
1K Followers 479 Following For 50 years Asthma Foundation Victoria has provided advice, education and training to people with asthma, their carers, health professionals & the community.
Ann Wu MD MPH @Asthma3Ways
2K Followers 949 Following Assoc Professor at Harvard Med School & HPHCI @DeptPopMed, pediatrician at Boston Children's Hospital, Director of @CHeRP_DPM & @PROMoTeR_DPM, My views: https://t.co/Dr4pTvcvu8
Asthma.ca @AsthmaCanada
7K Followers 497 Following Asthma Canada's mission is to help Canadians with asthma lead healthy lives through education, advocacy and research. Account monitored during business hours.
Asthma Society of Ire.. @AsthmaIreland
9K Followers 2K Following Stopping asthma deaths in Ireland. For asthma advice free-call 1800 44 54 64 or WhatsApp message 086 059 0132. Part-funded by Scheme to Support National Orgs.
The Allergy Asthma & .. @AllergyASC
5K Followers 3K Following The Allergy, Asthma & Sinus Center cares for people suffering from allergies, chronic sinusitis and asthma. More than 30 locations in TN, KY, GA and LA.
CDC Asthma Program @CDCasthma
5K Followers 153 Following Helping people with asthma live healthier lives by gaining control over their asthma. Teaching schools, health workers, & others about asthma and asthma control
Asthma + Lung UK @asthmalunguk
56K Followers 8K Following We fight for everyone’s right to breathe. From research + campaigning to advice + support, we're the UK’s leading lung charity. Monitored Mon-Fri, 9am-5pm.
Moraima Capellán Pic.. @Moraima_CP
678 Followers 887 Following Made in Dominican Republic. Raised in Brooklyn | Wordsmith & Yoga Teacher | Ask me about congenital heart disease
Karen @krnrn
404 Followers 895 Following Biking, a little running, a lot of sports fan & congenital heart disease survivor mixed altogether.
Yellow Brick Road @YBRFoundation
427 Followers 246 Following Foundation that assists children suffering from Congenital Heart Disease in honor of our son. Holden's film: http://t.co/wUGXdUeOKB
Katie Lynn Scoggins @klac14
789 Followers 552 Following Vocal Teacher, Singer, Song writer ambassador for Plexus! Passions are Jesus, Congenital Heart Disease, music! 23 year old single ventrical heart patient.
Children's Heart Surg.. @CHSurgeryFund
3K Followers 2K Following Supporting children and adults born with congenital heart disease across our region. 💗 Donate today and save lives: https://t.co/cYf4h6ZCmM
James R. Priest MD @JamesRPriestMD
1K Followers 1K Following Physician-Scientist interested in all forms of inherited heart disease (he/him) all opinions my own @[email protected]
Amy Baier @AmyBaier1
2K Followers 161 Following Mom💙💙, wife of @bretbaier, chair foundation board children's national, congenital heart disease ambassadar
Fred Wu, MD 🫀 吳�.. @FredWuMD
8K Followers 2K Following I take care of adolescents & adults with congenital heart disease. #MedPeds #ACHD @BostonChildrens @BrighamWomens. Clinics in Boston, Providence, & Lebanon, NH.
Anna David @PrenatalTherapy
3K Followers 348 Following Obstetrician and specialist in maternal fetal medicine, with an interest in developing prenatal therapies for pregnancy complications and congenital disease
Marni Basto @DrMarniqueB
2K Followers 670 Following Urologist in training and Mum of two. Doctorate. Congenital Heart Disease #CHD parent and advocate
Receptions4Research @R4Rfoundation
1K Followers 29 Following A 501c3 organization focused on two main causes. 1) The HEARTest yard: Benefiting Congenital Heart Disease 2) Receiving Hope: Benefiting Cancer Programs
dr abhijit sarma @abhijitsarma
8K Followers 374 Following Asso Prof of Surgery / Superintendent, Gauhati Medical College Hospital,Assam.hates hypocrisy,split personality & double faced people
UF Congenital Heart C.. @UFCHC
838 Followers 195 Following The UF Health Congenital Heart Center offers patients of all ages comprehensive care for congenital heart disease and acquired pediatric heart diseases.
Kristi Hopkins @NFMommy
2K Followers 2K Following Speaker and advocate for those living with Neurofibromatosis. Living and THRIVING with Neurofibromatosis....Speaking and Helping people learn to THRIVE!@BoldlyTweeting Just make sure you have one of these.😬 Image: red inflatable U shaped neck pillow.
This is the last place I would eat at the food court...
Powerchairs aren’t just for elderly people ow.ly/DF1g30kO1C2
ASOS Collaborated With A Para-Athlete To Create A Festival Outfit For Wheelchair Users ow.ly/pHlK30kRPbR
I don’t want to be sicker. At the same time, I don’t know that all these concerns over my GI tract are unfounded. I know my pain is real.
13 Reasons Why Coping with Chronic Illness is Hard ow.ly/8FTb30kO1Bb
New Diet, New Life: mamasick.com/2018/05/new-di… #diet #diabetes #diabetestype2, #celiac #glutenfree, #spoonie
Holy shiet I’ve been on twitter for 7 years now. #MyTwitterAnniversary
Rochester Twitter forever changed on this day 9 years ago. #MyTwitterAnniversary
Woooow i joined Twitter 9 years ago today!!! #MyTwitterAnniversary
Oh hey! Its my Twitterversary. 10 years of random thought ;-) Do you remember when you joined Twitter? I do! #MyTwitterAnniversary
"Which Sex Positions Are Best For Wheelchair Users?" Our resident Headboarder Andrew Gurza advises bit.ly/2IhSxXX
Cindy Fincham: PLEASE SUPPORT BARBARA LEE’S - BILL H.R. 326 THE NEUROMYELITIS CONSORTIUM ACT - Sign t... change.org/p/cindy-fincha… via @Change
@loosewomen No! Parents should take more responsibility.
@loosewomen No, they should spend the time and effort putting food tech back into primary schools and teaching kids about food and how to ccok
@loosewomen Schools should focus more on EDUCATING children on healthy and balanced diets. Teaching about meals, snacks, showing the amount of sugar in foods. Never underestimate the power of educating children early!
@loosewomen That's like asking if work should weigh and measure adults to fight adult obesity. There are many reasons why people are over or under recommended weight. There are often people who eat loads and can't put any on and others who can't shift it!
@loosewomen No. Parents and food manufacturers should take responsibility for this. Leave the schools to educate our children not fix health issues.
Facebook just reminded me that a mere 3 years ago, our little #PURATribe was 8 members strong. Now it’s over 200! Amazing the power of research and social media... #RareDisease #PURASyndrome #SmallButMighty #UltraRare
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